The latest research & treatment news about Hepatitis C infection, diagnosis, symptoms and treatment.

Hepatitis C Survivor Stories

As part of our Hepatitis C education and patient advocacy mission, here you’ll find survivor stories that have been shared to benefit others with Hepatitis C. These stories provide a realistic frame of reference for Hepatitis C patients. One that comes from direct experiences – your direct experience and that of other survivors.

If you have chronic Hepatitis C and you are visiting this site, you are a Hepatitis C survivor. This is true regardless of whether or not you have eradicated the virus from your system.

Other survivors could benefit from knowing your personal experience with this disease. What have you done? What have you learned? What do you wish you had done differently? What is most important for others to know?

Please consider that your personal story could be exactly what others need to read to get them through – even if you don’t think there is anything particularly special about it.

Click here to share your own story.


I contracted Hep C from an amateur tattooing by a friend who was unaware he had it. He was just learning and I agreed to let him do a small one. As a middle-class guy with a corporate job, there was alot of shame associated with it. But the reality is that there are many people who contact Hep C who are not intravenous drug users. I'm not trying to shame those who are but simply to let people know that the disease is not something that should carry shame with it. I think for me and many that was the hardest thing to overcome. It is becoming more and more common for insurance companies to cover the treatment without severe liver damage as an indication. That means it is possible and can be affordable to seek treatment. The drug companies and other charitable groups can be very helpful to those who are without insurance. For me the fatigue is the worst. I haven't started treatment yet but will soon. Don't become discouraged. Just keep fighting and seeking treatment however possible.

John V Apr 25, 2017

I was genotype 4 and in Stage 4 with Hep C for over 20 years. I got on the Harvoni treatment. Instead of the 8-12 week , I had to be on it for 36 weeks. They really wanted to get rid of the viral So in late 2015, I was pronounce cured. I have been and will be tested so often, but all have been OK. I know I have damage of my liver to deal with. so I keep a healthy diet and do not touch alcohol. Godspeed to you all

David H Apr 25, 2017

never been treated harvoni works insurance dictates opptional 9 month treatment which may not work my doctors recomendation dosent mean anything i should have had the insuraance company diagnos me catch 22 do what the ins co says reduces my life span harvoi is great so treat me with somthing else and then harvoni might not work well lose either way it seems i work for a fortune 500 company and if i was on medicade i would have the cure in three weeks not 7 months america does not help the working class i should quit and become desitute to get care

barry b Apr 24, 2017

Hi we want medicine for hapetites c to control quickly and clear to the liver deseis and finishing this virus

shah a Apr 24, 2017

I have my ailing mother on bed, due to back bone injury she is unable to walk without attendant sport which is being provided by my wife and children. My mother has also HCV . I was in need of information regarding her handling safely so I search this website. Hopefully I will get the answer I need .

khalid n Apr 24, 2017

I was just told I have hepc, don't see the doctor for two months I am very worried but it can't be that bad of she is waiting that long, had hep a and b when I was younger not sure if that means anything , getting married in Sept just want to get on with my life

Robin E Apr 23, 2017

I got HCV from an infectious needle stick in the blood bank where I worked at the time. Not knowing I was infected I had my 2'nd pregnancy totally sick all the time. It turned out we were both infected . We didn't get treatment but were monitored for the next 18 yrs. I first tried the pegasy interferon route, couldn't handle it. A few years later Incivek came along and we both did that with the ribavarin and interferon and stuck with it. It wasn't easy especially for my daughter but we did it with no viral load detected after the 6 month wait. I just got retested with no vial load detected 5 yrs. later. Guess it worked. I'll have my daughter check if she should be retested. She was a better responder so I'm confident she's OK. Incivek was a great drug with a good cure rate and a grant paid for treatment.

Robin s Apr 20, 2017

HCV treatment in India-My story This story starts with fear and bitterness and ends in gratitude and hope. I am a 63 year old middle class American. My wife and I are semi-retired, and we don’t have health care. In November 2017 I found out I was infected with Hepatitis C, type 2b. My son, a physician, counseled me to have treatment immediately, as I was symptomatic of chronic HCV- specifically chronic fatigue syndrome. Left untreated, 20% of people with HCV develop fatal liver disease. I turned to the internet to learn about Hep C. New treatment options developed in the last 5 years have a success rate of 97%. My feelings of hope turned to bitterness as I investigated further. Cost for the two medications prescribed for HVC type 2b are between $80,000 and $100,000 dollars for the twelve week treatment protocol. Each of the 168 pills would cost between $476 and $595. I would not, could not spend most of my retirement savings on one treatment for one illness. The company does offer discounts to insurance companies and will “give” the medication to the “needy” who can prove they cannot afford it. My stiff necked pride would not let me beg the drug company by proving my “need”. Searching the internet, I learned affordable options were available. The same medication is available in India for less than $1500. India is licensed by the drug company to manufacture HCV drugs used in the “undeveloped nations” of Africa, Asia, and the Middle East. The cost of the medication is set based on the per capita income of the nation- in India, the average income is about $3600 USD. The first glimmer of hope began to emerge. I began to explore treatment options in India. Medical tourism is a growing business there, offering many services at affordable prices, and with quality on par with western nations. India has several companies offering complete services; pick-up at airport, all transportation while in India, hotel and hospital visits and medication delivery. One doctor told me “we treat you like family”. These companies, all located in large cities, charge $2500-$3000 for medical aspects of the trip. Air fare, lodging, food and sightseeing are additional expenses. This is an ideal situation for a person traveling alone or anyone who is apprehensive about traveling in India. All Indian Physicians follow treatment protocols for foreign nationals, including blood tests, ultrasound of entire abdomen, and other tests prescribed by your physician. Treatment protocol for HCV includes a 10 day period after starting medication to determine effectiveness and identify any side effects. As I began planning my trip, I estimated airfare at $1200 from the East coast of US to India, and allocated $50/day for lodging and $20/day for food and other expenses, about $2200 plus the cost of medical treatment, about $5000 total. I am not sure what most people with insurance would end up paying out of pocket, but $5000 was within my budget. My nephew, Adarsh Williams, an advanced level Ashtanga yoga teacher, has years of experience traveling in India and his advice proved invaluable. Major cities like Delhi, Mumbai or Bangalore are seriously overcrowded and magnify the worst parts of India-pollution of every kind; water, air, land, and noise, extreme overcrowding, traffic jams of epic proportions, and the ever present poor. I did not want my visit to India to be spent in such an environment. Adarsh called back a day later and suggested that he and Evan, his nine-year old son, go to India with me. I was so profoundly grateful I wept. This was the turning point of the trip. They were both excellent traveling companions, and we had long conversations about every subject Evan could think of. Suddenly, I had flexibility in treatment locations. My goal was to find a smaller city with quality medical care near an international airport. I learned Goa has an Apollo Hospital as well as beaches and tourist opportunities. My nephew said think of Goa as “India Light”. They, like beach towns everywhere, cater to tourists. But I am not fan of sitting in the sun, so I continued my search. Northern India holds many sacred areas and most of the large cities- and many more people. The northern frontier with Pakistan is still tense, as it has been since separation in 1947. Despite its many cultural and historic sites, my concerns about security and desire to avoid most cities moved my search south. My search ended in Mysore, located in South India. Mysore is considered the cleanest city in India, has many sight-seeing opportunities, and is home to the most prestigious yoga schools in the world. There are many westerners either visiting or living there. Making arrangements myself via the internet, I decided to use Apollo hospital (www.apollohospitals.com) for my medical treatment and chose the Southern Star Hotel as my residence. Apollo Hospitals are privately owned and consistently ranked amongst the best hospitals globally for advanced medical services and has served and over 45 million patients from 121 countries. The Mysore hospital is large, well equipped, and staffed with fine health care professionals. The Southern Star was $64/night, which included a breakfast buffet and Wi-Fi. The hotel turned out to be my oasis from the chaos that is India. The rooms are clean and air conditioned, and the restaurant is good, serving a selection of Indian, European, and Chinese food. It frequently hosts business men and tour groups from Europe. I wasn’t sure I would stay there for the entire time, so I only booked 4 days through an on line agency. After the fourth day, I talked with the manager about extending my stay for an additional two weeks and negotiated a price of $50/night for the remainder of our stay. After a day to recover from the flight, I went to Apollo hospital and at the inquiry desk, told them I was seeking HCV treatment. After paying 300 ($5) rupees for a consultation, I walked to the 2nd floor and waited for the doctor. After a 20 minute wait, I talked to the doctor, who gave me a prescription for an abdominal ultrasound (1000 rupees or $15) and blood work (4600 rupees or $71 dollars). The blood work took 2 days for results, so we spent a couple of days sightseeing. Mysore (or Mysuru), in India's southwestern Karnataka state, was the capital of the Kingdom of Mysore from 1399 to 1947. In its center is opulent Mysore Palace, seat of the former ruling Wodeyar dynasty. The palace blends Hindu, Islamic, Gothic and Rajput styles. We walked through the centuries-old Deva raja Market, filled with spices, silk and sandalwood and powered colors for the upcoming festival. We drove the Gelugpa section of town, the home to the most prestigious yoga schools in the world, for lunch. At a small café full of yogis and yoginis we had our first Thali- which translates as Plate- an interesting meal consisting of a bowl of rice served with three spicy vegetable dishes, yogurt, and a dessert. The flavors were different, but delicious. We spent the rest of the day walking through the area, looking at the many yoga training centers, restaurants and apartment buildings used by yoga students. This area is one of the most affluent in Mysore, and many westerners are seen on the streets. Two days later I returned to the hospital, picked up my test results and went for my second consultation. After reviewing results, Doctor gave me a one month prescription for HCV treatment (two different pills) and was told to return after taking medication for 10 days. The cost of the medication was 23,300 rupees ($358) and was delivered to my hotel that afternoon. I started my medication as soon as it arrived, and spent the week visiting many of the local sights, like the market and palace. After a morning out, I would nap while Evan did his homework and Adarsh worked on his book. In the afternoon we sat by the pool and had three sided conversations about anything and everything, then would walk to town. Indians spend the late afternoon and evenings out, walking and shopping, and we experienced the color and modesty of traditional Indian dress. The third day after starting the medication, I was nauseous and felt very tired. I spent the day in the hotel room watching TV and sleeping. On the fourth day, I again felt better and we went to the zoo. Mysore has a large zoo, with a mile long walking path through the exhibits. The zoo was crowded, and we enjoyed the people watching as much as looking at the animals. I found a smile overcomes language and cultural barriers. Many Indians are very friendly and wanted to chat about my visit to their country. Indians have no concept of the American idea of personal space. Leaving a 12 inch space between you and the next person in line is asking people to cut in line. There are just too many people seeking services. Be friendly but assertive in public places. The Indians also considered three westerners as rare as zoo animals. Several times people asked to have their photos taken with us, and wanted to know about us. We introduced ourselves as uncle, nephew, and son. On my final visit to the hospital, I again paid my 300 rupees, met with the doctor and was given a prescription for blood tests (1100 rupees). I paid and again went to the lab where they drew blood and told me test results would be ready in 2 hours. I went back in the afternoon, retrieved the results. The doctor said my liver functions were returning to a normal range. I shared my journal of side effects and he wrote the prescription for the remaining two 2 months of pills. I took the prescription to the pharmacy in the hospital, paid for the medication, which was later delivered to my hotel. My trip to India had paid off. I had my medication in hand. I had read on the internet that medications can be brought back into the US if you have a doctor’s prescription for them so I was ready to go home. We rented a private air conditioned car to return to the airport in Bangalore for 3600 rupees, compared to the 180 rupees we had paid for our train fare from Bangalore to Mysore. The ninety mile ride took four hours, including a 1 ½ hour ride around Bangalore on the beltway. My three week time frame gave me plenty of time to find a doctor, receive medication, complete the 10 day initial treatment, sight see and travel there and back again. I returned to the US, medication in my shaving bag, prescription in my wallet (I had no problems going through security or customs) and returned home. I am now completing my treatment and am beginning to feel better than I have in years. During my trip, my bitterness about the affordability of treatment in the US changed to gratitude. My total expenses for the trip, including medical treatment and medication was $4260- a cost I could afford without bankrupting myself or asking others for help. I am grateful to my nephew and his son for taking their precious time to travel to India with me. I am grateful to the people of India, medical providers and in general for their gracious treatment while I was in India. Would I do it again? You bet. What did I learn? Many things about myself and others. I learned the many differences in our cultures could be a sources of annoyance or opportunities for growth. A smile and good sense of humor will get you through the rough patches. Be prepared to negotiate the price of everything (except health care!) Negotiating price is part of Indian culture. My rule of thumb was to counter any price by offering half and to finally paying ten or twenty rupees more than that. Walking away is one of the best ways to get the price you want-There is always someone ready to step in and give a better price. If you want to end the negotiation, say “no, please”. I am grateful I am on the road to recovery, and I hope anyone facing Hep C with limited financial resources will find my story helpful. I am so sad that healthcare in America is available to those who can afford to pay and those enrolled in government programs like Medicaid. More than 20 million Americans like me, without insurance and unable to pay the outrageous cost of medical care, are not helpless. We have to be creative and take action instead of waiting for someone to make it better.

Mike S. Apr 19, 2017

In January 2017 it turned out that I was infected with hepatitis c. Unfortunately, in Hungary they could not cure him but fortunately a Ukrainian professor healed from the illness within 40 days. Now my liver rehabilitation is going on successfully. Thanks to the professor ... dr.prof. Vagyim Petrovics

Matheisz J. Apr 17, 2017

I was diagnosed with HCV in 1996 the first thing I did was I stopped drinking. I heard all the horror stories about interferon and riboviran . When Harvoni came on the market I saw the infectious disease Dr. at the VA they said I needed to be tested for my Geno type I turned out to be Geno type 2. No Harvoni for me. My PCP told me about Epclusa which was for all Geno types. My liver functions were always normal. I am 100% disabled so the 74760.00 cost me nothing. I have just completed my first month of treatment and just a few days ago had my first blood test but the results are still pending my viral load of 10,000,000 was not terribly high and I was told this would be a good time to start the lower the viral load the better chance of getting rid of the disease. But I really won't know for another 5 months.

Mike C. Apr 14, 2017

I was diagnosed with Hep C, genotype 1A, in 2007 but was most likely infected in the 1980's...my viral load was one million, I began a 48 week treatment of Interferon/Pegasus & Ribavirin with pretty serious side effects...at the end of treatment my viral load was less than 50,000 which at that time (2008) was considered as being virus clear...however 3 months later my viral load was at nearly two million so I was not virus clear nor even close...I still had the Hep C virus in my bloodstream and liver...

Elayne T. Apr 10, 2017

My treatment started in August of 2015. I was on harvoni for 8 weeks of treatment in which I was svr at the end. It is been almost two years now and I'm still scr and feeling better than ever. My kidneys were affected a little but now are normal GFR and creatinine Clarence numbers. My last blood test showed everything was normal and in range and there were no flags at all. I am so thankful to say I have returned to normal health.

Apr 7, 2017

This is a message that is aimed to encourage everyone who is dealing with hep c. In 2005 I was diagnosed with hep C in March 2016 I went to the doctor to get my liver enzymes test and my blood tested to see if I qualified for the med that aimed to cure hep c after results came in I never went back because at the time I took the blood test I was unemployed. When the results came back I found a job and was unable to consider 12 weeks off of work. Therefore, I finally decided to call my doctor in March of this year 2017 and ask her based on the results can I receive the medicine that cures hep c. She said if you would have called me before you scheduled the appointment I would have told you over the phone that your test came back NOT DETECTED OR negative for Hep C. I was in complete awe, I was like has the ever happened , she said 1 and 10 percent of those who have had IT cure on their on. I am praying for those who may have lost hope, Jesus healed me. Exercise a lot it makes you feel so revived afterwards. I remember that severe abdominal pain that comes with hep c. I know I had it because my primary care doctor tested me in 2005 and showed me the results. But God!!! Healed me. I am a reall person who had hep c and March 2017 it is gone. No lie I would never lie about something this serious and know how it feels. I know the depression that comes alone with it. I know the feeling you get when you drink alcohol, and when you have a BM. Be encouraged my brothers and sisters. The one only true and living God will heal you just like he healed me. Pray and Trust. With love. vh

V h Apr 7, 2017

Hi i was infected with hepatitis long time ago whn i was very young mybe around the age of 2 or 3. I am not sure how i got the infection, wether it happed during circumcition or food that i eate that time i have no idea. The only thing i was told is that i was taken to a traditional sun doctor who perforemed a procedure of slautering a goat, taking a goat liver out and put it on my body close to where my liver situated and sleep that way with it overnight.In the morning when the goat liver becomes black in colour it was assumed that it took the disease out of my liver. Then i was instructed not to eat certain food like, liver, intestines, and any part of meat that have to do with digestion in animals.I wás also instruted not to dring coffey. Those are the only intructions i receive from the sun tradional doctor. Since then i never ate those food and have been well for more than 30 years.But i remember whn i was age 12 to 16 i used to suffer from servere headache,stomach pains and high acid in the stomach later it stopped after having moved to the city and change my diet. I was a heavy alcohol taker at age 26 to 31 then i stopped.During that timeb i was getting drunk faster and had hang over that lasted for a week before i could get sobber and normal again. I have been well for the past 8 years without any complains as a sobber person.Reccently last year when i was age 39 something happed to my liver and i have no idea what happed. What remember is that we wère at party with collegues and we ate alot food after that i dint visit the toilet that day and the following day, but the third day i developed acute diarrhea that was very painfull. I went to the doctor on the third day of being ill for two days.The doctor gave medication called anti- bacteria base on the symptopms and they worked to stop diarrhea. Ever since that day i havnt been well at all. I lost a bid of weight mybe around 5 kg and some when i am in bed i feel slight pain on my liver whn i am turning in bed.I dont feel that the food i eat is digested well into the blood. I do have the appetite for food, but there is no efective digstion going in my stomach. I eat alot of fat meat but i am not gaining weight as if i am not eating well. What advise can i get to bring liver back to normal function.

Apr 6, 2017

The liver is the only organ that can regenerate itself. Mine was clogged and not functioning properly making me weak and short of breath with dull headaches. . The liver saving method I employed was regular coffee enemas for about three months. The benefit to your liver is that coffee acts as a agent that pulls together all the impurities in your intestines to give you a deep cleaning to your small intestines. It's main benefit is that it stimulates the flow of bile within the liver each time for the cleaning of the liver. This process is a detoxification of the liver that will help to bring about the normal functioning of the liver . THE METHOD: 1. Take 6 tablespoons of coffee and put into coffee blender to produce 8 to 9 cups. 2. Put these cups of coffee into medium sauce pan and medium boil for 3 min. And steep for 10 min. 3. LET COOL, when put 2 cups to start with into enema bag and increase to 4 cups when you can.s 4. Lay on your right side and ingest the 2 cups, hold the 2 cups inside of you for 12 to 15 min. TWO TIMES 5. Follow this up with 2 full bags of clear water after you expel the coffee to get all coffee out of your system. 6 Do this 3 to 4 times a week for best results. 7.THIS Is A Time CONSUMING PROCESS BUT WELL WORTH IT FOR THE RESULTS AND BENEFIT YOU WILL GET THAT YOU WILL FEEL AND HELP YOU COPE WITH THIS ILLNESS. My BEST Wishes For This WAY REALLY WORKED FOR ME.

Apr 6, 2017

I was diagnosed by accident during a routine yearly checkup. My Prim Care doc was ALWAYS thorough so when I was tested for Hep C 3-4 x's every result was positive. Never an IV drug user. Btwn 1983 and 1998 I had several serious operations. (Days when donor blood wasn't screened as it is now). Came to realize that the "how" I contracted the virus wasn't as urgent to know as to "now what". Saw specialist and read up on any and all information regarding treatment options,what could happen if NOT treated,including side effects and cure rate. Still symptom free in 2010 decided to get treatment. Ins approved. My viral count being on low side I woul take pill and give myself a shot 1x per week. I knew from my research that the side effects from the curing meds could be worse than all my symptoms. Last minute decided not to start. Just a gut feeling telling me to wait. Next 5 and 1/2 years my patience weakened. Also,brand new meds were "out there" that had few side effects. My doc(specialist) agreed with my decision to try for approval for treatment. Still asymptotic. Was approved to start a 12 week healing regiment. The newest and latest and little to no side effects of the drug called EPCLUSA was hand delivered to my front door. Checked in with my ins co. specialty pharmacy every 2-3 weeks. I finished my last dose mid December with only 1 or 2 headaches in total. I am now free and clear of Hep C virus. My life could've been shortened had I not started with EPCLUSA. And,without treatment,cirrhosis could've began. The medicine is EXTREMLEY costly and I bet many people who need this drug aren't pushing for approval. Every HUMAN BEING IN EXISTENCE DESERVES THE RIGHT TO treatment with EPCLUSA. NO EXEMPTIONS. Lastly,I was born during times of Civil Unrests of Assasination of President. I'm considered a BABY BOOMER born btwn 1948 and 1960. Those years the donated blood wasn't screened thoroughly. Is now. If you're questioning whether to have or not have treatment then remember that if you don't,you stand a greater chance of going through extreme pain from cirrhosis my case). If you do. Well that's what I call Self Respect. Taking care of oneself enough to move towards a balanced body,mind,heart and soul. Being freed of Hep c has been one of most liberating experiences of my "BOOMING Baby" LIFE that enables me to help others shed their pessimism or doomed mind set. Every Single Big and Small,crises holds a deeper message and a "pay ATTENTION " sign on the wall. May you all be free from Pain and Suffering. May your hearts Minds Bodies and Souls merge as ONE WHOLE. All that comes together to create a life worth living

Apr 6, 2017

I am a Bangladeshi citizen. I was diagnosed with HEPATITIS C in 2015. I was so shocked that I could not believe that I have HCV infection. When I got my first result i was thinking that it was not my report. i retested in another hospital. Result came and i was diagnosed with HEPATITIS C. Then I checked my rna which was 1.2x 10*6 copies. Genotype 3 a.I was given peginterferon, hopetavir and ribavirin for 3 months. When results came after 6 months it was 0 viral load. I was so much happy.. After 1 year or treatment it again came 0...finally I was cured... And ofcoz very much happy...

Nahida Shabnam Apr 5, 2017

Can anybody tell me about Epclusa side effects please? My story is that I was Diagnosed with asymptomatic Hep C in 1994, did not like odds of success for interferon treatment until combo of peg interferon and ribavirin was introduced. 80% seemed worth a go. In 2012 I completed 6 months of treatment, 4 months I spent in bed as so weak and unable to think coherently, having auditory hallucinations, the lot. After treatment I had Thyroiditis and other side effects continued. They told me 6 weeks after treatment I would be back to normal. They lied. Not only was I in the 20% non responders at 6 months post treatment t but I have been left with 5 years of pain from either the Hep C becoming symptomatic or something else they cannot yet identify but some causes have come to light such as Vit D deficiency for hip pain and waddle walking. My quality of life is hugely worse after interferon/ribavirin, I regret the treatment not because of the 6 months of side effects during treatment, but the 5 years and counting of life changing difficulties since. I am now being offer Epclusa and am wary. I read here of fatigue, headaches and possibly depression when on treatment.

Karen C Apr 4, 2017

When I moved to Arizona at the end of 2011, I decided to get a full check up as I had just turned 59 and I've never really had one done and thought a you know maybe I should. Imagine my shock when they told me I had hep C I had no idea. I have a history of alcoholism in my family from my grandpa and my mom and I never drink ever not even a sip. My drug history was minimal and I never shared with anybody anyway because I was selfish. But I did have a herniated disc operation and apparently it got badly infected. I was on IV antibiotics for almost a year, could not walk or move without excruciating pain, but nobody ever heard suspected hepatitis. So when that showed up I was stunned needless to say. They had a couple of options available that included interferon but my particular group only had a 40% chance of being helped. Through the waiting and the testing and time passing eventually Harvoni came to the forefront. I applied and was accepted on Medicaid and wonder of wonders, even with the cost of $1120 a pill to the tune of $102,000 they paid for every penny of it. somehow my treatment got short-circuited after only 5 weeks and I was cut off for two weeks before being reinstated but even so I was cured in less than two months. I have some Hep C induced cirrhosis scarring even though I never drank, but even now over a year later I am still showing zero levels of antibodies and officially I am now a stat. At that time they told me out of 500 patients only 4 were not cured, which is over a 99% cure rate. I was not expecting a miracle but modern science came through for me. Next, let's get rid of cancer and alzheimers. Let's get Congress to negotiate drug prices. If they can get them cheaper in other countries, including our next door neighbor Canada, then they can do it here, big Pharma has a Lobby second to none. The American people should be second to none.

Kim S Apr 4, 2017

Hace 33 años me ponian una inyecion para curar una enfermedad pulmonar y me estaban inyectando el virus de la Hep.C. genotipo 3B En el mes de Marzo del año 2017. me entregaron los resultados de mi carga viral despues de seis (6) meses de terminar el tratamiento con Sofosbuvir y Declatasvir. Virus Indetectable. Gracias a mi perseverancia y a un estricto regimen alimentario sin grasas, principalmete hidratos y proteinas, logre mantener mi higado, practicamente con una cirrosis compensada.

Juan Enrique C Apr 4, 2017

I was diagnosed in 1993. At that point I was 5 years sober, (alcohol, dope) and that is probably why I'm still alive. But who knows. In 2010 I was fortunate to receive help from a foundation that made it possible to try the Interferon/Ribavarin treatment. Lasted 10 months. Didn't work. Now there are multiple treatments available but who has that kind of money. Not me. But I did this to myself so all I need is a mirror to find the one responsible... Bottom line if you're young, PosHepC, and still getting high, getting drunk, you better find a way to get clean. You're running out of time.

Tim Ward Apr 4, 2017

2009 first told I had something wrong. I went for a procedure/ platelets very low. Upon more inspection, The HepC dragon first raises it head. Eventually had a biopsy. was so shocked I don't recall the outcome. Probably why I'm not totally up on all my research for the disease I hosted for many many moons. I was an iv drug user. I sought the cure in '09 with pegylated Interferon and Ribavirin with Procrit. This failed almost took my life. Waited 2 years then Harvoni came on the scene. I could not use the harvoni, I had previously tried TX that failed. Was offered Virkira Pak with the miserable Ribavirin. This cured me in 28 weeks. I had a ribavirin reduction because again my platelets took a big drop once again. The treatment did its job I have been hep c free since 2015!thank the Lord. My liver got beat-up pretty bad. They say I have Fibrosis. I call it cirrhosis. My blood work all is normal ALT etc although I hv leg pain ocassionally and need to watch my salt-sugar intake Any ideas, suggestions I'm open to Thanks Steve

Stephen *Steve* R Apr 2, 2017

The treatment clears your system of the Hep C virus during treatment...the real test is whether the virus returns 3-6 months later, as mine did, don't let the treatment or Dr's fool you...you're not 100% positively clear of the virus until it's no longer in your system 3-6 months after treatment ends...I'm now on my 2nd treatment, 7 years later, Viekira Pak (4 a day & Ribavirin 6 a day) for 6 months...into month 2 right now...headaches, no energy, insomnia but doable...

Elayne T Mar 29, 2017

If you can't afford your Hep C meds, with or without insurance, call the drug manufacturer and they will reduce the price for you...I have insurance but my copay would have been $210 a month so I called the drug manufacturer and qualified for a $10 a month copay! They will help you even without any insurance...Call them!

Elayne T Mar 29, 2017

I took the full round of Epclusa after having hep c for 25 years. My doctor said no need to do a blood test until 3 months after taking my last pill. So I really don't know if it worked or not. I have a question... Has anyone else expieranced phatigue... Queezy was... Warm eyeballs.. after treatment is over? I took my last pill Feb 1,2017.some days I just feel like crap.

Erin A Mar 29, 2017

I am 52 and I was diagnosed with hep c about 17 yrs ago. i am a gt1 and I am im my fifth week of vikira pak and I was wondering if any one else was on this med and how they did ? Thanks

Doreen C Mar 26, 2017

I have been suffering from IBS, anxiety, fatigue, insomnia, vertigo for about 15 years. At times it was unbearable at work. I Went to specialists, did the recommended tests. The results were "you're fine. Nothing is wrong with you." In December, 2016 my primary found a high liver enzyme result and then I tested positive for Hep C. From Year 2000 up to and including 2008, I had taken physicals and did the required blood tests for 5 different disability insurance companies and 2 life insurance companies. I was approved for all of them and was granted the policies. Don't these companies test for Hep C? My doctor says I probably had it for a long time. How can this be that the Hep C was never caught by those insurance companies? They test for any and all irregularities and are very strict is what I'm told. I am sure my terrible symptoms were related to the Hep C. I had my blood work done and my physical done every year by my primary also. I'm still a bit shocked. Scary disease. The psychological and physical damage Hep C can do to a person is mind boggling. I still have no idea how I got it. But common sense tells me it is not only drug use, tattoos, et cetera. The virus can live outside the body on a bathroom sink for weeks and not be visible to the human eye!!!! Thank you for posting. God bless.

Monica T Mar 26, 2017

Im 46 years old. Genotype 3, about 5 years ago. Also hiv positive, from iv drug use. Went through 16 week treatment from October 2016 to Jan 2017. Epclusa and ribavirin. Side effects from ribavirin were awful, bad mood swings, depression, fatigue, headaches, muscle loss. I live alone . Hang in there Teresa, keep your eye on the prize, you can get through it. Anyways i test again in April to see if I'm cured . Thanks for everyone that posted . Good info here.

Robert L Mar 25, 2017

I was diagnosed with Hep C this past year,I went on to use HARVONI to get rid of the virus,I was to take the pill once a day for 3 months,after, the second month I WAS FREE OF THE VIRUS. I went on to finish the final month of pills and tomorrow is my final day. Along the way I had NO side effects, I am a Happy Man at 64.

Bruce C Mar 18, 2017

14 yrs ago I did peg/intercom treatment it was working by 8 weeks . It was down by a good amount. Things me my life were getting out of my control. I tried commiting suicide. My regular MD was so upset. He says April you know what this means. Treatment is over. Four years ago I tried it again. This time they added a new pill by 12 weeks nothing. So they had me stop. As of January 2017 on going on my year mark after taking Harvoni. Remission is my result. As a result of getting the Hep c under control my blood sugar & blood pressure have also come under control. Four years ago I was over a 9.9 for my A1C. As of this month March 2017 I'm at a 6.6. I couldn't be an happier.

April W Mar 16, 2017

my wife has HAP C with GENOTYPE 3 ..she has only promlem that her body discharge heat . headache. mosty one or 2 time in a day .. aftr that she is normal ...we hv use no medicine .but take care our health by taking exercise regulrly .. food .. life style ....this is since about 13 years she is now about 53 years . . she has severe dust alergy probml also .so she use anti alergy med also .. ..any Dr. can comment and advise ///

mohammad a Mar 16, 2017

I first found out I was sick and had 2 months to live 12 years ago. I got treatment that didn't work. Then last year I got treated was well in 8 weeks. I still felt sick a couple weeks after than my body start feeling better. But for years I was sick and thought never get well. I got sick after having my baby then they said I had yellow juanice in1990 but 15 years later I was sick.

Lou C Mar 16, 2017

I had 12 weeks of treatment with Sovaldi/Ribavirin. To say the least I was extremely nervous about what the side effects would be. I am happy to say I had absolutely none. I am now 2 years post treatment and I am pleased to say all blood work has shown no HCV virus. I was one of the lucky ones that my insurance finally approved coverage. The cost of HCV treatment for 12 weeks was almost $90,000 for many people this extreme cost makes it unavailable to many.

Cynthia S Mar 14, 2017

I'm sitting here wondering why I survived, why I was blessed to have been able to get Harvoni when others haven't yet. My prayer is the medicine becomes affordable and available for all. After I was diagnosed in 2015, I later realized I had been misdiagnosed for possibly several years. The muscle pain, nausea, vomiting, liver pain and fatigue were enough to feel as though I didn't stand a chance. I was wrong in my thinking. I now enjoy eating again, and having enough energy to go for short walks or grocery shopping in the evenings. The things I once took for granted are the things that I am most excited about. I looked at a picture today of myself from a year ago, when I was at my lowest point in the disease. I barely remember existing at the time and the picture looks unrecognizable. I'm now 15 pounds heavier and my hair has grown back curly, as it was when I was a young child. I never thought I'd be excited about weight gain. I'm emotional at times, but in a good way and am living life a little differently than before. Now, at age 48, I can say having Hep C has changed my outlook on life for the better, since I'm grateful for the little things that aren't so little after all. This is of course much easier to say now, but surviving Hep C does happen, and I pray it happens to you, if it hasn't already. Coming from a former depressed, complaining, and negative person, life is now truly good. Thanks for reading my story.

Allison F Mar 12, 2017

I found I had geocaching in 1999. Very confusing signals from my specialist over the years. From "don't worry you will be okay. You won't be having problems until you are 135" to "you are at stage 3, you need to get on harvoni immediately ". After seeking other opinions and a fibrescan, I decided to start harvoni. This is day four of 8 weeks. I feel good about this.

Barry K Mar 12, 2017

I am feel abdominal distension associated with Gastritis and halitosis

Teshome N Mar 10, 2017

Hi every one i'm Marivic my story about my husband hes suffering the hipatitis C chronic since 2005 until now all treatment we done he is taking lots of medicine but the virus still .... i need ur all advice and comments .... thanks ....

Marivic P Mar 9, 2017

I was in an abusive relationship with a very sick IV user. Of course he lied to me and I never saw any indication he was using until the day my kid flew up to live with us..Then I discovered him hiding his stuff. To make a long story short I was abused in every way and if you can't beat em sometimes you join them. I left him soon after and quit using forever. Then I learned I was sick with stage 2 Hep C .The following months were hell and I have test negative enough to be declared cured. I'm so grateful and fortunate. But I went through it alone, not even my family knows. Still. Shame is horrible. I faced the devil twice and survived twice. But for the Grace of God I should be dead. If you're being abused and only there because of the addiction...RUN AS FAST AS YOU CAN TO ANY COP ,CHURCH, EVEN A COWORKER. Please save yourself. I have a second chance and so should you. You deserve to live just because you ARE.

Jean B Mar 9, 2017

I was in denial for years about my Hepatitis C since I had no obvious symptoms. In Florida I was approved for Harvoni. In Tampa there is a pharmacy where a charitable group covers the $5,000+ deductible so I got the ± $100,000 medication free. Some people fly to India where drug costs approx ± $1000. All you need to bring is a copy of your positive blood test to save time waiting for test results in India. Depending on where you live the cost will be $3000-5000. Book a flight, book a tiny hotel room, pay for a doctor to write the prescription. Get you hands on Harvoni no matter how you have to do it. This drug is an utter miracle. Within 28 days I was virus free. No side effects at all. You can consume alcohol while on this medication ~ though of course it’s not recommended since most have sustained liver damage from Hepatitis C. I drank a champagne toast on New Year's Eve since I am free of this deadly disease. Go for it. Don't wait.

Giovanni V Mar 7, 2017

Hi,I am a 62 year old total non responder who has been doing every treatment out there since the mid 80s.I am genotype A1 with stage 4 cirrhosis.My medical plan will not cover me for meds anymore because of me continuing to fail on them.I am currently taking Dac,Sof and RIBA that I purchased through a doctor in Austrailia.After 3 months my viral load was down to 20 but once again I couldn't clear the virus.I was told by other non responders that Viekira Pak got them better.I looked at it online but it is unaffordable.If there are any total non responders out there that have found a cure for this terrible disease please let me know what you did.I can't deal with the side effects anymore (ithe horrible itching,nose bleeds,leg cramps etc) and have reached the point where I would sell my soul to get rid of my hep c

Glen P Mar 7, 2017

I had a physical in November 23 my liver enzymes were high. On 1/5/17 it was confirmed that was hep c positive.I had seen those commercials on TV about harvoni. I started taking 5 days ago. Thank God for this medicine as this disease has killed many.God bless their souls. I know this medicine is killing this off. My energy level has soared. I am hoping for the best.Please if you think you have this get treated asap. The sooner the less damage to your liver. I hope this story helps someone else.thank you jm

Jon M Mar 6, 2017

I have/had HVC 3a and now they say it's gone, but so is my mind. stage 4, fibroscan puts me at 3. Going for blood work soon, lost a month, thought it was Feb,,,It's ruff but can save your life,not a drop since 2008[ that's when I was told] thanks Soldiva,may be miss-spelled.

jack C Mar 6, 2017

I was go for donating blood to a heart patient then i knew abuot i am C positive. Then i decide to take medicin of this deseas. So i use sovaldi and sofos tablet. know i am fine.

Syed Nasarullah Shah H Mar 3, 2017

Contacted hep c in 1980 from sharing needles. Was very ill for about a month.Several bouts with relapse and recovery over the years. The only thing that I did right was heeded the doctors advice on alcohol and only drank beer. Presently I have 21 months clean from everything! I quit smoking 18 months ago. I didn't do any treatment and have no Viral load.I consider myself very blessed?Just For Today I will not use drugs!

James B. Mar 2, 2017

I just found out a few hours ago I have hepatitis c. I'm 31. I've never used drugs, never had a blood transfusion. I've been racking my brain and driving myself crazy trying to figure out how I got it and come up with nothing. I also have stage 3 melanoma so I've already done a year of interferon treatment for that which ended up causing me to have hypothyroidism as well. I suffer from severe depression and anxiety and I'm worried about any further treatment. What options are available?

Crystal R Mar 2, 2017

I am 46 and have hcv from the age of 19 i was extremely afraid of the treatment. On my drs advice i am now half way thru the 90day treatment program. Im hoping the virus will clear. Staying positive.

tanya g Mar 1, 2017

My boyfriend of 5 yrs was diagnosed with Chronic Hepatitis C in April 2015 The Drs. gave him 3 months to a yr to live. He lost his battle 8 months later December 2015. With me being his girlfriend, one of his Dr. mentioned to me that I should be tested for Hepatitis C. I never thought in my life I would be in a situation like this. Long story short, I tested positive for Hepatitis C. My life changed from that day on. I found a very good primary Dr. and he referred me to the Specialist. A big thank you to my Specialist. I was one of the few lucky ones who got the financial help with the Medication of Harvoni. I had to take it for 8 wks. I kept myself going and going, I wasn't about to let this bring me down. In February 2017 I went to my specialist. She gave me the best news ever, she said I have beat Hepatitis C!! I was cured!! I was so happy.. had tears in my eyes. I was happy that I beat it and then again when my boyfriend was saying his good byes to his family and me. He told he that he will be OK and for me to beat Hepatitis C Ass!! and I did!! I just wished they could of helped him though. So for you folks out there .. THERE IS HOPE AND CURE OUT THERE!! DON'T GIVE UP!!

Lisa T Feb 28, 2017

I was diagnosed of hepatitis B disease since 2013. I live in abject poverty and have been treating it myself hoping that God will bring healing to my body. I also thank God for helping me to discover this website. I believe I'll discover advice and encouragement from others. God bless!!!

John J Feb 26, 2017

I found out I had Hepatitis C after donating plasma in 2015. In the late 1990's I was an IV drug user so learning I had HCV didn't really surprise me. I immediately sought treatment and for my geneotype 2b, the only treatment at the time was Solvaldi and Ribavirin for 3 months at 3 pills a day. The side effects from the Ribivirin were unforgiving and after receiving the first months worth of TX meds, I decided to wait for new treatment meds that were in the works. I didn't have liver damage and was advised waiting would be okay. In the summer of 2016, I met a gal who shared she had HCV and was doing treatment at a local Hep C clinic in my community I had never heard of. I watched her take Harvoni and it wasn't killing her or making her sick which comforted me. I made an appointment at the clinic for myself and in August 2016 I started Epclusa for 3 months at 1 pill a day with very minimal and tolerable side effects. Epclusa was for all genotypes. In November of 2016 I completed treatment and just last week I got my last labs and I am considered cured. Treatment was the best thing I have ever done for my health. I feel so great. The years of fatigue are gone and the energy I have today is crazy amazing. Epclusa saved my life.

Stacy M Feb 26, 2017

I am a survivor. I was diagnosed in the early 1990s. I was told the survival rate was only 10% and the only treatment was interferon. I took interferon three times a week for five years. Since then I have had no after effects. I know the treatment is physically difficult but it is worth it. Hang in there anyone who wants to speak with me please feel free to email.

Liz J Feb 26, 2017

I found out in 2013 I had hep c,I was a mess I lived in gulf breeze Florida at the time I found out well I just cryed,I knew I was going to die .well I did all my testing there and my levels was very high I had been sick for almost yr the Dr did test after test to finally he tested 3 time for he c it came out positive every time,they were going to start a treatment but it was not the cure just would put it to rest then it could come back anytime,I prayed and cryed and pray and cry more cause in my heart learning this at 62 yrs of age was very hard to take they had told me I could be a baby boomer well I decided I had 1 daughter,4 grandson,and just born a greatgradson I wanted to come back home I had to meet this new born breathe and but I was so scared I knew nothing about hep c.well I packed up over night with Drs in Florida advising me no,but I didn't want to die without being near my family so I came back to sc and stared right away finding a Dr he did all the test I had change my eating habits and drinking less caffeine,oh sorry I have gr8 No type 1 a well my levels went down but still needed treatment well while research online in 2014 I found out they were in a battle for the cure Harvoina,I just cryed again well in 2016 it was on marked .I went to see Dr and started test over with little hope at the price of ever recivng I the cure well at 65 now I got media care coverage and my car insurance man came out and ask me to go on his coverage well sure enough it covers Harvoina co pay 3.35 dollars for every 28 day treatment I'm now on my 5th week did first blood work severely days ago now I well see Dr March 3rd when I lift Dr office in 2015 I cryed saying they just wrote my death certificate but now I have hope I well be cured God bless you all that faces this horrible hep c

Deborah S Feb 24, 2017

I had my 50th health check around three years ago, on the 23/12/14 I simply got a phone call from my gps surgery to be told matter of factly I had hep c ( my mum had reacently dide of the illness after contacting the disease from a surgion . Luckily I was liveing in Portsmouth and soon got on a clinical drug trial , 3 years on I am still clear of hep c, when I first started treatment I noticed I had started shakeing over the course of the last 3 years the shakes have become much worse and continues I have also had real bad problems with my lungs I'm now told I have copd wich is progressing at a fernominal rate I don't no how many things are linked to the hep or the treatment

Paul W Feb 24, 2017

I was diagnosed n 2012. I went to 2 different Dr's, when I wouldn't do the test drugs. Both Dr told me "then why am I treating you?' I haven't been back to a Dr since 2014..Now there is a cure & I don't know where to start..I have other illness, im only 54, I FEEL SO ALONE, now ystretday, other diagnosis, stupid cancer on my face...I'm SO TIRED,& TEALLY DONT KNOW WHAT THE HECK TO DO...

michelle G Feb 24, 2017

I found out I got hep c back 15 years ago from getting a tattoo the guy that did it had it n passed it on to me when doing my tattoo I was freaking out know I'm did my treatment n know I'm hep c free

Chris J Feb 23, 2017

Discovered I had HepC in early 2000 and had a transplant later in the year. Went through many different treatment plans, the last one looked good for a year now, SVL. However I need a second transplant, plus maybe a kidney. This has been difficult and overwhelming at times. It feels like each step is getting higher and higher. But it has been worth it to be alive to experience this life with my family, friends, and neighbors.

TP HepC Feb 22, 2017

I was diagnosed with hep c yesterday. My head is spinning. I've barely eaten today and have no desire to do anything. There is no way I can afford treatment. I don't know what to do or how to cope with this.

J3nn B Feb 19, 2017

I found out in 2005 that I had Hep C from a blood transfusion that I got in 1971. My doctor, at that time, treated me with the Peg-Interferon "cure". 48 weeks later, countless Ribavirin pills, weekly injections of Interferon that totally wiped me out for entire weekends and, at times, made me almost wish I were dead, 30 lb. weight loss, feeling absolutely horrible for the entire 48 weeks...I wasn't cured. It pissed me off because I felt like I had been an overpriced guinea pig! My wife was really scared. She told me after the treatment was over that I had looked like a skeleton with flesh on it! I am now on a 24 week regimen of Harvoni and finishing week 12. I have some side effects, fatigue being the most significant. I'm extremely fortunate that I just don't get headaches ever. I did until I was 21, then they just stopped. I can sense pressure in my head, occasionally, and would probably have the headaches if I were still prone to them. My appetite is great, maybe better than most people who don't take any medicine! I do experience light headedness, feeling week sometimes, and a bit unbalanced occasionally. My very first lab results showed that my viral load went from 4,000,000 to zero and has remained at zero since. From what I've experienced from this treatment...it's a walk in the park! I highly recommend Harvoni for those whom are still on the fence about it's benefits and side effects. I feel totally confident that my Hep C will be completely cured at the end of my treatment.

mike s Feb 19, 2017

In 2000, during a routine blood test I was told I had Hepatitis C. I panicked. My Aunt also had it and had just been put on the liver transplant list. I was told to go to the County hospital as they had a clinuc, so I went. There was no clinic and I would be the first patient. I was told I had to take shots three times a week and pills three times every day. I was told to not drink alcohol ir use drugs The first time I gave myself a shot I started feeling sick. I had felt fine until then. I was told I had to take the shots for six months. Every month I had to have a blood test. I felt sick all the time but I stuck with it. At the six month mark when I went for my appointment the doctor told me that he had good news and bad to tell me. Of course I asked what the good news was and was told that they had run the blood work three times and no Hep C could be found in my blood, I was cured. I asked what the bad news was and he six I had to take the shots for six more months. I not only lost my Aunt but my cousin and a brother all to Hep C. I did everything the doctors told me to do. Now I am proof that Hepatitis C can be cured

Mary B Feb 18, 2017

I've had Hep c for 15 years. I went to see a liver specialt and they told me I no longer had the virus. Could this be true?

