A Survivor's Story
How One Man Uses Natural Remedies to Live a Full Life with Hepatitis C
Ralph Napolitano was interviewed in 2001. Many patients find his story, and the information he has gathered since his diagnosis, to be extremely helpful. His is a message of hope.
I call myself a Hepatitis C survivor because as long as I am breathing I am surviving this enigmatic and potentially deadly disease. I believe that anyone who is reading this interview should start referring to themselves the same way. Calling yourself a survivor is truthful and it is hopeful.
Like many chronic Hepatitis C patients, I found out about my liver disease by surprise. In 1989 I applied for an increase in my life insurance plan. My wife Joanna and I had just had our daughter and more life insurance seemed like a good idea. Needless to say, I was shocked when our agent came to our door and told me I had been denied due to health reasons based on my blood test. He told me he didn't have any specifics at that time but that the only reason he had heard of people being denied due to blood tests was HIV/AIDS. His inept reassuring words were, "Don't worry, Ralph, we all have to go sometime."
This was on a Friday and he told me I'd have to wait until the next week before I would find out specifically what the reason was. I felt like I had been kicked in the gut by a karate expert. Suddenly, my mortality was right there in my face. It was NOT a good feeling. Actually, I think it took me years to recover from the shock of being "unwell". I had always been so healthy.
When I discovered the problem was elevated liver enzymes I began a quest to find out why. The doctor I chose (recommended by my insurance agent) turned out to be over his head with my problem. At our first meeting he kept asking me if I was experiencing night sweats. Finally, after about the fourth time he asked about this, I inquired why he wanted to know. That's when he told me it was a potential sign of non-Hodgkin's lymphoma. This guy was assuming I had CANCER.
I vividly remember him taking blood and sending me for a chest x-ray and telling me he would not have results until the following week. This, again, was a Friday (in fact I recall it was a Memorial Day weekend). The prospect of waiting at least four days for results was unnerving to the max. This was definitely not my favorite holiday weekend in memory.
Anyway, after much fumbling and bumbling and numerous follow up appointments and tests it was determined I had chronic non-A, non-B hepatitis (yes, I was diagnosed in the pre-C days). The only time in my life I had active hepatitis was around the age of 20, several weeks after giving blood.
The blood drive was conducted in the basement of our county center and I imagine they may have been a bit careless with regard to optimum sterility. This was prior to many of the precautions that are taken today. At the time of that diagnosis it was just assumed I had infectious Hepatitis A and my family and friends all needed to get gamma globulin shots.
Right from the time of discovery of my elevated liver enzymes from the insurance physical I began treating myself holistically. I researched all the literature I could find regarding liver disease and natural healing. I combed the library and once it became available I dove into the internet.
I have been a licensed healthcare professional in New York state for over 25 years. In addition, I am the president of Natural Wellness. and the executive director of the Institute for Integrative Healthcare Studies. (IIHS). IIHS provides home study, graduate level continuing education programs for holistic health professionals. In these varied capacities I am an educator, a healthcare professional and a business person.
As host of a public access cable program, aptly named Natural Wellness., I have had the pleasure of interviewing many holistic health and integrative healthcare practitioners over the past several years. This includes holistic MDs, herbalists, aromatherapists, chiropractors, clinical nutritionists, practitioners of TCM (traditional Chinese medicine) and so on.
I have been in the holistic health field for quite some time, as stated above, and actually met my wife Joanna in a health food store in 1987. We have two children, Michael, born in 1999 and Lia, born in 1988.
As for me, I am a corporate dropout. Sales and marketing is my background. My last incarnation in the world of big business was as the director of sales training for the largest newspaper company in North America (1 billion dollars in annual revenues). I was making relatively big bucks but the traveling was keeping me from my young family (plus, helping people through the healing arts spoke more to my deepest self). Finally, corporate life was just not worth the tradeoff anymore. I left there six years ago. It was then Joanna and I decided to start a natural health and distance learning education business from home.
The business outgrew our home in three years and continues to expand but we still work close to home. We often have the children in the office after school either helping out or doing homework or just playing on the computers.
Interestingly, I had been diagnosed with chronic hepatitis many years before and really yearned to be closer to my family and other things that really matter in my life.
Since my diagnosis I have consulted with naturopaths, homeopaths, clinical nutritionists, holistic M.D.s, etc. One of the first products I began taking regularly was milk thistle extract because so much was written about it with regard to its centuries long successful use around the world for liver ailments (and every holistic practitioner I spoke with recommended it without reservation. There was no other herb that had as impressive a reputation as milk thistle for liver support and protection. At that time I started taking the best 80% standardized extract I could find and milk thistle has been the mainstay of my regimen ever since.
