Hepatitis Central

The latest research & treatment news about Hepatitis C infection, diagnosis, symptoms and treatments.

Surprising Data on What Typically Ends the Fight Against Hep C

Nicole Cutler L.Ac.

August 9, 2011

Print this page

Despite a less than uplifting prognosis for those with chronic Hepatitis C, it is not a death sentence.

Receiving a diagnosis of chronic Hepatitis C can easily feel like a death sentence. That’s understandable considering that this infectious disease is hard to cure, is capable of progressively damaging the liver and can lead to a handful of fatal conditions. However, a new study demonstrates that Hepatitis C is far from a fatal illness, as it is surprisingly less lethal than most people realize.

An estimated four to five million Americans are currently living with Hepatitis C. With so many people affected, there is a growing demand to learn as much as we can about this virus and dispel the myths surrounding it.

About Hepatitis C

Hepatitis C is a contagious virus that infects the liver, possibly leading to permanent liver damage, cirrhosis, liver cancer and liver failure. This virus is notoriously challenging for two main reasons:

  1. It’s hard to detect – Because its symptoms are either non-existent or vague and easily mistaken for something else, Hepatitis C is easy to miss. Many infected individuals first learn that they have Hepatitis C after years or even decades of living with it. Unfortunately, a large percentage of newly diagnosed individuals already have advanced liver disease upon learning they have Hepatitis C.
  2. It’s hard to treat – Hepatitis C is a particularly tenacious virus, hence the vast resources the pharmaceutical industry has plunged into improving their weapons against it. For decades, the standard treatment for Hepatitis was interferon and ribavirin – a drug combo that effectively eliminated the virus in about 50 percent of patients. New medications recently approved are expected to increase those odds; however, Hepatitis C is still extremely adept at evading treatment.

The Study on Hepatitis C and Cause of Death

A retrospective study described in the May 11, 2011, Journal of Hepatology, analyzed specific causes of death among people with chronic Hepatitis B and Hepatitis C. The study authors looked at medical records of people with chronic Hepatitis B or Hepatitis C in New South Wales, Australia, over a 14-year span – between 1992 and 2006.

Upon looking at the medical records of over 128,000 people, Scott Walter and colleagues found that Hepatitis C is not as deadly as previously thought. To start with, the researchers found that cancer rates were significantly higher among those with Hepatitis B than those with Hepatitis C. More specifically, having Hepatitis B was found to be significantly more likely to lead to primary liver cancer than Hepatitis C. Most people assume that dying with Hepatitis C is a result of harm the virus has caused the liver. But the Australian researchers found otherwise. In fact, 72 percent of the deaths in subjects with Hepatitis C were from a drug overdose or suicide – not advanced liver disease.

The predominant fear most people have when managing chronic Hepatitis C is that their infection will cause irreparable and life-threatening damage to the liver. Thankfully, this newly released retrospective study demonstrates that the risk of dying from a Hepatitis C complication is relatively low.

During their battle against Hepatitis C, just over a quarter of those who lose their life die from advanced liver disease. Such data should help us direct our attention to the most common reasons those with Hepatitis C die; a drug overdose and suicide. Perhaps funneling resources into drug addiction treatment programs and suicide prevention for those with this disease could make an equally important contribution to the fight against Hepatitis C than the pharmaceutical company’s race to defeat this troublesome virus. In addition, this information demonstrates that most people who die with Hepatitis C do not die from Hepatitis C – meaning that being diagnosed with this virus is not a death sentence.

References:

http://www.hivandhepatitis.com/hep_c/news/2011/0617_2011_a.html, Causes of Death Among People with Hepatitis B and C, James Learned, Retrieved June 22, 2011, hivandhepatitis.com, 2011.

http://www.jhep-elsevier.com/article/S0168-8278%2810%2900945-1/abstract, Trends in mortality after diagnosis of hepatitis B or C infection: 1992-2006, Scott R. Walker, et al, Retrieved June 22, 2011, Journal of Hepatology, May 2011.

http://www.webmd.com/hepatitis/hepc-guide/hepatitis-c-topic-overview, Hepatitis Health, Center, Retrieved June 26, 2011, WebMD, LLC, 2011.