Nicole S Feb 14, 2017

Well I knew something was wrong with me and the Doctors kept taking tests ,well I was told I had Hep C I was so shocked I told the Doctor I never used drugs , he asked me if I had ever had a blood transfusion I told him with my 2nd child I had to have a blood transfusion in 1971 he then explained that back in those days there was no way to screen the blood, And many people were turning up with Hep C. After many phone calls for help I finally found a company that payed for all the medications I needed for the 3 month treatment,There was 3 different meds 1 was an injection I was on (Interferon) (Riboverin) (Sovaldi ) I was so sick on the meds I couldn't eat half the time,Sometimes I thought I would not make it. But I didn't want to die. So I kept taking the meds and the injections, When I was done and went in for the blood tests to see if I was cured , I was so happy and there was no liver damage. The Doctor said to make an Appointment to come back in a year for another set of blood tests to make sure I was still cured, And I am ,But if I am tested it will always show Hep C But inactive . Gilead was the company that helped me ,I was provided with Nurses that called me every week to see my progress, and just listen to what I was going through, they helped me thru the 3 months, It really was the worst time of my whole life I am 68 I was 66 when this all happened, I fully understand what goes on when your on these meds , the thoughts that go thru your head, But I made it and so can you- If you find out you have Hep C reach out for help it is out there for you.Good Luck to all of you that has had Hep C Sherri L

Sherri L Feb 14, 2017

Through a routine physical ,my liver enzymes were highly elevated and my Dr tested for Hep C. Yes, I have had it for many years and still can't figure our how I contracted it, but I don't stress about it. Shocked, yes, as I don't fit any of the ways contracted with the exception of being a baby boomer. My husband, being in the bio tech world, knew that Gilead was soon to release a new drug for Hep C. I opted to wait and gratefully so. I started treatment in June 2015, My Dr from Kaiser was wonderful and did random testing for alcohol detection for 6 months and promised he would accept me for treatment if I passed. I'm not a heavy drinker and was somewhat put off but what a trade off. I would do it in a heartbeat! I have always felt fine and so surprised to learn I was stage 2! I started Harvoni ( LOVE YOU GILEAD ) for the 8 week program and sailed through it. I had absolutely not one side effect only elation that I was granted this gift of an expensive drug. I tested at 4 weeks with no trace and again at the end of my 8 week program, I was completely cleared of the virus. I had a 6 month test and after my year test , it finally became clear to me that I am finally free of the DAMN disease. Kaiser charged $100 for the first time fill as Harvoni is not a generic drug and they refill every 10 days. They won't give you a month supply and it can't be mailed either and the cost then was $20 for each refill. So for a total of $220 I was cured! Please don't give up hope and ask your about Harvoni. It's a life saver! Those who may not qualify, please contact Gilead directly and they can help you with the drug. Do NOT give up and accept a lousy fate of a lifelong disease. I'm rooting for all of you! LOVE U GILEAD!

Joanne T Feb 14, 2017

i have hepatitis C and malignant tumors.hepatitis C makes tumors.

kamran b Feb 13, 2017

I was diagnosed with hep c in oct 2011 after being really poorly and being admitted into hospital for two weeks,I was devastated when I found out I'd never taken drugs I'd always been careful and when I finally found out how I'd caught it I was ashamed of myself I had caught it from my new partner who I'd been together with for about 6 months and he never knew he had it either. In 2012 my dr asked if I wanted to start treatment I'd thought long and hard because it was interferon and I knew the side effects would be quite bad so I told the dr I'd wait until something else came out. I would have bad days and good days about having hep c and how I let myself catch it and some days I would be depressed and this went on for some time. In 2012 I found out I was pregnant my dr told me I had small chance of passing it on to my child in the back of my head id worry myself thinking what if I do pass it onto my newborn I could never live with myself. I had Ethan in March 2013 and it took about a year with blood test and they came back negative and that awful feeling I had had just lifted. I had Reuben in Aug 2015 and his blood tests came back negative as well. I had not been to see the dr since 2013 and 2016 was a bad year I started to think I was ill and I kept going to see the dr and she told me I was suffering from anxiety and eventually I saw a really nice dr who thought it was a good idea to go back and see my hep c dr and I'm so glad I did he put me forward for the new drug harvoni it had to go to a board meeting to see if I met all the right criteria and lucky for me I was I started an 8 week course in September last year I didn't have any side effects at all after taking harvoni for 2 weeks my blood was clear of the virus and it stayed clear all way through the course. I finished the course in Nov last year and I've just had my 12 week post blood test and fingers crossed my blood is still clear, if I hadn't been to see the dr and getting into a mess with life I would never had been given the chance and I can't thank the dr enough for giving me the chance of clearing the virus and being able to not have this awful disease anymore. All I can say is there is lots of new drugs out now yes they might have a few side effects but you are being given the chance to clear this horrible disease and I think the risk of doing this is far greater than not even trying.

Heather R Feb 12, 2017

My husband managed his Hep C for 15 years with a regime: Lactulose syrup (to absorb toxins), naldalol (to lower blood pressure in veins) and diuretics (to control fluids buildup). Recently we retired to CO his home state. The doctors he saw in Co were not as thorough in their follow ups as we had in Austin TX Unfortuately, they prescribed a lower intake of dietary protein which was erroneous advice as a Hep C patient. His condition over a year went downhill and due to malnutrition–inflammation complex syndrome (MICS) specifically and his endema that ended up so bad (water pouring out of his legs) that his sodium dropped so low and complicated his situation beyond recovery in order to continue towards our goal to take the cure. He passed away August 1st 2016 after first being diagnosed in 1996 with Hep C. My advise: be sure to watch your intake of protein- Hep C patients need an adequate amount to help the liver from further decline. If anyone cannot afford the cure...please contact me-I have a 1 mo. 28 tabs dose un-used worth $$ that I will give you if you need Sovaldi 400mg & Ribavirim 600mg treatment. Good luck :)

karen J Feb 11, 2017

Has anyone committed suicide while taking Epclusa? I have been taking it for one month and the Hep C virus is gone. I would like to complete the next 2 months but the depressive side effects of this drug is getting the better of me. I never felt so low in my life. I am considering to discontinue this medication. Does anyone know what the risks might be if I stop the medication now? Thank you.

Teresa P Feb 10, 2017

Back in 1981 my doctor wanted to do a routine check to rule out Hep C. I was diagnosed with Phibro neuralgia and when the test results came back I was positive for Hep C. Back in 1981 not a lot was available for those who had Hep C so they did a liver biopsy and found minimal scarring then we contacted the doctor at UC Davis and he told me that the drug available to me had a 40% cure rate and he recommended for me not to do anything. So when I turn 65 my hepatologist doctor said that I qualified for a drug called Harvoni and I started on that four weeks into the treatment I was Hep C free I continued with the 12 week treatment and did a follow-up check three months later I was completely free of hepatitis C. It was a good thing that I did not do a previous treatment to get rid of the hepatitis C, being that I had virgin hepatitis C the Harvoni drug worked quickly.The last five years I have been cutting my hair very short and I decided to let it grow long an my hair came in curly and I have never had curly hair in my life has anyone else had this happen to them. It's been a year and a half now since I've been cured and gradually I am feeling better and I can do more I'm not constantly on the couch anymore I'm active at my church volunteering doing what I can do enjoying life.

Michael M Feb 9, 2017

I'm a former intravenous drug user. I acquired the Hepatitis C virus in 2002, shortly after I started using. I also used to drink alcohol heavily. By the time I was 23 in 2005 I was having pain on my right hand side just under my rib cage. I had an idea of what this was but was in denial. I finally went to get checked in 2006 and sure enough I had Hepatitis C. I had not shared needles since I first began using so I knew I had contracted the virus during those early years of my addiction. After finding out that I had Hepatitis C I continued to live the lifestyle I was living which was daily drug use and alcohol consumption. I was too far gone in my addiction to do anything about it on my own. After years of failed attempts at getting clean I finally checked into my very first rehabilitation program at the age of 30 years old which was in 2012. My road to recovery was not perfect and I had a setback but was finally able to to get clean and stay clean in the summer of 2013 and I have been clean since. For the first time in my life I cared enough to think about my life and about my health. I was finally able to go to the liver specialist and find out how I was doing. I was surprised to learn that I was a good candidate for treatment. I was approved for Epclusa this January 2017. I was very nervous but also excited. I never thought that I would be able to stay clean long enough to do anything for my health. My journey with this medication started January 19th. Today is my day 19 taking Epclusa. On Friday, February 10th I have my first follow up doctors appointment with the liver specialist since starting my treatment. So far I feel good. It seriously has been way better than I expected as far as side effects go, now I'm just hoping that it works and gets rid of this virus for good. The first 5 days the symptoms were more noticeable. I had headaches and felt weak and had mild aches and pains in my body almost like when one experiences the first signs of cold symptoms coming on. Now I pretty much feel completely normal. I think the only noticeable side effect now is the fatigue. I have some questions for my doctor this Friday because the pain on my side has actually gotten worse but I'm not sure if this is a side effect from the medication. I have been living with this pain for so long that I rarely even notice but since I'm taking the pill now I'm more aware of what's going on with my body. If anybody else has experienced anything similar I would appreciate learning about your particular story. I would also gladly answer any questions if anybody has any questions for me. I will also keep you posted in my results in case my story can help anyone else. Blessings!

Liz C. Feb 7, 2017

I was diagnosed in 2004 , was going to start treatment with the interferon, kept in my refrigerator for months, after hearing all the horror stories, I decided I would take a chance and wait on something better, then came the harmoni trials and it sounded really good, after doing blood work they decided I didn't qualify I wasn't a perfect hep c 1a, there was a mutation. So I didn't make the list. Finally it's on the market so went to my dr. And was really surprised, best case scienero harvoni 1 pill daily for 8 weeks should be starting on or about February 16. Any good advise out there? Side effects? Would appreciate all information I can get. God bless all of you fighting this nasty disease.

Donna W Feb 4, 2017

I need help deciding (along with my mother and sisters) if Harvoni should be taken by my mother. If your story is similar to hers and have insight we would appreciate your help. My mother is 78 y.o., 22 years post liver transplant, failed at earlier treatment 13 years ago, stage 4 cirrhosis, original autoimmune disease is still present and also causing cirrhosis, atrial fibrillation, shortness of breath upon walking, 250 pounds, inactive, poor nutrition, takes many medications, … She is already tired, has headaches, insomnia, acid reflux...so I believe she will end up in bed for 6 months and not survive this treatment. Thoughts please…thank you.

Alice T. Feb 3, 2017

I was diagnosed with hep C 2009. Refused interferon treatment, finally solvadi was approved. After 8 wks. I was cured. Even though no detection was discovered after 10 days.So many stories I've read and I think that someone should stop the foolishness, that are killing us baby boomers who don't / didn't have to die from Hepatoma Carcinoma

Shiela S Feb 3, 2017

Diagnosed last June with hep C, I thought they were mistaken as I had so symptoms. I had known that I had it in the past, but thought it was gone. Being sent to a liver specialist who then put me on Harvoni for 8 weeks was what worked for me. Taking no prescription medication for anything for a long time, I then suffered severe side effects. Knowing I'd be healed from it, I began journaling my writings so that I could more fully share my story with those who might benefit from it. It is called "Countdown to Victory: My Journey of Healing from Hepatitis C" and has been published on Amazon. I had my 12 week post Harvoni blood test a few weeks ago and it shows, as expected, to be totally gone. When I started the medication, my VL (viral load) was over a million and now it's zero. So glad to have found a medication that really works and is nearly 100% effective for many people.

Ann D Feb 1, 2017

4 weeks away from starting new treatment harvnio new treatment will in change my illness be ready

Adam W Jan 31, 2017

Hi everyone out there...i am a 54 year-old woman and have lived with hep c for 30 years. I will be taking Harvoni soon...March or May..i am excited but, also scared...anyway I hope that whoever reads this has a great day...LOVE to all

Sylvie H Jan 31, 2017

Surviving Hepatitis C together – A tale to remember About 8 years ago, we discovered that my wife “Kim” had Hep C.  We kept going to the specialist for a while and following up every 6 months just in hope that it eradicates the virus from my wife's system. There was no miracle cure and our only chance was to try Interferon, the side effects were unbelievable and almost indescribable. I was giving her weekly shots into her abdomen in hopes of a 40 to 50% cure. We got lucky and the Interferon worked. Last year when I found out about Harvoni I thought what a God Send. It truly is a miracle drug and will save thousands of lives. Then we learned of the extremely excessive cost, barring the majority of people from ever having the opportunity for a final cure. Countering the most expensive drug in the USA, As of now, generic verisons of medicines for HCV, are presently accessible in India. Also, the cost of these generic drugs is generally $900 — $1,250 for the prescribed eight-four day regimen, when compared with $84,000 – $94,500 for the branded medicines in the U.S.  But, All is not lost, because of affordable healthcare abroad and their standards of practice. You can take your family with you, and truly rehabilitate in a paradise while your loved ones are there for support, as well as having a vacation of a lifetime. The beauty of this is that the total cost is about 1/3 of the costs in the USA and your family is Blissful Not Burdened. It was through Greg Jefferys that we first learned of the Harvoni option in India. Thanks to Greg we were determined to travel and obtain the generic Harvoni drug in India. The people in India were so courteous and friendly speaking English while helping us in anyway they could. But, traffic in Mumbai is something to behold, that is why we had to schedule transportation to this amazing city of 22 million people. There are so many historical sites to visit and the food is fabulous. While I thank God I am cured I am still hoping for the best for everyone else with Hep C. Contact No: +1-928-328-8909 Email ID:- [email protected] Know more about the package:- http//medicaltourism.surcation.com/hepctravel.html/ Twitter:- https//twitter.com/surcation Facebook:- https://www.facebook.com/Surcation/ Linkedin:- https://www.linkedin.com/company/destination-surcation-llc Thank you.

Kim S Jan 30, 2017

Looking for advice . I think I contracted hep C about 6 or 7 months ago. wondering my best route .sad to see that the new medications arent working . I'm in general good health .six foot. 150 pounds. 21 year old

Zack B Jan 30, 2017

I during my university days heard a person suffering from blood problem and being human i went to helf her, Before donating of Blood the use to undergo with several test, Just i were waiting for half an hour. the physician told me that i have been infacted with hepatitis-B virus i was shocked also not believing the pysician and re-tested again but thebresult was same. so i have send my Bloodbreport to mumbai, the report was returned- 1.Viral load-16 crore. 2. patient value'1660. After one year of medication the result was totally changed i.e- 1viral load-500/ only 2.patient value 1520. Now still i am taking medicine but not yet retested being belonging from a poor family couldnot afford the test charges which is 10000/ ten thousand. Only the god is the creator is everything and will help me in future.. Thanks.

Tajing Y Jan 30, 2017

7 years ago my friend was divorced from his wife, who had Hepatitis C. He says that he had checked after the divorce to see if he has Hepatitis C, too, and the doctor told him that he does not have it. I just read online that: "For most people, hep C will become a chronic infection, which means that the virus stays in the body for many years." Even if he did not have sexual contact with his wife after the divorce, could it be true that he is still carrying the virus inside himself, and the next person who he marries, may be infected, too. He is in restaurant business in Europe and he says that during these last 7 years he had 2 sex partners, but did not say anything about them being infected or not. Please explain if it is safe to have sexual contact with him or not. Thank you.

ANA L Jan 30, 2017

First of all I would like to thank God and his son for bringing me this far. For give but I think it's a damm shame, when we as humans put that mighty dollar before the welfare of man, the med's that cure us. Is do damm high all we can do is pray, that some one out there think about us, instead of their damm pockets.That's my story of survival.

R S Jan 27, 2017

Just completed my 4th week of harvoni. Feeling good, only real side effect is fatigue, which at times can become overwhelming, but unfortunately I have no option of a break from my life and responsibilities. I'm a stay at home dad to a 6 year old with autism, so my days are quite busy and stressful. It's not easy being exhausted all day and night with my son ( he has trouble going, and staying asleep), but the way I look at it is I was going to be worn out either way, from treatment, or the hep c itself. One thing that really helps for me, and I know this is such a cliche, but I go to the gym and lift weights twice a week. Exercise truly does give me back so much energy I would not have had if I just sat around, and it really elevates my mood as well. For anyone that deals with depression from hep c, the treatment, or just in general, I beg you to give an exercise routine a try. And something about strength training... that good energized feeling will stay with you all day. I even still smoke and I go. It is making a world of difference with my hep c and treatment. Maybe it will help you too...

Jordan G Jan 25, 2017

I was diagnosed with HCV in March 2000. I was devastated. I developed this taste in my mouth that I could not get rid of, tired all the time, just felt off. I have always tried to be in tune to my body. I would go to the doctor she would do labs and nothing. One day I went to the doctor and she wasn't in. I saw another doctor and he ordered the lab test for HCV and it was positive. If I had not been persistent I might have never been diagnosed. Instant state of depression. I had a liver biopsy and an ultrasound. They showed no liver damage. If the dx had not been present on the orders HCV would not have been suggested. That was a positive. Treatment was sought immediately. Interferon and Ribavirin was prescribed. Oh, I was so sick. After a year labs showed no virus. After 6 weeks I was labeled non responsive. The treatment had failed. Given the option of another round of treatment, I declined. I was so depressed. I never sought any counseling. If I had it to do all over, group counseling would have be an option. I dealt with the situation on my own. Did a lot of praying, researched HCV for answers, and alternative treatment options. Sharing my dx with only 5 people. Never discussed the dx. Having a HCV dx suggest a negative connotation. Things are changing. Find a trusted individual you can discuss your feeling and concerns with. Seeking professional help is always an option. I took my last dose of Harvoni December 12, 2016. After 16 years there is no trace of HCV in my blood. Thank God for the miracle of modern medicine. If you are taking Harvoni and are experiencing the side effects associated with the medicine, hang in there. I feel like I have a new lease on life at age 67. I am open to any questions.

Juean L Jan 25, 2017

This is in response to Michelle L. On January 17, 2017. This is exactlly what happened to me and my husband. We lost everything, family turned their backs on us. I felt helpless. He needs to be on LACTULOSE and RIFAXIMINE. It's sounds like encephalopathy. Talk to your husband's G.I doctor for this. I don't know what your beliefs are, but talking to HIM (you know GOD) changed our lives forever. He got cured in 2014 and life has never been better ( especially with his "loving family" is gone ;-) ) By the way, I, myself am on DIALYSIS , thank GOD my husband came back to me to help me deal with my own medical problem. DO NOT STOP FIGHTING!

Timaria S. Jan 24, 2017

This is just sort of a short synopsis of of last 14 or 15 years! Of those years, 13 and a half were the suffering years! I don't have to tell anyone what they already know! Yes, tried Interferon and Riboverin! Lost 3 years of my life from side effects! But this is not new to you brave folks! A year and a half ago at Stage 3, with essentially one to go! My team of specialist fought to get me Olysio and Sovaldi! My insurance wanted nothing to do with me, and you the old timers know the story about the two drugs being owned by 2 separate pharmaceutical companies with nobody budging! Besides, I was about $180.000 short! This was pre-Harvoni days! The team came through ( Heptologist), I was given the medication, and only 3 weeks later began to feel human! Now for the epiphany! Today, two years later, there is nothing I won't try! Except for maybe getting my ex-wife back, after leaving me when I needed a bit of support! Currently I'm attempting to to push my Pet Sitting/ Dog/ Emotional Rehab. Business on its feet, so I might retire before I'm 90 years old! I do love it! I could use some advertising/ website help for maybe a trade! But wait, the epiphany!! Did I mention a life time of A.D.H.D.? It almost adds humor to the story! Before I began to feel the ravages of a failing liver, I was quite active and a bit of a loose cannon in the chances I was taking in the Glass Business which entailed lots of blood and inherent danger! Here it is: today while balancing on an extension ladder to pick the very top oranges from my tree! ( We have roof rats out here in Phoenix if the citrus aren't picked)! I had an epiphany, while the ladder was skidding a bit out of control and me jumping over to a more stable branch! Not bad for 65 year old! I REALIZED RIGHT THERE AND THEN, THAT I WOULD MUCH RATHER DIE, FALLING OFF THAT LADDER, KNOWING THAT I ACCOMPLISHED SOMETHING (THAT I MIGHT HAVE DONE PRE-HEP C DAYS), THEN DIE A SLOW DEATH WITH HEP C! I HAD BECOME LESS THAN A PERSON, and the terror of waking up every day with the feeling of having the flu, for me, is worse than death! Bless you all! Keep fighting! Force the government to step in and help! Those receiving Hep C while serving in the Military need a lot of help from your politicians and the rest of the country! Maybe the President wishes to step up on this one! Don't depend on it! Keep fighting, the cure is remarkable! www.allanspetsolutions.com Need some help if possible! Not a computer wizz, and lost many years being sick! BY THE WAY, AFTER LESS THAN TWO YEARS, I AM NOW AT STAGE 1. LIFE LOOKS DOABLE!

Allan C. Jan 24, 2017

I didn't even know I had it. I had moved to another state and wanted a complete physical check-up. Test results came back and showed I had it, but I'm on Medicaid and didn't expect that they would cover the medication as it was $1,120 a pill everyday for 90 days. They ok'd Harvoni. The doctors screwed up the prescription and accidentally stopped my treatment after 8 weeks, and after 10 days of no drugs, got it reinstated. I still showed up with 0 antibodies present after several weeks, but finished the 12-week course.

Kim S Jan 24, 2017

My story began as an ironic twist of fate. It began by reading a medical magazine in the early 1980's. There was an article which contained Elisa C . I read the article because my name is also Elisa C. When I went for my physical I asked the physician to test me for HCV because of this article I just read about Elisa C test. Low and behold the test was positive for HCV. Other than being chronically tired which I attributed to my working long hours , I was fine. I went to a gastro doc in NY and she insisted on a liver biopsy. After the biopsy the doc cut her hands on some broken glass which contained - my blood. The doctor was shocked in terror and began screaming I have to go see the Guru ? Who the heck is the Guru? When she calmed down a bit I asked her who was the Guru. She said Dr. Jacobsen in NYC. Immediately I made an appointment with the Guru in NYC. Nice man, very helpful. He put me on whatever drugs they had back then. 5% cure rate back then. I was not cured. The Guru told me not to give up hope, something will come along. Ten yrs later I was referred to Dr. Lake Bakar. Also a very nice man. He was a VA reseacher and head of GI in Northports VA. He also had a private practice . He administered the next latest greatest HCV drug 50% chance of i t working. It was long difficult regimen. The drugs turned me into a raving lunatic. Five Yrs ago I went to see Dr. David Purow of the Digestive Health Ctr. Northport NY. He did his homework. Pulled my records from the past and told me to hold off a while. The drugs have some problems. A Yr later Dr Purow called me and asked me if I was willing to try the Abbie V drug. I did, There was no mental issues from the drug and within weeks I was cured to an undetectable viral level. The bottom line of my story is find good physicians you can trust and let them drive the bus. After 30 yrs of HCV. I did not believe I would live long enough to see a cure. I credit the researchers and most important Dr. David Purow. I have been cured two yrs now. Two insanely incredible college age children, a wonderful husband and I am alive to see others get cured as well. What a country, what a great time. I just hope Trump doesnt screw it up. If you have not been cured, stay optimistic and keep the faith. I wish you well one and all.

Elisa C. F Jan 24, 2017

I was diagnosed with hep c in 2006. Went though the interferon/ribavirin 48 week treatment injecting interferon once a week in stomach and thigh and took 9 ribavirin pills a day. With horrible side affect destructive rage depression insomnia etc. After 48 weeks the Veterans Hospital said I was cured. Now 11 years later after a physical I am still diagnosed with hep c and swear I did nothing to reinfect myself. After 11/12 years I'm freaked.

MIKE w Jan 23, 2017

My husband had an affair with someone one night and has now been recently diagnosed with hep C. I'm not sure if I have it yet, but I'm currently pregnant with our second child. And I don't know weather to be mad sad or scared. What's the point? He was never completely faithful to me from the beginning. Who knows how long he's even had hep C for. All I do know is that I need to make sure my babies don't have it and that I live long enough to see them make it in life then I'll be ok. Perhaps it's my fault for staying with him. But I actually do love him and I couldn't imagine my life with anyone else. I've never strayed or cheated on him I never would. Cheating is stupid! Now I have to get tested but I already know there's a very likely chance I have it. I've been married to him for 6 years. I've used his toothbrush when I couldn't find mine. I've shaved my legs with his razors. Unprotected sex of course because in my delusional mind I thought we were in a committed monogamous relationship. I've never used drugs or needles other than from a DR. When they need to take my blood. I'm pissed off yes. But it doesn't do me any good being angry or sad. I just have to figure out what to do with this and how I'm going to keep my babies safe. Seeing them happy will be the only thing that matters now. My life is over it's all about them now.

Lindsay V Jan 21, 2017

To Dennis Cyr Go see a doctor (gastroentologist). I'm sure there is something for hep c genotype 3. It might cost $100,00 for a visit but it could be the best hundred you ever spent. There are programs out there for people like us so don't give up. Good luck !

Roland G Jan 21, 2017

My partner if 23years has been finished with his treatment now for over 6 months. He had bouts of depression that has not gone away l. I am at my wits end, he has now been having hallucinations, severe depression, anxiety he us only 56 years old, and I have tried to tell the people involved about his first signs of mental issues. Now I am taking him again, to the outpatients debt, to try and get him help I am so tired of no one actually helping just sending a clearly I'll man home to suffer with no treatment, even though he has has spoken to, I have spoken to, and our daughter has spoken to, with him present and pointed out he is in no fit state to declare himself competent, but still they send him away I'll take him this time again to the hospital and I don't know what to do if they don't help him this time, I feel helpless.! ? Im writing this as I wait for a taxi to come get us,I hope they do something this time.

Michelle L Jan 19, 2017

I was reading many of other stories and am promted to share mine. I was diagnosed in 2012 with Hep C and now have full blown cirrhosis. Doctors figure I have had it for 20 years or more for the damage it has done. I am presently on the waiting list for a transplant ,however my health is deterioating more and more. I go in once a week for paracentisis which is where they drain fluid from the stomach and its called ascities. It has been my biggest challenge now for the past 2 years and because of it I have now a hernia in my stomach as well. I recently started the treatment for Hep C and am in my 12th week now. I take Sovaldi and Deklenza once a day for a maximun of 24 weeks, and so far have had no side effects that bother me other than a headache from time to time. I am grateful to be on this as the cost is so outrageous that I wouldnt be able to afford it, but my doctor sent a letter in to a place of compassion and they approved me for it so I give a huge thanks to them and to my doctor for giving this to me.. I do not know yet if it is successful but have faith that it will work. I dont consider myself old at 50 and yet some days I feel like 90, I am always very fatigued and have next to no body mass left due to liver functioning poorly and my life simply revolves around doctor appts, blood work, test after test, my varicies have ruptured twice and had to be repaired and the list goes on.. My biggest wonder is why I never knew I had it for so many years and have had 5 children in that time as well. My daughter who is just waiting to turn 18 has offered the greatest gift ever and that is to be a live donor for me and give me a portion of her liver and she would grow back a new piece in a year or less. You cant imagine what that feels like as a parent cause thats my baby and no one wants anything to happen to their own child so its a tough call for me at the moment. It could mean having transplant alot sooner and while I am still reasonably able to handle the surgery or I can sit on the list for another year or more too while my health diminishes more and maybe then it will be too late. Nevertheless its important to have a good support system, and follow your doctors care closely and maintain a healthier lifestyle. Life is precious and can be gone in a blink but goodluck to everyone who is a survivor suffering with the virus I hope we can all benefit from hearing each others experiences and help others who are just finding out. Good luck and God bless you all.

Leanne S Jan 16, 2017

Hello, my name is Juanita and I used to have Hep_c. I was a girl who used to like to party and share needles and drink. I thought I was careful about a lot of things specially sharing needle at the time of my drug use. I always had check ups, but never for Hep- c. I really don't know when I contracted hep but a couple of years ago, me and the hubby started to donate blood. That's when I found out I had the virus, I was treated immediately. The medication was a strong one. The meds for hep-c were strong and makes you feel weak and nauseated. I wouldn't wish that on my worst enemy. I thought it would never end, but with a loving God, husband, and family and friends I made it . I may have been cured but Low and behold, that's when I found out it had caused scarring of my liver. You see I gave up the drugs 8 and 1/2 years ago and the hard liquor about the same time. I still drank alcohol , though. I thought that my liver would regenerate it's self and I would be fine. Well, that was not the case. I now have to have a liver transplant. I am scared. There's all kind of things that can wrong with a transplant and if it is not severe , you are put on a list. Now I have to sit here and wait for a liver{ if they find one that matches my blood type and other things}, that may never come. So my word to you is Keep the faith my friends and keep sharing the word about Hep- c. Don't be embarrassed to let people know about the virus , it may just save a persons life and keep them from going what I and many others are facing now.

Juanita K. Jan 15, 2017

I would like to know if there's anything out there for genotype 3 if so I would appreciate it if somebody could let me know it's very important it's my life on the line

Dennis Cyr Jan 15, 2017

I am 65 years old. I probably became infected with Hep C sometime between 1969 - 1975. In 2012 I had a viral load of 19m. I had a biopsy, no liver damage. Just before treatment the viral load was 4.8m. I began Harvoni treatment 12 weeks ago. Tomorrow I take my last pill. After 28 days it was undetectable. I go Friday for the end of treatment blood test. I had very little side effects and went about life normally during the treatment. I have drank alcohol and smoked pot during the past 30 days or so. I'll find out next week how it did. Oh, I have had 4 close friends from high school that have died from the disease.

Leroy B. Jan 11, 2017

I was told in 1990 I have hep c .so they tested again yes I have it .I get tested every 3 months threw my doctor to monitor it I think the baddest reading was 66 infected out of 100 viral load. well fast forward I haven't done anything special never been on meds for hep c either or my other terminal illness. i have a very very strong immune system I was told I always have. now its jan 10 2017 2 weeks ago I was shown I have totally cured myself of hep c there is no traces of it now and I didn't do anything never took nothing I eat a lot of fruit and vegetables and never greasy oily foods it gives me the runs. well I have done research on this there is 15 percent of population that can cure themselves of bad life threatening diseases.

stacy halv Jan 11, 2017

I was diagnosed with hep c 12 years ago by my doctor during my recommended full physical at the age of 40. I was very taken aback by this and tried to seek treatment but I didn't have the coverage for it. I had years to research all the cures and was taken by suprise all of the side affects. New medications have come to be approved by the FDA in recent years with less side affects. I have been able to get coverage through employment and the timing couldn't have been better. I am now on the newest one epclusa and the side effects are next to nothing for me and as is for many. My viral load has went to not detected after 4 weeks and liver enzymes are at a happy 74 with normal liver function. It's recommended to finish th full 12 weeks and I'm happy to do so to be considered CURED. There is hope after all.

Mark S Jan 11, 2017

Hi I believe I caught hepatitis c in 85. I found out in 1990 to 95. In 96 I went to sir Charles they told me that my liver blood tests were all good. They said it wasn't a high priority. That's because my blood test for liver was good. So that door was closed. A few months later I had appointment at royal Perth. I saw Dr Wendy Cheng she told me that my blood tests were whith in the parameters of the liver test. Dr Cheng said I could have the interferon and riboviran or wait for the new meds that were in the pipeline. I decided to wait for the new drugs and continued to have my liver blood tests. 2012 I wasn't feeling well I had an ultrasound which should lumps in liver growths on both kidneys and left hand adrenaline gland my portal artery had stretched by 10+millimeters plus other artery stretched as well. I asked the dr at what point do these arteries burst Dr j.holt of nolamara medical office. Said it depends on the elasticity of the artery. Well I would never of guessed that. Ha ha well comin bloody sense. So I said to dr j.Holt should I be mowing the lawn and cleaning up leAves Dr j.holt said yeah no problem. If that portal artery had burst i wouldn't be around to complain that is for sure. They call themselves Dr's what a joke. The preasure inportal artery is about 45lbs per square inch or in killapascials I wouldn't know. I still hadn't started chemo finally after going into the hospital a couple of times they finally started my treatment which was riboviran and interferon the injection I did once a week it was i believe the injection was the most you could dial up on syringe and 7 200MG tablets. I had my first injection at the hospital with in twenty minutes my legs were tingling and forarms then 5 hours later I took 4 of the 200mg tablets knocked me around a bit. They had to reduce the tablets it was effecting my breathing. Once a month I would get my month supply which consists of 4 injections and 196 200mg tablets. I thought the nurses would keep a close eye on the expensive meds. I ended up with about 190 capsules left over i gave them to my chemist which get moved on to other countries. Then when I went back for my monthly meds I told the nurse not to give me another 196 capsules which they didn't I had enough. If I hadn't keept an eye on the capsules they would have given me another box of capsules. Which cost 2 and a half grand. Not good and I'm only one person. So how much more money was just wasted. I then saw a nurse that couldn't read a blood test. I complained my blood test results disappeared. Then on my second last appointment i was to have the camera put down my throat again. When I went for my last appointment the dr told me they weren't going to do it. Earlier the nurse i complained about was rubbing her self up and down the Dr's leg in the side of the corridor. She looked at me and smiled. Nurses aren't DR'S .before you start treatment you have to see a psychiatrist. Before and after the phyc I was to see had to council her appointment due to a mess up. Be on your toes. In the end I refused to have anything to do with nurses. I still have about 6 growths or more now I have a blood test scanning for cancer in tumours. The big problem is some Dr's do a basic blood liver test. It's not good enough you need to have a more complex blood test. I allso have a blood abnormality.

Rod, C Jan 10, 2017

This is for people who have been told you can sexually transmit HepC 1A. I was married for 12 years before anyone including me knew. I found out when the red cross started testing blood donations. At that time there was no known treatment wife wigged out and everyone kids and all got tested. I had been positive for the whole 12 years and everyone was negative. But now my wife wants me to wear a condom no more oral sex for me and put your shaving kit away from everybody. I don't think you can get it from sex,it is a blood born pathogen. It has to get in your blood. The treatment caused my divorce and also caused me to end up in jail due to inability to control anger(nothing major and no charges) You don't get angry for no reason but when you do as in my case you over react. It also makes you suicidal. Marijuana helped me cope. The treatment ruined my life so I don't know what to say to people. Get in a group of people who are receiving treatment. But be aware that you will be very easily angered and keep that in your mind always. If you own guns lock them up and give a friend the key. I am or was non detectable. I could only take about 10 weeks of ribavirin and interferon and I had to stop treatment. It worked but I still have the side effects from Ribavirin although not as bad. At work all cuts and injury's are treated as contaminated so they will automatically take precautions for blood born pathogens. I would not tell anybody unless they were administering first aid without proper protection and then I would say you need to follow procedure.My advice is to keep it among the people in your support group.Get in one as soon as you are diagnosed. That and MJ helped me cope

John B Jan 10, 2017

Diagnosed with HepC many years ago. Not exactly sure when, but most of the people I socialized with in the 90''s test positive. Some of them went thru interferon treatment, but I elected to pass on that due to side effects. Heard about Harvoni about 5 years ago. Tried to get into clinical trials in California. Then I moved to Texas and all the clinical trials in that state were closed. Moved to Florida and again applied for Harvoni. Was approved in 24 hours. I had no symptoms other than slightly elevated liver levels. I had a 7.6 million viral load. I was not tested for cirrhosis because of lack of funds. I had not used illegal drugs for decades. I drink alcohol rarely. I changed none of my habits during treatment. 4 weeks into treatment, my blood tests came back with Hep C "undetected". I am taking the final month of Harvoni as recommended to make sure HepC will not come back. I had zero side effects from Harvoni. Took the pill about an hour before I wanted to go to sleep. Felt nothing at all. One evening I fell asleep before taking the pill. Took the pill immediately upon awakening in the AM. Went thru the day and felt absolutely no effect from the medication. Grateful to be cured. The sooner the price on this miracle drug comes down to a realistic price the better. As we've all heard, this drug works.

Gioconda D Jan 9, 2017

I was treated 6 months in 2010 to 2011..pegulated interferone and ribavirin..cleared for a year, came back treated with the first pill solivda not spelled correctly...and ribavirin..3 months..never cleared...now viral load over 10 million, diagnosed with hypothyroidism...so dont know what's next.

Melissa K. Jan 5, 2017

Please I need urgent advice, I was talking harvoni plus as treatment for hepatitis C genotype 1A, after 8 days I have stomach pain and after doing endscopy and bandage in the upper part of medicine doctor recommend to stop medicine and wait epclusa. I started epclusa medicine from December 1st, now I finish 30 tablet, but because I am ordering the epclusa online and due to Christmas holidays the medicine will late around 10 days. my question now can I take harvoni medicine for this 10 days until reciving epclusa or I should wait epclusa without taking other medicine until recived and should I start over again or continue the other 2 months to complete 3 months treatment. Thanks in advance

Mohsen E. Jan 2, 2017

Hello I was reading over some of your personal survival hep.c story and experience regarding the treatment. First of all I would like to say well done for all you getting through it as I know it wasn't easy.So I thought I would like to share my experience to. Ive been a hep.c sufferer for the past ten years. But before I share my experience I would like to assure those who have not been offered the treatment as yet. That all is not with out hope. Having this virus as many positive benefits. Because of having the virus it has forced me to take Responsibility for my health and my diet. Ive never felt more healthy for doing so. So Rather than let this take control me I decide to face my fears and kicked them to the curb and face them. So I decided to do some research on what foods I should avoid and what food is good for the liver. Also having a good friend to support you helps not forgetting exercise work out that is good for the mind that helps with the depression that is part of the side effects to. But before doing so talk it through with your hep.c nurse or doctor. They will give you accurate advice as what works for others may not work for you (cautions) AVOID ALCOHOL BE CAREFUlL WITH DIETARY SUPPLEMENTS. So let me start by telling you about my survival story with the treatment. Ive been attending kings college hospital ever since I was diagnosed and been through most the treatments that have been available interferon and Ribavirin. The side effects were not a pleasant experience. Because I was desperate I decided to push through each time I got my blood checked they were not detecting the virus so I was hopeful. But sadly when I stopped the treatment it was hiding that put me into a very bad depression. I then started to pray to my heavenly father Jehovah to help me endure because I know he will give me the power and the strength beyond what is normal help me face the suffering I was experiencing. And because we are not born with that power to endure we have to pray for it. As always he got me through it. So with that help rather than let this control me I decide to take action and keep my positive attitude.Then I was offered a seconded chance to go back on interferon along with a new treatment again. Cant remember the name of it. But sadly that was worse than the first and I lasted only 2 weeks on it but I was still hopeful my heavenly father would find a way out for me and he did. I was offered to go on the new 2016 treatment of witch was happy to except because of the last two treatment failed to work they put me on a 6 months course of Ribavirin Exviera viekrax. Just to be on the the safe side that the treatment works. I didn't want to suffer anymore with this deadly virus even though I knew there would be the unpleasant side effects. So I was happy to except but to my surprise there were only a few all I suffered really was fatigue and restlessness forgetfulness. Any one who has been through a withdrawal this is a walk in the park. But like I said we are all different you may suffer more than I did. Once again I must give some (Caution) because hep.c affects the brain you may suffer with brain fog as in (Forgetfulness) and the treatment can add to that if you do forget the treatment may not work. So to be on the safe side I set my alarm clock so I could take it every day at the same time. Now I have completed my 6 month course of treatment that ended on 23/12/2016 its been a long six months but I know I still need to recover from the effects of the treatment. I'm not complaining because I have been blessed to be given the chance to have a brand new start to 2017 I give thank to my heavenly father Jehovah.also not forgetting the doctors at kings hosipital who were very supportive and kind and always had a listening ear. So thats my personal Experience and do hope this in some way helps those who are a bit Apprehensive about going on to the treatment. So all the best for 2017 for those who have been completed the treatment and for those who have yet to still. The end

Sandra W. Dec 29, 2016

HARVONI..... ( ya I'm ready to be cured.)....I've had Hepititis C since 1986. I remember the day cause I got really sick, mind blowing sick, violently throwing up for like 8-12 hours, turned all yellow, my eyes and all my skin, I thought I was going to die...couldn't even get to the phone to call for help, ... On March 24/2016... I seen a Doctor, A liver specialist, that says to me " Well Richard you have Hep C.....Genotype 1 A..requires treatment for 8 weeks , that's one pill a day for two months and you're cured, by the looks of things, there's no damage. or scarring to your liver...No Cirrhosis ...and it still functions normally, this is good, but with a Fibroscore of 2.7 it is not medically necessary to cure you at this time, you'll have to wait untill it's at least 7.5 come back next year, or if you want ? I can write you a prescription...Sure no problem, you can pick them up anytime you want'... which isn't true because of the high cost of the treatment. Since that day in 1986 I have rarely used alcohol, and have completely forgotten about till now.

Richard M Dec 29, 2016

I am 30 years old I was told I have hep c from I was like around 21. I am mother of five children. But I am scared I never went to get help for my hep c. I still have it got it from a home made tatoo that a family that has it. I have a lot of qustions and scared of my life. I would like help but I have a learning problem and Im not good with understanding things. I have a boyfriend scared I can give to him dont know if I should eat differnt or do my life differnt. Can I die or is there a chance Im scared i dont know what to do ....I do not work I am on ssi and cant pay a doctor.

Amanda H.G Dec 27, 2016

Dear Hep c survivors, newbies & oldtimers. My story started in 1971 had a blood transfusion I was 18 yrs old. In 1987/89 they had a test for Hep C. Physicians stated looks like I had it alonnnng time. By that time it had already been about 16-18 yrs with it!! In 2015 a physician in Az heard that I was a long Survivor with Hep c. Told me that Gilead that produce Harvoni for my Genotype 1b would like to Give me a $95,000 price tag to cure me.! I took a 12 wk course and in July 2015 after 44yrs with Disease I am cured, period, but there is a down side it did a number on me. I was diagnosed with f4 Cirhosis oh yea by the way in 1987 the physicians told me to stop drinking any alcohol or I would of Died yrs ago. So I Did, period. My Health is interesting for a 64yr old. I would say to All like I have seen get your Cure Now. Be Strong and know my Survival is the Truth, thru these years I have gotten real close to God. Oh Yea, there was nothing to Holdon to. Until Cure.

Jolliet A Dec 25, 2016

Cured of hep c in 2014. I am still extremely fatigued all of the time with constant pain in my legs, some days are better than others. I just don't understand why I don't feel better yet. Has anyone else experienced the same?

Anna C Dec 22, 2016

I was definitely not expecting the news when I received the call from the doctors office 1 year and a half ago. I tested positive for Hep C and was sent to a specialist. My anxiety levels were through the roof. I could not have figured out how I could have contracted Hep C . After going to the GI dr and obtaining several more labs I was told I was testing positive for Hep C but the virus was no where to be found. I was told not to share razor blade, toothbrushes, etc with anyone. I kept going to the specialist for a while and following up every 6 months. I wanted to start treatment to eradicate the virus I did not want to have Hep C in my system. In Dec of 2016, I had forgotten about my appt and actually did not want to go cause I was going to hear the same news however this time my results came back and the physician informed me I had been cured. While I was testing positive for Hep C I was told it was due to the antibodies in my system. Hep C was once in my body but it was gone. The physician stated there is a small percent of the population can beat the virus without treatment. While I thank God I am cured I am still hoping for the best for everyone else with Hep C.

Joseph O Dec 22, 2016

I am 69 years old and have had Hep C for 10 years that I am aware of. I do not know how I contracted the virus but I have felt like I was living with a time bomb just waiting to go off. I did not want to take any previous treatment because of the harsh side effects so after my last blood test when my viral load went over 1,000,000 I decided now was the time to try the Harvoni. I am in my 2nd week of treatment and so very thankful that I have not experienced any major problems with this drug. Lucky for me my insurance covered all but $5.00. What a relief. I go for a blood test at 4 weeks and I am only on an 8 week regimen. So grateful to be given a chance to eradicate this from my blood. I am very lucky that my abdomen scan and fiber scan detected no cirrhosis. For those who are hesistant about taking this drug, don't be. So thankful to the researchers for allowing me to look forward to a healthy life. SO GRATEFUL

Dec 22, 2016

Diagnosed in 91 with highly elevated enzymes found following a gyn appt. Thank God for that! Trial in 93-94 with Interferon (pre pen) left me with a very high viral load, but it did lower the enzymes quite a bit. Tried Infergen in 95 with no success. Then Pegasus trial with pegalated interferon and ribaviron in 2001. After months of treatment the virus became undetectable. Of course it returned a month later! I cleaned up my life and quit drinking.I became the poster child for hep c and educated everyone who would listen. I saw many people who were much sicker than I was. I just kept thinking that there was some good coming out of it all. I became patient and waited 14 years and Harvoni entered my life in 2014! I'm cured, but need to make sure my physician follows up for any signs of liver issues at each visit. What a long strange trip it's been! Please don't give up!