2. Tell us how you "discovered" the active ingredient in Maximum Milk Thistle and what gave you the idea to get it on the market. Give us the story of how you have become personally involved in getting a clinically proven natural liver protector to others with liver conditions.
As a lifetime learner and avid reader I am always seeking out new information related to those subjects that interest me. In the February 1999 issue of the International Journal of Integrative Medicine there was an article about milk thistle written by a Naturopathic physician (to learn more about Naturopaths go to www.Bastyr.edu). Most of the article was a rehash of information I was already aware of, but in one paragraph the author mentioned a clinical study on a superior form of milk thistle that was shown to be dramatically more absorbable. She pointed out that one of the only shortcomings of regular standardized milk thistle extract was its extremely poor absorption. By combining the extract with phosphatidylcholine (PC) the researchers had achieved 8 to 10 times more absorption.
At first, in my naive mind I thought all I had to do was take my milk thistle along with lecithin (which contains high levels of PC) and I would enjoy this valuable benefit of more milk thistle getting to my liver. Researching further I discovered that the process was much more sophisticated than that. The researchers had actually bound one molecule from the milk thistle extract to two molecules of PC on a molecular level. The resulting compound was called Silybin Phytosome. . The end result was more like a medicine and less like a supplement. I think of it as a super-charged delivery system. Your body soaks up PC like a sponge soaks up water. The milk thistle extract gets to go along for the ride through your bloodstream to where it does the most good, your liver.
What impressed me the most were the published clinical studies I discovered that had been done showing the dramatic superiority of this product over any other form of milk thistle. There are very few nutritional supplements that have this kind of scientific validation to back up their claims of safety and effectiveness.
With still more research I found that Silybin Phytosome. was available as a finished product through Enzymatic Therapy. (a highly respected nutritional supplement company) and I started buying it at the health food store for my own use. At the same time I kept looking for more information and came upon the clinical studies that had been done with the product. One study done with hepatitis patients showed the median helpful dosage was 240mg taken three times per day.
The bottle of E.T.s supplement contained 60 capsules of 120mg. The recommendation on the bottle called for one to two capsules per day. This was nowhere near what the study recommended. To attain the study dosage I had to take six capsules per day which meant one bottle would last ten days. That would be three bottles per month. At $21 per bottle. It would cost $63 per month which seemed a bit expensive even for such a powerful product.
I knew that this price put the product out of the range of many people who could most benefit from it. It was then I started to research the possibility of Natural Wellness. offering the product directly. Remember, I got into the health care field because I had a strong desire to help people live healthier lives to the best of my ability. I saw this as another way to help others.
Our education business already had a mail fulfillment department in place for shipping our home study programs and I had some knowledgeable associates in the supplement business.
We decided that going direct to consumers through the internet was the most cost effective method and would best allow us to offer the lowest price possible. We were able to get the cost as low as $26.96 per bottle for the same amount of product that would cost $63 through Enzymatic Therapy.. This was a dramatic savings and convinced us we were right to move forward.
In order to contain costs, our first iteration of the LiverSupport.com website was designed with two very bright high school seniors. The major highlight of the site is the clinical study synopses section. Some of the studies are even hotlinked to the National Library of Medicine so people can see that they are medically recognized.
The site went live in August 2000 and we have helped thousands of people get the best milk thistle product at the best possible price ever since.
Incidentally, we recently redesigned the website to be more user friendly and one of my favorite features is on the home page where there are news items regarding hepatitis that are automatically updated on a daily basis. Plus, we have added more clinically proven products and a book Healing Hepatitis Naturally (published by Freedom Press) which discusses clinically proven liver remedies (including Silybin Phytosome.). The book, incidentally, mentions LiverSupport.com as an excellent source for this product. We are very proud of this recognition.
I was specifically diagnosed with Hepatitis C in 1996 (before that I was still considered non-A non-B because I hadn't gone for the Hepatitis C blood test). My genotype is 1a. The last time it was checked my viral load was over 3 million. As I stated earlier, I've probably had this virus for 30 years. Because I have been taking care of this condition naturally since first discovering my liver was ailing, I have been fortunate not to suffer any of the symptoms so many others have.
I have not had a biopsy because the results would not change what I am doing to care for my liver. Current medical therapy is too much of a long shot for me. Especially considering genotype 1 is the most resistant. Plus, I am able to work, enjoy my family and function normally now. I have heard too many horror stories, from the actual people who lived them, to choose a likely debilitating therapy with such low odds of success.
With regard to Maximum Milk Thistle helping my liver, I have no doubt it is beneficial based on the clinical studies I have read about milk thistle in general and Siliphos. in particular. Both in vivo and in vitro, milk thistle extract has been scientifically proven to protect and regenerate healthy liver cells. In most cases elevated enzyme levels are reduced.