FREE Shipping when you spend $75

Posted by Nicole Cutler L.Ac. on August 9, 2011

Requirements for using and reposting articles

  • Cordie Winters

    Yes you do…..

  • Tab

    My experience so far; I’ve got Hep C while serving overseas (dentist) in 2003 n I have geno type 1A, I’m 45. The 1st year long treatment (ribo n interferon) was an extended flu in which I worked n attended military courses on. All I got was lower viral count but no remission. The 2nd year long treatment ( peg n interferon) was negative til 5 months later. While on treatment I had to take synthetic ammune system booster cause the meds suppressed mine for 7 months. It took about 6 months after treatment to go in public cause my ammunity was so vulnerable to everything n I got a clot in my upper colon that MAY or MAYNOT be associated with the treatment (there have been a few other cases in Japan of treatment) It took a toll on me mentally wondering if there was something I could have done better to have kept the remission longer, which made me depressed for a while. I had to leave the Army n move on! I took up horses that make me get out of bed n exercise everyday n help forget my problems, even if its only for an hour. I am about to start the new combo 2013 (Canada) interferon, ribo, peg treatment, but I no longer look at is as a cure, but to buy time. Everytime I finished a treatment the pain from enlarged liver n edema would subside for a while. I’ve learned to ask for help, realize I have limitations, keep a GOOD support group around you n live life like its your last to keep you mentally strong!!! For me this was an eye opener n life changing experience. It has made me realize whats really important in life n to life the one life we live n whose going to pass on the memories, so make it count!!!

  • 141park

    okie49,..and I will keep You in my thoughts… I’m scared, too. ‘Tested positive for HCV in 2002; now it’s 2013, and Ive a crazy-high viral load but a very good, clean liver. WHAT does that mean?!! No one wants to tell the truth , it seems, in that this atricle suggests that people don’t die from complications of HCV but do die of suicide/OD (72%..?) and “just over a quarter ” die of liver disease. I have no health(HA!) insurance, and there is no “good” outcome. I have found most articles about “new and Improved treatments” are primarily sales adverts. Nonetheless… I would really like just 1 good night’s sleep. Really, does anyone know/ could anyone tell me about sleep disorders, Hep C, and how to get any help?

  • dirtdiva

    I was diagnosed with Hep C when I was 21, I’m now 46. I have genome
    4c contracted from someone who had been overseas. I was
    diagnosed with A,B and C all at the same time. I was told the Hep A
    manifested in the worst symptoms of flu like aching and lethergy – air
    borne. The Hep B was the virus that attacked my liver so ferociously
    and almost killed me. The Hep C, is the chronic illness that does its damage slowly
    and causes the liver to deteriorate over time in conjunction with one’s
    lifestyle – so I’ve been led to believe. I’m not a host
    carrier of
    Hep B as my system cleared it so I can’t pass it on, my liver enzymes
    (ALT) hover in the area
    of mid 20′s as a rule, but have been as high as 200 in times of stress
    and pregnancy vs the normal 5-15 in a person without Hep C. I do not present any symptoms such as jaundice, fatigue,
    spatulate fingernails. I’m physically fit, slender, happy and work long
    hrs. I drink a few glasses of wine each week and have for years. I have a healthy lifestyle and don’t harbour stress. I have not taken the interferon/ribivarin treatment due to the 35%-55% possibility of being “cured” with the genome type I have. My liver specialist is terribly frustrated because of this and my refusal to even get a biopsy. “If it ain’t broke don’t fix it”. I don’t want to be a victim, I just want to live, albeit a possibly shorter life, and don’t feel or look stricken with a chronic disease. There must be many like me out there as I believe over 30% of the people in N. America who have Hep C don’t even know it.