Judith P Dec 21, 2016

Hello, My story starts with finding out I had Hep C after the birth of my child in 1997, I was 32 years old. I had decided to donate blood at work in 1998. A few weeks later, I received a letter from Red Cross stating that I had HEP C. I was devasted, I had just bought a house & had a four month old. Looking back, I probably have had Hep C since I was a teenager and didn't know it. I never sought treatment in 1998, as I was a single Mom now with child to raise. I had my first liver biopsy in 2001 and my levels were extremely high, but I still didn't take it as serious as I should have as one of the Dr.'s told me I could die of many other things before this and could live to a ripe old age? Also from what I had read, any meds for HEP C at the time made you so sick, I couldn't do that and work and raise a child. Over the years, my biggest symptom started out with lots of fatigue. In 2007, started having a lot of swelling in my ankles, neck issues. I lost grip in my right arm in 2011 for a short period. I still have arm weakness, hips, feet, back & neck issues. So obviously, HEP C was taking a toll and I didn't realize it! I never connected any of this to HEP C. I thought it may have been hereditary from a grandmother that had some arthritis issues. Since 2013 I've been seeing a Rhuematologist for muscle, joint, back and neck issues. He suggested that I check with my Gastroenterologist as there is a cure for HEP C and I should look into it. In 2014 I started getting this dark blotchy spots on my calves and up to my thighs. I went to my regular MD, several Dermatologist and no one could figure out what the splotches were. In January of 2015 I had my gallbladder removed & Dr, went ahead and did a liver biopsy. I saw my Gastroenterologist in October of 2015 and he said he would do his best to get Harvoni approved for me. I was denied approval for Harvoni several times as my Dr. relentlessly sent letters on my behalf. After a few denial letters, I noticed that one of the requirements is venous insufficiency. In October of 2015, I saw a heart and vein Dr. and Dr. determined the spots were from venous insufficiency. I immediately advised my insurance company with proof of my medical condition, and was immediately approved for Harvoni and began taking my RX in March 2016. The biggest side effect for me was extreme fatigue at first, light headed, headaches & some nausea. My Harvoni Script was for 12 weeks. On week four, my labs said virus was clear. :) I finished my RX the day before my daughter graduated High School May 25, 2016. I had to wait for 12 weeks for final labs. Within 2 weeks after finishing Harvoni, I began to get so sick, I couldn't get out of the bed in the mornings. It was almost like motion sickness 24/7. I had this for two months. I went to the Dr. and had test ran and couldn't find anything wrong. At the end of August/ first part of September, the nausea, subsided, headaches and general ill feeling gradually left. I spoke with my Gastro Doc to let him know side effects and he said no way that was connected to Harvoni, especially since I had ceased taking the medication? I'm not so sure... I think it affects everyone different. It was rough for a while, but was super excited when my final labs results came back and said the virus is CLEAR! I still have issues everyday and probably always will from the HEP C taking a toll on my joints and connective tissues. But I am so grateful to Dr. Cochran, Gilead and my insurance for approving this medication. It's well worth what I went through! Especially, to know that my liver can function again. I truly think that part of my illness after Harvoni was my body just trying to adjust to functioning normally again. Thank you GOD for allowing me the privilege to take Harvoni, as I am truly blessed. If anyone can get approved and take the medication, I would highly recommend it, side affects are worth it, especially if it means saving your life! Also, I worked with two Pharmacy's & they were both so kind, caring and concerned, when speaking with me prior to and during treatments when shipping my meds. Sincerely, L. Smith

Dec 21, 2016

I think I probably got Hepatitis C from sharing hypodermics once or more times, but truthfully, I do not know what event or practice in my life caused me to get it. I'd started with tobacco at 9 or so a bit and beer and then marijuana at 13 before a ski bus trip to the mountains the night before. From there, things between me and my folks were never the same and me and my friends got into acid, Benzedrine and what other drugs were in the SF bay area at that time which was the 1968-1969 period and I kept going after I was taught how to inject speed ripped from an infirmary in a vile in 1969 or so at a party. I was a musician, so that was unfortunately a very good cover for me so I could keep going with the partying way too much. I wish that before my gastroenterologist prescribed the Interferon alfa-2a plus ribavirin combo - to be injected for 24 weeks, the doctor would have recommended that I start a walking program by starting out walking 7 minutes the first day, 8 the second day and on and on until I reached 40 minutes per day and then keep doing that 6 or 7 days per week for a year or so, resting from day to day during the night or when I feel tired. And that he'd just have told me not to eat things that make me feel sick to my stomach after I discover that they do that - rather than prescribing medical pot which will mask your malaise. Don't over-eat either. The less your body has to work on, the better - to a point and so on. Let it use it's energy to heal your problem and fight the bad thing. That way, with the walking, resting when I'm tired and eating enough, my immune system could have come into its best condition which it never ever probably had gotten to - since I never walked so much in my life. Now it is 3 years later than when I started my walking program and my cholesterol numbers have gone down and I'm in OK shape, but now 61 and so 3 years older. Being in this mental, neurologically damaged (diagnosed as "mild cognitive impairment" condition is the worst time I've ever had possibly besides being on the lousy drugs they used to give me when my parents would take me to psychiatric wards when I was a child, teenager, youth and a little later into "adolescence" until I was say - 25 years old. I've lost so many "life days" due to the Hepatitis C treatment. If I were a horse and knew how to tell my owner to shoot me, I'd probably at least wish I could do that. No kidding. This is a form of hell on earth - so really TRY your best to somehow get your immune system up well - by yourself - not with the overpriced drugs from outer space or I don't know where. No friends, I became to shy and quiet after my folks died. Can't find a girlfriend, addicted to porn, etc. So it really is the worst situation - though others have I'm sure at times found worse. I'm not bragging. Just telling you that there is no way to express where I am at in my head. You wouldn't like it at all if you could last.

Jim J Dec 20, 2016

I am a survivor of hep c. I have been cured in 12 weeks with Harvoni. The side effects were tiredness and some muscle soreness. I am thankful. I also suffer from bi-polar. I noticed after being cured my mental health has really improved. My psychiatric care giver pointed out that hep c causes inflammation that also effects the brain. Since I have been cured. My mental health is much more manageable. I wonder if any one has written about or done any studies on hep c and your brain. I am in stage 2 of cirrhosis and I still feel great. I have managed to lose 100lbs in 18 mnths. I changed my diet and exercise.

Dec 19, 2016

Okay im 33 years old now and I found out when I just turned 18 when I was in basic training for the Army National Guard that I had hep C genotype 1. So I had a liver biopsy done and they told me of the interferon and ribavaran or however you say it. So I started taking it. I was still on drugs and little and my girlfriend broke up with me right after I started taking it and I got so depressed I think it was from the medicine but I had to quit taking it. And I was still depressed and did more drugs and ended up going to jail for 3 years and I just kind of tried to forget about it but it was always in the back of my mind. So I met my wife and I did quit drinking and we had a kid but again it was in the back of my mind always. I never had insurance and I never told my wife that I had it. ( I know horrible ) but the more I got into my lie the harder it was to tell the truth. so I decided to go to the doctor and act like it was a surprise, well the doc never called me back. So I'm like what the hell why you never call me back to tell me that I have Hep C he's like your blood work good but I still was like what well that's good but I know I have it. So he had me recommended me to a specialist and I have more blood work done they told me my blood work is good that's when it hits me do I really not have it. So we had more blood work done and it confirmed it that I do not have it and this is blood work within a six-month period. i only took the treatments for 2 months of a year-long process since I had genotype 1 and they told me I still didn't have it so I feel like it was a miracle that I don't have hep c anymore. So my point is have faith in God you never know what are you can do for you

chris n Dec 18, 2016

I'm a victim of a nurse who contaminated me with a needle she somehow used on her then on me. I got a letter about a year later stating I may have been exposed to the virus because I had went to emergency during the time she was employed. Long story as short as I can to not bore you, I did 12 weeks of ribavirin and sovaldi, which was the worst sickness, depressed, time of my life so far. My new outpatient business to treat addiction suffered, ironic, huh? I lost all the mental health clients, and am treated with disrespect, rudeness, and with no sympathy from the hospital who could have protected me by doing a little research before hiring this nurse. Ive considered myself spiritual, loving, understanding, but this experience seems to have changed me in ways I find challenging to overcome. Possibly by my immune system building back strong again, my business begins to stabilize, and I'm treated fairly with appropriate compensation, I can move forward, beyond this traumatic experience. Thank you.

Tammy T Dec 16, 2016

I was diagnosed with non-a/nonb in 1984 after I startedhaving anxiety attacks and fatigue by a very switched on Dr. who dealt with mainly HIV patients. I forgot about the hep for years but continued to suffer depression and occasionaly anxiety. A routine blood test in 1995 determined I had Hep C. I was told nothing about the effects of the disease at the time. When I was suffering perimenopausal symptons in my mid 40s my Dr at the time did liver tests and referred me to a Liver Clinic where I was advised to have a biopsy. (One of the most painful experiences of my life) I was advised as a result of this to have the interferon treatment. When I said I didn't like the idea of injecting myself, the Registrar I saw replied "it wouldn't be as bad as injecting yourself with Heroin, would it? I left the hospital feeling totally stunned, ashamed and furious and went into denial about the disease until 10 years later, after suffering a severe blood infection, which I was treated with intravenous antibiotics, I started to feel constantly tired and unwell. Subsequent tests revealed my liver functions going rampant, so after an ultrasound I agreed to undertake the Interferon/Ribavirin treatment for 6 months. The worst time of my life. So ill. It cost me my job, friends, my hair, my thyroid function. Just too ill to do anything but try to drag myself around. Not successful. A naturopath helped me get back to normal after that treatment, which was 2011. Since then my life has slowly deteriorated, I suffer anxiety, depression, fatigue, and the one I have never understood until finding this site and reading the stories, brain fog. I had a highly responsible job which suddenly I wasnt doing well, I would get so anxious I make mistakes, eventually taking 3 months stress leave and then getting fired when I returned to work. I have not worked since and seem to always feel tired, angry, anxious, depressed, aching joints, headache etc. Last year a friend also a Hep C sufferer went on clinical trials for sofosbuvir//daclatasvir treatment and after 3 months was virus free. She managed to get me onto the treatment through RPA, Sydney and I am 3 months into the treatment. I am feeling fatigued and itchy, have had some nausea and headaches but nothing like the horror of the Interferon. I have been reading all these stories and feel like I have a new explanation for how I have lost my ability to function properly the last 5 years. Maybe I'ts not just getting old, but this virus in my system. I am filled with new hope that after this treatment (6 months) I may feel able to get my life back. Thank you for your stories and good luck to all who suffer this debilitating affliction. Lesley K Dec 2016

Lesley K Dec 12, 2016

Diagnosed in 2008. Blood tests always normal and no symptoms. When harvoni came out I did a 2-month treatment and virus was undetectable by end of first month. Side effects were headaches (super hydrating mostly took care of them), weird dreams at night, and elevated blood pressure during treatment. Virus remains undetectable after 21 months!

Debra W Dec 11, 2016

I was diagnosed in 2006. I didn't believe my results and had my doctor re test me 3 times. Yes all three said Hep C. I also was diagnosed with a fatty liver, high cholesterol and hypothyroid all at once. Once I found out I went through the lows of knowing but trusted that with my strong mind set I would clear the virus on my own. Sounds crazy but during one of my specialist appointment the doctor came in and said "what exactly are you here for" so I told him and he said "but you don't have Hep C" . I went back to my family doctor and got checked and rechecked and TRUE I had cleared the virus. Every year I do all my blood work and always Clear. I'm sharing this because even though I cleared the virus I have been suffering symptoms since. It has progressively gotten worse where I have liver pain, itchiness, periodic fatigue, irritability, inflamed saliva glands, adrenal fatigue, high iron, candida and those are only Some of my symptoms. I keep following up with my doctor but he just reassures me that my blood test are clear and my liver function test always come back good. For years I thought all these symptoms were due to working out at high intensities (as I'm a fitness intrustor) but that is not the case. I quit exercising for a year thinking it was making me sick and I only got sicker. I have all the symptoms of Hep but no Hep? Makes no sense to me but it's real.

Karen T Dec 11, 2016

Successfully treated with 12 weeks of Harvoni. So thankful for the meds! My lab work is still a little 'off.' AFP level slightly elevated and low platelet count. Has Anyone experienced this?

WT T. Dec 10, 2016

Hi I was a heroine intravenous drug user for about 20 yrs. I was diagnosed with Hep C in 2006 and was still using until 2013. My health was starting to effect me so I called a liver specialist who had me tested and found out I was Stage 3 genotype1 with cirrohsis. The doctor put me on a 12 week regiment of Harvoni & Ribavirin in Feb 2016. My tests came back undetectable. Never had any side effects and the Pharmaceutical Company financed the expense for me. I am very glad I went ahead with the treatment!! I feel blessed!! I feel God has given me a 2nd chance!! I feel a whole lot better except I do have some bloating in my stomach but am taking medication for it. Plus trying to follow the low salt diet which the doctor ordered me to do. Am having a hard time with that! I know that drinking lots of water also helps. I have to make myself drink water daily. I don't like drinking water but am learning to like it. I hope my experience has helped!! I am a Hep C survivor!! God bless you all!

Connie H Dec 8, 2016

My name is Betty and I have been diagnosed with Hep C Gen 1 since September 2012.I was put on interferon + Ribavirin since Jan 2013, tested negative 2 times and after few months i had more viral load than before taking the treatment..then Sovaldi came in and i was told it was to be combined with Ribavirin, thinking of all the iching side effect i had before, i was reluctant to go for it.. my Dr encouraged me to wait for Harvoni which was to be released in the next 6 months. I waited and i am now done with Harvoni and am healed. I wanted to share my story to encourage others not to give up, but on a special note i want to tell Barbara that I relate much to her..i know what it means to be sick and alone...from being admitted outside your country all alone, without even a visit..the need to want to share your fear with someone close to you ,and then notice the person is not there for you due to various reasons.. etc..So no matter what happens, God watches over us in a way..so please contact me if you feel like it at [email protected] God bless you all.

Betty K. Dec 7, 2016

I was diagnosed with Hep C 8 yrs ago I started with the Vectrilis for 8 months to no avail It did nothing then my Dr put me on Insavacte with riba pak and interferon this treatment lasted 7to9 months again to no avail I had to wait 3 months for the Sovaldi to be approved by FDA started that with combo riba pak and interferon combination 12 weeks of nepagen shots to keep my w.bloods and procret for r.blood and platelets shots every week I was at the end of my rope but I stayed positive and by the grace of God I'm here to tell everyone as long as you stay positive and don't drink and abuse the chance for a knew life there is hope. My Grandson played a big part of me staying positive. He would say to me Grandpa how many shots did they give you today, My answer to Him was enough to let me play with you for another day. I think back to the 18 months of 2 times a week to the Dr and coming home to see the beauty and the positive encouragement and the star in his eye keep me positive and the prayers we would say before bedtime I wouldn't be able to tell you my story how important it is to have the test done even if your not a Baby Boomer Hep C is the silent Killer and its an epidemic that has to be stopped they money had no impact there are grants for people that have it and stay stopped without doing anything about I love life I was given another chance don't wait until its to late Peace to all that are still out there I am not 3 yrs Hep C free I just don't drink or do anything that will harm my Sobriety GK Be well take control of your life.Greg K

Greg USER NAME K Dec 7, 2016

I had a surgery on my Rotator cuf.the second day I had stomach ache and threw up what ever I ate. doctor gave me probiotic.In three months I lost 25 lb. After three months my stomach gets well . the blood test said I have positive Hepatitis c but inactive, and I felt fine and start to gain back my weight. I wonder how come I got so sick for three months and without treatment and get well. I don't understand how did I got it and how it get well without treatment. I don't have anything to do with other man, and my husband tested his blood is always negative for HC. Can anybody explain this.

Mimi popeske Dec 6, 2016

My husband was treated for Hep C with Inferon and Riboviran in 2005 after many years of elevated liver enzymes but no other real symptoms. He took the treatment 8 months but had to quit due to low white count. The gastroenterologist told him he was the luckiest person on earth afterwards as he showed no signs of the virus. The treatment was horrible as he felt like he had a bad case of flu all the time and was so weak. His regular MD checked his liver annually for 5 years after treatment without any elevated enzymes. The MD then stopped running any type of liver tests even though he went in for physicals annually. Told him he was cured. No follow up was recommended by the gastroenterologist after 5 years either. This Oct he had a sharp pain under right rib that lasted 20 min. He went to MD who thought he'd pulled a muscle but agreed to do an ultrasound as I thought he may have gallstones. The ultrasound showed an orange sized tumor in liver. HCC liver cancer. Too large for any type of radiation or liver resection. He's been given 6 months to live and starting oral chemo now. We trusted the MD's to know what correct follow up was and now know regular ultrasound, AFP lab should have been ongoing every year. Liver enzymes are the last to elevate with HCC or even cirrhosis. He does not have cirrhosis. Just a little scarring from Hep C. I'm writing this so all of you can insist you are monitored closely the rest of your life and insist on more than just a set of enzymes. My husband got nothing the last 6 years. He felt fine. Had he been properly screened he could've had this caught early and had a resection which is a cure for HCC. When you research the old Hep C treatment you will see the patients are at risk from damage already done prior to treatment. It just takes one cell. He was 55 when he got the treatment and is now 67. The new treatments also carry this risk and seems it's often about 10 years later when cancer will appear. Please insist you get regular screening to include cancer marker lab and ultrasound on an ongoing regular basis.

Dec 4, 2016

Thanks God for all , first of all i am hoping for each person to recover from that disease . i get it from where God know , i discover it 2006 , i cope with no medicine except milk thistle and ginseng nature until 6 months ago , i got the new medicine sofaldi , i use it for three months with other 2 liver medicine according to the protocol , i analyses 2 times and i got the negative result hoping it will not be back again , and i am active now not like before at all and thanks God in the end

Dec 3, 2016

I am responding to earlier poster Candy and others who shared her fear of Harvoni. There is absolutely nothing to fear, other than the cost, of course. At least some health insurance companies will cover it, and the drug company will indeed help you pay for it. I went through three rounds of interferon along with the other drugs for a total of 88 weeks and all I had to show for it was 88 lousy weeks. Well, I'm happy to say those days are over for all of us, and the success rates of the new generations of drugs is close to 100%. On 12 weeks of Harvoni I felt nothing at all--couldn't even tell I was taking medicine, a total piece of cake. So please, if you are afraid of taking the stuff, don't be. It is a fantastic sensation to know you're virus-free after 40-plus years, in my case. Good luck.

Ronnie C Dec 2, 2016

Just a short Pre Hep C History. Age 27 Full Hysterectomy, Gained substantial weight, had gallbladder and apendix out soon after, in 1995 (age 35) underwent Stomach Stapling (Weight loss Surgury). This was when there Wasn't any support of any type available. Went 1 entire year no food, no liquids every thing came right back up. I lived off of my own body, was in the hospital all the time for dehydration, a couple bags of saline and out the door I went. next was skin removal. First my arms, both were infected with staff, had a pic line in and on vancomyacin. After that had skin from my abdomen removed, Surgeon missed a bleeder in my belly, I almost bled to death internally, Rushed back to OR to fix leak and needed 8 Units of whole blood to resore my blood count. This is the point where I contracted Hep C Genotype 3. Ten years later is when I found I was posotive. At this point the treatments where harsh and unavailable due to my depression. Went another 16 years before an oral treatment became available. They started me on Sovaldi and Ribavirin, 30 day later ended up in hospital , Treatment was making me anemic and shutting down my kidneys. Two months went by before I was approved to get a new med called Daklinza. This time it was Sovaldi and Daklinza. Well I was told Daklinza had few side effects, HA HA. I was sick as hell. I was as bad as Chemotherapy without the hairloss. After a few more hospital stays I finally finished the treatment. I was told that the Hep C was Gone, So why did I feel like road kill every day. Three Weeks after I contracted C-Diff. My doctor started me on a ten days of Flagyl, 8 days into the flagyl I was getting sicker. I went to the hospital again to find out my C-Diff was Flagyl Resistant. I was started on at least 3 or more Antibiotics including Vancomyacin by IV and Oral. I started feeling better after a few days I went Home with 10 more days of Vancomyacin. Actually I was Feeling pretty good a this moment. After finishing the Vancomyacin I was retested for C-Diff and still came up Positive. I had one more chance then I was S.O.L. There was another antibiotic left called Difficid. I was on this for ten days and finally came up clean. Months later I ask This Question Every Day. "Why Every Day I LIve Do I Feel Sick, All My Joints Hurt, I Have Pancreatitis, My Legs are Bloated with Lymphodema, I am constantly in Pain in my Back and My Neck , I have Migraines almost Daily. I'm So Depressed because every day gets worse. Now I am on Oxygen 24-7 I have COPD, sleep with a BiPap every night. I have never ever smoked. When Do I start to feel Better?

Catherine K Dec 1, 2016

My son has had Hep C for many years though still drank alcohol a lot. He used to be addicted on heroine. He has been on Harvoni for the past month and a half and feels very tired and has a lot of colds. Also, his energy level is low. He said that he feels like his immune systems is gone. I'm not sure if he's on any supplements. Does anyone know how he can boost his immune system when he's on this drug?

Lori M. Nov 27, 2016

To all fellow sufferers of this bleedin' curse, may I suggest checking out the website 'FixHepc.com'. It has a wealth of information for all genotypes, with many informative posts, details regarding access to treatment with generic DAA's, and lots of forums on everything related, plus support from the members and guests. It's so helpful and a wonderful resource! The site is from Australia and includes advice for those in other countries on how to purchase and start treatment with safe and tested new generic DAA's. x

Angie K Nov 27, 2016

Angie K and Ettore S... Beth here from Newcastle NSW..55, IV amphetamine user through 80s. Diagnosed Hep C in 91. Angie, my 1999 treatment with Interferon/Riboviran similar except I only lasted 6 weeks before becoming so mentally debilitated and physically ill with my whole immune system shutting down requiring hospitalisation. I was also raising 3 young children alone while studying a Diploma in Community Service and Cert 4"s in Mental Health and D and A. I withdrew from program, being informed there would be no further help for me. Good I said, shove this poison. Since then I am so glad I left the program as the horror stories of Mental Ill Health and long term physical ramifications from these drugs are horrific for people who persisted. I have lived reasonably well since then but a week ago commenced the co-companion tablet therapy for Genotype 3a ( sorry cant spell the names but Soliviror and Daklenza ?? may be close ). I am experiencing headaches, fatigue and a little shortness with patience but am hoping this shifts as the drugs start to clear the virus from my liver. Hope to keep tabs with you both and please don't hesitate to email me. Cheers Beth

Beth L Nov 26, 2016

Well good news for once. I just talked to the Doc today and my blood test came back . Hep c is non detectable after one year. Hooray! I'm so happy I'm going to have a beer. Just kidding! I still have cirrhosis of nearly stage 4. Needless to say I am NOT drinking at all. My liver enzymes are normal and so are the rest of the tests. Because I'm at stage 3 to 4 I will have an ultrasound in May 2017 and another blood test in Dec 2017. There is about a 20 percent chance of liver cancer still looming so they will be monitoring twice a year for the immediate future. I will say that after a year since treatment I feel pretty good. I have managed to keep my weight in check, have decent blood pressure, and have managed to keep from doing the bad things to my body that I used to do when I was younger. This was my third teatment that I went through in my life. In 2001 Interferon and Ribavirin with no luck. In 2014 Sovaldi Interferon and Ribavirin and still no luck. Finally in 2015 Harvoni and Ribavirin we hit the magic combination, cured! I want everyone to know that you have hope and that the Lord really does look after us if we ask him to. Keep on trucking.

Roland G Nov 24, 2016

I have completed my 12 weeks treatment and completely undetectable. It was undetectable at 4 weeks. Now I have to do another 12 weeks of treatment. I do have chronic cirrhosis with complications and was referred to a transplant center. My question is I have to do 12 more weeks of treatment could this be due to the referral to the transplant center. I would appreciate any input that anyone has to offer. Thank you, Bob, scared in Kentucky

Robert Green Nov 21, 2016

I got hep c @17 sharing a needle. Ironic i had no idea anything would go wrong except possibly getting hooked on heroin. The hi felt very good however thank god i never did the drug a second time! I am 63 now and on my fourth round of treatment. Side effects are not as bad as the last time. I do feel tired and sometimes not often dizzy. I am hopeful but cautious for a cure after 3 tries. I worry often i will forget a dose. Last treatment i forgot a.m. pill til afternoon. Very upsetting. Pray 4 cure this time 4 me and everyone else. Thanks 4 reading

Doug D Nov 20, 2016

I have been on Harvoni and ribavirin for two months and I must say it has truly been a nightmare! The ribavirin caused me to to fall down onto concrete, has bought my platelets down to a 96, I slept for four days and when I got up finally I could not remember how to use the computer and I have had a computer business since 1998! I threw up everything I put in my stomach. Now my platelets at a 96 and I am black and blue all over. The ribavirin is one of the most dangerous and debilitating drugs on the market.

Cyndi Smith Nov 20, 2016

I took daklinza and solvadi for 12 weeks and now I am hepatitis C free!!!!!Thank God

Shirley C Nov 19, 2016

63 year old male. Diagnosed with Hep C in 2000. I'm certain that I contracted it by sharing needles back in the 70s. I had a liver biopsy when diagnosed in 2000 and I had stage 2 fibrosis. I had another biopsy in 2004 with same results of stage 2 fibrosis. In 2006 I tried to get rid of virus with pegasys combo Interferon and ribavirin but after 4 weeks my viral count did not decrease. Dr had me stop the treatment and I was labeled a non responder. I had no choice but to hope for a cure. 12 years later and I have been on Harvoni for 5 weeks. My 4 week blood work showed no detectable virus! Very minimal side effects, occasional headache and a bit of fatigue. Dr wants me to do the Harvoni for 24 weeks since I was a non responder in the past. I feel lucky that a cure has been found.

Steve A Nov 19, 2016

My name is Abbigail and I am now 21 years old and have been "cured" from Hepatitis C for almost 4 years. I was a teenager when I found out that I had gotten Hepatitis. I was a little girl still, technically. A junior in high school to be exact. I praise god every single day that I found out when I did because I don't know where I would be today. We had a blood drive at our high school and I of course signed up to do it.. As does almost every single high schooler because there mind set is "it's going to get my out of class of course I am going to do it." My mind set was, I am truly going to save a life today and that day changed my life forever. In fact, I didn't end up getting to save any lives because they couldn't accept my blood because I had Hepatitis C. When I first found out I was sitting in our High School library and I was called out of class to leave for an appointment. I knew something was up instantly considering my mother would have told me if I had an appointment the next day she would have warned me.. and I had not gotten a warning at all. So of course something wasn't right and I knew that deep down. Little did I know my life was about to do a complete 360 in the matter of hours! So my mother and I got in our vehicle and headed to the doctor and on our way I am continuously asking her what is going on? Why am I going to the doctor? And I finally had received a response from her and it was "get my purse and grab the envelope inside and read it." So I did as she says, and I open the piece of mail and the first thing I saw was a pamphlet and in big bold capital letters it said "HEPATITIS C" and of course I had absolutely no idea what it was so I was reading and reading and the most common way to get it was by lethal drug injection.. and I knew exactly what that meant so in my terms it meant "shooting up." So I look over at my mom as she has tears streaming down her face and I have to tell her.. I have to tell her that her 16 year old baby girl has been injecting drugs into her arm for almost 6 months. I couldn't lie or hide it like I had been for the past 6 months I had to tell her. That was one of the hardest things I have ever had to do in my entire life.. Was face my mother, the one I am the most closest to them anyone that I have been doing drugs and when I told her disappointment and fear was written all over her face and written all over my face was disgust. Disgusted with myself and also disgusted that I just had to tell my mother that I have been doing drugs and injecting them. No mother should ever have to hear those words that there child has been doing drugs and for the most part injecting poison into their body. So we finally arrived at my primary doctors office and as we sat there and waited for the doctor to call me back we literally sat in silence. I couldn't look at her, I just couldn't. I felt like a coward that I couldn't even look at my mother but I knew I couldn't see her face because I knew I would just cry. So I sat there waiting and waiting and as I am waiting which seemed like forever that we waited I looked up Hepatstis C and what is was because I truly had no clue I have never ever heard of it for that matter! All the things I had read scared the crap out of me. I was literally so scared and I didn't know what to do. I was truly just shocked at what I had done to myself and what I was going to do. So finally we got called back and my doctor told me that he didn't specialize in this field so he would have to refer me to Riley Children's Hospital. An hour away from where we lived. He gave me the short rundown of what is was, but what he told me I already had read about so what he was telling me was something I already knew. So that trip wasn't much help. Finally, 3 months later I went to the children's hospital and met a nurse and then met my doctor who specialized in Hepatitis C. That trip truly made my stomach turn upside down and made me truly numb. I was honestly speechless but I found out so much information about the disease that it made me so much more knowledgeable and made me realize all the things I had read was not even half of what I thought I knew about Hepatitis. They gave me 2 different options of treatment. I could make my parents in debt for $25,00 for 6 months of treatment or if I have to do a year of treatment depending on how my body reacted to the medicine I could put my parents in debt for $50,000. Or that I could wait, and technically become a guinea pig and was for this new treatment that they are about to start and I could become the first patient to try it and it would be FREE and that they would actually pay me for it considering it was a trial run on the medicine. But again, I would have to wait but it is for free. I of course knew right then what I was going to do! I of course was going to become a guinea pig and get treatment for free instead of starting treatment immediately and putting my parents in debt because we didn't have $25,000 dollars to just throw around! We certainly were not broke but we certainly werent wealthy either. They told me to go home and sleep on it but I told them I already knew what I wanted to do but I went on home and slept on it. I went back a couple weeks later and told them I am going to wait for this new treatment 100%. It was no question! But before I could be accepted to do this treatment I had to technically qualify for it. To qualify for this treatment I had to do a liver biopsy and my liver at least had to be damaged at a 1. That is how they rated it, from a 0 to 10. My needed to be at least at a 1.. So my wonderful wonderful wonderful nurse, scheduled a liver biopsy for me and a month later I went in for it and I had to be put under and everything because they stick this HUGE needle in you and they get a piece of your liver then you have to lay down for at least 4 hours then you are able to go home so the anticipation started right after I came to after my procedure. Literally the anticipation killed me every single day until I got the call that I was literally dying to hear that I am officially qualified for the new treatment and I will be the first person to ever try this from the age of 3 months to 18 years old. In a way I was so relieved because my parents aren't going to have to be in debt for the mistakes that I made and then in a way I was anxious and scared because I was about to be a guinea pig for my age group. I was about to be the first person at the age of 17 now to take this new treatment. It was pretty much the original treatment that they normally were giving Hepatitis C patients which was the ribavirin and then the shot but they added a new horse pill called telaprevir. I was about to start a journey that I could have never ever imagined! I never imagined my life to be flipped upside like that but my mistakes made me end up there and I of course take full responsibility considering I was the one injecting poison in my body and was so oblivious and blind to the things I could catch by doing that. Anyway, this trial was one thing that had to be documented like crazy because it's new they need all the information they could get from these 3 things together. My nurse had a binder filled and filled and filled with all of my things and this treatment and how it's effecting my body and everything. I've never seen a binder so big in my life. I received a little booklet thing to keep track of what times I took my pills and what time I did my shot on every Friday. It was definitely a pain in my rear but that is what I had to do so I did it. I was then told what all I had to do with the new pill which was take 20 grams of fat every single day when I took it. Mind you not I took it 3 times a day. Altogether in 1 single day, 8 took 11 pills. It was definitely a lot of keep up with for only being a 17 year old! I was then told about all the side effects; you could gain a lot of weight or lose a lot of weight and if you lose weight you can't get down to a certain weight because that could become harmful to your body and we would have to stop treatment immediately until you were to gain more weight. Mind you when I started treatment I was about 5'1 and about 135 pounds. Another side effect was losing your hair. That absolutely terrified me because my hair is a big part of who I am as it is to most woman so I prayed that I wouldn't lost my hair. Another side effect was will the shot, I could get very very sick until my immune system adjusts to it and gets used to it. Her exact words was "It will make you feel like you have the flu for a couple days so that is why I have you doing your shot on a Friday so you can have the weekend to recuperate and then Monday be okay to go back to school. I was like great, I truly hate being sick so this definitely stinks.. but again my mistake my consequence. I accepted that. As treatment she on I found myself not having an appetite, starting to lose hair, and definitely feeling like the flu. I started realizing that I am getting all the symptoms my nurse said I would and I remember just crying one day in the shower bc clumps and clumps and clumps of hair was falling out in the shower and clogging the drain and I just cried because I was so petrified to lose my hair.. then I started noticing the weight loss because I just couldn't eat and feeling like I had the flu definitely didn't help. My mom would try and try and try to get me to eat and I would try as well but I just couldn't do it.. I started to notice clothes were not fitting me anymore and they just fit me a couple months prior so I knew the weight was just shredding off and I wasn't even trying to lose weight was the thing!! So I went to one of my check ups and little did I know I weight 112 pounds. My jaw dropped and my mom kept telling me, you look so sick Abbigail. It breaks my heart because you look so fragile! This doesn't look like my baby girl and it breaks my heart and I started to really notice it because more and more people were noticing my weight loss which made me start to realize it and before I knew it I looked like I was on meth or something! I of course knew that some people thought that as well because I had been asked a couple times and I really hadn't been doing anything at all! I was sober when I was taking my medication. By the end of my treatment like the last 2 weeks I did another weight check and my ultimate lowest weight ever in my life was 109 pounds and was wearing a size 1 in pants and extra small and small in shirts and I do not ever recall being that skinny in my life! Finally I found out that my Hepatitis C test came back to see if it is active and stuff and they were checking to see if I can stop at 6 months and I got such wonderful news that it is no longer active and that I can stop at 6 months and that I'm technically cured! I of course shrieked in joy because It was one of the greatest news ever! Till this day I am cured and I still get checked regularly. I'm sorry this is such a long story but I had to make sure to get most of the details and my points across. Please please please, be smart when it comes to injecting needles in your arm. Preferably don't do not do it at all but I or no one else can stop you from doing it. Only you can do that. You have to want it. Everyone else may want it for you but you, yourself is the only one who can change your life and get help. My story is something I love sharing with younger kids. Especially one's in high school because I was in high school when I found out. Many people knew I had it because we live in such a small town and word travels so fast around here that everyone and their brother knew about me. Some people still talked to me and others just stopped speaking to me period. If that happened or were to happen to you do not let it bother you. They obviously do not care enough to stick around with you during this hard time and I was so blessed and lucky that I had such a great family and support system because if I didn't, I don't know where I would be today. I am tremendously lucky, blessed, and thankful for the wonderful opportunity to do the trial run and to share my story with my friends, family, and anyone who asked about it and anyone who would listen! That blood drive I had at my high school that one day, saved my life. I seriously questioned not to donate but I knew I would be saving a life so I did it and again I'm thankful for them because if not for them I am sure I would still have it till this day. Thank you everyone for taking the time out of your day to read this and I hope it helps anyone to not be afraid and face every single obstacle and smash it. Obstacles in our life will always be there and don't ignore the obstacles or try to go around them go straight through them and face them head on. That's the only way in my eyes. My favorite quote is "Don't refuse to sink." And I didn't. I stayed afloat and still am. Whoever is dealing with Hepatitis C right now, you're strong and brace as you can get through this! Again with sincere and love, Abbigail

Abbigail S Nov 18, 2016

Hello everyone, I am 18 years old. I am a recovering addict, I have been through a lot. I was always against drugs, I mean every single drug. At the age of 11, I started out doing drugs...I was basically forced. I had gotten into a bad lifestyle. My mother and step-father raised me right, I was just hanging out in a bad crowd. My parents never knew anything, they never knew the tale tell signs of a drug user. I was losing weight, I wasn't eating, I didn't want to be involved in activities, I quit sports, I didn't want to go to school, and I was sleeping more than usual. I was using meth, pain pills, marijuana, every drug pretty much out in this world. I was using up until I was 16. I pretty much just smoked and snorted every drug I could put my hands on. At the age of 13 I started shooting up. My ex was also a intravenous drug user, he also had Hepatitis C. I never thought I would get Hep C..we were having intercourse, over the time I was with him, I was being tested every month. I was still using drugs, we split up and I continued to use even more. I was using about 14 to 20 times a day , intravenously. My parents eventually found out, I was sent to rehab at the age of 16. It wasn't really a "rehab", it was a mental institution. I felt broken, I didn't realize using drugs is pretty much killing yourself, that wasn't my intention. The most I have ever weighed was 110lbs. I weighed 85 pounds when I went into rehab. I couldn't see anyone for a week. I seen some things that will forever be in my mind..a 4 year old child was in there with me..he was a broken child. I found out I had Hep c....I dropped to my knees. My mother was told and she feared for my life, not only because of Hep c, but also my weight. I was having seizures and withdrawals, I was basically dead. I was told I would be dead within a week..there was no way I could live. I felt like giving up, but I fought everyday . I had to eat so I could gain weight, every time I would eat, I would cover my mouth so I couldn't vomit. Eventually, I came through..I got out, I went straight to a doctor and got cured. Most importantly, I never picked up another drugs. I am 2 years clean, cured, and happy to say I am a survivor.

Brittany G Nov 18, 2016

When I was first told in 2010 that I had it I thought it was a death sentence. Think I knew within a month of getting it from my husband who had used IV drugs. I got it from washing his bloody back after he'd gotten in a fight and later came across some medical records after he'd been to the doctor and saw that he had it. I was able to get some interferon and ribavarin free from a community clinic. I took the shots once a week? I think in my stomach or thighs. It didn't make me too sick, just kind of felt like I had the flu for a day or so. Once time I missed a dose one week and then when I took it later I was SOOO sick that time. Yuck, but other than that not too bad. After a year the viral load was undetectable and it still is and all my liver panels are fine. I'm also an alcoholic and drank throughout the treatment and continue to do so. I drink a lot of coffee, take milk thistle and that's it. The only thing is that my liver still hurts. I'm 38 years old.

Tiffany G Nov 18, 2016

I successfully took the HCV treatment(ribasphere and another, which I can"t recall name) I have 65 extra tabs, which I would donate if someone needed them. Assuming it is permissible, I would like to give these to anyone in need. They are probably expensive w/o insurance. OK to contact me by e-mail. Suggestions welcome. From Detroit area.

Randolph N Nov 18, 2016

To cut to the chase after 38 years living with Hep C, I am now free of the virus after 12 weeks of Havaldi and Ribaviren. I had Genotype 2 and I consider myself blessed, not only to be free of Hep C but to be alive. I am most grateful after years of aches, pains, depression, vague and a feeling of not being as alive as I could be. My lab results are absolutely normal after three Viral Load Tests. On my last visit to the specialist, I asked: "How will I feel after the virus is gone". His answer surprised me as he stated... "That's a good question". Of course THAT wasn't a good answer. I thought to myself, I wonder how you feel? What does feeling well mean to you?". No one had any real answers. Most were very impressed by the Medical side of of the new treatment. If you get the feeling you are on a kind of conveyer belt as you find your way to the pertinent medication. Remain patient as possible as anxiety and your emotions may be on high alert with feelings of "No one has actually answered my questions, yet all commented on the treatment as a great success..". Regardless I jumped into the treatment. Over the twelve weeks. There were times that I felt worse than ever. Skin so dry. Incredible fatigue to the point where I simply went to bed. Nightmares. Itchy skin. A dull headache remained constant for the twelve weeks. Anxiety I replaced with an optimistic frame of mind when I could. So.... now I have been free of the virus three months. I have days of energy and days of none. If I am well, I don't really feel so. Exhaustion and what comes with it takes it's toll on your nervous system and I have found my thoughts to be ... "I want to feel well, but I don't know how.?" All that aside my conclusion is this. To cure a Virus such as Hep C must take some doing. The medication must be powerful. Therefore it will take time to recover from the treatment. My overly optimistic attitude has to be more balanced and contained. With more time I shall post again. But for now, I've lost my concentration. Time and allowing yourself time to recover is most important. And for me, time will tell. I survive and continue and encourage all to seek help and as much support as you can gather to embark on a new chapter in life with patience and the knowledge of how far you have come in this life as a survivor.

Iain Mcl Nov 17, 2016

The year was 2010 and my Dr just confirmed that I was infected with HIV and Hep C. I sat motionless and cried and cried and cried. Two weeks later after all the geno testing and other tests, I went to work and ended up being fired, Then came the police charges, Grievous bodily harm due to State Police charging me after my ex boyfriend claimed I infected him, Then for the next six years, I lived under bridges and couches, At one stage was I was sleeping on interstate buses... It was aweful, then came the muscle pain, bloated tummy, brain fog.... Jump to November 2016 I have tested negative to Hep C -- Woo Hoo Havoni ... I still have HIV but the brain fog is gone, my body looks fantastic, and my face, It no longer goes yellow when I am in the sun, and I swear ive lost 5 kilo. I am happy, still homeless and unemployed but at least that is out of my blood stream...

Jimmy C Nov 15, 2016

I was diagnosed with HCV in 2005, when applying for term life insurance. I had no reason to suspect I had it and had annual, full spectrum physicals due my work every year. My genotype was "TT" (per the virologist, the hardest to clear). In 2008, I tried the existing treatment of interferon and ribavairin, but no affect on the virus. I followed the drug trials for a new treatment and learned of Sovaldi. In February 2014, I began treatment with Sovaldi, interferon and ribavirin and after 12 weeks, was virus free. Next May (2017) marks three years of no HCV. I know there are new drugs now that don't require the interferon and ribavirin with milder side effects. In essence I got my life back after an unexpected and scary diagnosis of a chronic disease. I encourage anyone who is in the demographic (baby boomers) or life-style risk for HCV to get tested and if found positive for the virus, get treated. It is costly, but I know there are many private and public options to help with the treatment costs. SO DON'T DELAY. Hearing the Doctor say "virus free" was a feeling I cannot express in words. God bless.

Barry M Nov 15, 2016

I was diagnosed with Hep C before it even had a name. It was called, "Non A, Non B". I was having a routine blood test for a life insurance policy and found out that my liver enzymes were off the charts. That was 25 years ago. When I was in my teens, like many kids in the late 60s' and early 70's, I experimented with all kinds of drugs, including "speed" and heroin. We were just curious teens and back then, marijuana was definitely a gate-way drug, simply because it was as illegal as heroin or LSD. access to harder drugs like heroin was just a step away from buying pot. They were all sold by the same crowd. I don't condone the use of any drugs now and unfortunately, because of my Hep C, those of us with the disease are not even able to enjoy an occasional glass of wine or a cold beer with the guys. Being infected with Hep C has changed my life dramatically, not only for the bad but also, strangely enough, for the good. When I finally accepted the fact that I had a serious, life threatening disease, it changed my life for the better, at least for a number of years, when I decided to take my health seriously. When I was first diagnosed, I was scared. My wife and I had just had our first child and I had a new perspective on my life. It wasn't just about me anymore, I had another life to consider. I immediately quit drinking (I had quit drugs for the most part when I met my wife in college) and started to eat a very good diet. I also started taking supplements, such as Milk Thistle. My doctor was a very caring internist who also wanted to aggressively help me fight my "Non A, Non B" liver infection.I am not sure when the medical community finally identified our disease as Hepatitis C but the protocol back then was Interferon injections. Interferon was used for cancer treatment and other diseases and was the first treatment for Hep C. It even took my insurance a long time to approve it because of its "experimental" status. When I started using Interferon, the medical establishment was even unsure of dosage and duration. I was put on 5 million units, 3 times per week for 1 year and was allowed to inject the Interferon myself. It was rough and the first time I injected myself, I had a terrible reaction, waking up in the middle of the night, sick and throwing-up and extremely depressed. It got somewhat better but it was a long year. My hair even got so thin that I went for a crew-cut. My big ears really stood out besides losing about 30 lbs that long, terrible year. I was excited though, because during treatment, my viral load went to "non detectable". I was hopeful that it had been worth it until, 6 weeks after ending the Interferon, my viral load went back to were it had been and I was back to square one. I tried other treatments including a synthetic form of Interferon, but my white blood cell count got so low, I had to withdraw from that treatment. Life got a whole lot darker. My doctor moved and I pretty much gave up, waiting for Medical Science to come to my rescue. The good thing, I thought, was I felt "normal" and read that many people infected with Hep C could live normal lives and actually die from old age. Okay, I thought, life isn't over and within 10 years, I even started using alcohol again, figuring that I was going to be okay and "screw-it" anyways, I was going to have fun. I was going to be one of those who live a long life with the infection, cirrhosis, be damned. My drinking become more frequent, and yes, I did abuse alcohol. Not every day but way more than I should have. Everything I read told me what I didn't want to hear, so I lived my life like I never had the disease. Big mistake! I retired from my business and we moved again. I felt good. I got a new primary care physician and she did a blood test on me and of course my viral load was way up there (over 2 million). She sent me to an "Infectious Disease" specialist and after 10 years of going it on my own, I decided to listen again to what my doctor was telling me. I knew about the latest advancements of the anti-vitals like Harvoni and the incredible success they were having treating our disease. I had had such bad experiences with Interferon and other treatments that I had just kind of buried my head in the sand. My new "Infectious Disease" specialist helped me get my head screwed back on. The first thing I got was a blood test (not another liver biopsy, thank God!). Bummer! The blood test confirmed that I had cirrhosis. I still felt good and he told me I had "compensated" or non symptomatic cirrhosis. My ultra sound was normal but now I have to have an ultra sound of my liver every 6 months, regardless if treatment is successful or not. Fortunately, I had quit drinking alcohol a year ago. That is very important because the insurance companies will not even consider approving treatment unless you are "clean", including drugs and alcohol. They require a urine test before starting the antivirals. While I was waiting for approval of Harvoni (my genotype is 1A), Gilead Sciences had just released their latest antiviral, Epclusa. My doctor had recommended 24 weeks with Harvoni ( a small fortune) but results with Epclusa showed a high success rate with 12 weeks of treatment. Not only did it save my insurance company approximately $85,000, it also shortened the time of treatment. I have been on the Epclusa now for 9 weeks, my viral load is "non detectable" and I have had no adverse side effects. I am extremely hopeful of successfully treating "our" disease. I will know for sure in the next couple of months after I end treatment but my doctor is extremely confidant that I am on my way of being "cured"! A few observations of my own struggles and advise for those of you infected with the Hep C virus; Don't give up hope. Stop drinking and using drug now. Your liver, even if you are infected, will do much better if it is well taken care of. My biggest regret is not staying "clean" after I knew I had the disease. I knew better but ignored the overwhelming research that confirms that alcohol and drug use only exasberates the damage to your liver. Even if you don't have insurance or your insurance will not cover this expensive treatment, there are alternatives to get these antivirals. Use the internet to find alternatives. There are studies that you can enroll in and you can get "generic" drugs from places like India that seem to be just as effective for 1/85th of the cost. Seems hard to believe but research the alternatives. I believe the prices will come down but don't wait for the system to work for you. Take control of your own health. Most of all, turn to your "higher power". I am a Christian but encourage everyone of us to get in touch with our spiritual side. Having a positive attitude is by far the best treatment you can get. God's speed to all of us who are suffering from this disease, and please share your stories, good or bad with all of us because we really do care!