Even when enzyme levels are unaffected by milk thistle, fibrosis appears to be slowed considerably according to a study cited in Gastroenterology Journal by Dr. Detlef Schuppan. Dr Schuppan is considered one of the world's leading experts on milk thistle and liver disease.
The German Commission E Monographs (considered by knowledgeable physicians to be the bible of herbal effectiveness and safety) classifies milk thistle as an approved herb. The Commission E is the equivalent of a division of our F.D.A. They were tasked with scientifically validating and rating herbal preparations as drugs (because in Germany herbal preparations are prescribed by doctors). They found milk thistle to be helpful for liver conditions as well as being nontoxic and having no known drug interactions nor contraindications.
Under the category of "Uses" this is a direct quote, "Toxic liver damage; for supportive treatment in chronic inflammatory liver disease and hepatic cirrhosis." Under the category "Actions" the Commission E Monograph has this to say, "The therapeutic activity of silymarin is based on two sites or mechanisms of action: (a) it alters the structure of the outer cell membrane of the hepatocytes in such a way as to prevent penetration of the liver toxin into the interior of the cell; (b) it stimulates the action of nucleolar polymerase A, resulting in an increase in ribosomal protein synthesis, and thus stimulates the regenerative ability of the liver and the formation of new hepatocytes." This means it both helps to protect and regenerate healthy liver cells. Many people ask me if they will see or feel a difference when taking milk thistle products. The fact is that some people do and some don't. Generally, elevated enzyme levels may be reduced (indicating a reduction in the liver cells dying on a daily basis) but this is not true in all cases. Yet, as Dr. Schuppan pointed out, this does not mean the herb is not helping to protect and support healthy liver function and inhibit fibrosis. Some people report feeling less aches and pains, more energy, less brain fog, etc. Because this varies from person to person no promises or even suggestions can be made about how it may affect any individual. Look at it this way, people don't feel a difference taking cholesterol reducing drugs, but that does not mean those drugs are not doing their job in helping to save or extend their life.
Totally eliminating the virus from the body is the holy grail of effective treatment (provided you don't have to kill or maim the patient to do so). I have seen no proof that any natural substance or substances can eliminate the virus from the body entirely. One product I know of has been shown in one small 24 month human study to reduce viral load dramatically, but this was only what most scientists would consider to be a pilot study and the virus was not eliminated in any of the individuals tracked.
I believe some people (who shall remain nameless here ) are behaving irresponsibly. Claims of a cure give false hope. It may help sell products that could actually be of value, but it does so in a way that gives people unrealistic expectations.
Some people who sell products to "cure Hep C" sell them as a "cure" and claim that they have a "cure". Where are the hundreds or thousands of patients that should be cured by now? Where are the verifiable before and after blood tests? I consider myself to be a discerning open minded skeptic. For instance, I have no doubt that certain thymus products can upregulate the immune system and this could be very helpful. But cure Hepatitis C? I don't think so.
As patients we need to remember there are many people selling "snake oil" out there just to make a buck from vulnerable, and sometimes desperate, chronically ill people. This is reprehensible but true. Buyer beware! Look for real scientific studies. Ones that have been published in recognized medical and/or scientific journals.
Take a certain company in Canada. They are selling a product here in the U.S. that they are not even allowed to market in their own country because of the inflated unsubstantiated claims they were making. All their proof is foreign studies that are not even recognized by the western medical establishment (you certainly won't find them at the National Library of Medicine). Plus, this company recommends that hepatitis patients take just their product for six months and no other supplement or herb. Why is that? So the customer won't feel as bad about spending nearly $100 per month on this questionable product? What danger would there be in also taking milk thistle, or schisandra, or dandelion, or artichoke, or NAC, or ALA, or selenium, or a good multi-vitamin without iron?
Another well known company in the liver supplement arena was recently fined $60,000 by the FTC (Federal Trade Commission) for making unsubstantiated claims about their products. This is unfortunate. For someone who is deficient in any of the elements included in their key product, it could have a real beneficial effect. Just don't go claiming it is going to treat or cure Hepatitis C.
There are probably hundreds of natural substances which can be good for your liver, but there are none that are known to be "cures". You need to carefully choose the few or several natural substances that may do you the most good without sending you to the poorhouse and/or thinking they are truly going to "cure" you.
As stated earlier, the key dramatic difference is absorption. Take all the studies about milk thistle benefits and multiply by up to 10 because that is how much more reaches your liver (and how much less goes into your toilet). This also makes Maximum Milk Thistle a much greater value based on how much more actually gets to your liver cells.