    • Camilla

      Exactly! Refusal to be poked, prodded, biopsied while maintaining healthy labs, healthy/happy life along with healthy wine and regular spirited exercise can frustrate those that don’t adhere to the “if it ain’t broke don’t fix it” mentality, which; is far from the same as “ignorance is bliss” -

      During the late seventies, the diagnosis was non a, non b – regretfully, the people that I’ve know that have taken the “anti” viral cures/treatments – well, they are no longer alive.

      Over the years, one must become adept at dealing with, at times, sneering medical personel that judge one by their honest admission of Hep C on the customary forms filled out while at a new provider.

      Look well, feel well, Smile and Love your Life -

      • Dee

        Oh boy. I would like to agree as I am a hedonist at heart, but its all fun and games until you are spending your days on the floor in the bathroom, throwing up and delirious. I used to party hard for the first 20 years after getting hepc, with no symptons, and then bam! Do as you please, but know that alcohol is the most harmful thing to do to your liver if you have hepc.

  • John Hodgkin

    Dear, stuart H. I understand. If you read rndld’s comment you will see, or try to understand why I posted my comment.

    Most people when they are diagnosed with Hepatitis-C are put into a complete realm of fear. To do Tx, or not to. If you don’t, you will progress and then be subject to death from this virus.. This happened to myself when I was diagnosed in 1998. Still the dark ages concerning Hep-C. I am truly sorry that you didn’t understand what I was trying to say.

    I am in medicine and extremely educated about this virus. It was the comment made: “take the drugs” they are even better now, “fear will kill you” not the drugs. That made me have to comment.

    I have no attitude concerning anyone’s choices. Just people scaring others into “Fear Based” medicine. The Tx works for some and not for so many others. I do not go around “stomping” as you say upon others hopes and choices. I just don’t like posts or comments that could cause people to do Tx, or something else out of Fear!

    What I posted was factual based lab and virology findings. If you have done research on the Tx you will understand more of what I was trying to explain.

    I have lost several friends who have done the Tx and had been told they were “cured” and started drinking again. I’m sorry if you think I am a hipocrit and have a bad attitude.

    But there is nothing I can do about that. We are each entitled to our own opinion’s and I respect that. I feel no shame in what I posted, I’m sorry you did.

    Dali Lama: There is no control, only influence.

    • Susan

      Is English your 2nd language. If so, I will overlook your grammatical mistakes. You are generalizing your collection of unsupported information. Obviously, medicine experience is that of a patient. I, also, have hep c. But, I rely on one of the best hepatology and transplant centers in the country. Lookin forward to new type 1 tx..
      .

    • Judy

      Dear John and Stuart,
      BTW you both spelled hypocrite incorrectly : ) lol
      John, what you wrote really is very discouraging but I would rather the truth than to have it sugar coated. Thank you for your candor.

  • roeenna

    me too, have not even been to the dr’s yet and was dignosed, they were looking for something else and found this…so now ontop of everything else I have I have this too….Damn when it rains it really pours for me!!

  • roeenna

    Why am I not scared. I was just diagnosed and have not even had my first appt. with my Dr. yet…I have had so much wrong with me for the last 10, 15 years that this is just another one to deal with? I guess I need more info.

  • Nuet

    Hi this is the first time on this sight, writing anyway. I read alot comments and sometimes it scares me but also informs me on what others like myself are dealing with. I was diagnosed with HCV 36yrs. ago. I had my first biopsy 35 yrs ago and was told I woulden’t live long? I’ve only had one other biopsy about 15yrs. ago. Since I have no plans at this time to start any treatment I have not done another biopsy. At this time in my life I am just trying to eat healthy, no alcohol, plenty of rest and light exercise, walking and yoga and I do smoke and also juice marijuana .So far so good. I believe I will some day die with this but not from it!