John K Nov 14, 2016

Hi I have been living with hep c since i was 18 years old i am now 53 years old. I am genotype 1.and have just finished.treatment on the drug called halvarni it is a 12 week corse. I chose not to take the other drugs on offer earlier as the side effects were terrible. I have just finished my treatment on the 26th oct 2016 and latest bloods show the virus is not detected which is great news after living with it for so long I will say this I still have to wait 12 more weeks to make sure side effects I had none.

shane r Nov 14, 2016

My main concern that kept me from wanting to be treated with Harvoni was:: 1. will I get sick. 2. could I still have an occasional alcohol beverage. 3. how will I pay for it. 4. I don't want others to know. 5. I can't miss work. 6. How will I care for my children/grandkids. So after all of my considerations I decided to go for it. What's more important, my life or my fears. I am now cured!!!! Thank you Harvoni!!! I actually felt better after I started the treatment. A few episodes in the first 2 wks with nausea which lasted only 2-3 seconds. Yes seconds not minutes or hours. I didn't miss a day of work or a day with my children. It amazed me and still does as my fears were unwarranted!!! My insurance (thank you Jesus) paid for the treatment. Harvoni has programs to help you pay for the drug if your insurance doesn't cover it. Regarding alcohol...I had my fare share during treatment which did not affect the outcome. People I have met in support groups (which I no longer attend) have told me that they drank every day and still were cured. Not that I am promoting alcoholism but so many are afraid of having to stop drinking. I personally don't drink much but an occasional beer or two during a Steelers game is always refreshing. My LFT's are back to normal and I am blessed to have been cured. Don't be afraid folks!! It didn't make me sick.. My Doctor has not come across 1 person in 2 years who wasn't cured. God bless you all!!! Remember it's a cure, there is help to pay for it and no one will ever know!! I am living proof!!!!!!!

Candy R Nov 12, 2016

I asked to be tested for hepatitis C when I didn't feel good in 1999. I had 3 children and my youngest was 6. I contracted Hep C in the early 80's, I was an IV drug user for a couple years. I had my first child in 1984, second in 86, divorced my husband whom I grew up with, but never got high with as he was an alcoholic. He got sober and we remarried in 1993, had our third child in 1994. I was never a big drinker I liked the instant effect. When my husband was getting sober I had an occasional drink. The last one was in about 1987 when one whiskey sour made me feel yucky. My doctor told me I had elevated liver tests, he said we would watch them, and I trust. Its who I am. He retired. I was never thinking about my liver tests and the dr's to follow were not either. I asked to be tested after a conversation with my mom and too many broiled red peppers with oil and bread crumbs. I love them, but at that point they created this thick feeling on my tongue like a bile. I think we were watching a show, probably Chronicle.. that show got me sober and I did it on my own. They were talking about Hep C and my mother had brought my sister to be tested as she had a baby and the dr screwed up and she ended up with 23 blood transfusions. She was free of the disease. They were in 85 and that is when blood was being tested. My new dr was unclear why I wanted to be tested and I told her she ran the test and was very surprised I was positive. I had it good my levels were very high. Had I been happily drinking with my husband I would be dead now. I do not read side effects. I remember being soooo sick for the first month or so. I went to work every day as I worked in Special Ed. Sending out the test requests and that was important to me. I used Rebtron and Interferon. I took shots twice a week I gave myself (I never stuck a needle in my arm myself when getting high). I took pills twice a day. When I drank at least 4 bottle of water a day AND exercised I could function well. I did a work out called The Body Flex by Greer Childers you can find it on Youtube. Watch the Introduction so you can see why it works for anyone. I did that and 8 minutes of Taebo. It was a long year, but I made it. I never read the side effects or maybe I did and just concentrate of whats possible. I am really surprised when I read peoples stories. I did get dry eye and used flaxseed for that, that really helped. I worked hard not to give the illness life. It was not easy. Everyone around was going to hep the drug addict I had not been in 20 years. By the way none of my children were born with it. DRINK WATER LOTS of Water! Get out and do some kind of exercise. I wish the Secret was around then. Hope I help someone. I also suggest the Strangest Secret on Youtube. Best wishes. It was a really hard year, the water helps, I had energy when I worked out. Listen to your body.

Amy N. Nov 12, 2016

If you are offered Harvoni take it. You will feel better after treatment. The effects if any will diminish. Stay hydrated.

Roland G Nov 11, 2016

Hi I just got over my hep c after 10 years of having it. The injection in the liver and tablets didn't work so I moved to London and went on hovoni tablets 1 a day worked within 2 weeks of treatment but still had to finish the course what a miracle. So been cured for 6 months now last blood test next week they like to make sure at least 3 months after feel alittle bit better then I ever have in 10 years but it's my mental health psd and pain in my legs I'm left with I guess it was my own fault in life plus losing both of my children was because of my first treatment didn't have any help I was so ill in bed everyday I couldn't look after my children properly. So social services took them away from me so angry cause not even my mum or dad or sisters would help so that is why I'm left with mental health problems.

tracy P Nov 9, 2016

I contracted hepatitis c sometime in 2005 while in addiction with IV heroin use. I got sober in Jan of 2007. The longer I had the virus the more I felt: depression, brain fog, extreme depression, anger & struggled to perform everyday tasks. I had blood work taken yearly & a biopsy in 2008 but all showed my liver was still in good condition (stage1). In 2014 I was afforded the opportunity to get treatment (sovaldi-olysio). I did the treatment for 3 months. I almost immediately after starting the regimen felt more energy, depression left & felt like a whole new person. It's been almost 2 years & been tested 3 times (the last time being Sept'16). Virus totally eradicated. My whole health-life has improved dramatically. I strongly encourage people to try the new treatments. I had absolutely zero side effects.

Loren S Nov 5, 2016

I am finally on treatment, I am 59 and really need to talk to others in my situation I also have stage 4 cirhosis . I am so scared and depressed I have no family other than my beautiful 25 yr old daughter. She has high function autism and is not very supportive due to her sickness so I feel alone all the time can anyone relate.

barbara w. Nov 3, 2016

I was suffered hcv in 2011 after successful course of ribavirion I was not detected now I am pregnant and worried maybe I caught again hcv. Someone says to me hcv returns again I am much much worried kindly answer me.

Naila N. Nov 2, 2016

I was diagnosed with hep C in 1991 though I had symptoms long before so possibly had it long before then. No IV drugs, no transfusions, who knows. I had a biopsy which confirmed. I was told I was geno 3A. Took 4 months of interferon with good response but then had to stop because of becoming very hyperthyroid. Lots of nasty side effects. Then in 1997, had symptoms again and started interferon and ribavirin. Improved but then became hyperthyroid and had depression and after 4 months had to stop. Had a lot of pretty bad side effects on interferon, swore I wouldn't do it again til there was a cure. Never dreamed there would be one in my lifetime. When I turned 65, doc referred me to a special hep C clinic through the medical group for my HMO, I had a FibroSure test showing stage 3 fibrosis, and surprisingly now showed up as geno 1b. They approved me for 3 months of Harvoni. (AARP secondary plan 2 and Patient Access Network helped out with the rest - research online). It was amazing. I had no symptoms on Harvoni as long as I stayed hydrated. I just had my followup blood work after 3 months off Harvoni, and I am undetectable! I highly recommend and encourage anyone to not be afraid of this drug. They are coming out with new drugs all the time and hopefully they will become more affordable with the competition. I feel so much better, am doing all I can to help my liver regenerate by avoiding all the usual bad stuff and eating correctly. Please, don't give up. Do it, Get your life back -- don't be afraid. Stay positive! Miracles can happen.

Deb M Nov 1, 2016

I have been cured of the Hep C virus, after caring it for 43 years. Delivered to me in a blood transfusion, after a bad car accident in the early 70's. In 2014 my internal Medicine Dr., put me on Sovoldi (400mg) per day, an Ribavirin (2 tabs) daily for 24 weeks. On March 2015 my Viral Load was all clear. I was able to get my Meds for free, through the Pharmaceutical Co.. I am so grateful, I can't express in words, how thankful I am. I discovered the Hep. C many years ago, but it wasn't till late 80's that they came out with testing for it. I was told I had it, but Drs still had no idea how to treat it. I waited over 20 years, before choosing to try the drugs. From a 25% chance, to now a 99% chance cure rate. I Thank the Lord everyday!

sudustiawn a Oct 31, 2016

When I was 43, I applied for increased life insurance with my employer. Part of that process required a blood test, and I was subsequently declined because I had Hep C. That was HUGE news to me....I did not even know what it was let alone that I had the disease. I went to a liver specialist who, after further testing, determined that I indeed had Hep C. The treatment at that time (25 years ago) was the standard with interferon, etc. that MIGHT cure you after 52 weeks (50% chance) and all kind of really bad side effects. I decided to wait.....and I did wait for two decades. During that time we monitored my viral load and I had two liver biopsies performed. Things were stabilized with a viral load around 2 million....but in early 2016 things started to get worse in regard to viral load. My count went to over 7 million in a short time and it was decided it was time to take action. My liver specialist prescribed Harvoni for twelve weeks. I thought this was going to be a real problem in regard to insurance, but to their credit United Healthcare covered the entire cost without complaint. I completed the prescribed regimen and I my viral load is now UNDETECTABLE. I have three empty bottles of Harvoni sitting on a shelf in my office to remind me of this miracle drug AND the prohibitive cost (~$120,000).

JIM J Oct 30, 2016

I am on my 5 week on treatment for hep c, that is the best thing that's happening to me going on treatment I have no side effects I feel I have more energy. So those of you that are worried about taking treatment don't worry its the best thing thats happened by getting on treatment. I'm taking Zepatier 12 week treatment.

Priscilla Perez Oct 29, 2016

I am 68 year old woman diagnosed with hep c 1a in 2012 after contracting it over 40 years ago. I was advised to go on a 48 week treatment of peginterferon ribavarin and boceptivr in 2013. I had fibrosis 7.8 on a fibroscan. I was so Ill with the treatment and at week 10 was advised to stop treatment. In July this year I started on a 12 week course of harvoni and ribavarin and after a couple weeks of adjusting dosage I was fine. I finished the treatment on 20/10/16 after virus undetected after week 4. It seems to me that I have felt worse since finishing the treatment. This last week or so I have felt flu like, Itchiness, exhaustion which is not helped by sleep when I can sleep that is. Also headaches, tummy aches, nausea loss of appetite, tearfulness. In fact I am of the mind that I wished I'd never ever gone on any treatment and taken my chances. In 2013 pre-treatment I looked good and healthy but now I look permanently tired and haggard. I'm supposed to be going on holiday on Monday so please can anyone tell me how long these horrific after events last before I go end it all. Thank you

Jennifer G Oct 29, 2016

hi I am hep c genotype 1 and have been for 20 years. I am 53 and have started a new hep c drug called harvoni. It is a 12 week course. But you dont know if the virus has gone till 12 weeks after. Has any one been on this drug and how did you go? Thanks.

shane w Oct 28, 2016

hi 2012 was comfirmed hep c by 2015 my hep c count 24920 Oct 2015 I stated treatment with sovadi and ribavirin for 24 weeks 10 days I am hep c count 90 but 90 days I am 3630 I have went thought all appeals with health know I am wailing for access to tell weather I live or die I have 4 state liver de. I do have a att. but still the question once an a live teartment with sovadi/ribavirin who judge were I live or die I realy don't know were access or health choices az has the right to say I can live or die god bless

stanley g Oct 28, 2016

Hi everyone i have a free 12 weeks of harvoni i wont be needing, i ordered it on fixhepc.com its cost $1600 , i ordered mine when insurance denied me twice and as i ordered and have it delivered insurance suddenly approved me so if you need it you can leave me your email or something will send it to you for free and please i shouldn't be responsible for the shipping cost, figured i wont need it anymore it been with me for like 6 days now, mostly am posting this because of you (Kristi NM) your husband is the same range of age with me please dont let him die help is out there email me at michaelgodwin33 on gmail i will talk to my son to help anyway he can.

Michael G. Oct 26, 2016

I was just diagnosed with stage 4 hep I'm about to start treatment within the next couple weeks I'm 53 and I'm scared I see the doctor tomorrow for consultation and to discuss the treatment any advice

Donna E Oct 20, 2016

In 1994 birth of my son, lost a lot of blood and needed transfusion 3-4 units. Began having chills, nausea abdominal pain. 1995 needlestick injury working as dental assistant. Labwork, scans were normal the doctors tell me its IBS fibromyalgia. Then severe joint, muscular pain Diagnosed Hep C in 2006 went on treatment interferon, ribaviron genotype 1b. Since 2008 labwork shows no abnormalities. Years later diagnosed with epilepsy also

Amanda B Oct 20, 2016

I was diagnosed with hepatitis C in 1999. I have had eight surgeries in my life. I believe sometime in The 60's I contracted hepatitis C. I think, there was no test for it. I tried many nutrients, peptides, juicing, massages, vitamins,minerals and frequencies you name it I did it. I end up almost losing my marriage over trying to be healthy. I ended up doing the chemo interferon and Some other drug I can't spell R. Nearly killed me and it killed the virus right away. Two months after I was off the chemo my numbers came back and doubled. Now I have no immune system and I'm sick. I have some hair my thyroids ready to burst my intestines are thin and I now have diverticulitis, acid reflex problems, headaches, adrenal problems, my whole body aches, rheumatoid arthritis, osteoarthritis, nerve problem, shingles, now I need glasses, depression and you name it I had it. After that I decided there's no way I'm going back to do chemotherapy again ever. So I Started juicing again and I got a lot better at juicing right, changed my diet and I slowly got better. I decided to go back to doing frequencies (True Rife) juicing and I finally kicked hepatitis C. It took a long time but it worked. And I feel great That's my story.

Juicy M Oct 20, 2016

Hi I was an intravenous drug user for 18 years until five years ago when I finally managed to claw my way back to sobriety kicking & screaming. I have known for over 15 yrs that I had Hep C.After finding out my genotype 6 yrs ago I got my first round of treatment (Riba and Pegasys). It failed. I tried the same treatment again a year later . Another failure. Well just over 6 months ago I went on Sovaldi,Riba and Pegasys.I got my 12 weeks post treatment results yesterday and (Woohoo!) I have went undetected. SVR at very long last. I don't think I could've went through a version of treatment that involved ribavirin and interferon again as it was brutal for me this time.. So for anyone who is treatment experienced and is feeling pessimistic about going undetected, you WILL get there. Just don't give up! :-)

Will B Oct 20, 2016

One year free of hep-c ! genotype 3 ..I'm so happy to give words of encouagement to people that are dealing with this disease. I am not gonna sugar coat it , you HAVE TO take your meds on time everyday..yes ribavarin is hard on a person but , IT WORKS and thats a great thing..I took 400mg of sovaldi and 1200mgs of ribavarin everyday for 24wks and IT WORKED . Have faith & trust in your medical team this is very important to do...if you have doubts about your team for any reason (should you think their not telling you everything change Dr.s.) The important thing is having the right , Dr. , meds and be comfortable with the Dr.s..no one but you knows how you feel about your Dr. You will need some time to acclimate to your meds however once your body adjusts to the meds you'll start feeling better..keep a good eye on hemaglobin levels with your doctor so he can adjust the medicines...YOU CAN DO THIS !! it aint a cakewalk but the new meds makes it a whole lot easier...I firmly believed my faith in my Dr.s and first and foremost my !! FAITH IN GOD ! helped me tremendously...if I can help you in anyway contact me on this board so we can set-up a pm system..God Bless us all !!

Jim T Oct 16, 2016

9yrs. after "successfully" completing the "INTERFERON CHEMO" I Function at about 5% of what I used to. What was charateristic in my life has vanished.

drSoki Meza Oct 15, 2016

Camile I have the same exact story you do as I contracted Hep A & B IN EARLY 1981, I was told to go home from a job that I managed at 19yrs old & eating off dirty clam bake trays being defrosted in dirty kitchen waterto defrost & 8 people contracted it the same time I did in New York. My ex-husband was a Drug IV user for 15yrs & a carrier of the Hep B virus.I went home to find myself In a catatonic state after I emerged out of a 51 day coma & woke up with Jaundice all over bright yellow skin, hair ,eyes, I had a Rash from my neck down all over my body called Pitiriousis Rosea it was the modt paingul itching rash like poision Ivy but instead it comes from the inside out. I was not ready to die at 19 :( I fought my way out to live it was dark for 51dys as I walked in limbo had no clue it was that bad. I did my fair share of drugs but never knew that 15yrs after It had gotten to the hep-c level. I worked out my whole life after that because I felt I had gotten a second chance to live,but to only damage my body as I got older,with Severe Juvenile RA & Fibromyalgia, Diabetic Nerve pain too and Nueropathy of my hands knees & feet the rash came back and I have been going to a clinic for 2yrs had no insurance can't work In Florida & made it to the list for acceptance of the Harvoni, I have a 6 million viral load now and Necrosis of my liver an the clinic booted me for accussing me of having health insurance through florida blue from an ex-employer and took me 5mnths to prove that I lasted one month at the employer an they carried a year of coverage without my knowledge. I have been denied for SSI & SSD for 8yrs now as I progresivly get worst all the info they have & still doubt my diagnosis as my gallbladder is failing my kidneys I have a hammock incontinent put in 2005 & had 5 revision surguries on it, I have IBS & GI problems I won't eat as my anxiety level has risen my knee,hands and feet blow up with water an bust open with sores. The state of florida has robbed me of my treatment I'm 55 I will notmake it much longer I'm breaking way down they won't approve medicaid on me & help me state wide as the ARNP told me to go drug test after countless tests & told everyone in the office my business violated my Hippa Rights and I cannot get a break here for Spit what Florida Dr did you see or them >? please help

Cecilia M Oct 11, 2016

Hi, i'm a 55 year old male from south east Queensland. i was diagnosed around 17 years ago. I had severe fatigue, brain fog, depression, anxiety. but i was so afriad of leaving my family with nothing, i continually worked harder. started a business in construction driven by my impending doom. around 12 years ago i underwent a liver biopsy, i refused to be affected by my physical constraints. And each morning i would throw myself out of bed knowing it to be the only way to stay on top. At times i drank to excess and my mental clarity suffered. And in response i would put my head down and refrain my abusing myself further. My own catch 22 situation was helping me. Inevitably my marriage suffered, as this point i started my 1st interferon ribaviron treatment. i developed a true understanding of depression. and at 12 weeks was deemed a non responder. around this time i lost a kindred spirit to suicide, a man who had been adopted and fought huge obstacles and receieved a university medal for law , majoring also in economics and going onto become major player in world finance. After his sad demise i questioned my direction and began downscaling my business. My marriage had ended in divorce as i headed into my 2nd then 3rd interferon ribaviron treaments. Again and again a non responder. Each time abstaining from alcohol. throughout this journey i had been building a grandious house, but a lonely house as i retreated to myself in my depression, paranoia and fatigue. I have just finished 24 weeks on the harvoni treatment and am required to wait 3 months to be tested for all clear. i'm now suffering fatigue on another level. But am as always aware of the metabolic syndrome, which can affect us all. That is resting when you feel tired and not wanting to get back up, which in turn reduces your stamina levels. This is where you must dig deep and fight the serpent to its end. Keep getting back up. fingers crossed and chin up. keep on keeping on. John R

John R Oct 10, 2016

Had hepatitis C for 3 years now

Kim SF Oct 8, 2016

I had hcv for 44 years. got it when i was 15yrs old from sharing syringes. i have used pot and cigs since i was 12 yrs old. i took harvoni for 3 months. it has now been 15 months after treatment.i still have 0 viral count, and, ast and alt are both normal. pot, cigs, drinking in moderation, had NO bad effects, before, during, and after using harvoni. i think it is all due to my great genetic makeup. i do not believe in god, so thankyou modern medicine.!!! i doubt hep central will share my story.they are too bias in picking personal stories like mine. anyway, good luck to all of ya'all out there!!!, SINCERELY, SAM G.

sam g Oct 6, 2016

I took the Harvoni and completed treatment successfully, which ended on September 28, 2015. I have had test 3, 6, and 9 month post treatment. However, my liver enzymes continue to be elevated. When my PC did a liver biopsy he said my liver was fine. However, when my other doctor did a CT scan, it showed the following: Irregularity of the liver is demonstrated. Fatty infiltration of the liver seen with liver. No new liver lesions are evident. No gallstones or biliary dilatation identified. No pancreatic masses or ductal dilatation is seen. The spleen is mildly enlarged. Has anyone else had a neg hep c test and liver enzymes still abnormal?

Dre T Oct 6, 2016

A couple of years ago I started feeling really tired, lethargic, and fuzzy headed, to be honest I thought my menopause had returned. About December last year I decided to see my Dr, I asked him for a hormone/vitamin test, after asking me a couple of questions he decided to do full bloods. I got my results the following day, saying my liver enzymes were high, and I needed a scan, so the very next day I had my scan, to be told at this point that I had a fatty liver, but needed to go to a different hospital to see a specialist. I did this and had loads of bloods done, some results I got the same day, but I had to wait a month for one result. Sure enough I saw my specialist after that month, to be told I had hepatitis c, type 3! I was mortified, my head was in a whirl, she offered me medication, and was told to go home and discuss the treatment with my husband. We talked and talked about the treatment, and I decided to take it. before I could start I had to have a test done on my heart, as the medication can bring on a heart attack if one had a weak heart. And I had to have a psychological evaluation, because it can cause depression. All was good to I went back to see my specialist. Now my situation is a little bit different, I am an English lady, living in turkey, married to a Turkish man, even though my husbands English is good, he cant translate all the medical jargon properly, and my specialist' English is virtually zero, so a lot of what I know about the course of my treatment I have had to learn through research on the internet. My treatment started with a weekly injection of pegasys, and 2 tablets in the morning and 2 in the evening of ribavirin, my specialist told my husband that I would feel really ill for the first couple of weeks, but then I should start to feel better, how wrong was she ??? The first few days I was fine, after about the fourth day, I started with headaches, the kind that feel like your head is in a vice, being crushed, then came the bronchitis, which made the headaches worse. I tried a couple of syrups, and tablets, but they just seemed to make my chest tight, and hurt to breathe, like a chest infection, so I stopped taking them, I found it was easier just to cough. Also during this time, I felt like I had flu, I was shivering all the time, I couldn't get warm at all. Then came the tiredness, and not just tired, my eyes felt heavy but I couldn't sleep through the day, although I really felt I needed to. Next came the breathing problems, I would walk just a few feet, and I was worn out, I couldn't breathe, so I would sit down, and be out of breath like I done a half marathon. Aside from these symptoms, I had dry itchy skin, hair loss, fatigue, upset stomach, weight loss, brain fog, anaemia. A couple of months into my treatment, my legs and arms felt heavy and painful, I was walking around like a 90 year old, obvious to anyone who saw me that I was in pain. this lasted right up until the end of my treatment. Today is my third week with no injection, and two weeks with no tablets. My legs just feel heavy, but once I get tired, the pain starts, my head aches are starting to subside, slightly, I am still very tired, and my skin is still very dry and itchy, obviously I have noticed no change with my hair yet, as its only been a couple of weeks. To sum up my experience with this treatment, I feel I have been very lucky, the virus had disappeared from my blood after my third monthly blood test! I was also lucky that I work from home, and although my work is very tiresome, my workload has been a lot lighter this year, and I could work around my tiredness. I didn't get depression, although I did feel my mood change drastically, I don't know whether is was due to the medication, the tiredness, or the pain I was in, but I felt I could laugh at the things I would normally laugh at. Communication was hard with my husband as well, partly because I couldn't be bothered to talk, and partly because he didn't understand fully how I was describing what I was going through, (mainly because of the language barrier). All in all, I know I am heading in the right direction, and hopefully when I have another blood test at the end of December, I will still be free of the virus. I am glad I did it? YES, because so far I am a hep c survivor.

deb a Oct 4, 2016

I was treated with sovaldi ribavirin for 24 weeks 10 days latter I came back 6090 count I have 4 stage liver disease was the 24 weeks of hell worth it I am know fighting daklinza/sovaldi/ribavirin going before a administrative judge he will say weather I get treatment or not witch way will that judge rile

stanley j Sep 30, 2016

I had a blood transfusion in 1978,first pregnancy. Went through life martied,raising kids,working. Figured that's why I was tired at times. Decided to get checked after 2nd husband was tested and told he had hep c. I did not know what genotype. He was an iv drug user before I met him. I went to local internal med doctor,to be told that treatment was expensive and they just don't give it to everyone. My 3 kids do not have it, my 1st husband doesn't have it,thank god. I saw a gastroenterologist who helped me get treated, I,have genotype 1b. I was turned down for harvoni but accepted for viekira pak w/o ribavarin. Saw doctor less than 1 month into treatment,virus went from 100 millions down to less than 15. At end of 12 weeks I was finally undetected and at 3 month followup confirmed. Side effects dome tiredness,slight nausea (first few wreks) after treatment a few weeks of the itchys. And yes I did feel like a leper. Thank you abbvie for helping.

Helen F Sep 30, 2016

HI, JUST WOULD LIKE PEOPLE TO KNOW ABOUT MY EXPERIENCE WITH AYURVEDIC HERBAL MEDICINE; YOU CAN FIND OUT MORE ABOUT THE HEPATOPROTECTIVE QUALITIES IF YOU RESEARCH www.HepatitisCcare. com AS I HAVE DONE. MY VIRAL LOAD IS LOW AND MY LIVER FUNCTION TESTS COME BACK AS NORMAL. THE DOCTOR WHO IS RESPONSIBLE FOR THIS MEDICINE FROM INDIA IS HIGHLY ESTEEMED AND TREATS MANY WELL PLACED PEOPLE, BUT YOU CAN SEE ALL THIS FOR YOURSELF. (I ALSO USE TUMERIC WHICH IS RECOMMENDED). IT COSTS INITIALLY BUT LASTS THREE MONTHS. BEST WISHES FOR YOUR RECOVERY, WHICH I HOPE WORKS FOR YOU ALSO.

CYNTHIA D Sep 28, 2016

Hello,I have had HepC since 1972 I got a tattoo in a little trailer in Germany. After 30 days of being yellow i realized my whole life was going to be altered....Now after 44 years a breath of fresh air, Harvoni i was scared at 1st, it was hard to stay focused but i had no side affects i had more energy than ive had in years this is a blessing to me my kids to you, dont wait be strong listen to your Doctor, what do you have to loose except HepC..............Thks Gods Speed...

Jeff B Sep 27, 2016

Well it's really our story, my sister and me. Debra, my sister, was diagnosed with hepatitis c and cirhorris about 3 years ago. The problem is the only test she has had done is a bone marrow test and it was negative. Every time we go to a doctor appointment, they do blood tests and we tell them they will be very low when they come back, so what ever test she was scheduled for can't be done, because her blood count is to low. We have been through this so many times, my sister want go to anymore appointment, because she is so disgusted and says why should she? I know my sister isn't the 1st person to be diagnosed with hepatitis c and cirhorris, so what are we suppose to do? Please HELP!

Debra M Sep 27, 2016

My husband was diagnosed with Hep C in 1993, we choose not to seek treatment back then due to the side effects of the treatment. My husband hasn't had any alcohol in more than 30 years. In 2015 his doctor recommended Harvoni but our insurance (BCBS) wouldn't pay for it, we filed multiple appeals and still denied. They said he was too healthy!! really??? his copies were more than 12 million, then we filed for help with the drug maker, but Harvoni had stopped helping consumers pay for it so our doctor recommended Viekara and they agreed to offer treatment. My husbands results looked good at 8 weeks, HEP C copies were going lower but at 12 weeks they had come up. So he was not cured and we continue to live life with Hep C. Not drinking alcohol is important, a very close friend of ours who had HEP C recently passed away at the age 0f 56 from the disease, we are also in our 50's, so it is hard to know you live with uncertainty while so many others are cured. I wonder if it would have turned out different if Harvoni was available to us. they are different drugs used versus viekara.

Kristi NM Sep 23, 2016

I got Hep C after a blood transfusion in the early eighties. I tried the treatment available with ribavirin but could not finish the course after 8 months I was taken off it. In 2015 I contacted Greg Jefferys in Tasmania through the internet ([email protected]). For about £1,100.00 he got me generic Harvoni, which arrived just before Xmas 2015. The 12 week course was successful & I'm now cleared of Hep C. If you can raise £1,100 forget the NHS and contact Greg - he'll sort out the problem and in 3 months you'll be cured. Good luck to you all.

Roy F Sep 22, 2016

I have had hepatitis C since I was 27 years old I am now about to turn 61 the thing I believe that has kept me alive So long is the fact that I have been using my own stem cells & IV's , I have an MD who uses eastern , native & western medicines , I eat as healthy as possible growing , canning and freezing my own vegtables, I abstain from all alcohol and I smoke pot that I grow for my condition , I would love to do the Harvoni treatment but I have no insurance and cannot afford it, I meditate and speak life to my body, I hope this helps someone to be encouraged, God Bless us all

Marsha A Sep 22, 2016

Hello fellow helpers ,remain steadfast,sooner or later you will slay the dragon,my name is Ray,I was diagnosed hep c positive in 1998. I am 55 now so this is the yr. That I count but who really knows when I got it .I certainly do not know for sure. This makes me advocate how important testing is!!!! Well Solvadi cleared the virus in 2014. But that was my third try.drink plenty of water when on tx.eat liver friendly foods and go as slow as you need to!!Get a experienced doctor who has treated many hep c patients. This is paramount that you do so. My sx came and went during treatment.it was gruelling.but I remained steadfast. Although I cleared the virus .after 2yrs I still feel I have permanent side effects from all the medications,But Ithank God I cleared and pray all my fellow helpers will one day do the same! Until then shine on and be strong!!

Ray Kopp Sep 22, 2016

Hi I would like to reassure people that HCV is not very easy to catch through sexual contact, or nearly impssible. HCV is bloodborn almost exclusively. Unless it coincides with HIV then the risk is there through sexual contact. I am a 62 year old lady that found I was HCV positive back in 2001. I was married, my husband had used my toothbrush accidently many times, we had made love many times, he used my razor accidently on occassions. We lived a close married life. My diagnosis devasted me. In 2002 I took 6 months of treatment, after three months on treatment I became SVR but carried on until the end. I remain SVR today in 2016. My husband tested negative after 20 years of sharing the bathroom and sex with me. What I want to say is that HCV is not that easy to spread, it is mostly blood to blood. So if you have had sex with an HCV positive person the risk of catching it is so low, practically none existant. If you shared razors and toothbrushes please try not to worry to much either. As most probably your partner or sibling will be fine. All my family are negative. How many times did my husband mop up my blood? Lots! Please try to be calm and do not read behind the lines of the incorrect information you read on the internet. HCV is blood to blood, so if you cut yourself your not a leper remember this, just quickly patch up your cut just like everyone else do's. Last of all carry on as normal.

Mary J Sep 19, 2016

I was diagnosed with non A/B hepatitis in 1980s and was very sick. I had a history of IV drug use , and other risk factors as well being a health care worker exposed to blood products and having multiple past surgeries. I was better diagnosed in 90s with Hep C 1b. I was treated with interferon and ribaviron for 48 weeks. It was a harrowing experience, though I had cleared the virus 3 months post treatment, However, in 2000s, I discovered my Hep C was back. I finally understood why I had been suffering with chronic low energy, why I was able to work but barely, and why I struggled through each day, needing to sleep through most weekends and vacations. Luckily, I listened to my doctors back in the 1990s... I stopped drinking alcohol right then and that alone probably saved my life, and my liver. Fast forward to 2016, I was given the opportunity to try Hep C treatment again, this time with one of the newer, gentler therapies-- for me, it was Harvoni. I have only just started my therapy but already, I can feel my energy returning, like I haven't felt in years. The side effects are real, but nothing like what I experienced before. I am full of hope now, which is so different from what I have lived with for the past 35 years. If you are wondering about trying treatment again, I only hope that you can be encouraged by stories like mine. It is so worth it to take that chance, and begin this journey. It may help you find the life you thought you'd lost forever.

Camilla Watson Sep 18, 2016

I want to start by saying I am terrified if this disease!!! Which makes it even harder to deal with! I lost my boyfriend of 5 yrs.to hep c! I went through every single step, stage, treatment, doctor after doctor and would do it all over again for him!!! But it was affecting me in ways I wasn't even aware of until about 2 months after his death!!! Then "DEATH" was my every thought! I just was given by our gracious God my 3rd grandchild and I was only 46 at the time and I wanted to keep living!!!! All that kept going through my mind was "I have the same disease my boyfriend just "DIED"with then came nights of insomnia!!! I was afraid to go to sleep b/c I was afraid of dying!!! It was s total nightmare!! In my head I thought ok if I am awake and I began to feel pressure on my right side I will know my liver is shutting down but again my sick thinking if I were asleep & my liver fails I will just die!!! 'Crazy&Insane' right!!??? Then comes the panic attacks omg (pure hell)!!! I was an absolute MESS!!! Then came clinical depression and more & more negative thoughts & fears if it had anything to do with hep c I was dying from it!!!! Then God opened a door!!! Thank you Jesus I was going to a clinic and a G.I. doctor from Florida agreed to sign a government contract for trial experimental on Sovaldi & Ribivirin with or W/O interferon I didn't have to take the interferon! Thank God! But I did take Sovaldi & Ribivirin regimen for 6 months! I am genotype 3a so the cure rate was 87% for me as opposed for someone who is 1,1a,2,2a and I am not sure after 3 ! But I took my last treatment in December, 2014 and had my first lab follow up & viral count in Jan.2015 and I was UNDETECTED FOR THE HEP C VIRUS! And I am checked every 3 months and today I am still hep c cured!!!! So there is hope and the new treatments do work and they are worth every minute of your time and some side effects that goes along with the med.'s but it is worth it to me so I can live longer if that be God's will!!!!!! The only concern I have is I still have a terrible rash on the bottom of my legs & my scalp!! That concerns me!! If anyone knows or has any advice on why I still have a rash please let me know!!!

Lisa B. Sep 17, 2016

To Ettore S- Hello to you and couldn't wait to respond to your story. I'm in Victoria, am 48 and have a similar history with treatment. I completed 6 months of peginterferon and ribavirin in 2009/10, and relapsed. The effects at the time included severe cognitive decline, extreme fatigue, deep bone aches and hair loss, intensely itchy skin and basically a total loss of quality of life. My brain turned to mush- I couldn't hold a thought, indeed had none! and my words would come out in the wrong sequence. I could not read, concentrate or recall anything. I was too brain damaged to do anything about the brain damage! and couldn't work. I dragged myself through rearing 3 children alone, when not sleeping during the day. No support network or family. I can relate to your absolute shock and horror that post-treatment, things do not improve to much extent- it has been years and the crippling bone and joint aches, the chronic fatigue and severe brain fog, depression/anxiety keep on keeping on. Any doctor I visited told me it was 'out of my system'..was dismissive, unbelieving.., and blood tests found nothing. I would never, ever undertaken this treatment regime had I known the repercussions! I have struggled to cope day in, day out and year in year out. The cost to my life has been huge. The children have missed out on the best of me- physically, emotionally and financially. Personally, I have not been out socially and am too damaged to entertain a relationship, to mix in normal society and to just enjoy life. I want to give you hope, though, Ettore! I began the new, PBS- approved antiviral drug treatment four days ago- last Wednesday. From the first day it has given me a clear brain and energy, with no side effects!! I feel vastly improved. I have genotype 3a, so am on Daklinza and Sovaldi. Being treatment experienced I do have a lower chance of clearance but am hopeful I will succeed in ridding myself of this curse. So know you are not alone, and that I sympathize with all the struggle, cognitive and mental health issues and physical onslaught this hideous nightmare brings. Please find out whether you can begin the new treatment, I hope you do so soon!! xx

Angie K Sep 17, 2016

As a child I used to accompany my mother to hospital appointments and she was very vague when I used to ask what was wrong. At 13 she told me the truth, that she had hepatitis c. I asked if there was a chance that I could have it and was assured that it was highly unlikely. Between 1 and 5% transmission rate between mother and baby - the odds were in my favour. A blood test was arranged and a week or so later I found out that I did in fact have it. It was quite a lot for a 13 year old to take in and I remember crying when I found out. I was given a booklet explaining the virus and I read it so much that I knew it off by heart. I wanted treatment straight away but it was not offered until I had completed by GCSEs at 16. I had the obligatory liver biopsy - a painless procedure the doctor promised me - ha! It was horrendous. It did however show that I had minimal liver damage. I had a six month course of interferon and ribavirin. It affected me very badly, partly I think due to the fact that I was pretty much a child and had a small body mass. I dropped out of doing my a-levels as I was too ill to continue at school and it was tough seeing my friends carrying on with their lives. I was very anxious awaiting the results at the end of the six months - which happily came back clear. Each time I came back for testing I was a nervous wreck for the weeks prior but each time the result was negative. As I was part of a trial I was asked if I would mind continuing to be tested annually but I had to decline. I could not face the thought of that anxiety each time. The care and support that I received from the nhs was faultless and I'm eternally grateful that I was able to to be treated and to have the virus cleared from my body. Looking back, it was a huge ordeal for a 16 year old to go through, at such a pivotal time in life, but I have no regrets.

Lucie D Sep 15, 2016

I contracted hep c from iv drug abuse somewhere in the past 5 years. (Crazy to think about because if you knew me and the way my life was heading, you wouldve guessed me to be the last person to develop a drug problem). Anyways I cleaned myself up and am no longer using drugs. Originally I had stage 1 liver fibrosis but recent tests show I have gone down to stage 0. This to me was very odd since I still am infected with hep c as my condition is at the chronic stage until I receive treatment. I am currently going through a bunch of paperwork to get viekeria pak for free. They really make you jump through a bunch of paperwork and fine print in order to get the treatment for free. What are the chances I will even get the treatment for free? Does anyone know? Thanks

Nick Z Sep 14, 2016

I am a recovering patient that lives in Queensland Australia. 55 year male. In 2009 I completed the Interferon and Ribavirin Hep C 24 week program which was not successful and in 2011 completed a 48 week program. Each program was not supervised by a Hepatologist as the state I live in did not have one. During treatment I suffered quite a lot... Worse of all loss of taste, insomnia, loss of hair, rashes/lesions, mouth absesses and huge loss of weight (108kg down to 60kg, now stabilised to 79kg). Post treatment tests found cysts in liver and kidneys, peptic ulcer (I believe was there before treatment), cyst in colon (removed) and rheumatoid athritis. My white cell count has been erratic since treatment. I have had surgery in one of my shoulders, end of socket heavily calcified. My head issues cleared mid 2015. The cysts were found to be non-abtrusive. My current issues is that I have extreme muscle and joint pains and suffer from little stamina. Fulltime employment is an impossible effort. The effects and damages of treatment are ignored by doctors in this country, and they are forced to treat symptoms. I am also labeled "Mentally Ill" by doctors I am seeing and this excuse in continually hampering my recovery. There are no support groups in Australia. Has any recovered Hepatitis C patient been through what I have been through? Can anyone suggest anything that can help me improve my health? I have refused any form of pain killer or anti-depressant over the past 8 years. In the process, I lost all family support as "Mental Illness" is also used to get rid of husbands, fathers and grandfathers out of people's lives. It is also used as an excuse used by doctors in this country, hence delaying recovery. Can anyone help... please? Ettore S...

Ettore S Sep 13, 2016

Well..I took hep c treatments that were a regimen of Sovaldi &ribivirin! I done 6 months my last treatment was in December, 2014! The treatment's weren't as tough as I expected! And I continue to test neg.for the virus!, Praise God! But I still have a very uncomfortable rash that hasn't improved much at all!!! And I constantly stay concerned about that & I just got my disability in April and I still haven't had an ultrasound nor a biopsy on my liver! But I have had a Fibrosis blood test and they keep reassuring me that the test is very accurate! But my concern is I am genotype 3a and it is kinda rare in the U.S. as you know most American's are 1-1-a so yes I am concerned! Does anyone have any advice??!!

Lisa B. Sep 10, 2016

Hi there. My names Rachel I would just like to share my storey to others who have hep c and feel there is no way out. Well I'm here to tell you that there is and your life is not over because of this virius. I was a heroin addict for many years between the years of 13-21. After 2 years of smoking the drug I was not getting the Same affect and my habbit was getting worst so I made the risky decision to started injecting. I finally got myself clean after alot of hard work and will power. I feel pregnant 18months later. I was delighted and was happy to start my new life clean with a family. After going through routine blood test when I was 16weeks pregnant the doctor told me I was hep c positive. Abousoluty deverstaed I thought my life was over and I would pass the virius on to my baby. The doctor explained to me that there was a very low chance that my baby would contract the virius. After I gave birth to a healthy baby boy I was placed on a 12week course of drugs that would kill the virius and have regular blood test to check this. And to my delight I clear the virius and my baby did not contract the hep c from me. Now he is 1 yearsold he's happy healthy and has two parents that love him dearly. As for me I couldn't be happier and it just goes to show you can have the worst news and go through the most horrblie ordeal but still come out the other side with the right care and time. My message is to all that is worried by this problem.. it's okay and there is a way out. I promise.

Rachel B Sep 9, 2016

At 22 years old I contracted hep c but didn't know it then. . I am now 62 years old . at 42 years old I found out after I donated blood I had hep c and tried the injections and that did not cure me I did this treatment for 18 months and followed all the rules but it failed. I began using alcohol heavily and by the age of 62 I was completely swollen up like a balloon waters dripping from my pores and my joint pain was unbearable my bodily functions were all messed up .So my doctor recommended I try sovaldi and ribavirin for 12 weeks and it worked . I am no longer swollen and joint pain is gone . I am feeling better and although I have cirrhosis my liver is healing itself . I look forward to enjoying the rest of my life with my family . the ribavirin was the toughest part it makes you feel depressed but just hang in there . looking forward to my 63rd birthday .

DARYL H Sep 8, 2016

In 1972 I was sent to Vietnam, I was a little upset because I was suppost to go to Germany But the military decided I should go to Vietnam instead anyway I got morterd a few weeks later & was given a blood transfusion or so I was told I don't remember alot from that time & when I was getting out of military they said if I reuped I would for sure go to Germany but I told them to stick it. That injury was in 1972 & I found out I had hep-c in 1999, I went thru 2 treatments of 48 weeks in 2004 then again in 2013 & I thought that the cure would kill me but then VA gave me Harvoni for 12 weeks in jan 2015, my liver has tested normal since, of cource I don't drink alcohal any more, I do have a beer once in a while now but now I feel good & I think hep-c is gone from me now, I do smoke a little pot or about a bowl a night, I think I finally beat the hep-c ( I hope).

John B Sep 8, 2016

I found out I had hep c when I donated blood 9/11 during our countrys tragedy. I either got it from air gun shot in military late 70's or brutal rape in 1995. That is not important to me for some reason. I was never ashamed but hated the stigma and watch even good friends cringe when I told them. I did nothing until about 12 weeks ago and started Ribivarin and Sovaldi. I have 4 days left. I will not pull punches here. My virus was over 15 million, at week 3 check up (which was video support like skype it sucked) I was having chest pains at least twice and had told them I had heart problems with stent placement. I should have never taken ribavarin. Anyway, I digress, by week 3 my virus had dropped to less that 15. that is not a typo. Really, 15. I was sick though, had to get nausea medication and had anemia at week 3. I was 140 lbs and they put me on 600 mg ribivarin in morning and 400 plus 400 sovaldi at night. When they saw the anemia at 3 weeks she cut out the night time ribivarin. My mental state began to suffer at this point also. By week 5 I got the rash from hell on the front of both legs from ankles almost to knees that itched so bad I wanted to take a knife and cut it out. I got visteril which did nothing. It went away except 1 quarter sized sore on my leg that just recently (past week) flared up and now the rash is back so bad on the back of one leg. It itches so bad and there is nothing I can do. I lost a lot of my hair. A lot. My mental state has still declined to where I have cussed every doctor I see for putting me through this. I have 4 days left and YES, I am grateful that I am virus free but it really liked to have killed me. Make them tell you the full extent of this medication side effects. I feel it is poison. I have kidney issues and heart issues which I never should have gone through this. I had genotype 2b. The nurse did say that I was among the small percentage that had problems with treatment. I am by no means saying don't do this treatment. It is easy to do. But be prepared and be realistic. You might not feel so good and you might be like me and have made a lot of enemies with a lot of people because of this personality change. LOL. I hope when I stop, I can clear this out of my system but it takes 6 months to clear the ribivarin out of your system. The rash is the worse thing and the nausea. I do have a sustained viral response so I am cleared with no shots, but don't let them tell you there are no side effects, like they did me.