There is one other key difference. Explaining it sometimes confuses people, but I'll give it my best shot here. Only the proven most beneficial component of milk thistle extract is used in Siliphos., the active ingredient in Maximum Milk Thistle. You see, milk thistle extract is called silymarin.
When you buy 80% standardized milk thistle that means the raw plant material is processed and purified to contain 80% silymarin. Silymarin is made up of several bioflavonoids. The 3 active ones are silybin (sometimes spelled silbinin or silibin), silychristin, and silydianin.
Silybin makes up 60% of silymarin and has been proven to have the most beneficial effect on the liver. In fact, all of silymarin's beneficial effects can be directly attributed to silybin.
Now, the process of isolating the most active constituent of a plant or substance is not uncommon in pharmacology. The best analogy would be the drug Digitalis. This is a heart medicine. It is derived from the Foxglove plant. It is isolated and purified to be used as a medicine. There would be no additional value in eating an entire Foxglove plant (and it would taste terrible). The full benefit is contained in the Digitalis.
Another example would be aspirin. Originally isolated from the bark of willow trees, salicylic acid has been proven to help alleviate certain aches and pains. While you could chew on a bunch of willow bark and get even more elements that it contains, all you really need is the salicylic acid to get rid of your headache. And it would take quite a lot of bark sucking to give the equivalent of two aspirin tablets.
Now consider milk thistle. Silybin has been shown to be the most active beneficial constituent of the plant for your liver. The company we get Siliphos. from isolates the silybin and binds it to phosphatidylcholine in a patented process which increases absorption. So not only are you getting a super charged delivery system, this system is delivering the most valuable and beneficial constituent of the milk thistle plant.
This is why we can guarantee that there is no better milk thistle product on the planet.
6. Do you think someone with Hep C should take just milk thistle or should they also use other supplements in addition to the milk thistle?
If you are going to take only one supplement I believe it should be milk thistle. Just looking at the published scientific studies should convince you this is your best bet to protect and support healthy liver cells.
Once you decide you are going to take milk thistle you may as well take Maximum Milk Thistle to be sure you are getting maximum benefit at minimum cost. Of course, there are other supplements I believe to be important, too. I would never suggest milk thistle is the only valuable supplement you could take to assist your liver to continue to function normally.
Not being a doctor I cannot make recommendations for other people. I can only let you know what I have chosen for myself and why.
To reinforce the protective and supportive action of Maximum Milk Thistle I have added Liv.52. and Liver Kampo (also known as sho-saiko-to) to my protocol. They are both herbal combinations, one ayurvedic (from India) and one Japanese, respectively.
The reason I chose these is that there is a plethora of scientific validation of their effectiveness and safety. Liv.52. has been most successful with detoxifying certain substances like alcohol. For people who are in a more toxic environment or are concerned about what they ingest (such as alcohol---which is certainly not recommended) then this product may be very helpful. Liver Kampo is produced using traditional eastern herbs that aid the liver. The manufacturer, Honso, then standardizes them and produces the product using pharmaceutical grade standards. In fact, this is considered a true medicine in Japan where it is prescribed by doctors for liver concerns because it, too, has been shown to protect and support liver cells.
These two products are available at LiverSupport.com and at better prices than you can get elsewhere.
Not available at our site at this time, but still on my "A" list are certain supplements you can get in any health food store. These are not necessarily listed in a hierarchial order. The first is NAC or N-acetyl-cysteine. This is readily turned into glutathione by your body. Glutathione is essential for normal phase two detoxification in your liver. You can buy oral glutathione, but it is considerably more expensive than NAC and there is some controversy among biochemists and clinical nutritionists as to whether it passes through your digestive system intact.
NAC is cheaper and it is known to be easily transformed into glutathione in your body. To give you an idea of its importance let me give you this example; if you were rushed to the hospital with Tylenol (acetaminophen) poisoning they would give you intravenous NAC to detoxify the acetaminophen before it destroyed too many liver cells and killed you.
Next there is selenium. I take 200mcgs per day. Retrospective studies in China showed that provinces with elevated levels of hepatocellular carcinoma (liver cancer) were brought to normal levels very quickly by the introduction of selenium to the inhabitants' otherwise selenium deficient diets. As someone with a liver disease, liver cancer is definitely something I want to avoid (and selenium is very inexpensive).
I also take a good multi-vitamin without iron. And, no, it is not Centrum. The brand is Biotics and you can normally only get it through a healthcare professional because it is not sold in health food stores or vitamin shops.
Although Maximum Milk Thistle contains phosphatidylcholine I still supplement with additional amounts. It has been shown to be a valuable supplement for liver health. There are granules from the vitamin company Solgar® that are 95% phosphatides. This is the one I choose. I usually mix it in health shakes I ingest on a regular basis.