  • Shannon Tucker

    Thank you so much. No fear and take charge is my moto in working with hepc. I have been infected for probably 38 years. I am a beautiful 60 yr.old woman who lives alone and counts every minute of every day as a blessing. I do everything I know of to combate fatigue and depression. Most reciently, ALA I.V.s which I had to discontinue after 2 months because my vanes, arms and legs, were screaming to stop. Also Myers cocktails. Wonderful stuff. So I do it orally. Most depressing of all, I am a massage therapist and love my work. I have had to cut way back on how many people I work on a week. hardest of all, I have to educate clients about hepc. They are not going to get it by recieving a massage from an infected person.. Next worst thing, I have little if any support from family or friends. Its a tough road . Be strong , and thanks for speaking the truth so clearly. God bless you.

  • Shannon Tucker

    This is so reassuring for me to her you drs. talk about having hepc. I have a question. Do you have an obligation to inform your patients? Like I was telling you, I am a body work therapist and nutritional coach. Some times I just keep my mouth shut. But is that right?

  • Shannon Tucker

    Depends on what geno type you had [have]. Geno type 1 does not respond well to the treatment that made you feel better.

  • Waiting so long

    Hey everyone my transplant team dr @ Johns Hopkins hospital say new drug will be out in Jan 2014 interferon free and it will get rid of the virus……..yes it’s true…wooohoooo yay

    • Chidy1000

      I like your attitude. Also this forum is really nice, you see people struggling like you and laughing at the problem. As medical readies to come to the rescue

    • Riley

      See Cosmos study. I went through a transplant clinic at very reputable hospital…..Genotype 1a, tested favorable for the “CC” allele (?). No idea what it is. Sovaldi/Olysio for 3 months. Someone I know completed that same regimen, tested undetectable at end. I’m finding it is better not to take on other commitments right now…exercise soon as doc recommends. I had the Dx in 1996, saw 7 GI docs, not one of them fully informed me about the disease…just had to research it all for myself and ask questions. What I’d like to know is how can 2 – 3 million people in the US be infected with hep c and most of them never shared a needle? ‘Don’t know the stats on this. How did this horrible virus spawn itself? At the end of the day, I’m thankful for the group of docs now treating us at the clinic and equally grateful for help getting it from my Rx plan. Good luck to all who are starting the new meds.

  • Marc Satori

    Thanks John, I thought your article WAS uplifting and I got a lot from it. I was treated twice with interferon and it ended up being part of why I got divorced. They said I was cured the first time and then the second time it just didn’t work, yet I’ve become very healthy by changing my lifestyle and eating well. All this after I had cancer and a resection. So I thing there is a lot to what you’ve said.

  • trotter

    Vietnam Vets have a higher rate of infection from HCV. About suicide/depression, it is proven that Hepatitis C commonly causes depression in and of itself.
    Re: article itself, it’s 1st time I’ve heard or read of suicide or overdose causing the majority of deaths. It needs to be known: we die of Hepatitis C. We fight hard against it but it still catches enough of us that people need to know about us. It seems many experts or others just have to try to make it OUR fault, then they don’t have feel too bad for us, I guess. We are strong, determined people who’ve had a disease jump right in the middle of our lives trying to defeat us. Sometimes we can hold our own, sometimes the pain and weakness overcome us. Join support groups when you can, be together on the internet. Hang together and hang strong. Do your best, that’s all u can do.

  • geegee

    Given that you seem to be incapable of accurate spelling of simple words, this would indicate a likelihood of your being unintelligent, ignorant and uninformed.Stop scaremongering.

  • Chris Raines

    My dad contacted Hepatitis C as a child over 70 years ago. He lived a full life, working 2 jobs…one of them as a farmer, and lived well into his 70′s. No. He wasn’t cured but he never had a reactivation of the virus despite having open-heart surgery and becoming an insulin dependent diabetic. He Never drank alcohol but he smoked like a train. I hope someone feeling despair will take comfort from this. You can beat it. I’m not in medicine and my level of knowledge is minimal but I do know what I’m saying to be true.