Marge F. Sep 7, 2016

I went in to donate blood plasma. On trip 4 of 4 I was called into the office and told "you may have HCV, get an ultrasound because it may be difficult to trace". Watch utensils after eating and given some sheets of paper about HAV, HBV. I had an incident at the blood plasma place that was smelly with blood and crowded. The attending person had a dull very large needle and it seemed to not be administered correctly on my trip 3 of 4. So I did....I went to emergency room got a liver bx and vaccinations for HAB, HBV. I was given a script for Interferon and RIBA. I was told to apply for the grant that cost nothing to me, but was worth about $25M for both meds. I was told I could do that or just wait and see. So I waited 7 years.....I finally heard there as a cure (SVR) 7 years later and that I needed to get my genotype. I applied for a viekira pak grant....had a colonoscopy first, drug test, EKG and more blood tests. I still had HCV gt 1b and my viral load was from 1.6 to 3.6 by the time I got the meds. The meds were absolutely fabulous. In 4 weeks I was not detected. At 12 weeks (no RIBA) I was cured.....SVR!! My doctor and I both had a huge huge huge laugh because everything went smoothly and I was cured!!!! It took about 3 months to get the meds. My insurance said insufficient medical justification and wanted to give me I/RBV with a 62% success rate. My doctor wanted to give me the 100% success rate chance and wanted me to take the viekira pak. So forth and so on. I am now cured!!! Glory to God!!!

Sharee E Sep 6, 2016

My husband got hepatitis 20 years ago. I met him 10 years ago and he had liver cirrhosis by then. In 2013 he had a liver transplant after being severely sick for 5 years. He was like a brand new happy to be alive person. Now he is taking harvoni and ribavirin to treat the hepatitis. He was fine for the first two months of this 3 month treatment. But he has about 2 more weeks of the treatment and suddenly he is very tired and very emotional. Cries all the time and thinks he is dying and noone cares about him. But his blood labs show the hep c is gone and liver is dining better than before. Is the depression and weakness part of the treatments side effects? Its making life very hard for me, but I'm hoping it is going to get better after he stops taking these two medications. Please tell me I'm right!

N Nyman Sep 5, 2016

I am suffering hcv genotype 1a. at 2008 i vomit blood . byt not dianose hcv. at that time i was a student. financial effect does not allow me to treet it. in 2013i have took conv interferon but not got neg. then treated by pegasys. but no result my viral load is 4.5x10^6. now im using harvoni.stress tideness vomting. fatigue is effecting my life

Uzair Ahmad Sep 4, 2016

Hello, I've had HepC for over 50 years. I recently took Harvoni for 8 weeks and it failed. It's still detectable. My viral load was 3.5 million when I started the treatment and it went as low as 50. I asked why I wasn't given another month to see if I could reach the undetectable level and was told, "if your viral load was over 6 million when you first started Harvoni, you would have received the 12 week course". My last lab test showed my viral load was at 1 million. Oh well, at least I'm lucky to be alive and my liver, so far, is functioning OK. BTW, my HMO is Kaiser Permanente.

Mike F Sep 4, 2016

I was diagnosed it 2006, after having GI problems that would not do away. Because my liver enzymes were elevated, my doctor recommended a HepC test, which turned out positive, no surprise there as I had dabbled in intravenous drugs in the mid '70s. My Genotype was 1A. At first I felt this was a death sentence, but then common sense took over, and the first step I took was to quit drinking, a problem I had been struggling with for many years. I also cut fats and sugar from my diet. A liver biopsy revealed Stage 2, bridging stage 3 fibrosis, a good thing I quit drinking! In January 2007 I did the Interferon/Ribavirin treatment, for 6 months. My first PCR showed the virus as undetectable, a good sign! Treatment was the worst ordeal of my life, my WBCs dropped dangerously low... 6 months post-TX showed the virus had returned with a vengeance... ...So I waited, for 9 years. Still not drinking, still keeping up my healthy lifestyle. Finally, this past March, I began the 3-month Harvoni treatment. So far my PCRs have showed the virus as undetectable! Next week I do my second to last PCR, fingers are crossed! This has all been a good thing for me; not drinking has opened up so many more doors in my life: I have met many wonderful people along the way because I have gotten re-involved in music (something that fell by the wayside when I was too busy getting drunk every day). I have no complaints or regrets!

Michelle S Sep 3, 2016

I had hep c for many years I contracted it from a hair transplant with infected needles . His name was Dr Cordero had offices in Long Island and Queens ! By the time i took blood tests and confirmed I had Hep C he had closed his practice and shut down both offices . I'm cured now over 2 years thanks to the new medicines. My Doctor is Dr Dietrect at Mt Sinai hospital in NYC and I want to thank him and his staff helped to save my life ! I want to thank my wife who was very supportive thruout the years when Hep C was in my blood and while I was receiving the treatment ! I'm cured now and very grateful to everyone and to the pharmaceutical companies that found the cure!

Ted K. Sep 2, 2016

I was diagnosed with HCV in 1999, having had a brief affair with a man who had the virus and deciding it was better to be safe than sorry. However, I never expected to test positive for genotype 1. It was a real shock and meant I had probably had the virus for more than 30 years, having experimented only once with IV heroin in my early 20s. I felt dirty, diseased and disgusting, a completely illogical reaction but there you go. Also, I was ashamed to tell anyone except my closest friends, and felt I had to contact the men I had spent any time with sexually over the years to let them know. The worst part was knowing I had to admit it to any potential partner I let into my life. Well, a new and lovely man eventually turned up, but I knew he was more than a little concerned about my revelation; it meant we didn't have sex for some months after we formed a relationship, due to his fears about contracting the disease. The good news is that he finally overcame his qualms, after I persuaded him to visit my liver specialist with me to put his mind at rest. We're married now, so that worked out well. Symptom-wise I didn't feel any different for years after my diagnosis: my viral load was very low and my LFTs normal. Then along came menopause and things gradually began to change: my viral load crept up gradually, as did my other liver markers, and I began to feel less energetic, especially in the mornings. I did my research, though, and began taking milk thistle every day, as well as a bespoke herbal liver conditioner and theracurmin, all chosen for their anti-inflammatory efficacy, and they worked. Combined with healthy eating and daily exercise, I've remained generally quite well. A few years ago my gastroenterologist wanted to enrol me in a clinical trial of interferon and another drug (ribovarin?) but, having researched the success rates of similar treatments (poor for genotype 1) and, more importantly, the potentially horrible side effects, I refused. I continued to live as healthily as I could, despite my love of red wine with dinner. In 2015 I began hearing about Australians sourcing a generic form of Harvoni from India and thought that if I began to feel unwell I would do so myself. Luckily, that wasn't necessary, as this year the Australian government added Harvoni to the Pharmaceutical Benefits Scheme. My specialist advised that I was an ideal candidate for that course of treatment, as my viral count was only 1,000,000, my LFTs had fallen considerably and a doppler liver ultrasound revealed I didn't have cirrhosis. I've now been taking Harvoni for 35 days (of a 3 month course) and am awaiting the results of my four-week blood tests (fingers crossed!). The side-effects have been mild to almost non-existent: some insomnia and resulting tiredness when I began taking the medication and patches of dry skin on my face, but apart from that very little to report. My advice to anyone with the opportunity to complete a course of Harvoni is, go for it! And kudos to the Australian government for allowing its citizens access to such an expensive treatment at such a low cost. Will tell more once I get my test results.

Irene S. Aug 30, 2016

I was admitted to the hospital several years ago gravely ill with a severe kidney infection that rapidly deteriorated to kidney and liver failure. I was lucky to survive, but with the help of good medical care, I did! Testing revealed that I had hepatitis C, the probable culprit of my problems escalating so quickly. I was floored by the diagnosis. I had been a licensed nurse for many years though, and that is likely how I became infected. That was in 2012. I began a complete lifestyle change of moderate eating habits and avoiding anything that was toxic to my liver. I also found out that I had early liver cirrhosis. In 2013 Harvoni came on the market, and I took the full course of treatment with minimal side effects. Today my infection remains resolved, my liver is stable and the future looks bright! I will, however, continue an alcohol free liver friendly diet, get plenty of rest and avoid stress. I get regular checkups with my doctors as well. I am 60 years young, so don't think it is too late to improve your quality of life!!!!

Dorothy C Aug 30, 2016

I have had hep c for over 20 years. I had no idea until I wanted life insurance. That blood test showed elevated enzymes Then my doctor gave me the news. Because of job I kept it secret from everyone except my wife. I had no symptoms at all. And treatment would have cost me my job that I had just started. Then harvoni came along and I told the doctor I was ready to be cured. After a referral I was able to see a liver Doctor. He and his staff are great. At first my insurance would not cover it. But I filed an appeal and the Drs staff got me approved. I'm at 8 weeks completed I have 4 more weeks to go after 4 weeks I had no sign of virus in my labs. Don't give up.

Rick A Aug 29, 2016

My husband had hep c and I am soooo happy to say he is now free from this horrible virus... My hubby was always feeling ill all the time, he was always tired and run down any activity done would knock him out for the next couple days. Our sex life was non existent and we had a very active one before. My husbands liver specialist recommended to start the medication called Harvoni and let me tell you it's been a miracle cure, he's been on it 4 months and has had multiple blood exams and they all come back with the virus being untraceable. It's finally finally gone!!!!!! My husbands strength has returned his appetite has come back he's finally gaining weight once more, he was weighing 127lbs and now is at a fantastic 150lbs and our sex life is back in swing which makes me a happy camper!!! You may all want to ask your doctor about this medication it's amazing to say the least... I'm so thankful to our doctor and to the developers of this magic pill... I wish you all health and happiness today and forever.

Erica V Aug 29, 2016

I had hepatitis C for about 40 years. I started getting serious symptoms about 1998. I started on treatment with interferon and Ribavirin for a year and my viral load got down to 94000 after being 5000000. It did not go lower. Years later I started on Interferon, Ribavirin and Incivek. Ist month I went clear but side effects were terrible. Bisters on my legs, My hemoglobin level shot down to 7 and even with medication it stayed there. I had 5 blood transfusion and 3 plasma transfusions in 2 months. I stopped At 2 months because the hep c came back. Then in 2014 Havoni hit the market. It took me about 5 months to get my insurance to pay for it. and since I had fail so many times before the doctor Wanted me on it for 24 weeks. 1st month and every month after that was undetectable. It has now been Over a year since I stopped treatment and energy level is getting better as I am getting older. There was no Side effect from Harvoni. Oh yea I am 64.

Paul G Aug 29, 2016

Hi everyone, I'm 37 years old and have had hepatitis c for many years, over 15 years. When i found out i had it i made sure my drinking habits changed and my general lifestyle became much healthier. I was lucky enough to get onto a trial for the drug Vikiera Pak. To be honest i was sceptical, as the pills actually gave me more energy, i did not see how these pills could cure me. I finished my trial in May. I got the all clear a few days ago. No more hep c. Unbelievable how these drugs work. So for any of you who live with a dark cloud over you, know that there is hope. Get onto the drugs, the nurses will give you the best drug for your strain. Finish the course it is worth it! Good luck

Daniella C Aug 29, 2016

I didn`t know I had Hep C until I started feeling lethargic and went to the Dr. and after bloodwork it was determined I indeed had Hep C. The treatment at the time was interferon and Ribavirin and had talked to my Internist about treatment. Having to work full time I knew I could not function on those drugs. So ten years went by and my viral numbers would rise and fall and my muscles would fatigue and had less and less energy. After a liver biopsy I found out my liver was starting to damage. I was starting to get concerned about my health even though I said I was not going to seek treatment, Then I saw an advertisement about Harvoni. It was stating a 96 to 99% cure rate with just one pill a day for up to 12 weeks. So I went to see my Dr. and we did another biopsy and a scope down my throat and I was still Geno type 1 so the Paperwork started and the ins. company approved my treatment. I contacted Harvoni online and they sent me a 5.00 co-pay coupon and the medication was ordered. I was on a 8 week treatment and after 4 weeks received another 5.00 coupon from Harvoni and continued my treatment all the while doing bloodwork to check my viral numbers. After 8 weeks of treatment the bloodwork showed NO HEP C in my blood. I`m due for 1 more blood test to make sure it hasn`t returned because they said it was a new medication....I recommend this for everyone!!!

Charles P Aug 29, 2016

My story began about thirty years ago when i was born during the cultural revolution in mainland china (basically one room hospitals and reuse of needles [sterilization theory didn't exist in China because we were in a war for our lives]). i was pretty bad as a baby mostly due asthma and viruses hanging around. anyway got diagnosed when i was 17 after living in the states since the age of four. i kinda didn't know what to think when i first got the news but i was given two forms of hepatitis to deal with B and C. after seeing the GI doctor i got on Viread and my count for B went down to near zero after about a month even though it was 2 mil or something. i am currently on that and Viekira Pak after waiting three years of waiting and i hope i get better with it soon as my first blood draw to check is next week so fingers crossed. but what i wanna say is the side effects of viekira can vary and i already have experienced the steroid like rage of ribaviran three or four time in the last week, it aint fun. i say try to find medication like Melatonin to help stifle the rage before it hits. hope you guys find better ideas than i can about the side effects like the sleep issue. since i have found a few but i'm working on it

Andy L Aug 28, 2016

I just completed a 8 week region of harvoni all went well during no side effect I did blood work after the first bottle it came up undetectable now I have to do blood work after completing the second NY concern is that I'm getting headaches after completing both is this normal? idk but not migrainesure just regular I hope it wears off I read that it's normal but I feel better.

Luis Roldan Aug 27, 2016

I was diagnosed with Hep C in 2008. I found a liver doctor and proceeded down the path of getting rid of this disease. I started taking the medication Pegintron and Ribavirin. This was supposed to be a 48 week process. I felt horrible all of the time, with flu like symptoms and throwing up multiple times a day. Around week 12 I got so sick I ended up in the hospital. The medication depleted my white blood cells and I could not fight off any infection. My family thought I was going to die. After recovery, I would not take anymore of the medicine. My liver biopsies were coming back fine and I had no other symptoms of Hep C. I continued with a biopsy every 2 years and they always came back fine. I thought I was one of the lucky ones that the virus would not make me sick. In 2013 when the new Hep C medication came out I did not take any. I talked with my doctor and said I would wait until my liver showed signs of a problem. My liver biopsy in January of 2016 came back and indicated severe cirrhosis. I went to a major hospital in Penna. to get opinions from their liver team of doctors. My MRI and other tests not only showed cirrhosis, but also showed 6 cancerous tumors. I am currently going through a number of efforts to conquer the cancer, and worry every day what the outcome might be. By the way, I was put on a regimen of 24 weeks of the Hep C medicine Harvoni, and without any side effects whatsoever, my viral count is undetectable. I am cettain that had I taken the Harvoni back in 2013, I would not have cirrhosis or cancer. Please do whatever you can to get the new Hep C medicine; it works without side effects.

Dave R Aug 23, 2016

I was infected with genome 1 back in 2007 by sharing a needle to shoot up heroine. I cleaned up my act a few months later and basically just lived with it. I drank regularly. Then Harvoni came out. Thanks to preexisting conditions being dropped I was able to get insurance through United Healthcare. I was approved for 8 weeks of Harvoni ($30,000 for 28 pills x 2) After 8 weeks I tested non-detectable and have my 3 month follow up next month. I 100% expect it to come back clean. It really works. Don't wait. Get it done. My viral load was 1.4 million and it dropped below 12 within the first 4 weeks. This is a great time to have hep c.

Geoff Broomberg Aug 23, 2016

I contacted Hepatitis in 1952 at 10 from an intravenous treatment at a children's hospital in Romania. At that time they could not name the type Hepatitis and the doctors told my parents that my blood will always have some remnants of the disease and i cannot ever give blood to nobody. 41 years later now living in the USA after a routine blood test the doctors diagnosed that my Hep C virus was dormant in my liver probably never advanced in 41 years. The biopsies were good but after another 7 years the virus attacked my liver and i was diagnosed with Cirrhosis at early stages. Fortunately again it was 2016 and today 8/22/16 after the blood test of week 4 on Harvoni finaly after 54.5 years i am free of Hep C virus. Still have 7 more weeks to go and more tests but the forcast is excellent. I can't finish this before i mention that prior enrolling in to the ACA i did not have insurance for 4 years and i will be eternaly greatfull to the creators of this health care law for helping me to afford this treatment.

Peter L Aug 22, 2016

As a teenager, I was pretty wild and used drugs on a regular basis. through this I contracted hepatitis c. I found this out the day my son was born 17 years ago. in 2008 I was among the first group of people to have the treatment to clear the virus successfully. my dilemma now is, I am now 39 years old, my husband has never been checked out of fear of me passing it to him! stupid! I know! I am a successful healthcare worker now, my past well and truly behind me. I applied for a in a hospital recently and they rang me today to say I have got the job but they need blood tests from me. I am so worried they are going to realise I had hep c and judge me on this and refuse me the job on these grounds. I am also worried have I given hep c to my husband and has he re-infected me? I am freaking out, this has really come back to haunt me and I just don't know what to do, can someone please give me advice? can they refuse me the job if I had hep c years ago?

g. c Aug 19, 2016

Last year 2015, I was on Harvoni for 8 weeks. Did not work because of my geno type. This past May 2016, I stated taking "Viekira Pak and Ribavirin. My 1st blood panel showed I was 99.9% cleared. I have been on 12 week program. Side Effects, tiredness, blur vision, headaches, dizziness, lost of appetite because of acid reflux, shortness of breathe, irritated daily, crazy dreams, insomnia, forgetfulness. I just completed my 2nd blood panel and will get results on 8/25. There is a program available that will offset the expensive cost.

Yvette S Aug 18, 2016

This is a story that was done for my Best Friend of 45 years by his stepson. Look at the link and decide for yourself. https://vimeo.com/album/3876181

Michael Kiczula Aug 17, 2016

I wanted to share the short story of my story to give hope to the weary, I was diagnosed with hep c in 2013, ... I contracted it by living a risky lifestyle when I got pulled into addiction I was on heroin. I got clean in 2012, When I was first diagnosed I was told that my blood levels were low so ultimately I went almost vegetarian for about a year-and-a-half I ate plenty of garlic cabbage salads lemonade mixed with cayenne pepper on a daily basis and at the beginning of 2015 I went to the liver specialist to see if I could get treatment, The Specialist checked my levels and no levels were found it's a Bittersweet story because I passed it on to my unborn child but I have hope treat your body well and even if it doesn't completely go away you can have a long healthy life

tasha b Aug 16, 2016

I was 37 and not feeling so great my partner suggested The doctor we had 4 kids under 14 not wanting to fall over as there was only one income went to a doctor took bloods got a finger up the butt and was told to come back for results went back was asked if i was an intravenous drug user then was told i needed to have HIV tests also my partner was tested this caused stress i had no idea existed suddenly i felt broken and my relationship with my partner was strained life insurance was canceled i was feeling sick with headaches kids were pushing the boundaries on all fronts i started on the herb trials CH 100 them one more with a placebo and active milk thistle i found both treatments made me feel better but the virus was here to stay started to eat consciously and stopped drinking being conscious of my blood had always used condoms for birth control keep the razors and tooth brush away it just makes life so much harder but sometimes things just come our way and you need to push on with Gen 1 B earlier treatments weren't an option thank god for that Viekira Pak just got accepted on the PBS so im half way threw treatment im now 58 . Good Luck peopel

James s Aug 11, 2016

I contracted Hep C before they even had a name for it. I tried interferon, only 1 dose, and returned unused portion to my pharmacist. After 35 years, the pharmaceutical company came out with Harvoni. I contacted the company and qualified for free medication. I was very lucky. I just had my 6 month test and "there is no evidence of the Hepatitis virus. I had no side effects what-so-ever!!!! I felt great, even increased energy with my first dose. I am so grateful.

Candace N Aug 11, 2016

Hello to everyone suffering from Hepatitis C. I have a very very good and happy story. Back in 1989, i went positive on a test for hepatitis. I was on my early 30's. I was raising 2 boys & just landed a job. I feel so good around that age & never really thought about this positive thing in me. The doctor told me it was at a dormant stage,but it can start acting up when i get older. Sure enough by the time i became a grandmother the 2nd time, 2007, I started feeling really sick, always tired, almost everything i ate makes me bloat, then the gas started up, i'm always so gassy all day, i decided to do some research about food, i stayed away from Gluten and lactose, it helped me a little bit. Around year 2008, I planned on getting treated but the medicine that i'm supposed to take showed a lot of bad side effects, the clinic was ready to get me started but i was not ready. I was scared to poke a needle in me plus the pill i have to take. I stopped seeing the doctor who was going to put me on this treatment. My husband was very supportive of me and what i'm going thru. He learned about this new drug that is suppose to be on it's way and i only have to take a pill a day. We waited, finally 2015 i decided to go for it. My family doctor referred me to a Gastroenterologist, and we started a brand new test, yes i got Hepatitis C and on my way on stage 2&3. He said to better do it now or else... To make my long story short, i went on a 12 week program taking this miracle drug called HARVONI... It went well for me i hardly had a side effect. i ate well and just after i take each pill, i get drowsy. Warning... do not drive after taking this pill. I took this pill one time and went on my way to see my grandchildren, 1and a half hr. away, i had to pull over 2 times just to keep me on the road, i got to see them and live to tell this story. If anyone is afraid to go under this medication, do not be. I'm 59 yrs. old and well. I was told i'm cured within the 8th week after taking these medicine, but not until the last blood test which was after i completed the 12 weeks, The doctor looked at my report, turned to me and shook my hand and say THE VIRUS IS GONE. Thank you God and everyone, from my doctors and the makers of HARVONI.2

Leticia D Aug 10, 2016

Back in January of 1986 I started down a bad road to a bad part of Brooklyn, New York filled with heroin and cocaine, by 1987 I was diagnosed with hepatitis C. Fast forward to 2000 when I finally got off the drugs and was starting to live like a human, my doctors told me I still had the hep and my liver was starting to show signs of degradation but, they prescribed pain killers such as Vicodin and Norco all the way up to me getting healthcare insurance due to the affordable care act when my Kaiser doctor got me on to a non narcotic antiinflamatory called Meloxicam which allows me to function almost pain free. Meanwhile the damage to my liver was getting worse and after 2 full years of paying stupidly large sums to Kaiser every month, I demanded they cure my hepatitis C. The 1st bottle of Harvoni cost me $475.00 through Kaiser's pharmacy and I about stroked out right there. Needless to say my credit card took a big hit every 2 weeks for a total of 8 weeks and now I do not have a detectable trace of hepatitis in my system. I am grateful because I am cured but, I was held hostage to this disease for close to 30 years due to cost of treatments and my inability to get insurance because of pre existing conditions. I have 16 years off of drugs and alcohol, I do not miss the stuff either. Big Pharma is ripping off America and we allow it to continue happening for what? Seriously, for what? People need to wake up and stand up, this country is supposed to be for the people, not for Big Pharma.

Ray Fitzpatrick Aug 9, 2016

I was diagnosed with hep c. After a routine blood test. I was in the army from 1983 until 1986. I pretty much gave up hope. That I would live a normal life. With the constant fatigue. I saw the commercials for harvoni and talked to my doctor. Long story short. My insurance company covered the treatment. It cost me 5 dollars a month for 3 months. 95 thousand dollars later. My blood tests have shown that it's gone. 100%. I feel like I've been given a second chance at life. I'm now 50. And I need to start a retirement fund. Before I wasn't worried about it. I didn't think I would make it to retirement. Typical. Life throws you another curve ball. That said I feel better than I have for 30 years. But because I didn't think I would live to see retirement.........

Aug 7, 2016

I found out I had hep c in1999. The most important information I can provide is that I was able to get the medication from Australia. I was able to obtain the generic Harvoni.If you do the research you'll find the generic is a viable alternative. Within four weeks of taking the pills I cleared the virus. At the end of the medication I am still clear. The cost of the medication with shipping is significantly less than any cost I would have incurred with Medicare.

Jerry S Aug 4, 2016

I just finish a Combination Treatment of Vikira and Rivovirin.And after a Long Six Month Treatment it was a Sucess.I had been Treated 10yrs before and it was not a Good Outcome.But this Time I was very Blessed and I have Won against it...So Fight and You can get Rid of the Disease...

Keith P Aug 4, 2016

I had Genotype B, detected during a routine blood panel in 1993. After one failed treatment 2 years ago with Solvadi and Ribavirin (12 weeks) my doctor put me on a longer treatment of 24 weeks, using Solvadi, Ribavirin and Daklinza. Aside from numerous side-effects from the Ribavirin, I got through it and my Hepatitis went "not detectable" at the 12 week check. My doctor and the entire Hepatitis C staff at U.C. Davis are the BEST. They were so supportive and pro-active, even getting my health insurance to cover the second treatment. YEA TO THE NEW DRUGS!!!! :-)

Suan B Aug 4, 2016

I was 18 years old when i found out i had contracted the Hep. C virus, i felt so ashamed and dirty. I did not tell anyone, with the risk of them telling other people, it would ruin my reputation. I was a typical streetwalker and used drugs via. iv. i shot up everything from cocaine to fentanyl, it was horrific, i had to find a way to make money for my addiction so that's why i was a streetwalker. A year later when i was 19, i had stopped working on the streets and stopped using needles. i Went to the doctor to get tested and that's when I knew i had contacted the virus, i was sharing the tools (spoon) but never did i share a needle. When i was 21, i got tested again, and i had found out that my body had fought off the virus on its own, and it couldn't be detected in my blood anymore. Man, was i ever grateful for that, so i turned my life around, cleaned up my act, got a job, stayed away from the justice system, and started a family. i thank god everyday for giving me a second chance at life. there is hope for everyone, just have faith, and surely you will be cured too.

Stacey M Aug 3, 2016

I started in on the Sovaldi and Ribivarin Treatment after having Hep C for about 12 years. I tested clear and undetectable twice now- I am cured! If you're considering treatment, here is my experience and some advice: The 6 month treatment isn't easy, but you can do it. If you're working a job, make sure your employer knows about this, because you may have to take a few extra days off from time to time. Here are the side effects I survived: -very low energy levels, mental fatigue. -feeling down and irritable. -loss of motivation, enjoyment, some negative thinking Now for some advice to make it easier: -If you get the flu, it might knock you down for a lot longer than normal. Don't be a hero and try to push thru it. -It's absolutely necessary to get extra rest. This medication may give you insomnia so its good to have a strategy for dealing with it - avoid caffeine, alcohol, or anything else that puts stress on your body- no excuses! You can take my advice or learn the hard way. -exercise as much as possible, it helps a lot, but don't overdo it, because it takes longer to recover from everything Like i said, its not easy, but you can do it. It's 6 months that can be hellish at times, but its worth it.

Robert B Aug 2, 2016

I was diagnosed with c 15 years ago this came from a dark past to haunt me, at the time I was told I had 3 years to live my youngest wast 6 years old, I was advised to take a course of interferon which having researched this debilating treatment I turned down for the sake of my young family, 4 years later, I was told that after all, I would not die so quickly & that new research showed that I had the lesser strand & could die of cyrosis age 80, good news I thought! Now age 61, I can see the desease working its way, my lower limbs have developped a reaction to heat & sting to the point where they swell up thrice the size with angry dark blood spots, I am now facing the virus attacking my blood vessels to the extend that in about 4 or 5 years I will become disabled..I now look at how to live with an allien body in my host body? All I wish for is to find a way for the virus to live in within its host body (ie:me)) in harmony, no parasites wish its host death..so I am looking for a herbal remedy that will allow both of us to live & survive together. Doctors & drugs have done nothing for me and still they stall...so we are on our own to find a way to live with a thriving strong cell that possibly we coul absorb & live with...I do not wish for any agressive comments or despaired souls responding to this post, just people like me human beings, wishing to survive, C cannot be erased with chemical compounds (not yet anyway) but perhaps with a bit of common sense it can be lived with..

cinella f Jul 30, 2016

Listen here Greg L ,you obviously cannot be serious stigmatizing the Big Pharma companies for not caring and making a drug that gives some side affects & not others ? I have been chasing this for 35yrs & when I use to get tested and hear the suces rate upon completion of Interferon & Riboravan it was shocking. that combo of an injection evryday for a year to feel like a mac truck drove over you was convincing enough not to take it & hear 20% sucsess rate,then as the decades progressed 34%,54% sometimes not at all !! Hepc is an epidemic of uneducated people that don't know they have don't want it or need it an cannot afford it,my Big pharma is helping me so if it means I get hepc free I'M GOING for the survior story buddy can't fault people for wanting to be disease free that will make all my other conditions improve minute side affects from this drug more from the disease outways the cons sory dude !!

Cecilia M Jul 30, 2016

I was last here to share the evolution of my life living with Hepatitis C on May 1, 2016 some 8 days after starting the new treatment for the cure from the virus. I ended the treatment on July 20, some 5 days shy of my birthday. Today I am happy to share my results Post treatment that show no trace of the virus. After living with this virus for 37 years, I am sure there a few of you who share the joy I feel at this moment to know I finally did it. I will keep testing for the next 6 months, and hopefully I will come back then and give a huge shout-out. It was so very worth it. Goodluck to all who are starting, still undergoing treatment, or yet to start. Best wishes, Mary

Mary L Jul 27, 2016

Hi all, Thanks to the Australian Health Dept who, on March 1st 2016, subsidised the new Harvoni treatment for Hep C sufferers under the countries PBS scheme. After completing the one pill a day, 8 week course I am now Hep C negative!! This is a total miracle as I contracted the insidious virus 30 years ago and having a fear of the Interferon treatment, decided to wait for a new generation medication. While taking the course I suffered no real side effects other than a wicked cough/cold that lasted a month which I now see was the virus leaving my system. If you live in Australia get to your doctor/heptologist and make sure you get this medication whilst the governments budget allows it...the subsidy probably won't last forever as treatment costs 10's of thousands without it. I can't believe how fortunate I am and I wish everyone who has the virus the same amazing results that I've had with this new treatment... Much Aroha x

Tanya W Jul 23, 2016

hi I made the cure for Hep C .I gave the theory Interferon with secondary antiviral(that would be named after Pegasus)yes I made the name also.In feb 1989 my doctors got me into the Rockefeller Institute Endocrine study.There I saw the yellow kids, being treated with UV light.I told a boy about 20.Iwas not there for the study.I have the cure for your sickness.He had very long blond hair and was from Maryland.I also told the mothers and fathers about the cure.In the summer of 1989 .Rockefeller Institute began making my cure.Theory a reality, I was one of the first to give blood.Oddly when I told them the secondary antiviral was PegaSomething-i needed a PDR to show them.Pegalated interferon did not go into the PDR until about 1999.In 2001 ,they give the cure the name Co Pegasus.I think they felt bad -i got pushed out,and they knew I would see the name-beause my enzime level hit the roof in Rockefeller after about 3 to 4 weeks.They maybe looking for me.Because in feb 1989 I tried to get into the Interferon study-And offered the cure for "RETROVIRUS"! in 1989.The cure I have is drug free.No superbug can be made.After all these years no one has ever asked me for the cure.No person in America has ever thanked me for saving their life.No one has ever thanked me for saving the life of thei rchild.I am America's biggest secret.My secret will become public, i have waited a long time.Thing would be much better for everyone ,if the true inventor were not kept out.Probably because of the money.The people in the CD BAD Blood, I watched them go into Rockefeller, to get my cure-but they never asked what the cure for Retrovirus was and is.The person I lived with got lung and brain cancer in the summer of 1989.and died good friday-the next person i lived with got AIDS and died on goodfriday-both are in the cemetery in Valhala.I am the person that saved 50,000,000 people in America alone.If I can never prove it, I believe it will come out after my life span-I have 9 theories that can change the world.But there is no incentive.I am the man that made the first cure and the only cure for 25 years.I am connected to almost everyone-it has been very hard to be so unknown-i believe the people have a right to know the real story -and I will never give up again.I would love to speak with the people who worked on the cure in1989 1990 1991 1992.I know they had to put their names on it, The hospital made them keep me out .I heard them talking to my doctor-whowas shocked by the way I was treated-I wrote Peggy Rockefeller to go directly, im sure they never told her

keith allen Jul 22, 2016

I am a 61 year old female Hep C + GT 1a, extremely high VL until just prior to treatment. Then it dropped from the double digit millions to 5 mil. I was + approximately 35 years prior to treating with generic Harvoni that I had brought into the USA from Thailand. I had a liver biopsy 15 years ago, zero/zero. Just prior to treating last November I had a Fibroscan that showed F0-F1. Extremely fortunate I'd say. I spent $650.00 for 12 weeks of Generic Harvoni. Almost no side effects whatsoever. I didn't have labs until 7 weeks into treatment and I came back undetected. Last dose was February 19 and 6 weeks post EOT was still undetected. My last quantitative and qualitative was done 14 weeks post treatment and once again I was undetected. August 1 will be 24 weeks post EOT and I will test again. Then unless a physician decides otherwise I will not have another test until end of February 2017. My Physician was not allowed to discuss anything with me but she knew what I had done so she just kept giving me lab slips without jeopardizing her job.

Diann Peterson Jul 22, 2016

I was diagnosed with hep c in 2010 but was uninsured at the time and not offered any help through the hospital that I was at for a possible heart attack ( blood pressure was 190 over something) .I finally secured a job with ins. And in2013 began the process. It turns out that I had contracted the virus in 1997 and my viral load was 4 million per unit of blood, yes 4 million , I began the treatment with chemo drugs (the only treatment available) and that it would be a 6 month treatment. During the diagnosis part of ordeal I didn't really feel that bad until I had the liver biopsy and that must of pissed off the virus as that was the beginning of feeling like shit. I was still going to work everyday ( HVAC tech.) But after 12 weeks into the program, I started to miss work as my stomach and digestive system was burning, cramping,and hard to even sit up. From that point on I was only able to work 2.5 days over the next 3 months. I completed the treatment and , was told my viral load was less than 4 per unit of blood ( their definition of cured) I still have severe pain in my abdominal area. Had a few nasty tests. It seems that once my treatment was done,they were done with me. I am now on ss.disability trying to live on half of what i used to make. On medicare and can't get the treatment or help I need to find out what's going on now. Its been 2 years since my treatment ended and I'm afraid of what is going on.

Jerry T. Jul 21, 2016

I became aware of Hep c when ppl were talking about Hiv. I went to donate blood plasma. Dirty place. Told after 3rd time there and a needle blunder but just before last draw that I have Hep c and get an ultrasound. Got exam, HEPA and b shots and a prescription grant application for I/RBV. 2015 seven years later got re-exam.... prescription grant through dr for Viekira. Never cleared went 12 weeks on Viekira and got cured. Viekira the most amazing medicine and a yr later still SVR. No type of support. But able to say today I am cured. GLORY TO GOD! I am very sensitive to iron. Have been checking out iron overload info online.

Sharee E. Jul 20, 2016

I'm 49 have had Hep C since 1982 due to IV drug use. I'M CLEAN MANY YEARS I'm finally getting treated I'm stage 2 bad pain legs feet liver spleen. I'm taking medal next week for 3 months.good luck people .

Celina Soroa Jul 19, 2016

I am 54 I was an military brat and a gymnast a good one back in the 70s I had to hide it now it cool imagine that I said every bit of 25lb I could do it all then one day I went to practice stock my finger in the high bar hole to lower it and some one jumped on it like a guillotine it cut it off lost so much blood on the way to the base hospital they gave me blood that's how I got it now I'm taking ribavirin 6 pills a day for seven mounts and one a day of to other pills so I'm taking 8 pills a day for 7 mounts man I'm three mounts in to it it's crazy dreams angry like the medicine wants to get out through your mouth tired week I go to my doctor Monday this month has been hard does it get worse are better there more but I'm tired oh probably won't go to sleep becouse u toss and turn all freaking night lol?

Kenneth C Jul 14, 2016

Was diagonised 2 yrs 1/2 ago. Have no idea how long I had it. Doc couldda been as long 23-30 yrs.I just knew something wasn't right. din't have insurance. So doctors din't do much. just kept say high blood presure. And diabietes. Well ended up in the hospital. Six months latter got on medidade. By that time. they came out with Harvoni. Justwent in for my1 yr check up. Back in May. And say I'm doin good. No sign of hep c. Had no reall side affects. little tired . Just so happy not to be in pain anymore. Feel like a normal person again.

John D Jul 14, 2016

I found out I had Hepatitis C in 1995 during a full blood screen. It came as a shock but not really a surprise as I had acute Hepatitis B in the 1970's. I had stopped drinking alcohol several years earlier and as I felt well with no evidence of symptoms the advice and belief was just get on with it. I did this quite well changing career midlife and gaining the rewards from that. As I got older, I am now 62, other medical problems materialised and my GP felt my liver problems should be monitored by a specialist. I had a fibroscan done in 2014 which indicated cirrhosis of the liver with a reading of 21.7. Following this I had to wait almost two years for the new medications to be accepted for dispensing here in Australia. My consultant would not consider the older regime due to my other medical conditions. I am now in week ten of twelve of treatment for gt2b with Sovaldi and Ribavirin. My LFT's are returning to normal but they were never too elevated anyway. From a pathology point of view the main problem has been the risk of anemia and my albumin remains slightly elevated. As a previous poster said the main side effect has been dry skin, causing itching which was solved by non-scented moisturiser. For my feet I use a product for hard skin with a high urea content. Also, some days I just have to lie down and watch TV, I cant even focus long enough to read a book. For me the worst side effect, if that's what it is, has been the episodes of irritability. The other stuff I can put up with but it is the people around me who take the brunt of the mood swings.

Jack T Jul 12, 2016

Hi, I took an 8 week course of Harvoni. My viral load was 3.2 million and after the 8 week treatment, my viral load was 50. I asked why I wasn't given the 12 week course of Harvoni and was told that my viral load would have to be 6 million or higher. The treatment failed because my viral load went to 1 million after a one month lab test. I asked about Viekira Pak and was told it wasn't recommended for those who failed with Harvoni. Fortunately, I don't have any scarring of my liver, as I write this. Still looking for a cure.

Mike F Jul 8, 2016

I was diagnosed in 2013 with Hep C genotype 1A......received treatment of Harvoni and Ribarvarin for 12 weeks. I am a recovered addict and alcoholic and am very excited to say I have come back twice with the virus undetected. I feel very fortunate and although I do still have cirrhosis....my quality of life is much better.

Cindi R Jul 6, 2016

I am a recovering IV drug user. I unfortunately decided to share needles, in May of 2015, for the first time. a few months later, I visited my primary care provider just to ensure I did not contract any diseases. I was diagnosed with Hep C, and was also informed I was pregnant. I immediately was refered to an Infectious Disease physician, as well as an OBGYN. My PCP, who was not very knowledgeable about Hep C told me an abortion would likely be necessary. A long moth and a half I was finally at the infectious disease dr. after expressing my concerns about my pregnancy possibly needing to be terminated, per my PCP, she was in shock. In no way shape or form would this need to be done. The transmission rate to a fetus was less than 3 percent. I would however have to wait until I delivered to be treated. My daughter was born in april, healthy and will be tested at 18 months for HCV. Ultimately, I made an appointment with Infectious disease to begin treatment asap. My fibrosis load was too low, apparently I was "too healthy" to receive treatment. My first appeal was denied. What a bummer. This week, the distributer of Viekira Pak called me to let me know it is to be delivered to my home this Friday! So for those who have been denied I urge you to appeal appeal! I Have had hep C for one year. I am asymptomatic and I am super excited to close this chapter in my life. I will hopefully have a wonderful update in 12 weeks to share!!

Alice c Jul 6, 2016

I contracted Hep C from iv drug use in 2014.. I had actually just been through rehab and had about 2 months clean when I started feeling really sick.. I was really tired all the time, couldn't hold down any food, was having night sweats,really dark urine, diarhea , and my skin itched so bad..about 2 days later I noticed that my eyes and skin were turning yellow..I went to the emergency room and they confirmed it was Hep C. As I didn't have insurance at the time I just kept it monitored over the next 10 months at the free clinic down the road to see if it would cure itself and it never did.. so that following open enrollment I went through marketplace and got affordable health insurance and went to a primary care doctor where he then referred me to the local college hospital gastroenterologist.. there was a doctor who specialized in Hep C treatment and the wall was covered in stickers from people they had "cured".. they did testing and confirmed I had genotype 1a and no liver damage yet and said Harvoni would be a great fit for me.. she approved it through my insurance and they paid everything except $1000 and I then contacted the manufacturers and they sent me a copay coupon that covered everything else..I ended up paying $5 for a $60000 treatment. My doctor had me started on the treatment within 2 months.. I had to take 1 pill a day for 8 weeks.. the virus was undetectable after 4. I was really worried about side effect after hearing about other treatment options but the effects with Harvoni were minimal.. I had a little nausea and fatigue and random headaches which could be avoided if I stayed hydrated..I was able to continue working full time and function which was nice. After I finished the 60 pills I felt like a new person..it's amazing.. I got tested again after 3 months because my doctor said if the disease relapses it's likely to do it withing three months and it was still negative so she said I met the criteria for being "cured". She told me that if I get tested for hep c at say like a plasma clinic or something it will show a positive because the antibodies are still in my system but a more detailed hepatic panel will show I am negative. I cannot pass this on to others and there is no more infection attacking my liver.. I also got tested again after 6 months and still negative..I believe I will continue to get checked every once in a while just for my peace of mind but I'm proud to say that I have been cured from hep c for a year now and clean for 25 months. :)

Sarah H. Jul 2, 2016

In 1994 gave birth to my son. Lost a lot of blood and received 3-4 units never felt good since that time. The fatigue, chills, abdominal pain and weight loss were terrible for years. Endless testing revealed nothing until diagnosed in 2006 went on initial treatment of interferon, rivibiron twice. Though the side effects were difficult remain no abnormalities for seven years, need lab work soon. In 2011 diagnosed with epilepsy under care of specialists. With saying this I'm hopeful in life.

Amanda B Jun 30, 2016

this was my second treatment AND IT WORKED I'M HEPATITIS FREE. THE FIRST TREATMENT WAS HELL AND AFTER TREATMENT I STILL HAD HEPATITIS , I JUST FINISHED TREATMENT WITH HAVONI AND GOT MY 3 MONTH BLOOD TEST AND THE DR. SAID I'M CURED. THANK YOU JESUS! DR. SAID SHE WAS GOING TO DO ANOTHER BLOOD IN 6 MONTHS BUT I HAVE FAITH I WILL STILL B HEP C FREE. TREATMENT WITH HARVONI WAS A BREEZE NO PROBLEMS AT ALL . GOOD LUCK TO EVERYONE

Cheryl d Jun 29, 2016

I was diagnosed several years ago from routine blood tests. Not sure how I contracted it. I was in the military in the early 80s. It was life changing. Knowing that I would probably die from it eventually. My doctor advised against treatment a few years ago because of the side effects. Then last year I saw a commercial for harvoni. I contacted my doctor. He said it was a roll of the dice with the insurance companies. Well I was completely covered. I had to pay 5 dollars a month for 3 months for almost 100k in treatment. I took it daily the side effects were minimal. I just got my blood tests back 3 months after treatment I am completely healed. I can't believe it. I feel better than I have for 30 years. I'm 50 and have more energy than I did at 30. I hope that they can reduce the price of this medicine. Because everyone deserves to be cured.

D H Jun 28, 2016

I contacted hep c in 1989. I was fortunate enough to heve a general practitioner tell me I had hep non A non B and sent me to a specialist. It turned out to be hep C. Type 1. Over the years I was followed up very closely. I was told the treatment was that of chemo and would last 48 weeks with only a 50% chance of success. Many years later my doctor told me that "Not only iphones are getting better. Soon a pill will cure the hep C virus. Then came Harvoni. My doctor prescribed it. Before i started I had over 6 000 000 viruses (don't know how they know that) , Two weeks I was down to 18 and two weeks later completely gone. I was tested 3 and 6 months later and still gone. So albeit it's very expensive it is a "Wonder drug" and if there is any way you can get it through insurance or some kind of funding, do so it is well worth it.

Denis P Jun 26, 2016

We created a documentary on Hep C called Deal With it. It is available on YouTube - thought you might like to see it. https://www.youtube.com/watch?v=L9TZo3hFaYk

mark ashdown Jun 26, 2016

during 1978 to 1982 I used diamorphine ,this is when I must of contracted HEP C. I neither knew I had it, nor were there any symptoms. Years later and after 4 tests I am 100% free of the virus....I have had a terrible amount of side effects which still continue. Only 3 weeks after starting treatment I lost all chest hair ,under arm hair and grew breasts. A semi flacid erection was all the reaction I got despite mentally desiring sex as much as beforeViagra makes it worse since I have half an erection for 2 hours..To say I wish I had NOT BOTHERED IS AN UNDERSTATEMENT((((HOW ABOUT YOU????)))))

steven l Jun 24, 2016

I have had Hep C for many years now but I never knew. I got diagnosed recently and the Dr told me it appears as if it has been there for years already but I never knew. I am now 40. I have very low viral count for how long I have had it. I have never taken Interferon or any other anti viral medication in my life, because of the never knowing I even had a virus. I was a heroin user for 14 years but I never shared a needle. I think I actually caught this disease from medical work, or from a dirty tattoo needle. Doctors assume it is the IV use but I have OCD and not once ever touched anyones used anything. I did work as a healthcare aide at a place where I was stuck by a needle by accident in 1993. I also got a basement tattoo from a meth addict in 2000. I also had a blood transfusion before 1985. So I will never really know. Anyhow, I was diagnosed months after Harvoni became available. I am about to begin Harvoni in one day. I was approved for Harvoni on my first try at getting it, on Medical Assistance and I am on disability ( for different illness, not Hep C). I had no trouble getting mine covered 100%, I had no copay. When I hear of people who are denied because they are not yet sick it makes me enraged! I have never had any symptoms, have zero liver scarring. Harvoni is still new and they do not yet know the long term effects so yes we are the test group, in a way. I am scared to death but also excited. I fear side effects and usually get any a med has listed. I do very badly with pain, hence my opiate history. I have lung issues and depression on top of the rest. I hope I make it thru this next 8 weeks, my med course is 8 week limited course for viral counts under 6 million (my count is 530,000, very low). I will update afterward and let everyone know how things went and am also blogging on wordpress day to day. I am cautiously optimistic.