Vitamin C, I take 500mg to 1000mg per day. There is some question about it helping to bind iron in the body but I have seen no solid evidence that this could be a problem. In fact, some sources claim it helps to chelate (remove) excess iron from the body.
Vitamin E, I take 400i.u. per day. It is a strong antioxidant.
Alpha Lipoic Acid (a.k.a. Thiotic Acid) is also on my "A" list because it has a great reputation as an antioxidant and antiviral within the HIV community. There is a doctor in Texas who has been getting quite a bit of press with his "triple antioxidant therapy" for Hepatitis C. The keystone to this therapy is ALA. Also included in his protocol is milk thistle extract and selenium (what a coincidence). 600mg of ALA per day is his recommendation and I concur.
Green tea is my beverage of choice because it contains catechins, which are said to be important immune stimulating and healing substances. I drink at least a tea pot full a day. Leafy greens supply chlorophyll, enzymes and other essential micronutrients that are deficient in most modern diets. I alternate between powdered green drink (ProGreens. from Nutricology) and E3 Live. (a living algae product that arrives at my home in a dormant frozen state packed in dry ice).
I am also testing the supplement I mentioned earlier which claims to lower viral load dramatically. The company is very reputable and I have spoken to their president. If my viral load goes down measurably I will feel more comfortable recommending this product by name (and perhaps making it available on the LiverSupport.com website.
There are other supplements I take on an intermittent basis. These include, but are not limited to:
- Schisandra (used in China for liver ailments)
- Dandelion root (a great diuretic and mild liver cleanser)
- Coenzyme Q10 (shown to have immune boosting properties) Thymus supplements (to recharge the immune system)
- Licorice root (used intravenously in Japan and other countries for hepatitis treatment used orally by me)---be cautious with this one if you have high blood pressure
- Digestive enzymes (to help you better absorb other nutrients)
- Astragalus (considered a general tonic to the immune system)
- Tumeric root (a natural anti inflammatory)
- Mixed Essential Fatty Acids in small amounts (fats have a bad reputation, but nutritionally the three essential food classifications are carbohydrates, protein and fats)
- SAMe (shown to be antiviral and help cellular metabolism)
- Picrorhiza herb (said to be similar in action to milk thistle)
- Maitake and shitake mushrooms (both antiviral and immune system boosters)
- Organic liver extract (to help provide essential nutrients)
I also intermittently take certain brand name products that contain a mixture of nutritional compounds (there are almost too many of these to mention). There are many other potentially helpful substances, but the above mentioned are listed because I have found them to be supported with either clinical evidence or a strong biochemical rationale.
I am always on the lookout for new credible remedies or liver support products and am currently in touch with a Vietnamese doctor who has formulas that are said to have dramatic and long lasting beneficial effects.
You can sign up for our update newsletter at the LiverSupport.com website. This way you can stay informed about new and relevant information. (You may as well benefit from my legwork and research.)
8. Do you care to tell us what your personal health regimen is and how you feel it has affected your health and well being.
The most important aspect of dealing with this disease is lifestyle modification. Even to take supplements regularly most people need to modify their lifestyle in order to fit this into their schedule on a habitual basis. You would not believe the number of people who can't seem to take 3 capsules of milk thistle per day on a daily basis, just because they are unaccustomed to making this a habitual part of their lives.
Drinking at least 1.5 liters of water per day is extremely important. Spring or distilled water with a squeeze of fresh lemon juice is the best.
Regular exercise (at least four days per week) is invaluable. Even if you are somewhat debilitated, do what you can to keep your body moving. A little is much better than none. But regularity is keenly important (as with most things of value in life, consistency is more important than intensity). I lift weights, ride my bike, walk and occasionally do a bit of yoga. I was a runner for 14 years but it just doesn't fit into my lifestyle anymore.
Meditation/contemplation and prayer make a real difference in stress management and resource development. Meditation and exercise both help me to reduce stress. And stress seems unavoidable to most of us here in the 21st century so we need ways to relieve it.
I think it is important to read inspirational books. Any of the Chicken Soup books will do (or anything of that sort).