    • trotter

      There was no sign of Hepatitis C 70 years ago. Some people are able to work a full time job now, many more are not once the Hep C has progressed.
      Probably the best way to feel is to be scared enough of Hepatitis C to get information (about this terminal disease and your own case), but not scare enough to wake up each day with at least a bit of hope.

  • Rileyann

    I’ve had the diag of hep c for 15 years and visited the top GI doctors (7) in northeast and (1) at a prestigious clinic. Not ONE ever gave me hope. I found it impossible to plan for the future, one day feeling fine, starting a job and getting sick, several bouts of cold/flu and mostly intestinal discomfort. I take a low dose, atypical anti-d. Hep c sufferers need more social support and medical support at least once a week in a group, just like AA people. It is a constant state of anxiety we fight to feel better; being with friends, family helps, but ultimately I’ve found the best peace and well being with prayer and my faith God has heard me and that His power to cure/heal is greater than anything man has made. This is just what works for me. I went through an intense Transplant evaluation for 8 months, tests and more tests, to be told I now have to have another test before I will be given any anti viral drugs.

    • rileyann

      Adding to my own post above: As an instinct, I really felt the auto immune aspect of hep c should have been investigated, although recently I pushed for a final diagnosis on that, I had to undergo my first liver biopsy,, which was horrible, and not done without pain. (at a top hospital, too). Choose your hospitals and doctors wisely…..when first diagnosed, I had not a clue but went gung ho for what seemed like the best medical advice. At this point, with some cirrhosis (don’t know the stage), the docs are more hesitant to treat me with anti virals, tried interferon/ribavirin once while working and felt wrecked every day. GET THE BEST MEDICAL ADVICE AVAILABLE AT THE MOST REPUTABLE MEDICAL CENTERS right away. Keep fighting. I need a lot of rest. My platelet count is low. Understand the warning signs before esophageal bleed. I was lucky to be alive they told me. Severely traumatic. Find something you really enjoy doing or work which is rewarding. Each day is a gift. I feel the NIH and SDC really lagged behind with research. Keep your strength up; some docs are kind and compassionate, some not and will never give you the whole picture. I happen to trust and respect the team where I’m receiving care and being 5″ from the hospital is a great support. I’m mostly alone, too, family and friends can’t empathize. I still have plans and dreams, who doesn’t. Peace,

  • Ethan

    As someone currently doing a residency with a top Liver Center in Boston, I disagree with your assessment. The drug regimens just out of clinical trial demonstrate that the disease can be eradicated from the body without the use of interferon.

    • Riley

      I’m on the combo therapy, day 5 and feel more energy than in 10 years. We will see as I keep focus on month 3.

  • trotter

    Facts don’t agree with you. Left untreated, most people with Hepatitis C DO progress out of stage 1 or 2.

  • trotter

    They now know that Hepatitis C is clinically linked to depression. If you add Interferon tx to this, it causes depression. And I have never seen a study that repeats the results of the 72%. Hepatitis C kills people in and of itself.

  • trotter

    Hepatitis C causes diabetes in some patients.

  • trotter

    Second tx did not get rid of virus. Liver transplant does not get rid of virus.
    Hepatitis C is in our blood and as long as there is a drop of blood in our body, we have Hep C. The best we can do is to lower the amount of virus in our body, which is our viral load.

  • trotter

    This is a year later, but I must say how sorry I am for all you’ve been through.

  • trotter

    Also, the drinking water is not related to Hepatitis C, which is strictly blood borne.

  • Felicity Coombs

    I came looking for an answer to that for a friend who is RH neg. I think she is A- and has recently started Interferon. It is making her incredibly sick and swollen.