Alana Z Jun 21, 2016

I am young 21 year old student yesterday I went to donate blood for his friend's father when lab assistant take my blood sample and after some test he told me I am suffering from hepatitis C . I don't know how I effected in my childhood I was smoker I think when my age was 12 year.. may it is due to my those bad habits .. but attack is not high its value is minor 2.8 and Doctor told me extreme line of hepatitis is 5 .. it not more harmful for me.. still I am worried about it :(

Ahmed Iqbal Jun 20, 2016

In 1977 I was diagnosed as having non-A non-B. With numerous symptoms I was diagnosed as having Hep C in 1996. However, after a few blood tests I was told that my viral load count was so low that it appeared to be a false positive. In 2016 I went through testing and procedures to prepare for taking available Hep C drugs, but was told after two blood tests that my viral load count was so low that it appeared to be a false positive. Therefore, there is nothing to treat. I believe my symptoms in 1996 were related to taking Tylenol, and either an allergic reaction to it, or complications of taking Tylenol and drinking beer. The “symptoms” I mentioned were bad enough that I didn't believe I would survive at the time. No problems since and I feel great! Now 59 years old.

Lew H Jun 20, 2016

Hello, My name is Jamie and I am from Coeburn,Va. I found out I had Hep C 7 years ago and kept sweeping it under the rug avoiding treatment to continue getting high. Shooting up daily was my life. I went to jail over distribution and was released on June 12, 2015. I decided to work the program and work toward tx. On May 2, 2016 I had a liver biopsy and got cleared to start Sovaldi/ribavirin therapy and my 1st dose was May 11, 2016. On June 7th I had my labs and viral load. The Doctor called me June 16th and told me I was already Hep C free. Totally undetectable. It works, but I have to complete my whole 12 week treatment cycle and August 1, 2016 my 12 week treatment will be complete. I encourage anyone to PLEASE try this medicine. I looked at it like this, I am a father to a 11 and 21 yr. old set of boys and now I have a 15 month old Grandaughter and a new chance at life. Remember you can live Hep C Free! I always have been a selfish human being only caring about me and my fix but by family, mental health, and spiritual support I am going to not be bound by the chains of addiction and worry of dying from liver disease. Please seek help. Start with your Primary Care Physician and if you do not have one don't worry. You can go to the local Health department and if you are positive for the virus they will help get you a referral. Remember your liver is really your best friend and I let mine down for too many years using dope! I pray that you find time to read this and anytime you want a fellow addict to talk to email me @ [email protected] I suggest MSHA JMH Hospital's Gastroenterology. Dr. Joseph “Sandy” Brown and Shauna Large AFNP. They are like family and will work with you and your insurances and all resources out there if you are ready to stay clean and put Hep C behind you. God Bless!!! Jamie J Coeburn, Virginia.

Jamie J Jun 19, 2016

I got Hep C Geno Type 1 A in the early 80's after a car accident. I'm now 59 and have gone through 2 treatments trying to get rid of it. The first was awful and didn't work. It was interferon, Ribaviron and something else. All that did was increase my viral count into the millions. Because the treatment was so debilitating for me mentally and psychically I had to wait years to take it again. I did take the Sovaldi this time they said it worked but I have an infection of the spinal fluid and brain. From the 80's through 2008 I traveled fly-fished, hiked, climbed mountains but always knowing it was harder for me to do these things than others, In 2009 I just didn't have any energy left. Started treatment in 2010 - 2015. Here I am cured but with no energy and complications. From the time I was a baby till 12 I had Chronic Bronchitis. From my 20's till 50's had Chronic Hep C. Seems I've been Chronic all but 10 years.

Jacki W Jun 19, 2016

I was infected with Hep-C in the army in 1971. The army doctors called my mother and told her I was surly going to die and she should come to see me at once. I remember the army ward I was on and all the other guys who also had Hep-C there. Most like myself wasn't doing too well. I was gravely ill. My eyes, skin, stools were all yellow. I couldn't stop throwing up yellow vomit. I seen guys around me die with the Hep-C. But for some reason, I hung on.

Now it's been 45 years and I've never had any treatment and never experienced any more symptoms. I've always been a drinker up till about a year ago. I've had many back surgeries and was given my own blood back. Because of the Hep-C. I've been in many relationships and married once and never transmitted the virus to my knowledge. I am in a relationship now and am getting married again at 61. And we have a newborn baby perfectly healthy and my first. I'm not sure how I have been so fortunate, but upon doing some reading, I found out this, Hepatitis C that runs its course and responds to treatment in a relatively short period is called “acute” Hepatitis. Men and women with acute Hepatitis C usually fight off HCV within six months. Maybe this is why my Hep-C never really reared its ugly head to me.

Kenneth P Jun 18, 2016

In 1992, 24 years ago, when I was 32! I was diagnosed with Hep C! I think I got it through a tattoo I received from my uncle, who also has Hep. C! I was scared, didn't know what to do, there was no cure at the time, and really not too much information! My doctor at the time, said that eventually I would die, and that it wouldn't be pleasant! I lived with it for all these years, seeking no help, whenever I got a physical, they would inform me, once again, that I had Hep. C! Well about 5 months ago, I was sitting on the couch and I saw a commercial from Gilead pharm. about Harvoni, a cure for Hep. C, with a high success rate! I called the support path for Hep. C, they talked to me for 20 minutes, and guided me through the steps I needed to take to start taking Harvoni! I went to an infectious disease doctor, got diagnosed with stage 3 Hep. C, the doctor mailed my paperwork to Gilead pharm. for me to try and get financial aid for the 12 weeks I needed to take Harvoni at a cost of $94,000.00, 84 pills, 1 per day for 12 weeks! I was approved for full financial aid! Wahoooooo! I received 3 bottles at different times, all FedEXed to me! I am done taking Harvoni! I had my first blood work done, and I am virus free! In 2 months and a week, I have my final blood work to test for the Hep. C virus! I am confident that I am cured! The side effects were minimal, slight headaches, stomach aches! if it wasn't for that commercial, and the great people that helped me along the way, my doctor, the support path people on the phone, my nurse at the health dept., the wonderful lady at the lab, the pharmacy, fed ex, and Gilead pharm., and most of all myself, for not being afraid to make the phone call after seeing the commercial! Have a nice day!

Daniel T. Jun 15, 2016

I finished treatment with Harvoni by the middle of last December. Since then my blood test for the past 6 month showed that Hep C virus copies are negative and cannot be detected. I will have another blood test by the end of June 2016! And then another one in November. I am happy to get rid of Hep C after 40+ years of infection.

Karkour K Jun 14, 2016

I have lived with the Hepatitis C Virus (genotype 1b) for more than 63 years. I had cirrhosis, liver transplant, and cirrhosis again, but before terminal decomposition the sofosbuvir-simeprevir medication became available and instantaneously killed the virus in me. Now I have a scarred liver with normal liver functions.

My story is detailed in my book “Physician’s Journey with the Hepatitis C Virus - Historical Medical and Ethical Reflections.” It is available on Amazon in paperback and in e-book formats.

Antal Solyom Jun 14, 2016

I had hepatitis in grade ten. I am now 58 years old. The teacher sent me home from school as my eyes were yellow. I was misdiagnosed with Lupus in my forties, had a stroke at 48 years old.

For many years I wondered about what kind of hepatitis I had but was told there is no test to determine this. We farmed and dealt in a small town.

My daughter works in a good medical clinic and was told I have Hep c in 2015 and waited months to see a specialist till I asked if there was another doctor who would perhaps see me sooner. Dr. Stewart saw me after his nurse who was amazing and actually cared.

I now have info, support and meds to kill the virus that has been in my body over thirty years.

Louise K Jun 14, 2016

Seven weeks ago I began treatment for Hep C Genotype 2. I was prescribed Ribavirin and Sovaldi - to be taken daily. So far the side effects have been: an itchy type rash on different parts of the body, very dry skin, extremely tired and at times very restless. By that I mean moody and at times a little angry.

The first side effects I noticed though were Nightmares. Three nights of a replay of my life.... Details I had been mulling over for some years came to life in a distorted yet accurate picture of the more unpleasant experiences I had during my childhood right up to “now”. At 62 I am still having issues with an abusive Father. After 2013 and an apology from the Australian Government “Forced Adoption”. I discovered my whole life was a lie. This brought everything to the surface, including the chronic verbal abuse from both my adoptive parents. Of course, I had many many questions and my anger and anxiety went over the top.

Regardless of any questions, they have never been answered. In other words, all the truth and experiences I had had, were denied or I “was making it up and mentally ill”. My conclusion was: “If they don't remember or deny the reality then I wasn't there at all. So.... I disconnected. I am not going to be answered. Which of course is exactly the type of behavior I have come to know “Narcissism”.

Regardless, I am sticking to the regime and have had my first blood test since beginning taking the medication. My results so far have come back Normal. I am waiting for my Viral Load results which I'll receive in two days. Considering all other results: Liver Function etc being normal, I'm more than hopeful the Virus is gone.

I have one month to go which concludes the 12 weeks and despite side effects I feel blessed regarding the new treatment without Interferon.

I encourage all who have the virus not to wait any longer and get the treatment. It's important to try and manage any negative outside influences the best you can. Better still, right them off! All that's important is “The Now” and your health. If necessary you can deal with the negatives after a full recovery. When the fog clears, depression lifts when your mental and physical energy is restored.

As Tom Petty has written: “Into The Great Wide Open we go......”

I wish you and yours the best as a new beginning or chapter of Life unfolds for all. Cheers xo

Iain Mcl Jun 12, 2016

I am 59 never used a needle but in 1998 suffered a failed neck surgery at UC Davis Sacramento besides paralyzing me, my vertebral artery was severed. Blood transfusions. Also the same operating team and doctors on the same day paralyzed 12 yr old boy never to walk again. I was diagnosed with Hep C 1a level 4 Abbvie has come to my rescue in this hopeless place of Arkansas that would rather see me dead than help.I am sick and in severe headaches going into my fourth month of my 24 weeks. Good luck to all.

Tina B Jun 12, 2016

Hi, I have had Hep c for approx forty years, geno 3A and have recently undergone daclatasvir and sofradir treatment from last Nov 2015. I instantaneously felt clearer headed three days after commencing treatment, felt my eyesight improve, and energy levels improve nearly right away. My side effects were little bit of insomnia some euphoria, irritated nose like I was getting a head cold, my heart felt like it was racing a little. Because I suffer bradycardia, (slow heartbeat). Profuse sweating attacks and flatulence. But was able to carry on daily life, which was great, not like the previous treatment of interferon ribavirin which made me gravely ill, and bedridden. I have completed the treatment and cleared the virus last blood test, still waiting on the 6 month test. Still feeling a bit rundown after treatment, as I feel my immune system hasn't properly regulated yet. I am trying to build my strength up slowly, threw exercise, good food and rest. It has felt like a marathon of Olympic proportions to get where I am now. I recommend support of any kind throughout this process, doctors, friends, or counselors. Any one that you would find helpful in your journey to being Hep C free. Good luck, best wishes.

Darincka D C Jun 12, 2016

I was diagnosed with non-A/non-B hepatitis in 1984. I had classic hepatitis symptoms, jaundice, chalky stools, etc. Thus began the journey. Ups and downs over the years. One year my liver enzymes were in the 3000+ range and I was basically disabled. I got on an interferon double blind study. Didn’t cure me but I felt better and it knocked my numbers down. I also did acupuncture and all kinds of herbs etc. Went back to work, back to school, got a couple degrees, and started a career. I did another round of interferon, this time with ribaviron while finishing grad school. That was a memorable year. Kept pushing through, because I wanted to live large while I could, and my docs had told me I had 2-15 years to live. Second round treatment made me feel better. By now it’s 1999. Went off and had a career I enjoyed. During those years I had off and on rounds of fatigue, joint aches, depression, etc. Often fairly mild, like “is this a flu” “why can't I get going” etc. I've followed treatment developments through a Google alert on Hep C for years, watching things get better and better, till we arrived at Harvoni. I worked with my gastroenterologist to get a prescription. But it was denied by my insurance co. Appealed twice, and worked with Gilead. Then (HA!) diagnosed with cancer this spring and two days before that surgery, got a letter that the insurance company changed the criteria for Harvoni and I was now approved. (I was an f1-2, and they were only treating f3-4, but they lowered the requirement.) Two months later, cancer is cleared, and my doc and insurance co are on board for me starting Harvoni July 1. I am very much looking forward to it. My cousin did this treatment, was cleared and says he feels better than he has in 20 years. Well, I turn 60 this summer, and I am dreaming of a great decade, free from Hep C, and HOPEFULLY, feeling better than I have in 20 years. Given that Hep C has been a limiting factor on how I pigeon holed my energy, how people reacted to me socially (it did scare some people - but then I was always honest and careful - especially back when we didn't know much about the transmission). Anyhow, while I am very hopeful I will be cured, I am wondering what that will mean in terms of how I feel physically. I really hope some of the joint aches and the fatigue will go away. I have lots of dear friends, family, and strangers praying for me. With the grace of God and the scientists and Hep C soldiers who have taken this journey through treatment development with me, I am confident all will be well. It's just a matter of where on the scale of better life will land me. Bless you all. Soldier on!

Pat I. Jun 11, 2016

I was an iv user, found out I had hep c in 2012. Early 2015 I found out unc hospital were doing a study for her c patients, so I called for me and my boyfriend which has her c too. We were given an appointment. When we arrived we met Dr. David a wohl from the infectious disease clinic known as the I'd clinic. He asked us a few questions and has us feel out paper work from Gilead which is the company that makes the medicine.he explained to us that the study requires us to take the medication for 12 weeks everyday at the same time for high chance to work. The study actually paid us to take the medication. I am not gonna tell you how much we were paid because that is not what's important, what is important at the time was if I was gonna get cured!! So he did a biopsy of our livers and found out we both were level 1 which means we were "baby boomers" as he called it. Level 4 is the worst. So when we received the medication he explained to us that it has a bottle cap which will record when we open the bottle of medicine and at what time we opened. All of that is recorded in the study to mellow sure you are taking the meds as you are supposed to. Every 4 weeks we would go back to unc and he would do the biopsy and at the 8th week he explained to us that there were NO SIGNS OF HEP C IN NEITHER ONE OF OUR BLOOD TESTS!!!! We were so happy!! So he said to make sure it stays away we need to take the meds for the whole 12 weeks. At the end of the 12 weeks we were cured!!! He gave us an appointment for 6 months later to make sure the hep c was still gone and it was!!! Wow!!! And actually he informed us that it's good that we got in when we did because now the company manufactures are wanting to wait till people get to level 3 or 4 before they give them the medicine. I advise all to contact Dr wohl at unc I'd clinic and talk with him and he will definitely make sure you get your treatment. He is a good Dr that cares about his patients and will answer any questions you may have!!! I am cured!!!! I still can't believe it!!!

Kelly W Jun 10, 2016

I was diagnosed with Hep C at age 38 and I'm age 57 now. I had Genotype 1 which is the most difficult to treat. I asked for the test because I had dabbled with Heroin at age 18, many of my friends and a sibling were using it, and in my thirties I began to hear about Hep C and decided I should be tested. I was married with two sons when I asked for the test and I had no symptoms. In my twenties, I drank lightly because I didn't like the taste of alcohol, but I did really enjoy smoking Pot in my twenties and thirties. So I got the diagnosis at age 38 and I was terrified. I read everything about Hep C. My doctor gave me the impression that it would be fatal at some point. I had my sons tested and they were negative. My husband refused to test but I was sure he was probably positive as he had also experimented with Heroin in the distant past. I did the first of three treatments. The first was Interferon and Ribavarin and I detested the injections, the fatigue, the shortness of breath, and the scary labs that showed my red and white blood cell counts doing crazy things. I completed 48 weeks and was undetectable but three months later the virus was back. The second treatment was also Interferon and Ribavarin and once again I cleared it only to relapse within three months. The only positive thing during these two treatments was my liver biopsy showed no damage to my liver even though I was certain the virus had been in my body for approx. 25 years at the time of the second treatment in my late forties. In 2015, my doc told me about the new treatment option with Harvoni. I refused a third treatment in 2015 because I couldn't bear the thought of another failed treatment and possibly terrible side effects, and I wanted to research the relapse rates on the new drug first. In early 2016, I asked for the Harvoni treatment. It sounded too good to be true and I knew my genotype was hard to treat. My insurance co said no because I had no liver damage and apparently that meant I shouldn't get the expensive Harvoni medication. I wasn't sick enough with Hep C to be approved. But my doc and specialty pharmacy appealed and the ins co said no again, but a second appeal was successful. I couldn't believe it. I started the Harvoni, one pill per day for 12 weeks, in March 2016. The first four weeks, I had my usual energy and felt great except for some headaches, sometimes mild and a few times more throbbing and painful. One issue early one discussed with the specialty pharmacist was I had GERD, reflux disease involving stomach acid, and had been taking 40 mgs of a Nexium type medication for 20 years, and the pharmacist told me acid medication would mess up the Harvoni doing its job effectively. So I had to make a decision about using the acid reducer while on treatment. I decided to stop that cold turkey and not use Tums or anything, because I really wanted this third treatment to work long term without a relapse. I had some problems with the acid, heartburn and even chest pain from the heartburn in the first few weeks but I ate small meals to help with acid issues and after the first four weeks on Harvoni, that seemed to work ok and I did not take an acid med during the 12 week treatment. Even things like calcium supplements have to be used carefully while on Harvoni, with five hours between calcium and a Harvoni dose. I was tested after four weeks on Harvoni and my viral load was undetectable. It has been just around one million copies before I started on Harvoni. I was amazed that it cleared my virus in four weeks. I was also amazed when my doctor said that unlike the first two treatments where I had constant labs, with Harvoni, after the lab at four weeks, if undetectable then, no other labs would be done, not at 8 weeks or 12 weeks. My next lab will take place in October 2016, four months AFTER the end of my 12 week treatment which ends this month in June 2016. I have four more days and four pills to end my 12 week treatment. Yay!!!! I'm thankful that it's over, the headaches have been minimal because drinking a lot of water reduces the headaches, my energy level has remained decent during the treatment, the VIRUS IS GONE, the chance of a relapse in October when I have the next lab is minimal, even with my Genotype 1, and my liver was not damaged over the past 39 years while I have lived with this virus and tried to fight it with failed treatments. I'm thankful to my doctor and the specialty pharmacy for persisting with a second appeal to the insurance co, they fought for me to have this third treatment on Harvoni, and the specialty pharmacy staff have been so kind and helpful. I feel so blessed!!! I wanted to share this so people can have hope. And even more treatments will be developed in the future. Harvoni costs approx. $1,000 per pill so 12 weeks or 84 days and pills equals about $84,000 for the treatment, therefore it's so important to take every one of the 84 pills and not miss a dose, and be careful about taking other meds or vitamins while on Harvoni. Follow all of the instructions and your treatment can also be a success. I made some stupid choices at age 18, experimenting with Heroin, because I was young, dumb, didn't have a clue what Hepatitis was, didn't know about the dangers of using needles, and I spent decades being terrified about the virus after my diagnosis at age 38, felt the shame from the stigma around having Hep C, saw how some doctors treated patients like they were dirty drug addicts that deserved what they got, worried about sharing things with my family like eating utensils, went through tense times with my husband who refused to be tested (why treat myself if he would remain infected), and basically suffered through two horrible Interferon treatments that failed, so I have been through a lot over this virus. My husband died in 2013 from a heart attack, my children are now grown, and I have remarried a wonderful man who is not infected and now I can stop worrying about infecting him because of the Harvoni treatment. We were told that with a monogamous relationship the chances of him being infected were slim to none, but I have worried about it daily since we married one year ago. I feel so good and I ca pin hardly believe that after 39 years of having this virus, I can now live the rest of my life virus free. Love, peace and good health to everyone out there living with Hep C. There is hope!!!!

Jun 10, 2016

I contracted Hep C in the 1970's after surgery I was given plasma and it wasn't until the 90's where I found out I was infected. I was given alfa ineterferon for six months in the early 90's. Man did I get sick. My thyroid was affected. Because of the horrible side effects, I refused further treatments. I completed six months and said no more. My treatment helped, because I didn't get worse. Even though they wanted me to take alfa with ribarivan..I refused treatment until now. I lost hair, had flu -like symptoms, and joint aches, irritability and weight loss. So, I will begin treatment in a couple of months prob. with Sovaldi and Ribarivan. You need to stay positive and follow a regimen set forth by your medical provider. I have been married for over 30 years and with great care, have made sure not to infect anyone at all.

Jun 9, 2016

My name is Ann-Ive had Hep C since 1998. I was tested again in April 2016-this test too was positive. My doctor set my appointment up for April 26, 2016 for my liver resection, I'm genotype 2 and at a stage 3 with a low viral count. On May 5, 2016-Harvoni was delivered at my door, I immediately took my first dose. I intentionally didn't read the side effects as I would of had everyone of them if I read them. Taking the Harvoni has went very smooth for me-slight headaches but was able to tolerate the Harvoni great. I went back for my 4 week check up today-The Virus Was Undetectable-I'm so very Thankful. My real test will come in 3 months-I'm praying that it will show me still free of Hep C. I wanted to write and tell those that are testing positive for Hep C today- it's Not the end of the world. I was so worried as to how I would afford the Harvoni. I do have insurance but it still left me with a hefty price tag on this medication. I went to the Harvoni website and submitted the form for assistance on this medication from the manufacturer. I was approved in one week. The manufacturer paid all but $5.00-This was a Blessing and Miracle for me. I've read so many stories here that truly scared the hell out of me-this is another reason I'm writing in, I hope my story brings much comfort and relief. I took the Harvoni for 4 weeks as of today and I'm cured!!! As I said above, I hope in 3 months I get the same report from my doctor-my doctor is very happy and reassured me today that she had no reason to think that the 3 month test from today would show me Cured also. I'm so thankful to The Lord above for hearing my prayers-I will continue to pray for All Hep C sufferer's. I pray you all rid this decease as quickly and smooth as I did!!! Love from Florida!!! Ann :)

Jun 6, 2016

Hi guys

I'm 58 female and have been living with Hep 3 since I was 19, wow that's nearly 40 years now.

Of course it was non AB then and I only discovered it was Hep C when I was 36.

I've taken high doses of milk thistle and eaten well but always TIRED. I would not try the previous meds because of the side affects and less than successful outcomes.

Thanks to the Australian government I have just started treatment with Solvadi and Daclatasvir 2 weeks ago. I have genotype 3a and will taking 1 of each for 12 weeks. I also have chronic pain and arthritis but to date the side affects have been unnoticeable, maybe a bit of insomnia. In fact I think I can feel the fog lifting and a little energy returning already???. It's costing me $14 for a months supply!

My fibroscan showed minimal liver damage or scarring and all other tests for quite low so I'm am really confident that I will be Hep C NEGATIVE in 12 weeks.

I had a period of heavy drinking for about 10 years but always ate healthy and took massive doses of milk thistle.

Just thought I'd let you know that you need a referral from a GP for LFT, Genetype and viral load plus a fibroscan organised by the clinic. I was prescribed my medication through a regional clinic who is attached to John Hunter hospital at Newcastle. They have been fantastic.

This medication is available to all Australians so get yourself treated now before it gets taken off the PBS.

Looking forward to clearing this horrid disease forever.

Hope this helps someone get active treatment.

I will post my progress...blood test at week 4 will reveal if the meds are working.

Genelle Hogan Jun 6, 2016

After six failed back fusions, 100's of injections, epidurals, acupuncture, acupressure, chiropractors, physical therapy, two spinal cord stimulators, and every silly new machine that did nothing.

I was given a blood transfusion during a back surgery when they refused to check the blood supply for Hep C. (1991) The gentleman that was taking blood the next year when they told me I was in need of another surgery. Also told me about hepatitis C and that I received it during my surgeries the year before. And how it wasn't a big thing. He was Asian, and told me that 1/2 of Asia has it. I was shocked and pissed off! But him telling me it wasn't a big thing make me think. OK, I'll be OK. I will just see a doctor that knows about it. That's when I went to University Hospital in Newark New Jersey. That's where I was a guinea pig for the "Almost Doctors Club"! The Green Test? Which sent me out of my mind for 30 seconds. And gave me green bathroom breaks! I remember one of the young guys telling me why he was becoming that kind of doctor. They had a lot of procedures. I wasn't gonna stay around for all their procedures. That green test was enough. I might had done another before the next doctor put me on INTERFERON! Not sure. But the hell 3 days a week. Throwing up. Ice packs on my head. ^ months of hell TWICE. 1993-4 and 1995. It helped a bit. But no drinking. 25 years later and constant blood tests. Constant doctor. I have been seeing one guy now 16 years. Received SAVALDI last year with olysio. My viral load is 0.0 however..I now have cirrhosis! I take Xifaxan and the other garbage for Diabetes.

And lyrica for my new diabetes neuropathy was pushing me to "do it" every day. That's why I went back to neurontin!

I am in pain constantly. And I am 58 going on 90!

The doctor told me on a scale 1 to 12 my liver disease was a 16. So I don't know what's next.

Jun 4, 2016

I was diagnosed with diabetes last July, which doesn't run in my family and 6 months later I was diagnosed with hepC genotype one. I realized I got it from use of an unclean needle when I got a tattoo. Since then I have been fighting to get approved for this medication. The state mandate three weeks ago that insurance must cover, I was approved right after that and have been taking the med for two weeks now. I have had extreme fatigue and it took just a little too long for the approval process as I will be losing my big toe over this issue. I am worried for my children as I contracted this disease before having them. Now I read about another case where a mans child was born with the disease. Passed on through the DNA. I have called my son and told him to get tested I hope my kids are ok. What a sneaky devastating disease with no signs or symptoms until it is too late, horrible. I am in the hospital for the toe surgery now. But I don't yet know if there are any underlying problems left over from this disease and I am hoping I no longer have diabetes when this is over.

Mary D Jun 2, 2016

I'm 64. Next week I start Harvoni treatment. I was DX with Hep C in 1991, but was infected in 1978 by sharing a needle, one once in my life and ended up with Hep C. I have had several biopsy's, and am at about stage 1 1/2, so very lucky to not have the damage some have. I have had lots of side effects from the disease, depression, fatigue is the big one for me. What I am hoping for is to feel better and to stop the damage to my liver.

tim harmon May 31, 2016

I found out I had Hep C in 1997 and was treated with interferon only for about 7 months until I had to stop because I was so deathly ill. At that time, my liver had little to no damage and my enzymes were only slightly elevated.

Fast forward to 2016 and 42 years of Hep C, with viral load over 6 million, extensive fibrosis, gallbladder polyp, enlarged spleen, enlarged common duct, all from hep c. After being denied the first round in March, insurance approved treatment with Viekira Pak, but rejected ribavarin. I'm just finishing 5 weeks of treatment, and at 4 weeks viral load was 47 and liver enzymes are normal. Great news!

Next day, I started a killer headache, not sure if it was the treatment, so I took some ibuprofen as my doctor recommended, which brought on an extreme 7-hour episode of SVT. So I guess I'm going to have to suffer through headaches without taking anything.

I'm staying positive and have 7 more weeks to go of treatment!

Jackie F May 29, 2016

My body cleared itself of the virus. Every time the doctors test my liver enzymes they are normal. Also there is no detectable virus! Praise God!! He can do anything!!!

jonathan t May 26, 2016

in May of 2015 I got a tattoo on my back from a friend of mine. I have several tattoos but all of them were done in shops. every time there's a blood drive anywhere and I'm around i go donate whole blood because it saves lives. On July 7th 2015 I went into the American Red Cross to donate blood to win tickets to a concert that was on July 11th which happens to be my birthday. On July 14th I got a huge package in the mail from the American Red Cross that said thank you for your donation but unfortunately after extensive testing you have hepatitis C. I could not believe my eyes. I walked out of my job in tears and went to the Central District Health department and they referred me to a family medicine clinic that had a hepatitis C Clinic as well. when I walked in the people were very warm and welcoming but I was sure that I was going to die. I did not know much about the virus other than the people with hepatitis die. they hugged me told me about it and I was blown away I had no idea that there was a cure for Hepatitis C. After some blood tests I found that I only had less than 41000 copies of the virus in my system. i found out that i was genotype 1a. i took HARVONI.. Harvoni is a 3 month treatment, 1 PILL A DAY. I only had to take it for 2 months. I had no side effects from yhe treatment and I had no side effects from the hepatitis C either. I am turning 39 years old in July this year 2016 and I was cleared from hepatitis C in January.so my story is that I got hepatitis C in May, found out in July, started treatment in November of 2015 and was cleared of hepatitis C in January 2016 and by the grace of God my treatment only cost me $20 thank you to Gideon Pharmaceuticals and the hepatitis C Clinic in my town, iI am hepatitis C free today.

May 26, 2016

I was diagnosed with Hep C in 2010 as part of my yearly check up. I am 45 yrs old. I'm glad that they caught it so early and I believe, but am unsure I got it from a tattoo. Because the year prior I didn't have it and I don't do drugs or share needles simply I don't do drugs so that is ruled out as a possibility. I heard about this new drug called harvoni a few years ago on a talk radio show I think back in 2013 or close I think. My docs were trying to put me on the injection treatments and I turned them down because the success rate was so low and how harsh it was. Moving forward to now. I finally got the chance to take Harvoni in April of 2016 and a month later I was 100 percent cured of Hep C. I'm about to take my last course of the 3 month treatment and so far everything looks good. Within the first month I felt totally different as if a weight had been lifted of my shoulders. Its truly had to describe how I felt. More or less I felt like I had more energy and wasn't tired anymore. I didn't notice any side effects of the medication and still don't. Now, here's the kicker people. I'm pretty much gonna say yes I drink alcohol, but for 3 weeks, while I was on my first month course I had none at all. And, yes that was one of the hardest things I might have ever done. But, it was worth it. Now, I drink some on the weekends, but none none of Sunday just Friday and Saturday. Should I be drinking alcohol at all no I shouldn't, but its so hard to stop completely, when you've been doing it for so many years. I'm trying hard to cut back even more. Its a process and unless you've been in this situation you won't understand. Just know you can do it as I can too. Do I notice a difference after drinking the next day, yes I do. I feel like crap. And, it takes a few days before I feel good again. So, this is just info for you people out there what I've gone through and am going through currently. Also, coffee and whey protein are very good for your liver. I take a daily vitamin also. In conclusion, I hope my info helps everyone else.

Rich S May 22, 2016

Hello I start my story here by saying that I cannot believe how many of us are out there from your teenage years. I'm so depressed right now to hear some of the stories of leaving this earth because you can't take it anymore? I feel your pain every minute every day and your my age Light V your story is close to mine but there is hope my son was born with jaundice. He had issues. I'm 54 I'll be 55 this year if I make it my viral Load is off the chart 6 million an climbing, and I was on the docket for approval of the Harvoni so close and yet so far, I have fought for 35yrs as alot of you have and still fighting but its getting harder: ( I really dislike how that alot of the info that was out there back then was zilch, zero,Nada, and what teenager is ready to die? I was 19yrs as well born 1961 and I do not believe this baby boomer crap because my father got Hep A at the age of 7 and he's 79 so it shames me to think that census has classified and labled certain age that targets and how contracted? I contracted Hep A from working in unsanitary conditions in a Ho Jo In Scarsdale Ny as 8 others did as well as myself dirty water, shellfish, No hot water to wash dishes. I felt like I had mono. I went to the Dr Got a call 2 days later told to go home right away I have Hep A and B ? I was married to a heroin addict who was a hep B carrier that he had no symptoms from the Heroin. Next thing I knew I was on the couch and remember nothing for 51dys I was In a coma! Blackness is what I was In and woke up in a hospital in elmsford Ny, total body yellow jaundice from head to toe, eyes beaming yellow had no whites, tubes up my nose, Iv in my arms and 45lbs skinnier than I already was!! I fought the B off as that was the killer and on top of A ! It was a miracle my mother tells me she found me in this condition ,ex could of cared less, I had a terrible rash called pitirisous Rosie, covered me from my neck down worse than shingles, layed in a tub everyday for 3weeks and had Juvenile RA, I wanted to live. I had two kids a great 3 decades working my ass off an over working out taking care of myself. Now I need to get the cure or I'm gonna go nuts. I'm in so much pain, No insurance and the state was willing to pay for this treatment but some insurance scam saying I have insurance long story short I can't get pain meds from any Dr in my state and I can't stand that I get told I never was in a coma so I always get tested without hepatic coma jesus christ don't you think I know what happened to me and that each person is different and that is my story and I'm sticking to it, but I'm miserable and have so many conditions and diseases that this should be enjoying my golden years! I have Necrosis an bladder and kidney problems, my liver is getting larger and harder constantly so all I an do now is hurry up and wait, I cry thinking they are waitng for me to hurry up and Die as Social Security feels this isn't life threating. Sad to say it is and I hope I get approved: (I have tried everything, my immune system is shot and duedonitus, digestion and gastro too. I have a new place to come too I hope, I have faith I will be Hep C free soon .

Cecilia M May 21, 2016

If anyone thinks the pharmaceutical industry is out to save your life, forget it. There are so many reports of side effects emerging years later as a result of taking the commonly-prescribed Hepatitis C medications.

I am 33 years old, a runner, 6'1", 180ish pounds and overall good CBC numbers except for slightly elevated AST/ALT levels. I'm not scared though. I know what natural substances to take for survival.

Honestly, why do you think a number of older (and younger) people must rely on Big Pharma? It's in part because their MDs encouraged/scared them into taking prescriptions for various conditions. Why is it most drugs cause other side effects? It's to increase profits by prescribing more false hope aka drugs.

It's one big conspiracy. And don't believe the current drugs will save your life.

Harvoni and Sovaldi have caused a lot of problems for people. www.gilead.ca for more info.

And Bristol-Myers Squibb, a company which manufactures Daklinza and Sovaldi lost $1.8 billion in 2012 for a failed HCV drug it created which killed a patient and caused heart and kidney failure in others.

Finally, remember that some of your presidential candidates took campaign contributions from drug companies like BMS. Except Bernie Sanders.

#feelthebern

Greg L. May 20, 2016

If anyone is still interested, I was diagnosed in 2001 with Hepatitis C Genotype 1. (Step 1) I was treated with the old treatment of Interferon and Ribavirin in 2001 which failed to cure. (Step 2) I was treated with 400 mg Sofosbuvir (Solvaldi) Ribavirin 600 mg. morning and 600 mg. evening each day and 1 shot of Interferon weekly for 12 weeks in 2014. This treatment also failed to cure. So then (Step3). I was treated in 2015 with ledipasvir 90 mg and Sofosbuvir 400 mg (Harvoni) daily, and Ribavirin 600 mg morning and 600 mg evening each day for 12 weeks (No interferon this time I thank my Lord for that) I am now able to say that after a 3 month and 6 month blood test I am finally undetectabie. CURED! My V. A. Dr. Ireneo Diaz is the greatest Dr. In the world to me. He was very smart and he did homework, he consulted with other V.A. Drs. and took time with me and explained things in detail. I am eternally great full to him and My Lord and Savior for helping me. So to everyone battling this disease I wish you all well. Don't give up and lose faith. This Harvoni works.

Love to all Roland G.

Roland G May 19, 2016

There are two points I would like to share.

1- I was directed to have blood tests for 15yrs. post testing pos. for Hep C. My liver was in 4th. stage cirrhosis before these tests revealed unusually high enzymes.

2-Once this was revealed I did the interferon treatment successfully BUT the drug permanently damage my optical nerve and vision.

David B May 17, 2016

Today I was informed that my Gastroenterologist's appeal for AbbVie's Viekira Pak was again denied (or it was never received), by Express Scripts. I have been given the run around in regards to which HCV medication my insurance would approve since January 2016. I've come to the conclusion that the person submitting the documentation for pre authorization is inadequate at her job. I have genotype 1a, a fibro scan showing fibrosis at stage 1.5, viral count over 7M, non-responder to interferon/Ribavirin after 6 months of treatment in 2003.

Evidently"Express Scripts" denies anyone wh''s fibrosis is less than stage 3!

Has anyone else found this to be true?

Thanks for any feedback or suggestions.

Robin T May 17, 2016

I am an AB- so my blood was always in demand. In 1992 I was called by Kaiser as they needed some AB- blood.

When they screened the blood they found that I was Hep C positive. It took about 3 months for Kaiser to find a reason to drop me after being my insurer most of my adult life. I was 51 at the time.

I have never used drugs, needles or any other dangerous activities and never received a blood transfusion so the source of my Hep C is undetermined.

As I was a Vietnam Vet I turned to the VA and was accepted for medical care which was the best thing that ever happened to me. With all of the grousing about the VA, I can honestly say that it is the best care I ever received in my life. Upon turning 65 I refused Medi-Care and elected to continue with the VA.

The VA offered me treatment for Hep C with Interferon which I refused. They then set me on a schedule for an ultrasound of the liver every three months. After about two years finding no change in the liver the ultrasound was cut back to twice a year and then to yearly.

There was very little liver damage and it became obvious that I was going to die from something other than liver disease.

In 2014 I had a triple bypass. Although I did not have any symptons of coronary problems, because of my age and family history the VA insisted that I have an angiogram where they found a 90% blockage of my main downward artery and four other blockages.

After recovery from the bypass the VA wanted me to start treatment for the Hep C. As Harvoni was now being made available I was scheduled for the 12 week treatment.

At the start of treatment I had a viral load I believe of 4 million. After six weeks my blood showed negative HCV load.

At end of treatment at 12 weeks the viral load was negative and the three month check was the same. At that point in time I was certified as cured.

During the 12 week treatment I did not experience any side affects from the Harvoni and continued working my normal 12 hour day at my factory with no problems.

Bill M May 15, 2016

Good news! I was diagnosed with Hep C by a gerontologist doing routine blood work in the 1990s . I'm not sure where or when I contracted Hep C. I knew I didn't feel well, but thought it was depression. I was referred to a gastroenterologist who determined through ultrasound that I had slight scarring of the liver and an inflated viral load for Hep C. He recommended a course of Interferon and Ribaviron which was the treatment at that time. It worked, but after 6 months, the virus came back...so I was diagnosed as having CHRONIC Hep C I simply could not go through the flu-like side effects anymore. As I am not a drinker, I decided to work on my nutrition and leave it at that. Over a ten-year period, I felt fatigued and somewhat depressed, but it was not until I started losing almost a lb. of weight a day that I knew I had to go back to a gastroenterologist to discuss treatment. Simultaneously, along came the wonder drug HARVONI. The doctor went to bat for me (with appeals to the insurance co.) and they agreed to bear most of the expense of the Harvoni.

I took it for 6 months last year, with success, and have had another 6 months follow-up test showing no signs of the Hep C. By the way, there are programs out there that help with the expense of this drug if you are financially eligible. I encourage anyone who has Hep C to go NOW to your doctor (preferably a gastroenterologist) to get help. I am 78 years old and have a lot more living to do. Help...is...there!...HARVONI

May 15, 2016

After several years of being non-detectable, I have been told my Hep C is detectable. I will be proactive with my treatment. I am upset, but I know there is a reason for everything. I have several appointments pending and I will attend in the hopes that I can battle this disease one more time. I tried the interferon/ribavarin the first time and then something else the next. The treatment was 48 weeks long and is very grueling. I have heard that a new drug is available with little to no side effects. I will keep you posted.

Rhonda B. May 12, 2016

I was diagnosed as hep c positive when my baby was 2 days old.

They decided to test me because the nurse who stiched me up after giving birth got a needle stick injury and I have past drug experience.

Obviously I was totally devastated and worried about my daughter as she got jaundice at 6 days old and I immediately thought that she may have it too. She recovered well and eventually we both returned home and I was given no information or advice about how to live and cope being hep c positive.

Years passed and my daughter fell Ill and was admitted to hospital and I decided to have her blood checked for the virus whilst it was being screaned for other bacterial issues. Thank fully she is negative. I wasn't sure she would be as during birth clips were attached to the scalp to monitor her vitals more accurately and I was worried that my blood may have infected her at that point.

Anyway that was 10 years ago now and I am still fighting for treatment for myself.

During the past 16 years I have been trying to keep my liver healthy and so far so good. I have regular yearly check ups and blood tests and the results have varied over the years but my liver remains cirrhosis free.

I do suffer with IBS, bad fatigue, fibromyalgia, poor lymph gland drainage, horrific sweating for no reason, uncontrollable itching on my back mainly, no sex drive at all for at least 10 years and awful pains in both sides just below my ribs. Just touching my skin at all is very painful and most of the time I prefer not to be touched.

I have been actively seeking treatment now for the past 6 years but I have never wanted to have interferon and ribovarin as I worried about not being able to cope with the pain and working full time and because my employers do not know my status how could they understand what I was trying to cope with at the same time keeping my difficult job as a property manager and having treatment. That all seemed impossible to do so last year when my heptology nurse said I would be on the list of patients receiving this new miracle cure, I was over joyed and all I could think of was being diagnosed negative and having a new lease of life.

I was promised time and time again that because I have almost no vinicular access ( except groin veins) that the treatment would be perfect for me as it's only 1 tablet a day for 8 weeks.

So it's now May 2016 & I was told in Feb that I would receive my treatment by September 2016 but then yesterday my phone rang and it's the hospital and they tell me that the government has announced that they are only going to treat 15 patients per month divided by 6 hospitals! !!!!!!

I burst into tears as at that rate it meant I would NOT receive any treatment for another 5 years. That will make it 21 years of waiting and hoping that I could beat this awful disease. All I want is a chance to be given my life back. What was the point of NICE licencing these new drugs if they are not going to let anyone have them????

It's ridiculous and all I can do is contact my local mp and hope that they care enough to raise the matter in parliament and then pray I don't get liver scarring whilst I'm waiting.

That's all I ever seem to be doing is waiting and it's so frustrating I just want my life back! !

May 11, 2016

Hi am very Happy and just wanted to say there is Hope for Winning against this Disease. I did Treatment year ago and I was a Non-Responder. So I moved to another State and they were right on it about Me being Treated again but with a New Medicine. It was Viekira and Ribavirin. I had the Type 1A and so I had to do a 6month Treatment. I even had to Adjust it a little during the Treatment but I Finished it. And then I had to wait for 6 Months to see what My Results were .I got a Message from My Doctor and I have kept the message and My Doctor to Me the Good News that I was Cured and al the Disease what gone...And I was so Lucky also that the whole Treatment was Paid for by My Insurance...The Feel so Blessed...I wanted to tell You all that read this that there is Hope. So make sure to get Treatment and all of the New Meds are having Great Results...Hope this gets You to do Treatment and Rid Yourself of this Disease....

Keith P May 10, 2016

i was diagnosed with hep-c about 3 years ago, well 5 yrs ago i was about to lose my 2nd wife due to chronic drug/alcohol use, mostly pain meds and alcohol when i couldnt find the meds. And i made the decision to stop it all and i would not have been able to without my wifes support and the wonder drug methadone, yes i know lots are against and say you trade one addiction for the other.but all the tylenol filled pain meds i was taking were damaging my liver as well as the alcohol...anyway i just happen to be clean for nearly 2 yrs when i was a stay at home dads and my wife worked full time, so by some miracle we qualified for free healthcare under obamas healthcare laws,so i started going to the docs/found out i had hep-c and my viral load was over 5 million. It seemed like the stars aligned for me, because without the free health insurance i wouldve never been able to afford treatment, and i was scared to death of all the treatments because of all the awful stories online about the interferon..any way my doc had me take the {new at that time} sovaldi with ribavirin for 6 months..the ribavirin has some scary treatment stories but dont believe everything you hear about it because i hardly noticed and i took 3 ribavirin and one sovaldi in the morn and 3 more ribavirin at night, a total of 1200 mg of ribavirin and not sure on the sovaldi...but its been 3 months since treatment ended and my hep-c has been undetectable since i finished month one of treatment, and to think i nearly talked myself out of it by reading all the bad side effects and horror stories online...and my doctor was no help, he basically said do you want it or not, he knew nothing about it he said since it was new medicine...buy everyone remember its you and your body in the long run, so do try treatments your doc recommends no matter how scary the side effects how...of course prayer helps too, i thank god everyday that i had the courage to go through with it.....so far 4 months later and its still undetectable...good luck to all.