Here are several other books from my bookshelf I would highly recommend:
- Unlimited Power, Anthony Robbins
- It's Not What Happens to You It's What You Do About It, W. Mitchell
- Healing Words, Larry Dossey, MD
- You Can't Afford the Luxury of a Negative Thought, Peter McWilliams
- Life 101, Peter McWilliams and John Roger
- Radical Healing, Rudolf Ballentine, MD
- The Life We Are Given, George Leonard and Michael Murphy
- The Little Book of Letting Go, Hugh Prather
- Natural Detoxification, Jacqueline Krohn, MD
- Timeless Healing, The Power of Biology and Belief, Herbert Benson, MD
- Spontaneous Healing, Andrew Weil, MD
- Why I Survive AIDS, Niro Asistent
- A Brief Explanation of Everything, Ken Wilbur
- The Four Pillars of Healing, Leo Galland, MD
Don't forget or underestimate the power of laughter. That includes both books of humor and movies/videos. You should be able to acquire any of these by visiting your local library and asking the librarian. Even in our little town they have county wide interlibrary loans that put nearly any book or tape I want at my fingertips.
Sometimes what you don't do is even more important than what you do. Alcohol in any amounts is a liver poison, avoid it. Even if that means joining a program to help you stop drinking. Salt should be limited. Fried foods are a real negative. Avoid processed meats and high sugar content soft drinks. Don't overeat. Avoid or limit coffee intake. Eat less processed foods. Eliminate or at least minimize drug use. This includes recreational and prescription drugs and over the counter medications. All of these substances need to be processed by the liver and put more of a strain on it (some more than others, of course).
On the "more" side, eat more whole seeds and nuts for essential fatty acids. Drink more green tea. Eat more green and whole foods. Get a juicer and drink my favorite combo, carrot, celery and beet with a bit of parsley.
Eat more green foods, more raw foods, more fresh foods.
Fruits and veggies are your friends.
Eat more garlic. Raw is best if you don't mind alienating your family or friends for awhile.
Eat more cruciferous vegetables. This category includes cabbage, broccoli, and Brussels sprouts.
Eat organic foods when possible. Your liver does not need the additional work of dealing with any pesticide residue.
Eat whole grain breads.
Oatmeal with a bit of maple syrup is a much better breakfast than bacon and eggs.
I am not a vegetarian, Joanna is. I enjoy lean meats (especially organic). They are a good source of protein. Joanna eats fish and eggs and soy for most of her protein intake.
As mentioned earlier, I am fortunate and grateful that I do not feel the debilitating side effects which often accompany chronic Hepatitis C. This may or may not be because I have been pursuing natural health and wellness enhancement from even before I was diagnosed. Since the diagnosis I have simply stepped up and better focused my healthy living protocol.
You don't have to become a fanatic. Just eat more and more sensibly, exercise regularly, get plenty of rest and find ways to reduce stress (or to minimize its effects on you).
Yes, don't despair. Far more of us will die WITH this disease than FROM it. One of the keys, I believe, is to stay as healthy as possible until a real cure or much more effective (and less debilitating) treatment is discovered. The CDC estimates that 70% of North Americans with Hepatitis C have genotype 1. This is the most resistant type to today's foremost prevailing medical therapy (INTERFERON and RIBAVIRIN). For people who are diagnosed with genotype 2 there is a much greater likelihood that this therapy will work and if I were type 2 I might give it serious consideration.
Be sure to get lots of information, such as what is provided on the healthyhepper.com website and places like hepatitis-central.com. Get more than one medical opinion. M.D. does not stand for Medical Deity. If you can find a bona fide Naturopath in your area, consult with them also. They have a broad range of knowledge in the natural healing arts.
10. What are your thoughts on cirrhosis? Once someone is diagnosed with cirrhosis, is it too late to turn to alternative therapy? Can someone with cirrhosis take milk thistle?
Cirrhosis is a serious condition. Doctors consider it irreversible. Some complementary therapists believe it is possible to slow, stop and possibly reverse it. Certain herbs, including milk thistle) are thought to help with this situation. Again, be informed, get more than one medical opinion, find a Naturopath and never, never, never give up. Vikki Shaw at Hepatitis-Central.com was told she had severe cirrhosis and six months to live. That was over six years ago and Vikki is still going strong (not without some debilitation and discomfort, but she is far from dead and buried).
A true cure would be the complete eradication of the virus from your system forever. This may not be necessary, though, to live a long, productive life with Hepatitis C and die at age 95 in your sleep. You may be able to live healthier and better through natural means. New, potentially more effective and body friendlier therapies are on the horizon.
12. Have you or anyone close to you tried the conventional Hep C treatment? Are you against using interferon/rebetron? What are your beliefs about the effects of this treatment on your health?
I have spoken with over one hundred people, many of whom have tried the therapy in its various forms. Some were on it when we spoke, others had been on it in the past. The minority had minimal side effects, the majority found the side effects to be considerably uncomfortable and more than a little debilitating. Most of them intensely regretted the experience.
Of course, most people calling the office to speak with me about hepatitis generally have not had a successful course of medical treatment. They are what the doctors call "non-responders". They are looking for other ways to protect and support their liver. For genotype 1 patients my gastroenterologist said it best, "Interferon is a drug looking for a disease to cure and with genotype 1, Hepatitis C is not that disease."