  • ray

    A family member was dosages with hep c with genyno type A1 and B3 with load 3000000. And they want him to start treatment asap however the two types conflict treatment correct also A1 is common in America but we live in the mid west is the USA it’s uncommon to have B3 also as of a year ago he was always hep c negative so within a year he contracted hep c with two types has a extremely high load and severe liver damage he is hiv neg ……the doc said he had 5 to 8 years to live if he starts treatment now, and if he don’t he will die within a few years he is only 29 show he get another opinion and have you heard of this and what should I do to support him? Ty

  • Shirley

    I’d like to talk to people who are on the new treatment solvaldi ribivirin and interferon. I’ll be starting my 4th week. worst symtom headaches

  • Riley

    quite a story, I thought mine was hell. I hope you are more stable now. I’ve read that about Big Pharma…..My docs order my labs ahead of time and keep a schedule on patient notes we can access online through the hospital. I know God wanted me to have these meds, I felt almost dead last week after a 3 week cold…was able to get co-pay funding through PAN, meds were delivered, almost missed the driver, couldn’t haul out of bed….it’s a lonely road but for God. Many believers claim to have been cured of viruses, but my body still showed I had it. Now I walk by faith, not sight, being wise to trust some docs, not all. I almost died 2 years ago with an esophageal bleed, was not warned by bad GI doc, after I researched and begged for a beta blocker instead of endosopy, of which I’ve had 5 now, plus emergency one and 3 units of blood. Very traumatizing. I was never warned of the bleeding of portal hypertension, the killer…miraculously, I made it through 2 ers, 3 days in MICU, 3 more in hospital. There are docs who care, those who do not. Now I’m alone, which sucks, but joined an online support group. I do hope your made progress with the meds……God can use doctors and talking donkeys….He is still in charge as far as I believe and knows my frame…God bless. Good luck to all. Sorry I rambled, and hope I did not offend those of other faiths…it is only to share my experience.

Site Topics

  • Frequently Asked Questions

    Some of our most commonly asked questions and our answers to them.

  • Hepatitis News

    Tthe latest news on hepatitis treatments, clinical trials, social issues and important breakthroughs.

  • What Is Hepatitis C?

    Learn about the Hepatitis C Virus (HCV).

  • Hepatitis C Symptoms

    You'll find links to a comprehensive symptoms list, as well as various studies and discussions about Hepatitis C symptoms.

  • Hepatitis C Transmission

    Information about the transmission of Hepatitis C.

  • Hepatitis C Genotypes

  • Learn about Hepatitis C Genotypes and their variants.

  • HCV Viral Load

    Provides detailed information on how to analyze and interpret viral load numbers as well as a link to a convenient Viral Load Chart.

  • Liver Enzymes

    Learn about the importance of testing liver enzyme levels and causes of abnormal levels.

  • Lab Tests

    What they are and what they mean. Helps you interpret & understand all the various hepatitis lab tests likely to be encountered.

  • Hepatitis During Pregnancy

    Learn how hepatitis infection may affect the pregnant mother and baby.

  • Hepatitis C Conventional Treatment

    Learn about the conventional medical treatments used to fight Hepatitis C.

  • Hepatitis C Medicines

    Numerous links to studies, info sheets, FAQs, and analysis of Ribavirin/Rebetron medicines.

  • Hepatitis C Alternative Therapies

    Alternative methods of treatment due to side effects and dissatisfication with current medical treatments.

  • Hepatitis C Natural Remedies

    A number of herbal products useful in the management of liver disease.

  • Top 5 Liver Supplements

    Provides information regarding the best known liver supporting supplements.

  • Top 5 Milk Thistles

    Provides information regarding the best known milk thistle supplements.

  • HCV Diet

    A basic diet for those with Hepatitis C.

  • Hepatitis C Survivor Stories

    Survivor stories that have been shared to benefit others with Hepatitis C.

  • Cirrhosis

    Many discussions and analyses of cirrhosis, including causes, complications, pathology, symptoms, and much more.

  • Hepatitis C Doctors

    A state-by-state and worldwide reference listing physicians who treat HCV, including an email link to submit your physician for inclusion.

  • Hepatitis C Community External link

    A Bulletin Board for discussions on hepatitis, treatments, etc.

Advertisement