Christopher S May 10, 2016

To all the Hep C suffer's. I pray my testimony will give you the strength to get tested, do the foot work with your Dr and be patient. I found out I had Hep C on April 12, 2016. It was dr's appointment after doctors appointment and on the third week I was given my paper work to be at a CT scan on my body and a liver biopsy. I do know when I contracted this deadly virus which was in 1998. I'm geno type 3 with very lil cirrhosis. That was close to 20 years ago but I have friends that have taken Harvoni in their 60's, very exciting to know that not only did Harvoni kill the virus, but set them totally cured from Hep C. My Harvoni was delivered to me last Thursday per Fed Ex and I've never felt better. Plz don't read the side effects, let's get thru this together!!! I'm not fatigue at all. As I said No side effects yet in my 6th day and I wish you All The Same!! Very grateful to have Harvoni, take action you good ppl and cure yourself from it! There is help from the pharmaceutical that will help you get this medicine. Plz don't give up! I felt as if my liver was gonna bust out of my body but soon as I started the Harvoni, ALL SYSTEMS ARE GONE AND I HAVE EXPERIENCED NO SIDE EFFECTS!!! Thank You to the makers of Harvoni, You Saved my LIFE

Alex C May 10, 2016

I use to workout at the gym everyday sometimes 4 to 6 hours a day. Then one day in 1986 I got really sick. I thought it was a bad flu so I rest. Then 2 months went by and I was still sick. So I went to the doctor and he said I had Mono nucleosis. Gave me some kind of steroid treatment and Sent Me On My Way. Six months after that Im still sick no better I go to a few doctors they don't know what's wrong with me. One doctor even told me I was crazy and it was all in my head. At that point I knew I had to take matters into my own hands. I was so sick that I could hardly get out of bed and for four years I struggled with this all the while reading about the immune system and how to build it up. I learned that the main thing I could do was the Raticate yeast from my body and not eat it anymore. I did this and at least I felt better and I could get out of bed now and I can function not normal but I would always feel tired and I would have to nap in the middle of the day but at least I can function. I decided that it was time for me to go back to school as the illness interrupted my school. That was in 1990. In 1992 while I was at school I dated a girl and she said that I need to be tested for a certain STD. While I was being tested for that the doctor told me there was a new test it came out but that I probably didn't have it and so she didn't want to give me the test. I told her please give it to me let's leave no stone unturned. It turns out it was hepatitis C. The side effects were harsh but afterward I did have more energy and could function better. Then later I went on interferon for one year. The effects again where harsh but it did help me have more energy after the fact. In about 2004 I went on interferon and ribavirin. The effects were more harsh it started to affect my sex drive as I was married at this time, and I lost much of my hair but I did feel better after the fact. None of this cured me it came back and I discovered that I had type 1. I also discovered the only possible way I am contracted this was when I was a teenager in the seventies I got a blood transfusion as I was in an accident and lost a lot of blood. I did not use needles so this is the only possible way I could have gotten it. For those of you who are worried about giving it to your family, just don't share your razor blades with him for your toothbrush and all should be well you can only transfer from blood to blood not through sex unless you're bleeding and they're bleeding. Here we are May 2016 and I'm about to get treatment with ribovirin and another I forgot the other name of the medication but it's a 12-week treatment. Compared to the interferon and ribavirin side effects this will be a breeze. I'm not even worried about it. I hope and pray that it will cure me that would be nice as all the others have failed. I'm a religious person so I pray and I encourage you to do the same if you are in the situation that I am in. I know that God has blessed me maybe I don't deserve it but he has. I will pray that He blesses you too. Mark

Mark C May 9, 2016

I had Hep C for 49 years with extremely high viral load and genotype 1.

I am clear and have been since week 4 :) No side effects no big deal 1 pill a day and it works :)

Find a good Dr who works with your insurance and foundations and if you qualify you may get it for free like I did.

Don't give up keep asking for the help you need.

sharon c May 9, 2016

I am a 58 year old African female, and I was diagnosed with the Hepatitis C virus 10 years ago in 2006. I eventually underwent the then 48 week treatment using Pegasys and Ribavirin combo from April 2007 till March 2008, but failed to eradicate the virus. Since then, I have been waiting for a new and improved treatment. When my doctor told me about this new treatment, I was more than elated. I started the treatment Thursday April 28, 2016 and this will be on it for 12 weeks till Wednesday, July 21 2016.

This Ledipasvir and Sofosbuvir + Ribavirin combo treatment I believe will eradicate the Hepatitis C virus by the time I celebrate my 58th birthday July 25, just 4 days after finishing the treatment. A great way to celebrate my birthday, I'd say...

Living with the virus has had its challenges, but one blessing I received in the last 10 years since I have known I carry the virus, has been the positive changes I have had to made in my life. Being aware has moved me into living a more health conscious life. The newsletters from Hepatitis Central have been extremely supportive, and daily Exercise, Yoga, Meditation, Eating Gluten Free, Liver Detoxing with Organic Green Coffee Enema, and a host of other Natural remedies have given me Wellbeing, Peace, Focus, and Discipline I probably wouldn't have developed had I not been diagnosed with this virus, and the knowledge that caused me to pay more attention to my Life-Choices and what was truly really important to me.

I will come back here and share my experience during the next 12-week CURE-Treatment, and my SUCCESS STORY.

To everyone out there going through this like I am, I want to say GOOD LUCK, and we can all see the light at the end of the tunnel. Stay always and forever blessed.

Mary L May 1, 2016

Diagnosed age 60. I'm now 70, liver and general health OK. Many of the prevailing symptoms mirror those found in POST POLIO SYNDROME which was diagnosed age 50.

Fatigue has been an anchor dragging me deeper each day. Maybe one day a week I will become elated upon waking to a clear mind. The norm is physical and emotional disconnection.

Starting Norvino. One pill per day. Absurd cost . $1,000 per pill. So lucky to have Insurance and Medicare. Support Obama Care...a better system if modeled like medicare.

So excited to see what the new , SELF will be like.

Apr 30, 2016

Please future writers and readers which ever treatment you're discussing please include which geno-type it specifically covers. That is a very crucial part of information. Thank you and I wish everyone the best. DP

Dee P Apr 30, 2016

I have had hep c for decades now . I am awfully lucky. I had a very good friend that just found out he had hep c. He died 2 weeks latter. That scared the hell out of me.

I also had an affirmative with an alcoholic....found out later she was drinking one gallon of cheap vodka a day.

She had it in her purse. Being a man that like to use women in sex I went with it.

Finally I kicked her put, she took a bus back to Apalacia and died on the bus broom lever disease.

Of course now I am freely really shameful and much more aware.

I saw a specialist that had a unique method for looking at my liver. Instead of a biopsy he inserted tube down my throat to liver with a small camera. Works well.

Anybody try this? Anyway I was told I had cirrhosis. I have been clean now for about 2 years and was amazed that my blood test showed me almost cured! I was also taking milk thistle. From all I read, I still think the test was wrong, because I don,t think the liver ever regains good cells to rid of scaring. Any body else have this experience with blood tests? I believe there was an error but my doctor won,t test me again.

Glenn H Apr 26, 2016

I am 51 years old and have recently been diagnosed with Hep C 1a and Auto immune Hep. I have to take drug tests for 3 months before the specialist will approve treatment. If I were to guess I have had it for more than 20 years, but it is possible that I picked it up along the way, doing first aid in processing plants, after people cut themselves on cutting machines. Either way there is no way to know exactly and it doesn''t really matter. I am glad I just recently have been diagnosed since there is such an improvement on treatment. Had I known a decade ago I may have put myself through heck with the old treatment types. They call this the silent killer for a reason. We as humans can deal with it for decades and not even know it. I feel like I have already survived it, and will most likely respond well to treatment if approved.

Apr 26, 2016

I was around 18 or so when i got hepc, im 46 now. Ive only been diagnosed of have it! I dont no wwhat type or how far along it has progressed! I take care of my father and can only work part time, so i cant afford insurance or the liver test to see What type it is!! $$50. Is a lot of money to me and i think just a liver test is more than that. It would be cool to just have someone gave you the pills for the cure like the one story i read, its nice to know that there are still kind people out there, and i pray that it helps that man! Living with this sure isnt comfortable. I eat as healthy as i can, cant really afford much of the herbal pills and teas, but i do the best i can with what i have! I love my grandkids and my dad, hopefully a miracle will come my way someday, if not im not going to give up keep on going, Gods got my back, he has this many years, it could be worst,

Good luck to every single person with hepc, and god bless the doctors for finding a cure for this yucky disease!!

Apr 25, 2016

Caught HepC thru IV use of street drugs. When Jesus saved he told me to had a Call on my life. For 14 1/2yrs. I travelled the Nations preaching n prophesying without one thought of concern for the HepC in my liver

Finally, in March of 2006 i wz informed that i needed a liver transplant cause i wz Stage4.

They decided to prepare me for the Interferon/Ribavarin Chemotherapy.After 12 months on Chemo, drinking over 20 meds per day n the ChemonCocktail ea. Week...i remained entombed in darkness; a foggy, blury zombied out Xsistence.

I began coming to n recognize what wz happening to me...I AM ON PURPOSE PROACTIVE TOWARDS MY TOTAL HEALING N WHOLENESS

DrSoki Meza Apr 25, 2016

The Hep C was cleared from my body by Harvoni. The side effects of the Harvoni were terrible for me, and I still have lingering peripheral neuropathy from the drug. I am elderly, and the exhaustion from the Hepatitis C and Harvoni persisted. I did a lot of research online, and found a reputable site that claims that Hepatitis C damages the mitochondria of the cells - - the energy producing portion of the cell. The mitochondria can be repaired with lipid replacement therapy. My doctor put me on 3 different phospholipids, and after about two months, I began to get my pre-Hep C energy level restored. If you experience continuing fatigue, do the research and/or bring it up with your doctor. This lipid replacement regimen will really help! Good luck to all of you in overcoming this debilitating disease.

Pamela E. Apr 25, 2016

I was diagnosed with Hepatitis in my 20's. Recently a fibroscan showed a score of 3-4 lots of damage. My insurance refused to allow Harvoni and the alternative was contraindicated with the other medical problems. So my doctor found a clinical trial for me of a new combo by Gilead. Eight weeks later and no virus detected!!! The chronic fatigue I suffered with is gone!! Never give up hope of a cure!

Sheryl Fisher Apr 25, 2016

After contracting hepC in 1968; after a serious injury and 23 blood transfusions..I am 100% cured since Jan 2016. I went from a viral count of approx 20million to 0 after 3 months of Harvoni treatment. I can now enjoy a longer life thanks to Harvoni treatment.I can do all the things I was restricted from for 48 years. This has been a prayer answered. I can't thank enough the research people and the doctors for such a miracle.

howard s Apr 21, 2016

Hello. I contracted Hep C over 20 years ago. Just finishing 12 week treatmnt in 20 days. Harvoni caused side effects? however mild. Insomnia, irritability, weight gain, mind fog..low energy. Now, in the last days of treatment, side effects more pronounced. How long till this annoyance disappears ?

Apr 18, 2016

I caught Hep back in the early 90's from IV meth use. I was a stupid kid in my twenties and made very dumb choices. I was diagnosed last fall with Hep C genotype 3a. I have now been on Sovaldi and Daklinza now for 5 weeks of a 12 week treatment.

So far I feel better than I ever have! I know this is scary when you find out everyone, but the new drugs are turning out to be a miracle. I go for my next viral load count again soon here in a few weeks. Wish me luck all!

Eric Bergkvist Apr 8, 2016

Hang in there and try to be patient--new medicines are coming along all the time.

Apr 8, 2016

Found out I had Hep C about 7 years ago. Went on the Interferon combo medication almost immediately. For 3 months I suffered terribly; nausea, vomiting, pain throughout the body, and exhausted all the time. Ended up in hospital-medication depleted my white blood cells and I got very sick. During my 5 day hospital stay, my liver Dr, and I decided I should stop the medication. I don't think I would have lasted the full 48 weeks.

Liver biopsies showed no liver damage over the next 5 years. I thought since I had Hep C for 35 plus years, I was one of the lucky ones; my liver would not be impacted by the Hep C virus.

We talked about new medication breakthroughs, but I was not willing to begin medication program since my liver was fine.

In January 2016, my biopsy and blood test showed a drastic increase in liver damage. I went to the Hodpital of the University of Pennsylvania for a review and treatment program. Their tests showed severe cirrhosis and further tests showed 6 cancerous liver tumors. What a shock; I went from being fine to cirrhosis and liver cancer in 4 weeks.

I am on Harvoni for the Hep C, and I am scheduled for a liver chemoembolization treatment next week.

We will see how things go!

Moral of the story; don't play around with Hep C. Even if you "feel fine", get on the medication, Don't wait for a downturn in the health of your liver: it can go from 0 to 60 quicker than you can bat an eye. Get on the Med's!

Apr 6, 2016

I was diagnosed in 1997 when I became a bone marrow donor. I waited until this past summer to be treated I am a genotype 2. I was treated for 12 weeks with Sovaldi and Riboviran. The only side affect was a very low red blood cell count which made me constantly tired and out of breath. After treatment my viral count was 0! Hopefully when I have my blood counts again they will still be 0. It was a hard decision for me to make because of the current treatment for genotype 2. Glad I did it.

Cindy C Apr 6, 2016

I was diagnosed with Hep c and it has been a nightmare! Between the thought of death and my child being without a mother is awful!! I was never a drug user! I drank heavy to avoid dealing with everyday life as a young mother and my childhood memories!! I work and take care of my buisness as a mother and provider. I always felt a void in my life and dealt with men that were nothing worthy! I can't say where I got it from. It was during a routine check up and I was devastated!!!! And drank some more I feel low and dirty!!! I feel like a murderer don't know how I can live with myself and have not told anyone I went to GI after being unable to bare the joint pain, anxiety, dizzyness, etc to start finding out more of this dragon!!! Well it's only been three visits that I have gone to him and needless to say I started HARVONI JUST 3 days ago!!!! I must say I was scared to death to even try!!!! (due to so much research and side effects!!) IT'S BEEN 3 days and it's been the BEST 3days!!! I feel alive pain free!!! And so far NO SIDE EFFECTS THAT WOULD MAKE ME STOP!! Very mild if any headache and gastritis if that!!! I'm on this for 8 weeks!! I pray to God I nail this dragon and can go on with life!!! No more tattoos, alcohol, etc things that can harm me and say out can't happen to the best of us but now I'm more careful with my life!! I wanna live!! U don't know how it will be for you till u try!! Best of luck to all with this dragon demon!!! Let's kill it!!!

Faith S Apr 6, 2016

I was on Harvoni for 12 weeks and was cleared of Hep C genotype 1. I got the disease from a blood transfusion when I was 28 after a gall bladder surgery. I had no symptoms for almost 47 years. When I started to feel the symptoms, terrible itching, lack of appetite, fatique and sleeplessness I checked out what treatment I would go with. Very,very lucky that at this time Harvoni was available for me.

cathy f Apr 5, 2016

I am 65 years old and I found out 5 years ago that I had Hepatitis C just from a routine checkup. My doctor reminded me that I had never had a physical and asked if he could draw my blood and have it tested. Sure I said I didn't have a problem with that. When the results came back I was floored. I did remember when I had my 3rd child back in 1977 my urine was discolored and I was told I had Hepatitis but not to worry an antibiotic would clear it, and it did. The only place I think I could have gotten it was after the Vietnam war when my husband to be came home with it and was a drug user. I had an ultrasound and a biopsy done which showed that my liver wasn't damaged. Mind you I had no symptons whatsoever. My doctor wanted me to go on interferon and ribavirin but after researching the treatment and reading testimonies that the treatment was horrendous I decided to wait until new treatments came out that I was reading about. I waited 5 years and kept getting my levels checked yearly. Then in 2015 Harvoni came out as a treatment. I took it for 8 weeks with absolutely no side effects and my viral load went from over 4 million down to zero. There is hope so never give up

Fran T Apr 5, 2016

After an on the job injury in 1996 where I was exposed to another persons blood. I was sent to the ED for treatment and my blood test came back Hep C positive.

I decided not to forgo any of the treatment available at the time. I didn't even allow them to do a liver biopsy because I didn't want the evasive procedure when I was not going to let them treat me with the treatment they had at the time which was interferon.

I immediately started searching out ways to stay healthy and keep my liver functions from deteriorating. A good healthy diet was the first option I started with. I cut back on my alcohol consumption. Praise God I was not an alcoholic and could do that. I started searching the internet for anything and everything I could find that would help my condition. I found some research that had been suppressed for years called the Beck protocol. Bob Beck created the Beck Protocol, a natural health, bioelectric protocol designed to help the body heal itself. His passion for using electrotherapy technology to help us heal led him to develop five ways to improve health. Four of the steps work together and have become known as the Beck Protocol or the Bob Beck protocol. I used this protocol and I believe it was one of the reason I was able to stay healthy over the years.

I took all the well-known supplements for the liver that I could find after I finished the protocol. My liver levels stabilized and remained stable for 20 years. I was 38 when I was first diagnosed and I was 56 when I was finally cured.

After hearing about Harvoni I called my insurance company and found out that they would cover the treatment if I qualified but I had to have a hepatologist submit the paperwork for me. I approached my primary care physician and told him I wanted to be referred to the best hepatologist he could find.

I first opted for the ultrasound of the liver to detect any cirrhosis. After submitting the results of that test I was denied the drug treatment based on my liver condition. It was not severe enough. I discussed the options with my Dr and he suggested a traditional liver biopsy. After those results were submitted I was approved. I was lucky my insurance covered the entire 2 months of treatment except for $5.

Don't give up if you want to be cured. Keep looking for the right Dr that understands the system and can get the treatment approved for you. I would try a major University Medical Center if you have one close to you.

Apr 5, 2016

MY HEPATITIS C JOURNEY

1. DIAGNOSIS

My wife Vivien and I were quite happily minding our own business and backpacking through SE Asia during the winter of 2009/10. We had taken to spending our winters in warmer climates for the past few years to escape the harsh night time mountain cold at our Spanish farmhouse in Andalucia our home since 2000.

The previous few winters we had decamped to India, Sri Lanka and Thailand, but this year we were taking in Thailand, Laos, Cambodia, Malaysia, Singapore and Indonesia.

Three and a half months into this trip while travelling down through Malaysia I found myself for no obviously apparent reason becoming weaker and weaker. By the time we reached Singapore, I had become so ill I was barely able to leave our guesthouse. Our itinerary included a plane ride from Singapore over to Djakarta which I dragged myself out of bed for. But that airplane ride became the flight from hell as cramps, stomach spasms, headaches and nausea took serious hold.

Djakarta was originally supposed to be the jumping off point for our final month of touring down through Java to terminate in Bali for the last week of this trip before our scheduled return flight home to Spain at the end of March.

Oh the best laid plans of mice and idiots! On arrival at Djakarta airport I still felt far too ill to face the prospect of more backpacking, so we decided to postpone our planned Indonesian adventure for now and fly straight on down to Bali to rest up and recuperate for the whole 4 weeks.

After another very difficult plane ride we finally arrived at Denpasar airport in Bali mid-afternoon on 23rd February 2010, but it took us until early evening to find a suitable guesthouse within our budget. We finally managed to get into our room by about 7 pm, but by that time I was well and truly knackered.

I needed the toilet immediately on arrival, only to discover a lot of blood in the bowl when I'd finished. Literally not having enough strength to clean myself afterward, I just crawled into the shower, curled up naked in the foetal position and asked Vivien to 'hose me down'. But before retiring to bed I needed to revisit the toilet bowl to be sick, and when that ran red with blood I knew something more than just being run down was afoot.

Hey ho. The general upshot to all this blood, vomit, diarrhoea, tiredness, cramp and generally not feeling totally tip top ticketyboo was that by this point, any remaining thoughts of 'toughing' it out, being a man, sucking it up, and only ever going to the doctor were a limb virtually hanging off or already detached went out the window.

Something was definitely not quite right here and needed sorting, so off to the jolly old hospital in the morning it is then, health insurance or not (in our case not)!

2. THE SURYA HUSADHA HOSPITAL, DENPASSAR, BALI.

I was admitted to the above hospital on the morning of February 24th 2010, (not a well boy)!

Following the admittance procedure, we were ushered straight up onto a ward and connected to a saline drip and oxygen mask. In the meantime, many blood samples were taken for analysis and a blood transfusion arranged to try and restore my body to something approaching normal, this transfusion was the first of many over the next few days.

Was I scared? yes. Was I not happy? Yes.

But look on the bright side, if you're ill, scared and unhappy, where better to be than inside a modern hospital being treated by the very Head of Gastro-enterology himself, yes the big cheese in our case is Professor W. MD, PHD, a very important man.

We spent as comfortable a night as our situation allowed and waited patiently for the prof to come on his rounds with my test results the next morning.

He arrived looking serious (oh dear). Expecting the worst I told him not to sugar coat the pill and to give it to us straight.

Scared? Oh Yes, but what can you do. Despite all these negative emotions, I somehow also felt strangely calm, as if resigned to whatever his judgement on my fate might turn out to be.

He started hesitantly, as if looking for a way to minimise the weight of whatever news he had to impart in a language that wasn't his native tongue. By now both Vivien and I were a captive audience, holding hands, and in my case, mentally saying goodbye to her.

'Well Mr and Mrs M, I'm afraid to tell you that Mr M has Hepatitis C'. It seemed to me this statement was delivered in a way that had more than a hint of its being only a part of some impending good news/bad news story.

And I can't work out which bit of the news this is, because I know nothing about Hepatitis C. Has he started with the good news? Or the bad? And what was still to come?

My brain was in turmoil, but before I could recover my thoughts he continued.

'As well as Hepatitis C Mr M, you also have decompensated liver cirrhosis, chronic liver disease, Hematemesis-Melena, a Hiatal hernia, Reflux oesophagitis, a polypoid lesion on the fundic gaster, Portal hypertensive gastropathy and Erosive gastritis'!!!!

Now I'm properly confused, and Vivien is trying her best not to cry beside me. I mean, what the hell is going on here!!!

3. DEALING WITH DIAGNOSIS

Vivien and I just looked at each other, barely able to comprehend the meaning of all the medical complications attaching themselves to my new Hepatitis C condition. Personally I couldn't have been more confused if he'd just tied me upside down on a rubber lamppost, covered me in treacle and started calling me Doris!

I mean, what language was that diagnosis delivered in, it certainly wasn't English as I understood it. I know I'd asked for any bitter pill not to be sugar coated, but I had at least expected the results of his deliberations in English and not Latin, Basque or Indonesian!

It had all sounded very dramatic and rather serious, but the overall tone of his delivery was sympathetic and suggested re-assurance and calm, not alarm. This at least gave hope for the prospect of some future on our horizon. 'So that's alright then is it prof?' I asked, and indeed he suggested it could be.

With that out of the way I now felt better able to deal with the medical issues. I knew nothing about Hepatitis C; we'd always been completely up to date on all vaccinations necessary for travel including Hepatitis A & B. Neither of us really understood too much about any of the diseases we were vaccinated against, other than knowing we couldn't travel without them.

Therefore, as long as we were up to date, we knew we weren't going to catch any of them. But there is no vaccine for Hepatitis C, and when Prof W announced I had it, he might as well have told me I had Raging Swamp rot or Dingle berry disease.

Prof said he could stabilise my condition, and that at least seemed to indicate there was some time on our side. Time enough anyway to learn what had caused this, how I got it, and how to avoid it in the future.

At this point in our lives, recreational drugs hadn't been part of it for over 30 years since our children arrived in the late 70's early 80's, we might have drunk a bit too much alcohol in Spain as part of the Mediterranean lifestyle, but neither of us have ever been overweight and we'd both kept ourselves fit through sport and exercise, so there was no reason to believe I couldn't return to normal again.

So from that day, the new mantra became;

Concentrate on dealing with one day at a time.

Do what the doctors tell you.

Beat Hepatitis C and all the related medical side issues linked to it.

Then focus on something positive in the future.

That bit was easy for me. Get fit and well enough again to enjoy my family and friends, and at some as yet, unspecified time in our future, resume travelling.

4. (part 1)

THE STIGMA ATTACHED TO HEPATITIS C

I'd never heard of Hepatitis C before being told I had it, so I just accepted it as bad luck. In some way it was actually a bit of a relief, because it finally explained some of the symptoms I'd been experiencing over the past few years. Debilitating cramps, headaches, oedema (swelling of fingers, ankles), occasional nausea and tiredness etc.

We spent 8 days in Bali hospital before Prof W considered me stable enough to discharge with a sack full of pills to treat my various ailments. This was followed by three weeks of recuperation before our return flight home. We arranged to stay with our daughter in Stroud which was also close to the majority of my family in the Cotswolds UK.

I needed a doctor in England as there was no way we could go back to live in Spain with Hep C. My Spanish was certainly not good enough to cope with the complex medical dialogue necessary for me to understand all the issues raised during my time in hospital. So while we were resting in Bali, my sister back home in the UK signed me up to an excellent surgery in Stroud ready for our return.

The process of recovery was now under way and I was back in the UK National Health System (NHS). My new GP in Stroud immediately referred me to Gloucester Hospital where I went through many rounds of clinics, consultations, scans and blood tests.

It was during this process that I became aware of general attitudes to this disease and those who suffer with it. Hepatitis C is a BBV (Blood Borne Virus); it is passed on through the exchange of blood. So drug addicts become prime candidates when they share needles for example. Tattoos are another source if the tattooist doesn't use a clean needle. Cocaine users can also pass it on when sharing a tube (i.e. a 5 note) to 'snort' it; blood from the nasal mucus membrane of one can transfer to another through sharing a tube. Also blood transfusions before the early 90's can be another possible cause (before Hep C was discovered).

Contrary to common belief though, it is more difficult to transmit through sexual activity, unless the sex is rough or violent to the point where blood 'mingles'.

There are many other innocent ways to pass this disease on, couples sharing a toothbrush where gums have bled, and partners sharing safety razors where one tiny nick of blood is sufficient to transmit the virus.

But in general, I have found it to be considered a disease suffered by drug addicts, ne'er do wells, alcoholics (through their association with liver disease) and people with low morals. Much in the same way HIV and Aids was considered the disease of homosexuals 20 ' 30 years ago, and how far have we come since then!

In fact, the further down the road of treatment and recovery I went; the more biased and entrenched I found these attitudes to be.

5. (part 2)

THE STIGMA ATTACHED TO HEPATITIS C

In October 2012 I accidentally 'stumbled' upon a weekly support group for sufferers of Hepatitis C in my local town Swindon.

Here I met other patients covering a wide spectrum of experience, some with the disease awaiting treatment, others who had been through treatment and either cleared or not cleared the virus. There were carers of patients like my wife Vivien, and last but not least, occasional visitors from various branches of the medical profession with an interest in Hepatitis C who wanted to learn more about the disease from patients actually suffering from it, so hats off to them.

The group is run by a rock musician who came through years of addiction himself and lost most things of value in his life along the way. He's been 'clean' for 7 years now and it's his experience that drives this group forward. Many agencies working in related fields are now coming to us to learn more about what we're doing and how we do it.

There is a good mix of people here, others like me who experimented with drugs in the late 60's/70's, finished and moved on, only to later find the disease had lain dormant in our bodies for 30 ' 40 years before jumping out later to bite us.

There are many ex drug addicts too, most of whom are currently going through rehab and doing all it takes to get clean and reclaim their lives (not easy). Virtually all the drug addicts I have come into contact with suffered some sort of abandonment or abuse as kids, whether mental or physical, and drugs became their escape from the unpleasantness.

Wrong choice?

Whose fault?

It is for these kids I go to the weekly support group meetings, hoping to 'debunk' some of the misconceptions surrounding the disease and those who have it, and to help in any way I can anyone suffering from it and looking for advice/information/support.

We all make personal choices for various reasons based on our own unique experiences at the time we experience them. For young kids who turned to drugs to help them deal with their issues, and have now made a commitment to change their lives, I believe they deserve every chance for a route back into society and all the help they can get.

6. THE UK NHS

My personal experience of the NHS has been a very good one, beyond my wildest expectations in fact.

It almost feels to me as if a red carpet was put down to receive us from the moment we landed back in the UK. I couldn't possibly have asked for more compassion, understanding, care and treatment during the five years I've been under its care with this disease.

I've paid sufficient dues in my working life to qualify for the full state pension when I'm 65, so although I feel my treatment within the NHS has been earned, I still can't help but feel pathetically grateful for it.

My new surgery in Stroud received me in to their care with open arms, and my GP Mike G turned out to be a shining light in the middle of my new darkness, he really helped me to understand what was happening inside my body, and treated me for everything that fell outside the remit of the liver team at Gloucester Hospital who were the primary carers for my Hepatitis C condition.

Over in Gloucester I was at the hospital on virtually a weekly basis as the doctors battled to identify the amount of damage Hepatitis C had done to my body. My liver was clearly not in good shape, there had been some kidney damage too, as well as further damage to the linings of my oesophagus, stomach and intestines.

Over the course of the next 5 months (April ' Sept 2010) I underwent regular blood tests, Ultra-sounds, MRI scans, CAT scans, Biopsies, Gastroscopies, ECG tests (heart scans) and medication adjustments. These tests eventually gave the doctors a clear enough picture to decide on a course of treatment.

This watershed in analysis notwithstanding one anomaly in my results the doctors couldn't fathom, but that anomaly suggested I had a tumour. None of the tests showed where the bleeder was hiding and nothing else they tried could coax the little bugger into popping its head over the parapets to 'disclose' its position.

Sneaky, sneaky, just like the virus itself, although to be fair, that sneakiness is basically the job of a virus and therefore I don't suppose you can't blame it for doing its job!

So tumour or not, by early September a course of treatment was finally prescribed and I was called to the hospital on Sept 21st to 'begin the journey to cure and recovery'.

By this stage I was still quite weak and unable to drive; I had no appetite for food, was suffering with headaches and occasionally nauseous. But given the condition of my liver, the view of the medical team was I should start the treatment.

7. TREATMENT

Before treatment was due to start I was given information about the two drugs I would be taking, Interferon and Ribavirin. Apparently different patients react to these drugs in different ways, and the type of reaction could be affected by how fit you were, how long you'd had Hepatitis C and how much damage had already been done to your liver because of it.

Reading the list of potential side effects didn't inspire me with optimism for the process. Unless of course you fancied the odd bit of fatigue, even more headaches, some flu like fever, nausea, anorexia, diarrhoea, depression, irritability, insomnia, itching, rashes, alopecia, coughing or anaemia.

Not a course one would happily embark upon unless there was no option, but without treatment Hepatitis C would lead to liver failure and death. If your heart, lungs or kidneys fail, modern equipment and medicine can take over to replicate those organs function while the problem is repaired. In these cases, the doctors use a heart pump, lung respirator or dialysis for the kidneys. But nothing can take over from the liver. If you have a serious problem, you fix it or die. This makes your liver a unique organ and worth looking after.

By Sept 2010 I'd been feeling poorly for so long it was a no brainer for me to accept the treatment. Duly on Sept 21st 2010 we arrived at the hospital and were shown how to inject the weekly dose of Interferon and orally take Ribavirin, these 2 new drugs were to be taken alongside my normal daily medication to control all the other complications I had related to Hepatitis C, and these already had their own list of side effects.

Fortunately, the Interferon injection was only one injection a week. But within 24 -36 hours of taking it I would feel much worse. The nausea, anaemia and headaches could double in intensity. Other patients I subsequently met referred to this drug as 'Interference', because of the 'brain fog' it induced.

Ribavirin also came to be known as 'Riborage'. When you're feeling nauseous, depressed and fatigued, you're not sleeping, you're itching, anaemic, full of a cold and have diarrhoea, then the last piece in the side effects compendium. Irritability can understandably sometimes manifest itself as rage, and this was felt by most other patients I met.

Personally I never felt depressed and my own irritability never progressed to real rage, but the rest of the adverse side effects were all there. This programme of treatment was to last for 48 weeks, which made it feel like I was standing at the edge of a desert looking way beyond to a horizon still one year away and knowing I would be feeling pretty crap all the way through it.

The prospect was outrageously daunting, but I accepted the price as one to be paid if I wanted to get better, and I desperately did. So I just focussed on taking the medicine one day at a time and focussing on the future. A future with me still in it and returned to health, playing an active and healthy part.

The start of the 1st treatment required weekly/fortnightly visits to the hospital for blood tests, to measure how successful the drugs were in combatting the virus, plus of course the personal check-ups to see how my body was coping.

Not only did it not cope well, it turned out these drugs were having no effect on the virus, making me a non-responder, and as such, I was withdrawn from that treatment after 9 weeks.

In the meantime, I was carry on rewardless with all my other medications until a new programme to eliminate the virus could be found and my body recovered enough to withstand whatever it would be.

8. 2nd ATTEMPT AT TREATMENT

This was the situation one year later. On Sept 6 2011 I was placed on a second treatment that repeated Interferon and Ribavirin, with a new drug added called 'Telaprevir'.

The thought of this made me a little apprehensive because besides the excitement of taking Interferon and Ribavirin again, there were apparently additional delights attaching themselves to the taking of Telaprevir.

So delightful in fact this new combination again proved too toxic for my body to withstand. A rash associated with Telaprevir duly arrived and quickly spread all over my body. In addition, I became really ill, so much so that after a routine hospital visit for blood tests, we were phoned by the doctor the following day after the results came and told to get back to the hospital urgently for admittance.

I re-entered hospital on Sept 26th 2011 with a delightful and exotic condition called 'deranged electrolytes'. I think that meant my kidneys weren't feeling too well after the barrage of new drugs. But if you are going to be rushed into hospital for some reason, what better than 'deranged electrolytes' to enter with! I thought that sounded pretty cool.

I stayed in hospital until discharge on Oct 4th by which time I was considered stable enough by the doctors to go home again. I was pretty much unaware of what had gone on in there as I spent most of my time drifting in and out of the drug haze of the treatment and recovery medicines. I felt like I had virtually been turned into a zombie, but at least I was going home.

9. QUEEN ELIZABETH UNIVERSITY HOSPITAL BIRMINGHAM

Naturally the 'crash and burn' episode in Gloucester in September 2011 gave the hospital no option but to stop the second treatment. This left me with nowhere to go until new drugs and treatments to beat Hepatitis C became available in the NHS. So I continued attending the monthly clinics at Gloucester hospital to monitor my condition and manage the drugs I was still taking from the original Bali episode.

In December 2011 my clinical nurse at the hospital retired, and the Gastro-enterology department started using locums to make up the shortfall until the department could be re-organised. While all this was going on though, that one anomaly in my blood results still remained. It was called AFP (Alpha-Fetoprotein) and my levels were still very high.

Possible reasons for this were explained to me back when I first entered Gloucester's care, and there were only really 2 known causes for the kind of levels I was registering.

Either a) I was pregnant, or b) there was a tumour present, somewhere, probably in the liver.

This tumour, despite all the tests, scans and screenings was proving difficult for my non-specialist local to locate. Fortunately for me one of my routine Gloucester clinic visits put me in front of Dr T, a visiting locum helping out from Queen Elizabeth University Hospital Birmingham. This hospital is universally regarded as a centre of excellence for liver related issues and one of this country's main transplant centres and teaching hospitals. In fact, it is regarded as one of the best teaching hospitals in the whole of Europe, if not the world.

Dr T took one look at my medical notes and said he was going to refer me to Birmingham for ongoing treatment, and I attended my first clinic there in June 2012.

Upon my arrival at Birmingham the team immediately zeroed in on this high AFP level in order to find the elusive tumour. They conducted the same sort of thorough investigation I believe the CIA must have waged in finding Osama Bin Laden. And in both cases the intention was the same, to seek, identify, and then destroy the bugger.

It was finally an MRI scan on the 20th September that found where it had been hiding. I did receive a phone call from the hospital first to warn me of this discovery, but the clever way this was confirmed in writing gave me some encouragement and hope. I quote "...the MRI scan performed in Birmingham on 20th September showed a very suspicious area in the liver which very likely represents early liver cancer. The Multidisciplinary team discussed the possible approaches to the management of this. Because of your underlying cirrhosis and early liver failure, we think that liver transplantation is probably the best way forward" OK, so I had cancer, what next?

10. LIVER TRANSPLANT ASSESSMENT PROGRAMME

And so I entered Birmingham hospitals Liver Transplant Assessment programme where prospective patients are assessed for their suitability for transplant.

I attended the hospital on 19th November 2012 to undergo a variety of tests including chest x-ray, echocardiogram, ECG and blood tests. Then we met with a transplant co-ordinator and were given information about the rest of the assessment and answered any questions we had.

At close of play that day the co-ordinator confirmed the consultants would review the results and decide if they considered me a suitable candidate for transplant, in which case further assessments would be required. Well we passed phase one and were recalled for 2 more days of tests and assessments on Dec 4-5th 2012.

It was made clear to us during these assessments that even if accepted, there was no 'guarantee' of receiving a transplant. There is always a shortage of donor livers; hence we might be waiting for possibly up to 3,6,12 months or maybe longer for a transplant, and it was not unknown for some patients to die with liver related problems while on the list.

Dec 5th was a Wednesday, and at the end of the day's proceedings we were told the consultants met every Friday to review all the assessed patients and decide whether or not you were to go on the waiting list. Either way we would be called on Friday afternoon.

So Vivien and I went home that Wednesday evening on tenterhooks awaiting Friday's judgement.

When it came, the co-ordinator said we had made it onto the list and she sounded genuinely thrilled for us. She also re-iterated it would be our responsibility from that day to always have an overnight bag packed ready and waiting for the phone call to get to the hospital urgently were they to find a compatible liver, bearing in mind the hospital was over 2 hours away from our home.

She did warn us there might be some false alarms, because it was entirely possible a liver from another part of the country initially deemed suitable for me, might turn out not to be so under scrutiny on arrival at the hospital.

But some hope is better than no hope, the tumour was small (but growing), and there was always surgery or radio/chemotherapy in the interim if a compatible liver proved difficult to find, although I do have a common blood type which increased my chances significantly.

After that call our emotions were running high, it felt like we had come to the end of a very difficult 32 months, only to now be standing on the threshold of a different kind of uncertainty, and still staring into a future that held no guarantees. Weird feeling!

11. LIVER TRANSPLANT

That feeling of weirdness was only to last 20 hours. At noon on December 8th the co-ordinator rang again to announce they'd found a suitable liver and could I get to the hospital urgently.

The news was so sudden and such a shock the car journey from Swindon to Birmingham passed in a blur (as basically did the next 12 months).

Upon arrival at the hospital, forms were completed, declarations signed, tests done, and then up to the ward in preparation for surgery.

There was virtually no time to think, let alone panic, and I entered the whole process feeling somewhat calm and relaxed in a philosophical sort of way, happy to put my trust in the surgical team. I mean, the situation was what it was, without this transplant my chance of a full recovery was non-existent. So I just submitted myself to their care and quite serenely drifted off into la la land under anaesthetic.

I do remember waking up after surgery. First thing I saw was Vivien's face with no halo, neither was she wearing white, thus suggesting I was still alive and still on planet earth. So surely that's good then!

Second thing I remember feeling was the teeniest tadge of discomfort when I tried to move. Apparently some of the medical team had taken advantage of my anaesthetized state and fastened me to the bed with tubes attaching themselves to multifarious bags they'd thoughtfully decorated various parts of my body with.

Third thing I remember thinking was 'how the hell do I go to the loo strapped to the bed as I was'? Vivien obviously read this turmoil on my face and pointed to the tubes leading to the catheter and drainage bags hanging off the bed.

Total bliss, I had my best friend looking after me, I was told medication and attached bags would solve the need for No 2's for a while, and No 1's were sorted by catheter, and double bonus, I was being fed through tubes. Surely it doesn't get any better than that.

Feeling quite content with my new life (apart from the teeniest tadge of discomfort every time I tried to move) I drifted off into la la land again as the latest instalment of pain killer found its way into my blood stream from one of the numerous drips dispelling an exotic array of medications through a plethora of tubes attaching themselves to various parts of my body through a tube-like system of 'spaghetti junction' complexity.

And that was that for a few days, as unbeknown to me in la la land, this transplant failed after 36 hours (a record I believe), leaving the surgeons with no option other than to put me on life support while they desperately searched for a new liver.

12. POST DOUBLE TRANSPLANT RECOVERY

Fortunately for me they found a new liver and a good job too, because if they hadn't, I believe a body with failed liver function can only last about 72 hours on life support before irreparable liver damage occurs followed by death. So on Dec 11th 2012 I received my 2nd liver transplant.

When I came to after this surgery, I really do have to admit to feeling slightly more under the weather than normal. Life support makes your brain swell, therefore your head swells to accommodate it, and the resulting pressure causes the blood vessels in your eyes to burst.

I feel I entered hospital feeling fairly fab, groovy, windswept, exotic and interesting (well I sort of believed it and that's all that matters), but I came out of surgery looking like something from the bottom of the swamp one describes to scare one's grandchildren during bedtime stories.

Back in intensive care my blood was now coursing with an ever expanding range of chemicals to compensate for the surgery and new liver. Anti-biotics to prevent infection, immuno-suppressants to prevent liver rejection, anti-acids to prevent acid release from the stomach, anti-virals, steroids to do what I can no longer remember, soluble aspirin to reduce the risk of blood clots through the hepatic artery, a CMV infection inhibitor and lots of other very clever stuff too.

My whole body was swollen, my genitals looked like a spitting image caricature of the real thing after the catheter was attached, my stomach was distended, tender and full of staples, my mouth and nose were crusty, and my grotesquely bloodshot eyes and swollen head were capable of turning the nurses to stone Medusa like were they to accidentally gaze upon me without first making the sign of the cross.

My remaining time on the ward bore witness to some truly heroic events. Primarily the many mad attempts to reach the porcelain chariot situated in the adjacent en-suite. These heroic dashes were met with markedly varying degrees of success (or failure). For those often and urgent impulses to engage oneself in the medicinally induced throes of peristalsis would invariably arrive with barely enough notice to enable one to disengage oneself from one's oxygen mask, untangle one's wires from the cannula to the drip, electrically haul oneself upright enough in the bed to get ready for departure to the en-suite without ripping ones staples out, then swing one's still bloated legs and genitalia over the edge of the bed and gather up one's pee-bag to begin the required mad dash, which all might prove ultimately unnecessary anyway, for ignominious failure was often already upon one, resulting in that plaintive and sorry call for help all hospital staff dread - Nurse!!!!!!!!!!!!!!!!!!!

Hey ho, after 13 days I was ready for discharge, 4 days before Christmas, Dec 21st 2012.

13. FURTHER RECOVERY 2013

It was good to be back home, but now being out of hospital we were responsible for ourselves while there. Without Vivien that would have been impossible for me. Simple tasks like getting out of bed were major undertakings with my stomach extremely tender and still full of staples. Going to the bathroom was impossible without help, and the effort of getting there invariably left me on the point of exhaustion and collapse. Trying to feed myself would have been completely out of the question.

Still we struggled through, but the twice a week visits back to Birmingham to monitor the operation recovery, check the wound and take blood samples became epic journeys of travelling discomfort, both on the road and waiting in the clinic. After the staples were removed our visit schedule reduced to weekly, but the hospital visits remained epic journeys to be endured.

The new medications I was now taking (28 pills a day) had my head in a spin and body in a permanent state of revolt. A revolution intensified after the staples came out, because the wound became infected, and leaked badly for the best part of a year, nothing could be done to stop it and the dressing had to be changed 3 or 4 times a day.

Any movement stimulated more discharge, plus there was the ever present threat of being caught short. Yes, those sudden and imperative medicinally induced urges to get to a toilet in time did not leave me upon discharge from the hospital. They remained throughout 2013, that's about as long as my leaking stomach wounds continued to cause problems.

This meant there had to be a very pressing reason for leaving the house, because it was just too embarrassing for either a wound leak or pressing call of nature to occur whilst out and about or in company, and heaven forfend both pleasures should visit simultaneously.

Hence it became easier and more comfortable to stay in bed and read or watch television. This wasn't so bad as it was possible with some TV channels to watch never ending documentaries about many subjects I had a keen interest in (when I wasn't feeling nauseous or had a headache).

Any form of exercise was out of the question while the wound remained open and infected, and my medical regime still had my brain pretty much scrambled. But I knew I still had to eat and made a special effort to force myself every day, even so, by September 2013 I'd lost 15 kg and then weighed 55kg (about 8st 9lbs).

Therefore 2013 was a slow and very challenging year. Certainly the biggest challenge I'd ever faced in my life. But even though most of the year was spent in quiet but desperate recovery, there was much time for reflection and contemplation, which I was able to put to good use later on.

14. THE 3RD COURSE OF TREATMENT

Looking back on the years 2010 to 2013, I was clearly aware I had survived a life threatening health scare that arrived out of the blue. So although I was still very ill with Hepatitis C, there was much to be optimistic about. There were many new and wonderful drugs coming to the market with fantastic cure success rates during clinical trials.

Although the transplants had removed the old infected liver, the new one was already under attack from the virus. Hepatitis C is a blood borne virus (BBV), therefore it circulates in the blood, but finds the liver a perfect place to call 'home'. So removing the old liver did not remove the virus, this had continued to circulate in my blood stream and soon zeroed in on a fresh new liver to attack. Therefore, the disease and my symptoms remained, albeit not quite as acute as before the operation.

So I waited patiently throughout 2013 for my body to recover and by the end of the year it more or less had, notwithstanding the at times still extreme fatigue. Anyway, the recovery continued apace into 2014 to the point where I was chomping at the bit for the chance of another go at treatment to finally rid me of this pernicious virus.

I knew from my conversations with the liver team at Birmingham there were various trials coming soon. But obviously there would be many more deserving patients wanting places than places available, so there was no guarantee of getting a place on one when it came. But I did know my doctors were fighting very hard on my behalf to get me included.

Bingo, in April 2014 I'm nominated for a trial with a completely new combination of drugs and accepted onto it.

A 24-week programme starting in May where I'm led to believe most of the toxic side effects I suffered from during my first two treatments will be largely absent on this one.

And so it turned out to be. 6 months sailed by with no ill effects, I was virus free at 4 weeks and remain virus free now in April 2016. My body has recovered, and more importantly my liver has also recovered from the pounding it took post-transplant.

15. SUMMARY.

So I am now completely cured, and working for the charity Liver4Life in the UK, running the Helpline and participating in a very successful local support group for patients with hepatitis C called Swindon Hep C Positive, where we aim to inform any interested party with queries about Hepatitis C or the liver in general.