While I am not against it, I do believe there has got to be a better treatment coming soon to a doctor near you. Your decision in the meantime is between you, your doctor, your loved ones, and your higher power.
The German Commission E states there are no known drug interactions nor contraindications with milk thistle. Considering the active constituents are bioflavonoids, though, it has been shown to have a downregulating effect on phase one detoxification in the liver. This means some substances will circulate in your bloodstream longer. For certain drugs that is a benefit, but doctors need to be aware of this because it can mean that less of a drug dosage is needed. Your doctor may not want you taking anything else while on the medical therapy because they are unfamiliar with what affect it may have. The final decision, of course, is up to you. After all, it is your body and your life.
14. If someone has Hep C and continues to drink alcohol on a social basis, say once a week, are they doing significant damage to their liver? Can milk thistle help a person who wants to drink in moderation even though they have hep C?
Hepatitis C is a liver disease. It kills liver cells. It can lead to cirrhosis.
Alcohol is a liver toxin. It kills liver cells. It can lead to cirrhosis.
You have probably heard the analogy of throwing gasoline onto a smoldering fire.
If you can't stop drinking completely when you know it can be life threatening in your case, then you have a drinking problem and should get help. Social drinking is to get high. To loosen up. To relax. Otherwise holding a glass of seltzer in your hand would do, wouldn't it? There are other, less toxic ways to accomplish this (and many of them don't even involve the use of mind or mood altering substances).
Breathing exercises are probably the easiest and most effective. There are many books written on the subject. Much of yoga science and certain meditative techniques is based on breath control or pranamaya (its Sanskrit name). The Science of Breath by Swami Rama is one of my favorites. A newer title The Art of Breathing by Nancy Zi can be quite helpful, too.
The key advantage to using breath strategies and techniques is that they can be employed anywhere and at any time.
Chi Kung, Tai Chi and yoga practice all help the body/mind deal more appropriately with stress on an ongoing basis. The results take a while to develop but they are both profound and powerful. Incidentally, none of these require strength or stamina to begin and you can find instruction in most areas of the country or get a good video tape and book combination from somewhere like Amazon.com.
Chanting and toning can also calm the mind and body and there are plenty of books and tapes available on these subjects, as well.
As a licensed massage therapist I would be remiss if I did not recommend massage for stress reduction. Even one full body massage per month could make a big difference in your ability to deal with the stress of daily life.
If you want to use mood altering substances that are less potentially harmful and more natural than drugs or alcohol, there are herbs and supplements to help you relax and/or sleep. Valerian should be avoided if you have liver concerns (even though it is in most sleep or relaxation formulas). Find a formula at your health food store that does not contain valerian and see if it works for you.
For times of intense but not long lasting stress you may want to try "Rescue Remedy". It is a flower remedy mixture that has always worked well for me and my family.
Melatonin and GABA are two substances you should ask your local health food store proprietor about. They may be of help to you depending on how your tension and stress are manifesting.
I suggest you read The Encyclopedia of Natural Medicine by Michael Murray, ND and Joseph Pizzorno, ND for even more ideas.
Incidentally, clinical tests have recently shown that cigarette smoking can exacerbate the liver harming effects of Hepatitis C. So, if you are smoking please find a way to quit. It is a matter of your life. Even if you don't live longer you may live better.
To properly address Hepatitis C you need to address your lifestyle.
15. You have information on your site about how to get involved with issues that affect people with Hep C, politically. Do you get involved with activities that help some of these groups? What do you feel impassioned about with regard to these issues?
Helping create HepatitisActivist.org and encouraging people to go there and write to congress is the biggest and best contribution I could think of making for the Hepatitis C community.
This website empowers individuals, with the help of technology, to quickly and easily write to their congressional representatives (even if they don't currently know who their representatives are and even if they don't feel comfortable writing a letter).
We have developed an easy and effective way for each of us to make a difference. Remember, all of us together are certainly more powerful than any one of us alone. And sending emails from the HepatitisActivist.com website is so easy you can do it once a month (or week).
16. Is there a certain "liver cleanse" recipe that you go with? Like olive oil, lemon and garlic? Do you recommend a certain way of cleansing the liver?
The best way to cleanse your liver is to keep harmful substances out of your body. The most sensible liver flush I have seen is recommended by Christopher Hobbs, L,Ac.:
- Take one cup of fresh squeezed orange juice. Add some lemon to the point the mix tastes sour. You can water down the final mix to make it more palatable.
- Add the juice of 1-2 cloves of fresh garlic (using a garlic press). Grate in some raw fresh ginger root as well.
- Mix in 1 tablespoon of high quality olive oil, blend this in (or shake it well in a glass container) and then drink it up. (Yummy!)
- Follow up with two cups of cleansing herbal tea. There are many available at health food stores today.
- Drink this in the morning after a bit of stretching and deep breathing, then do not eat or drink anything else for one hour. The recommendation is to do this for 10 days during every change of season. Incidentally, I do not like the liver flush that involves large amounts of olive oil and lemon juice. This can put a real shock and strain on your liver.
17. If one splurges on things they know are bad for their liver and then they decide to "clean up" their act, what are the steps you would recommend, what would be your advice?
Hepatitis C patients have a potentially life threatening disease. Why would you do something deliberately bad for your liver if you know it can threaten or shorten your life or quality of life? There is an inherent psychological problem here.
If you do things that are bad for your liver you first need to stop doing them and then you need to start doing the good. Most people know what to do, they just don't bother to make the lifestyle changes necessary to do it. This involves willpower and consciousness, thinking differently, eating differently, drinking differently, dealing with stress differently, etc. It is basically living differently and most people are more apt to go with inertia and do what they have always done. That is one of the reasons Thoreau said, "Most men lead lives of quiet desperation."
You need to be brave to change. You need to want to live differently. You need to want to live. You need a spiritual connection. Most people are stuck just getting by. There is nothing wrong with asking for help. There are professionals who can assist in lifestyle and behavior modification. Don't be shy. If you need help, seek it out.
18. What is the one thing you want to share with people who suffer from Hep C that you think might help them over come some of the difficulties they face?
This disease, like anything else in life, can be a gift. Use it to examine your behaviors, your relationships, your spiritual connection, your sense of community, your compassion, your forgiveness, your love, your death, your values, your dreams, your desires, your fears, your priorities, your accomplishments, your shortcomings, your hopes. It is a wake up call. You are mortal, life is fragile, when all is said and done whether you live ten more years or 100 more, what really matters to you?
Too many of us live our lives based on old habit patterns, not deliberate actions. If you look at the word deliberate it is quite interesting. In its Latin roots it means "of liberation" yet we interpret it to mean "to think deeply and carefully about". This is because thinking deeply and carefully about things liberates you to live your life with clarity and integrity.
Deliberation should be part of all your decisions. Decision, incidentally, literally translated from the Latin means to cut off from. When we truly decide to do one thing we are equally deciding not to do another. A wholesome fulfilling life is not about fence sitting.
Yes, people should avail themselves of the information and resources available to them. This includes what is on the following web sites:
This list is just a few of what I consider the best (and from these you can find others). I hope all of this information has been, or will be, helpful to you. May you be well and stay well, my fellow survivors.
Some of our most commonly asked questions and our answers to them.
Learn about the Hepatitis C Virus (HCV).
Information about the transmission of Hepatitis C.
You'll find links to a comprehensive symptoms list, as well as various studies and discussions about Hepatitis C symptoms.
Learn about the conventional medical treatments used to fight Hepatitis C.
Numerous links to studies, info sheets, FAQs, and analysis of Ribavirin/Rebetron medicines.
Alternative methods of treatment due to side effects and dissatisfication with current medical treatments.
A number of herbal products useful in the management of liver disease.
Stories from those having direct experience with hepatitis c.
Receive the latest news on hepatitis treatments, clinical trials, social issues and important breakthroughs.
Learn about Hepatitis C Genotypes and their variants.
A state-by-state and worldwide reference listing physicians who treat HCV, including an email link to submit your physician for inclusion.
Convenient links to other sites external to Hepatitis-Central.
A Bulletin Board for discussions on hepatitis, treatments, etc.
An easy way to get involved in urging our government to do more for Hepatitis C awareness and treatment research.
Numerous links to various Hepatitis B related information, including transmission, symptoms and treatment.
A comprehensive resource of information relating to the liver biopsy.
Many discussions and analyses of cirrhosis, including causes, complications, pathology, symptoms, and much more.
Commonly used medical terms and definitions.
What they are and what they mean. Helps you interpret & understand all the various hepatitis lab tests likely to be encountered.
Liver Cancer/Hepatocellular Carcinoma studies, info sheets, FAQs, and analysis.
An exhaustive list of links to studies, info sheets, FAQs, and analysis of the various drugs used to treat liver disease.
Provides information regarding the best known liver supporting supplements.
Provides information regarding the best known milk thistle supplements.
Provides detailed information on how to analyze and interpret viral load numbers as well as a link to a convenient Viral Load Chart.
Learn more about various Hepatitis C related topics, including HCV, Ascites, Biopsies, and much more.
Recommended reading for those interested in hepatitis information.