It's fantastically rewarding work and in the four and a half years we've been operating, we've seen over 400 people come through the group. We meet every Monday throughout the year for 2 hours and all are welcome.

Please visit our websites if you are interested to learn more about what we do and how we help patients suffering with Hepatitis C.

www.liver4life.org.uk

www.hepcpositive.org.uk

Kelvin M

KELVIN M Apr 5, 2016

I contracted Hep C way back in1969 when it wasn’t recognized by the Australian Medical Association. My journey began with a contaminated blood transfusion at Manly Hospital after an accident in the surf. Before this incident I had been an extremely fit young boy from swimming training with times good enough to be selected for the Olympics.

The first flare up of the liver sent me to a local doctor who, without proper testing, diagnosed me with Hep B. This was eventually changed to non A non B, and when C was first recognized in the 80’s, Hepatitis C. I refused interferon treatment when it was first offered, because of the adverse side effects and decided to tough it out without any medical assistance.

Sofosbuvir became part of my vocabulary in 2013 when I heard about its revolutionary cure rates. Unfortunately it has taken till 2016 to become affordable in Australia. Today marks the beginning of my treatment and I will blogging about it here so stay tuned for further updates.

April 1. Have taken 400mgs of Sovaldi and 60mgs of Daklinza

Wayne S Mar 31, 2016

It was only after my fifth child that I became aware I have hepatitis c. My enzymes in my liver are through the roof. I'm just turning 28 and when I was 17 I lived with a heroin user and by accident while cleaning up his dirty needles, I caught my finger with one. I didn’t think too much about it and cleaned it with a antiseptic wipe and put a plaster on. What a fool I was, eh. Anyway tomorrow I go for an ultrasound to see what damage has been done to my liver. I'm absolutely terrified. I dare not touch my children. I feel so dirty and down. I could do with any advice peeps are willing to give me. I'm even thinking maybe it'll be good if I die then my family will be safe from me. Anyway I'll report back tomorrow when I've had my scan. : (

L C Mar 29, 2016

I found out I have Hep C about 1 year ago. The doctor ordered an ultrasound of my liver and found a mass tumor on my right kidney. I've been a smoker all my life.

I'm 61 years old I found out I have COPD. My surgeon is the greatest guy I ever met in my life. He told me that there could be problems but he'd pull me through this. They started the surgery with the robot but the carbon dioxide gas that they have to put inside of you, my body couldn’t get rid of it and it almost killed me. They had to open me up and take out 40% of my kidney. I made it through it and it was cancer. I just had a full CAT scan done and I am cancer-free from head to toe today.

I have four daughters that know I have Hep C and worry about me all the time. I just pulled through cancer and my second daughter called me on the phone and said, “Dad, I have the cure for your hep c!”. I said, “What?” A man approached her at her work and said to her, “I read your story in our business newspaper. I had hep c myself and I have something I want to give you.”. He gave my daughter a full prescription of Twinvir (generic Harvoni), free of charge. He just wanted to help. I don't know the man's name but he's a god. I took the medication to my doctor and show them they couldn't believe it. They said yes, this is the real thing and yes, this will work.

I took my first dose today. Wish me luck! And to anyone else out there with hep c, there's hope. Just keep trying. I just got lucky that's all. Just remember God answers all your prayers. Sometimes you don't like it, sometimes you do, but somebody’s been looking out for me.

I will write back in 6 months!

Good luck!

Steve F.

Steven Frazier Mar 24, 2016

IV use. Diagnosed in 1998.

Only known cure was not for me as I did not tolerate. Sent me into a spiral of repeated self destruction and guess what, God would not let me quit. I met this gal and she dumped me because I was “dirty” but encouraged me to try/apply for a new treatment. I did qualify and I thank greatly the doctors at Duke Med for helping make the leap for treatment.

Treatment began in 5/2015 for 12 weeks. Although my doctors forgot about me in the system, each month I fought with insurance with my case worker whom I cannot remember her name. Let just say an angel. I completed treatment on time and with no insurance. I was scared to see the results. At a cost of $560.00 I had the test for Hep C virus repeated. The results were sent to Duke Med. and then forwarded to me. CURED, clear with no evidence of virus- 6 months after treatment. This story is real. Harvoni works and I was not even monitored during treatment. A survivor’s story.

Please, anyone diagnosed, not matter the cost should seek treatment. You can survive and you can be cured.

Feel free to contact Dr. Muir at Duke. He will save your life.

Scott

scott Place2Win Mar 21, 2016

I caught hep B when I was 18 through IV drug use but was diagnosed in 1991 with hep c geno 1b. In 1996 had my first episode of hypoglycaemia and my platelets were low. 2014, platelets were 53, could barely eat due to pain and flare ups of pancreatitis which also occasionally sent my heart into atrial fibrillation. My INR was increasing and so was my alpha fetoprotein - about 400, should be below 12(a hepatocellular carcinoma marker).

I had an MRI (allergic to iodine so no CT ) and they found a liver tumor, luckily only 2.8cm. I had a TASE procedure march 2015 and I am still clear of cancer. Harvoni finally became government subsidized on 1st march 2016 and today is my 7th day on them.

I have had no side effects and I deliberately didn’t read about the side effects as I usually have all the rare ones on meds. However, I suffer chronic pain anyway and probably wouldn't notice them.

For the people concerned about side effects it is documented that there a few if any side effects, which is why I refused all other treatment prior to these and besides, the success rate for 1b hep c was only 25% on the old drugs. I look forward to life free of this burden.

Yvonne J Mar 17, 2016

I was diagnosed recently, at age 64, with Hep C, genotype 2. We found this thru a blood test that showed elevated enzymes in my liver. Further tests confirmed and a CT scan showed no damage to my liver (at this time). Not sure how or when I contracted as, at my age, there are so MANY possibilities. Still am not sure I have any symptoms as I have always dealt with pain and discomfort pretty well and explain things away due to age.

Waiting for delivery of medication in two days. I have been prescribed Sovaldi and Ribavirin combo. Will be on this regimen for 12 weeks. I was given about 3 pages of possible side effects, so you can imagine how nervous I am while at the same time, excited to hopefully, eradicate myself of this disease.

Will let others know how the medication effects me as I go thru the process. Taking first dose on Saturday, 03/19/16. Luckily, do not have other ailments, at the moment, that I am aware of so I am hoping to get lucky and have an uneventful journey. My GI will be mailing a lab schedule to me and expects testing approximately every 2 weeks.

I still work a 40 hour week so not sure how this will effect my daily routine. Grateful for the employer provided insurance that approved this treatment. Other employees here are aware and pulling for me so that really helps. They have promised to let me know if they see changes to my disposition or signs of forgetfulness.

Enough for now....will keep you posted.

Sandra R Mar 16, 2016

To Ronald de Sousa,

Do what your doctor wants to do.

Interferon isn't fun but it's not the end of the world either. Do the interferon before bed and sleep off the effects.

Roland G.

Roland G Mar 15, 2016

This is the first post I have ever made on my hep c.

I was diagnosed in 1992. My urine was coffee color and I didn't feel good. They call it non A non B and told me to take care of myself. So that wasn't hard being I quit drinking 1987 and haven't had a drop since and never really took a lot of over the counter meds for pain. Anyway 1998 I started thinking about it and made appointment with liver doctor and he set me up for biopsy. They inserted a needle in my liver and the results were really good. Doctor said my liver is healthy and something else would kill me before hep c will.

So I continued to stay in the gym 3-4 days a week and also jogging a lot. l never really watched what I ate much. Around 2005 I heard about an interferon injection and looked at all the awful side effects so I decided not to go that route. Life went on with the symptoms as usual, minor, aches and sleep problems. I started to have less energy at the gym and on my runs, so a couple of years ago and went down to the doctor and I told them I had hep c and they did blood work and everything and it came back normal. So I said maybe all that I'm feeling is in my head, besides you’re a health nut. About a month ago I made another appointment with a gastroenterologist and on the first visit he said there was no way you have cirrhosis or advanced liver issues. So he set me up for blood work to check my genotype and viral load my viral load. It was 2.5 million and I'm still waiting on the genotype type results. He sent me down for liver scan and they said my liver looks good and normal size with no visual fibrosis. I was excited then he sent me for fibroscan last Monday and that wasn't good news. I have stage 3- 4 fibrosis and early stage cirrhoses and about to start Harvoni in the next month. Hoping it will help me and maybe reverse some damage.

Anyway I guess it really didn’t matter how well you take care of yourself hep c has no boundaries. I was one of the people who didn't get by without damage. My email is [email protected] if anyone has gone through my situation feel free to email me I need all the support I can get thanks for listening.

Mike...Health Nut

Mar 14, 2016

I have had hepatitis c since I was 18. Now, nearly 50, it doesn’t matter what I drink, eat or do; I can drink, eat and do, less and less. I am mostly a vegan with occasional eggs and honey. I have herbs like milk thistle licorice and dandelion.

I try to do things I enjoy like recording music, for example. I try to do a little bit of what I enjoy every day in the hope that it heals me. Then when others hear it it will heal them.

I cannot do it for long.

I constantly have company. Someone that takes care of me.

I feel awful every day. Have auto immune problems high rheumatoid and am sick sometimes. I have daily pains and am now addicted to pain killers.

I enjoy the sun shining through the window but never go out socially or to do anything except a short walk to shops with a partner.

Sometimes I am in such a state squealing and in the night shouting “no no” as I don’t want to die at that moment.

My daughter was born with it too. Hopefully she will soon get medication for it. I am not allowed medication yet as people that have cirrhosis only get it in England. I don’t have that but I have hepatic venous thrombosis and heart problems.

I write many songs about death and hope they will make a difference in the world if not now then when I am dead.

I also have other things like recurrent herpes and peripheral artery disease.

I am too tired to fight anymore I have written to MPs and NHS.

I have a good GP who would give me medication if he could but he is not a liver specialist.

I hope to get medication somehow magically and not die.

May we all be free of hepatitis c and may it be eradicated from the planet. Extinct.

Light V Mar 13, 2016

I have hep c type 3. My doctor recommended to take Sofosbuvir, ribavirin, & interferon but I’m afraid to take the interferon. Anybody have a suggestion?

ronald de souza souza Mar 12, 2016

I contacted Hep C through blood transfusions in a military hospital in Seoul, Korea. I showed no symptoms and it was discovered quite by accident by a doctor looking for something else. I underwent an experimental treatment at the Medische Centrum in Amsterdam which consisted of interferon, ribavirin and amantadine. I showed no signs of the disease after four weeks. I continued taking the medicine for 1 1/2 years. Six months after I stopped the disease was back. I moved to Hawaii and started taking Harvoni last year. 10 months later there are no signs of Hep. C.

By the way, I have fibrosis of the liver. On a scale of one through six, I have 1 1/2..

Mar 11, 2016

I acquired Hep C in the sixties when I was an IV drug user. Many of my friends also acquired it. Today, most of them are dead from the disease, probably because they never stopped drinking alcohol. My saving grace was that I did stop drinking in 1984. I have taken other prescription drugs since then, but it is the alcohol that really kills. So if you want to get on top of it stop drinking and take milk thistle. Best advice I can give after many years of experience.

Ray W Mar 11, 2016

You can watch my story if you google "Augusto story at Hep C trust".

Mar 11, 2016

Hi, my name is Julie and in 2010 I was diagnosed with hep c. I remember that day as if it were yesterday. I got my results and sat in my car bawling and not wanting to go on with life..

I contracted it through IV. My husband at the time said he always used clean needles but he didn’t and he gave it to me. I think the past 6 years I’ve gone through life pretending I didn’t have it. Up until a month ago I decided to do the Harvoni treatment.

I 'm scared to death of the side effects and I’ve known many people to do this treatment and have been cured.

I am scared to death but I 'm also scared to death that this disease will kill me.

I am waiting to start treatment next week and I 'm actually finally coming to terms with it.

I hope that people get tested, unlike me, who pretended I didn’t have it. That it was just a bad dream...

Good luck to you all and every single person with hep c there is medicine to help this!

Mar 11, 2016

I got infected with hep c when it was diagnosed as Non-A or Non-b Hep around 1958 when I was an intravenous drug user. I was finally diagnosed with Hep-C about 30 years ago. I was on a research program for 48 weeks receiving Pegylated interferon and, as it turned a placebo. The next year I went on a 48-week program with the real deal. I had to quit the program after 36 weeks as my blood levels were dangerously out of whack. As it turned out I became virus free following that abbreviated treatment and have been so for 15 years.

During the last 8 years, I have had 2 kidney cancers with subsequent removal of my left kidney. That same year I was diagnosed with stage 3 colon cancer. I had a successful colon resection and have been cancer free in my colon for 7 years. Three years ago I was diagnosed with a malignant tumor on my liver. I had a successful liver resection and I was cancer free for several years. Earlier this year I had a malignant tumor on my stomach wall and as I was beginning radiation my doctor noticed another tumor on my liver. Today I completed 10 weeks of radiation (5 for my stomach and 5 for my liver).

My point is getting rid of Hep-C is a good thing but maybe not the end of Hep-C related problems. This may sound fairly negative but I have been blessed with magnificent doctors and a supportive family. It is just like stopping intravenous drug use was a good thing but we continue to experience the after-effects for a lifetime. I am 77 years old and I am looking forward to the next 10 years. My wife died from Hep-c related liver cancer 15 years ago. She was not a drug user and it is suspected she got infected from a blood transfusion. We had different subtypes.

Mar 5, 2016

God is Good. I contracted hep c when I was in my addiction in 2005.

I found out in 2007 when I was in recovery. Just this year was my first time receiving treatment with Harvoni. With the meds and prayer my blood work came back normal.

God will heal you if you confess it out of your mouth. I am living proof.

Mar 5, 2016

I found out I had hep C when I was 18. Doctors told me there was nothing I could do but wait and in 10 years they might have a treatment. I pretty much thought the way I'd die was from this disease.

Well, almost exactly 10 years later when I was 29, 9 months after I had my 1st baby, I did the treatment. I’m cured!

It was fairly easy, just got fatigued. I was the youngest person to be cured and only the 9th person in CA. Pretty cool. Having my 2nd baby now!!!

Mar 1, 2016

I was diagnosed in my 30s and given only 5 years to live. I took Interferon and went into remission for only 10 months. What a disappointment!

I then decided that if I could use food and the correct diet and supplements, I could stay alive until a cure was discovered. I ate a diet that was high in both low fat protein and antioxidant plant foods. I took milk thistle and then I took turmeric. I drank water and I lifted weights. I prayed. I never gave up on my dream for a cure.

Finally Harvoni was invented and I was treated successfully. My only regret is that my mother passed away without seeing me cured, but I told her about Harvoni 3 days before she died.

My advice to those who will be mature enough to listen is that you must use healthy diet and lifestyle to combat any disease and buy time until a cure is discovered. G-d bless you and best of luck to you all!

Betty

Feb 29, 2016

I have been fortunate to have been in the UK for the past few years and was able to participate in a hepatitis research trial for the NHS involving new medicines for the treatment of Hepatitis C, Genotype 3.

I was given a combination of Sofosbuvir and Ribavirin over a 24 week period and checked in regularly for a variety of tests, EKG, Liver damage, etc. When I started the treatment I was told I had a very high viral load. After only two weeks of receiving the drugs I showed a decline in the virus to almost nothing. The viral load was detected through blood samples taken every week. At the end of the treatment I was checked out with zero detection of Hepatitis C in my system.

The difference I am feeling in my energy level and the total decline of depression is fantastic. The hospital told me that this treatment is going to become available worldwide in a very short time. I recommend any Hep C sufferer to contact their physician with this information to see if they can get onto a treatment plan immediately. There are absolutely no side effects either during or after the treatment - absolutely none!

Alexandra S Feb 28, 2016

I have had Hepatitis C for almost 38 years. I am genotype 1. I was stage 2 -3. I did not want to take the drugs. I went on large amounts of vitamin c and milk thistle. My last ultrasound of my liver showed it was normal. A miracle. I still am on my regimen, and staying away from liquor. Just want to keep my liver okay.

Regina B Feb 25, 2016

I'm 59 years old and used IV drugs as a young man. I was diagnosed with Hep C in 2005 after a routine physical. I've never had any symptoms. 4 years ago another blood test came back as a strong positive. I had a blood test done last week to see if it was active and was shocked when it came back non-detectable.

Is this possible? I 'm a healthy eater, no drugs or alcohol for years. Has this happened to anyone else out there?

George B Feb 25, 2016

I was diagnosed with hep c, G type 1 in 2012. I was tested because of my constant itching, abdominal pain, muscle aches and fatigue. I had a liver biopsy in 2012 and a fibro scan in 2015, both results indicate minimal liver damage. Because of this result, every doctor I go to refuses to treat citing treatment costs and the insurance companies will only deny the claim even though they have never submitted the claim. So here I am still suffering with symptoms, waiting for my liver fibrosis to get worse.

What a great country we live in.

I give up.

Henry H Feb 25, 2016

I go the treat Harvoni 6-8 months ago. I was Genotype 4 and in Stage 4 for many years. I was told by my Doctors, Medicare and Humana that I must take it not for 8 weeks but for 24 weeks. I did and my viral count went away. I was on S.S. Disability since 2012. I now am on a Ticket to Work program and found a real good paying job due to my skillset.

I will still be checked and live a very “Green” life to prevent any setbacks.

Praise my Lord Jesus

Feb 24, 2016

After 25 years of bad news and being unable to use conventional medication. Finally I was given Gilead’s Sovaldi. It has been out of my system for 9 months and is thus considered a cure. Unfortunately, I have stage 4 liver cirrhosis. Since I never drank and don’t plan on it, I have a good long life to live.

mikk B Feb 24, 2016

I knew that I just did not feel well. I attributed this to “getting older”. Had to have cataract surgery and had pre-op lab work done. My pcp told me that my liver enzymes were elevated; recommended a Hep C screen because I’m a baby boomer. The test was positive and I was referred to a G.I. physician who ordered a battery of blood tests, a liver ct & biopsy. It was determined that I had hep c genotype1.

Started Harvoni in January. Viral count zero after 4 weeks. Will return for viral recheck March 4. Prior to starting treatment I thought that if this was old age contributing to my aches, pains & general feeling lousy that I wasn’t sure that I wanted to live like that. Thrilled to report that my “migrating” aches & pains are gone! I have increased energy and a very positive outlook on life now. Nothing short of a miracle for this gal!

Sheila Siegel Feb 24, 2016

Have no idea how long I have had HEP C but pretty certain that it’s been at least 30+ years... Went through the pega/ribavirin treatment for 48 wks in 2011 was undetectable after first month and all through treatment but was back after 6 months. Waited until I read about the Harvoni at the end of 2014... Started a 24 week regimen of it starting the first of February 2015. Negative all the way, and still negative at last blood test. GA Medicaid paid every dime. Thanks to them and keep up the fight!! Your doctor makes all the difference in how and when you get it. If your’s won't help you find another one. Good luck to all!!!!!!!!!!

Feb 24, 2016

I am a happy survivor of Hepatitis C. Received my treatment at BIDMC. And I can tell the great benefit.

Feeling much better and positive about my liver renovation. The virus was eliminated from my blood stream and I hope that many patients can get the medication I got.

Ursula L Feb 23, 2016

I was diagnosed with hep C 14 years ago. They saw elevated AST/ALT during some routine testing, so they tested for Hep C, and I was positive. I was a teenager back then, so no way I could have it sexually transmitted. I never had surgeries or transfusions, never used drugs. I think this is important to clarify, because we probably have way more transmission in dental care than the state wants us to believe. They diagnosed me with fibrosis F2 back then (biopsy), but my viral load was always below 300 K, and the enzymes not so bad. I had gen 1b, so very low chances to get cured with interferon. I heard that the side effects were terrible, so I didn't even want to try. I tried living a healthy lifestyle, doing sports, eating healthy, but I never managed to cut down on alcohol completely, even though I only drink socially and with moderation. (I don't say you should do it!!!)

When Harvoni came out, I finally had the hope. End of 2015 they did my fibroscan and said I had no fibrosis at all (impossible! I had it long time ago!). So no chance to get the drug. I wasn't even disappointed, I was just so, so angry!

I went to India in December 2015 and bought the generic. It's kind of complicated to get what you need in India; you feel that people just beg for a bribe. It's a different world! I went with Medtour India, so my trip was organized. I knew that this would cost me extra money, but buying “online” was even more expensive (and you never know what rat poison you'll get). Anyway, it is all pennies compared to the price of authentic Harvoni. So I went to India, got the drug, things went smooth out there, no regrets. You probably can do everything out there yourself, too, some people do. It just takes much longer then, time to figure things out, waiting in lines, and still have to pay “facilitation fees” everywhere; even the bloody cab driver tries to rip you off.

So today I am celebrating. Today is end of my 1st month and I got my first test (from week 3). I know it is very, very early. I was extremely afraid to see the results. My viral load is 16!!! I am basically testing negative!!! My transaminases are 22 and 23, completely normal. I feel the urge to cry.

Still 8 weeks to go, I just hope and pray it will stay this way from now on! And forever!

I want everybody to know, if you are denied treatment, don't give up! Praying and hoping is good, but acting is important, too. Don't wait till it is too late, especially if you are in 20s or 30s like I am. If you get the drug first hand in India, you will know that it is the real generic. And they work!!! And the majority of us can afford it, maybe with help from the family or small loan, but it is just few thousands! Nothing compared with our college loans. But it means that we will have the amazing life ahead. And worst comes to worst, if you are in those 2% that had no luck, well, at least you tried your chances!!!

Elaine B Feb 23, 2016

3 months post finishing Harvoni: 0 detectable virus level (I wrote a small summary once I finished treatment last October)

A shortened version; I lived 42 years (all my life) with the virus and found out at age 18 I had hepatitis C through a blood transfusion I had at birth. My mom states I had 13 blood transfusions as I was born 3 months premature and spent 12 weeks in the incubator. I weighed 3 pounds and went to 2. Doctors didn't think I would make it....

I was married happily for 10 years- this is now 8 years ago that I have been divorced. My ex put up with a rollercoaster of emotions which became increasingly so. I ended up divorcing because I grew increasingly agitated and restless. I told my ex simply that I “had to go”. I left him with everything. I told him I wanted to return but he had had enough. Once I was gone, I was gone. Ugh. It was the worst feeling but I had to do it. It also was an un-well feeling that something wasn’t right with me. I do not attribute this to the 7 year itch. I never did drugs or drank alcohol at all, ate fairly well and through treatment I ensured I had a trainer that kept me on a consistent workout. This workout definitely helped me stay positive.

My doctors throughout my life stated I didn’t need treatment as my virus levels were continually low. I had blood drawn every 6 months for a checkup. I didn’t want treatment anyway due to the side effects, some being death and awful relapse rate. I would opt for eating healthy, take milk thistle and a smattering of herbs I would rotate on, exercise and maintain my positive attitude. Little did I realize how much of a f*cking dragon this was and took away from me, my family and my marriage. Look up a picture of the virus- the viral envelope looks like a medieval flail. Ouch indeed!

I will highlight the many changes I had with the virus and post treatment.

Anxiety/Intensity/Scattered Feeling- I INCREASINGLY felt anxious about my job and I felt I could only focus on either a job or a marriage. Luckily we didn’t have kids- I didn’t want to put my kids at risk. So I gave up my marriage and for the most part dated my various motorcycles -8 that entered through my life- which lasted around a year aka 20-25 thousand miles and then I would sell it. Over these 3 months after finishing Harvoni this Anxiety/Intensity/Scattered Feeling is G O N E. The feeling to go through motorcycles is G O N E. The feeling I can hold a relationship is THERE- but thoughts are with my ex. Do you know HOW BEAUTIFUL life is without this agitated feeling???!!! I feel calm, at peace, and that I don’t have to “keep moving”. The motorcycle allowed me to satiate these continual urges ... but I still have my one motorcycle. :D

My eyes- About two weeks after finishing treatment my eyes became very watery. My body found its natural lubricating balance!! I always had dry eyes but never knew this was a symptom of the virus. It took a couple months to balance but I felt like I was “blinking in a sea of water”. I love it!

Sex drive- I hardly had one when I was married nor throughout my life. I HAVE ONE NOW!!! ... and now I 'm close to menopause....hmmmppphhh

Thinking/Brain fog- I always heard about brain fog and people suffering from it. I never knew what it was until I CAME OUT OF THE FOG. My thoughts became “clear”. There WAS a DRAGON IN MY HEAD. Doctors didn’t tell me this mental side effect. This is what I INCREASINGLY fought through in my marriage. Clarity is what I had been looking for!! I am more organized too.

Reading- I don’t have to read stuff 5x to try and “get” the information. Some days would be good and some days would be deplorable for me taking in information. I am amazed I survived college. Now being able to understand what I just read is BEAUTIFUL. I relied on my ex a lot to help me understand what I just read.

Energy- Before I would sleep a lot. My energy was limited. I INCREASINGLY felt I could not satisfy my husband because of my lethargy. I began to alienate myself away from him and just wanted me time. Oh GAWSH just me time. When I divorced I took up motorcycle riding. Was THAT ever therapy!! To the friends I did have, I remained distant. Post treatment I slowly felt connected with people because my energy became consistent. It is THE MOST beautiful feeling to be able to fully listen what people have to say and not feel like you have to leave to just “vedge” in the car or in the bed. My brain used to go off in a direction after talking with someone after a short while. I could feel my energy waning. Now? No issues. Now I LOVE talking and listening to people and being involved with groups and meetings. This is just crazy, but so beautiful that I STILL have a life to live and catch up on.

Those of you out there struggling with whether to take Harvoni or not- DO IT. The fact that doctors say you’ll pass away from some other disease (mine did) may be right, but they didn’t know how much it can mentally f*ck with you and the loved ones around you. I have my brain, it’s healthy thinking. Now I have a healthy body. I LOVE it. Go to the gym, eat right, think positive, do positive things in your life, stay the most healthy that you can. ... but do allow yourself that delicious glass of wine now and then..... ok, I 'm no doctor.

With much love that I can now give away to others, I give you my new strength to get through this. Bless every one of you that is going through this struggle. I hold your hand and everyone’s hand that feels alone and crazy through this. I did. So alone. So alienating. YOU are not alone. YOU can beat this dragon and stomp its flames out!!!

Robin J Feb 19, 2016

Hi, I have had hep c for 45 years from heroin use in my early teen's living in LA.

I have cirrhosis and iron overload. Ferritin level is 2,707. I did interferon and Ribavirin in early 2000's… non responder.

I finished 12 weeks Harvoni on October 26, 2015. Non-detectable.

Last test January 18, 2016...virus is back. My viral load is 311,000, ast 223, alt 215, platelets 84.

They say the virus must have mutated but they really don't know. I am the only person out of 200 at clinic that did not get cured. Doc says “Sorry. Maybe there will be new drugs coming out this year and we may be able to treat again”. I don't count on it.

I am happy that a lot of people have been helped by this drug but did not help me. So I just turn up the music and try to enjoy my days. I wish the best for everyone suffering with this problem.

Have a great day,

Larry

Feb 18, 2016

Damaris R, please get in touch with me… [email protected]

My Mom died too from this drug!! She was 80yo. She took Solvadi & Olysio in March 2014 soon after it was released. Within 5 weeks of treatment, she was so sick. They told her not to stop the medicine. She continued and by the end of treatment, she could no longer walk, she was bleeding through the nose and gums. They said it wasn't the medicine. Her platelets where low and couldn't be sustained. She needed biweekly transfusion of plasma and platelets. It was crazy.

My mother was fine before starting this medicine. She was sick all summer and suffered a fatal stroke on 10/13/14. It's been a nightmare. Hepmag.com has banned me from their forum for telling my story, banned me more than once.

How do we find justice that this killed our Mom's!!!!

Karyn R Feb 15, 2016

Thank God for Harvoni. I was nervous after the debacle of interferon and ribavirin caused a terrible relapse to narcotics. But the Harvoni cleared my hep C which I have had for 40 years.

I was diagnosed 15 years ago because of chronic fatigue, chronic itching, and chronic joint pain. I feel like I have a new lease on life, in spite of the fact that I have cirrhosis. I play tennis 4 times a week; my fatigue is gone; and I am managing my chronic pain.

I am so grateful that there are drug companies who spend the gazillions of dollars for research and development. It was worth every cent--and Gilead paid my $16,000 copay! The Harvoni was NOT a breeze--do NOT let the doctors tell you that it is--90 days felt like forever, but I went to a lot of meetings (NA and AA) for support and talked to others who were going through the treatment and it was a 100 times better than the interferon, which I was on for a year and then it failed, and so did I!

I feel blessed.

Mary Y Feb 15, 2016

I first posted on Dec. 7, 2015 and again on Feb 3, 2016. Here's the run down on my hep c.

1. Went into the army in 1969 and was inoculated with injection guns along with many others, then went to Nam in 1970.

2. Was diagnosed with hep c genotype one in 2001. I took treatment with interferon, and Ribavirin. (No luck)

3. I waited until I heard about Sovaldi on TV in 2014 and contacted my doctor about it but the insurance didn't want to cover. I then went to the V.A., and they did treatment of Sofosbuvir, Peg interferon, and Ribavirin, in fall 2014 (Again, no luck)

4. I then waited to get Harvoni that was approved by the FDA while I was on the Sovaldi treatment. I received treatment in the fall 2015.

5. I said in my last post that I would fill you in. I took my last blood test on Feb. 4th after finishing treatment in Dec. 2015 and received a call on Feb 12, 2016 telling me that after three months I am still undetectable. HOORAY!

6. I will still have to take another test in three months but I feel confident right now.

7. I have cirrhosis at a level of stage 3.5 to 4., so I'm not out of the woods yet but the cirrhosis will slow way down now.

8. I thank the Lord first for healing and giving man the knowledge to help others in trouble, I also thank the doctors and nurses who deal with people like me and you who are not always the best patients, I was depressed and intolerant of a lot of things during treatment.

9. I want to say to all of you out there that prayer doesn’t hurt and having faith in others is also key.

Thanks for reading and don't give up.

Roland G.

PS: To the 46 year old woman who wrote a few letters down the list.

Please have faith and look for all the options, government, medical, insurance, and any other ways to get help financially for treatment. Keep in mind that hep c takes many years to damage the liver. The best options are to not put poison in your body. Quit smoking, drinking alcohol, watch sugar and sodium, and lower but do not eliminate iron in your diet. Stay hydrated on or off treatment. You said you have genotype three, so ask your doctor if you are a candidate for interferon and Ribavirin 24 weeks. That treatment has cured and is inexpensive. I will watch to see if you have any news. Also stay positive because I have had hep c for 40 years and I'm still here.

Roland G Feb 12, 2016

I discovered in the middle 90's through a free complete blood work-up offered by my employer that I had Hepatitis C and it was the most difficult type to cure. I had no risk symptoms; but had surgery and dental work done back when Drs./Dentists did not wear gloves or sterilize all equipment; and also reused needles on patients. So this is how we assume I got it. At this time they had just come out with Interferon as the only treatment for this.

Luckily, I had great insurance at the time and a great Dr. who got treatment approved. I went through a year of Interferon treatments, but was a non-responder. The best advice he gave me was to never touch another drop of alcohol (even though I had only drank a very small amount socially or with a meal occasionally); eat a good meal; try to get rest; continue to exercise; and give myself my Interferon shots about a half hour before going to bed to sleep through the worst of the side-effects. I managed to only miss one day of work and finish a master's degree while going through treatment for a year. Yes, the side-effects were bad - I lost a great deal of weight; constantly felt like I had the flu; and lost 2/3 of my hair. But I was determined not to let this stop me and try to make the treatment work. As soon as I stopped the treatments (a year was the max. you could take it) my hair grew back; I regained weight; and felt better quickly.

The treatment kept me in somewhat of a state of remission until I unknowingly started eating food with too much iron in it about 10 years later. At this point I lived in another state and again had a great Dr. who discovered the iron problem. She put me on a low-iron diet immediately. The iron problem eventually caused me to have Stage 4 Liver Fibrosis though; so I will now be on a low iron diet (about 50% of a normal person's daily total) and need bi-annual checkups/tests with her to make sure my liver doesn't turn cancerous, the rest of my life.

The great news though; is that I was on disability for another reason; and qualified for a grant with the help of the wonderful PAN Foundation and luckily my insurance approved Harvoni as a specialty drug needed (as this was my only treatment option) and went into benefit override. So I was able to complete my outrageously expensive Harvoni treatments. I went through 6 months of treatment with Harvoni. Again, my Dr. recommended taking the Harvoni during sleep at night to sleep through the side-effects. I found them to by fairly minor - taking small amounts of medication for headaches daily; eating properly and using spices to help nausea; and exercising.

My blood work shows I am now clear of Hep C. So I consider this to be a great success story and hope the advice I was given and steps I took to help get through the treatments I received will help others. Now that Hep C has become such an epidemic, I also always encourage people to get checked for Hep C also; since you can have it for years and not realize it until it is too late. I am glad there are commercials on TV now and this problem is getting addressed more because it has helped reduce the stigma that has so long been attached to have Hep C.

Feb 10, 2016

I was diagnosed with Hep C November 2015. Complicated by a clotting disease (protein S deficiency). The labs were checked by rheumatologist on my first visit with him. I was sent to confirm Sjogrens. I was told over the phone, told to come in for additional testing… gnome 3. I was referred to a top notch hepatologist. His first words were “we are going to cure you”. I cried.

Weeks later after ultrasound (stage 0, no fibrosis) my insurance says I'm not sick enough, so no treatment. The doctor says there is a clinical drug study coming up (which was supposed to be in January) and he was going to put me on the list. But of course I would have to meet criteria, which is unlikely since I'm on blood thinner for life among other illnesses.

So I'm a smart, attractive 46 year old who feels as though she has been tossed aside and thrown out to pasture so to speak, waiting on death, which to be honest, would come as a relief. The pain and depression are at times unbearable. And knowing that there is possibly a “cure”... well, guess the “powers that be” don't deem me worthy....

Feb 7, 2016

I lived with HCV for 63 years, and 25 years with a transplanted liver that has also become cirrhotic in the past 5 years. But in mid-2014 the HCV was killed in me and now my scarred liver functions well.

My book “A Physician's Journey with the Hepatitis C Virus - Historical, Medical and Ethical Reflections” (Xlibris, 2015) reviews the story of my chronic disease as well as my personal and professional life in its context - interwoven throughout with ethical reflections. It is available on the online market (like Amazon) in paperback and in e-book formats.

Antal Solyom Feb 7, 2016

My mother had hep C for a few years. She went on treatment twice. The second time she was on a higher dose of ribavirin and Pegasys. She was on it for 6 months.

According to the blood results the treatment was working. Throughout the treatment she was very low in platelets. On the beginning of the 7th month we get a call from the docs office to tell us to stop the treatment immediately, and make an appointment to see her doc. A week later my mom was gone. She had an aneurism and nothing could be done because her platelets were so low, she would have bled out from the surgery.

If you are thinking about going on treatment please be aware of the side effects. If you are on treatment now, listen to your body, take care of yourself, and ask a lot of questions. I pray a cure can be discovered, available and affordable to all who need it. My mother was only 45 years old and we miss her every day.

Damaris R Feb 6, 2016

I found out that my husband had hepatitis about 9 months ago. He tried applying for health insurance and they drew blood and it came back he had the virus! Of course I tried not to panic so I went and got and tested. I had it too! To make it worse we have 3 adoring children together and I was afraid for them! We had our children tested and they were negative, thank God!

We also learned we had geno 3, which I understand is one of the worst! I was afraid to say the least! To my surprise I got an awesome doctor who didn’t drag her feet about treatment and I'm happy to say within one month of treatment I had no virus detected and I have about 6 more weeks of treatment left! By the way, I did 6 months with Sovaldi and Ribavirin.

I've been very sensitive to the medication. The worst part was the side effects that I had experienced! I wanted to stop the medication had to go to hospital many times for upper respiratory issues like pneumonia and a staph infection from itching. I finally found a doctor that treated me with a simple allergy pill which helped a lot with the itching! It was all worth it to me!

My husband just started his treatment which I commend him for the doing the three medications. I hear the Pegaferon is the worst. He too is hanging in there and like we both said, if nothing else we are going to tough this out together and go through the hell because of our children. It's a small price to pay to be rid of this horrible virus!

We have changed our eating habits and found that simple things like fruit nutribullets and kale in your diet really make a big difference whether you have started treatment or not! His viral load was 800000 and with just diet change his viral load went down to 2 million. My viral load wasn't that high at all. There is light at the end of tunnel! And I believe that it helped that we stuck together and fought together!

Peggy B Feb 5, 2016

Go to www.gilead.ca and you can read the 70 pages of negative issues about Harvoni and Sovaldi.

I will NEVER consume prescription medication for Hepatitis C. Seriously. Who would want to compromise their immune system with synthetic material that will likely cause a host of other problems in time to come?

The prescription drugs I was offered were Daklinza (daclatasvir) and Sovaldi (sofosbuvir) but I am refusing them. Daklinza inhibits the “NS5A protein”

but SO DO flavonoids such as Quercetin and Naringenin (which come from natural substances) and are available without a prescription. By taking prescription drugs for Hepatitis C, what a person is really doing is saying yes to corporations taking control of your health care and life which leads to a breakdown in one's immune system and overall well-being. In addition, this places more of a financial burden on the individuals and the medical community in terms of cost. Side effects will likely occur and they can be debilitating.

Feb 4, 2016

I have hep c. I have had this for many years and have been fighting to find a good cure. I'm at my wits end with this and don’t know what to do. I always feel fatigued and I'm not sure if it is from waking up at 3 am for work or the hep c?

Doug F Feb 4, 2016

Well tomorrow is February 4th and I'm going to the VA Clinic for a blood test to see if my hep is gone.

I signed on the site about 20 letters ago. Look down the list in December for my story if you like. This was my third treatment, this time with Harvoni. During treatment I had to get a pacemaker put in. I don't think it was any of the treatments that caused it but, I think I was starting to have trouble before and the treatment may have sped things up because I was on Ribavirin too. Anyway, this is the blood test that tells all. In two weeks I will see the doctor for results. Hopefully the hep will be gone this time. Then in six months we will test again. Watch for me in two weeks and I’ll fill ya in.

Roland G.

P.S. Stay hydrated if on Ribavirin and Harvoni.

Feb 3, 2016

I have a friend that took this so called new drug for hep c. He had operation for liver cancer before starting this drug. The Veterans Administration told him that he was 100% in remission. After six months he went back to visit his Dr of Hematology, only to find out his hep c was back full force and his liver cancer too. I like to know how many people are no longer in remission. If the drug is working or was just pushed though in trails to get it approved? Is anyone taking this?

Greg Hayes Feb 2, 2016

I found out I had Hep-C about 35 years ago. After going through 2 biopsies, around 10 years apart both turned out OK. That’s when I first found out I had it. So after 15 years my doctor told me about Harvoni. I did some blood work and found out I was stage 4, so I got on the program right away and finished my 6 week course and I am totality free of HEP-C. My only wish is that it would be available for much younger people, so they could enjoy more of their lives.

Feb 1, 2016

I was just diagnosed with hep c.

I have had it for 40 years I'm thinking.

I have never been sick, no symptoms. I just lost about 8 lbs without trying. I'm thinking that this is what made my dr. check it out.

I don't know what to think. I'm wondering if I need to do anything. I go back for more blood work in 3 months. I was born in 1956; I've read that this is a typical time for positive tests.

M C Jan 31, 2016

This is my second entry. I can't sit back and not share what's lately been on my mind. First of all, I am a Genotype 2a HCV carrier with (as of Oct 2013) a viral load of a million, no fibrosis. I most likely contracted the disease when I was a baby during a surgery.

Fast-forward to now...age 33....I don't drink alcohol. I watch what I eat (trying to limit refined sugar/sugar to 20 gs or less per day). I don't take prescription drugs and never will. I have a mentor in Lloyd Wright of Alternative Medicine Solution. He has enlightened me and many others battling this same disease. He has written books with valuable insight into why it's important to be your own advocate ahead of the corporatization of health care aka the pharmaceutical industry.

In my humble opinion, the Affordable Care Act is great if all you're looking for is tests conducted or surgery. But as for anything beyond that, doctors are just looking for ways to profit off you. If that means trying out Hepatitis C drug therapies on people like us, beware. The side effects that go along with many of them, including the latest Harvoni, can bring about some troubling health problems down the road. I've read emails and studies put forth on Lloyd's website and it's astonishing.

I have a meeting with my new GI next week and I'm honestly telling her upfront that I am refusing any suggested/prescribed treatment. I am placing my faith in God and Mother Nature. Besides, why would I go through such treatment if my CBC indicated my lab numbers overall (despite elevated AST/ALT) are good? Especially my RBC, WBC and Platelets.

I'm sick of the pharmaceutical company lies. I'm sick of them inundating people with television commercials about Hepatitis C treatment. I'm honestly ready to explode. Sometimes lately I've felt slight rage inside.

By the way, please vote for Bernie Sanders. He will change the way money and ideas are exchanged within America. He will also challenge the companies that claim to be looking out for our health. I'm sure of it.

Greg L Jan 30, 2016

I finished Harvoni on 9/13/15. I did my ultrasound on 9/28 and it was great. Then I did my 3 month ultrasound and I have a 4 cm mass in upper lobe of liver. I am devastated as well as scared. My doctor from Stanford University is doing another ultrasound and this time of lungs abdomen pelvic area. I asked why when he could have used TACE right away. No answer. Scans are Feb 2.

Anyone with same experience with Harvoni?

I'm scared.

Martin F Jan 27, 2016

Hello. I have hep c and for the past 6 months I am under the treatment with ribavirin & interferon injections. I got infected over 12 years ago and I was diagnosed a year ago.

I don’t know how I got infected but my main suspect is the dentist because that is the only place where I was in contact with injections and blood.

My first treatment was working fine, but over the Christmas I found out that my boyfriend was cheating on me so we broke up. Of course that was a very bad personal time for me with lots of stress and I developed a huge allergy and it is probably to one of the drugs I am taking. So I am taking Claritin for it but my treatment is not working as it should all of the sudden. The viral load is not as low as it should be by now and the doctors were considering canceling it at first, but now they decided to continue. But they will give me another drug, Simeprevir, to take with Ribavirin and interferon to get them to act stronger and bust it up, as they explained it to me.

I also have to have a test to see if I have polymorphism. To check if that is the reason why my drugs are not working properly... and I am just waiting for results for that. I have to say that I have a really great doctor and I trust him fully. I am so happy that I found him.

I saw posts where some people also had poor receptions to their treatment so I wrote this because it might help even though I am not sure if it will work even for me. But I decided that I am going to get well and I will.

I also got myself armed with some alternative stuff such as silver water, enterosgel, beetroot & ginger & carrot juice. I am counting everything I eat and drink and I am starting to feel positive changes. I also use old folk remedies to fight with side effects of hair loss, depression, lack of sleep, muscle pain... as I have lot of time on my hands I started studying about old folk medicines and they do help!

All my days are spent trying to maintain myself and keep my body from falling apart. It is hard; depression and lack of energy for me are the worst!

Nada B Jan 26, 2016

I found out that I’ve had HCV since 2007. I got treatment with interferon and ribavirin for 48 weeks but I just took treatment for 42 weeks only. I stopped the treatment because of the side effects. When I started the treatment, after 3 months my HCV virus was gone but after one year I checked my PCR test and the virus was back.

I felt so bad.

My doctor was saying I would have to take other treatment for 72 weeks. I said if I can't take it for the 42 weeks how am I going to take it for 72weeks? I told him no. If I am going to die, I will die without this treatment. I was feeling so bad I started to search the internet for homeopathic or herbal treatments. I started to use milk thistle, vitamin C, vitamin E, antioxidants, selenium, and zinc. I changed my diet. I stopped drinking alcohol. I started to eat all greens and fruits. I did this for 6 months after I did my PCR test and my viral load went down. Before I started the homeopathic treatment my viral load was 600. After treatment it was 160. I was happy! My doctor was surprised and asked how I did it? I said I am doing a herbal treatment. She was wowed. I am still using same herbs. I never stopped. I am also exercising regularly, 3-4 times a week. I never get overweight. My weight is 59-61kg. I am happy that there is now a new treatment and I hope one day I will get rid of this HCV shit. Sorry.

One more thing, 2-3 times everyday take 2 servings of beat root juice with carrot and apple. This is very good for liver. Try to not eat anything fried or fatty. Sometimes, I eat the chips that I love but after I run for exercise.

Good luck!

Jan 26, 2016

I found out I had Hepatitis C about 3-4 years ago. About one year and a half, I was referred to a doctor who would give the old treatment. Interferon, plus two other types of medicine but they were oral meds. I got so very sick that I had to stop that treatment because my Creatinine was so high. After 4 weeks, I could hardly walk. The blood test read 4.8 on the last test I had before I quit that treatment.

Now I have tried to get the new medicine, but the Doctor I saw then said the company Gilead told her I wasn't sick enough. I was so upset. I was sure I would get it. So now I wait. Thank you.

Sincerely,

Sue J.

Sue J. Jan 25, 2016

Hi, my name is Richard. I did the interferon treatment in Oct 2015. They stopped it in May.

I have had nothing but bad side effects since and they seem to be getting worse. I can’t think right, soggy brain, forget things easily, can't control my anger very well, I get mad over the smallest things, and always have no energy. It's almost costing me my relationship.

I got denied disability but I can't work. I am afraid that I may harm someone someday.

Are there any lawsuits for interferon? Please help. Thanks!

Richard Bourgeois Jan 23, 2016

Well, I found out I had Hep C back in 94 when I had my gall bladder removed. Did the interferon shots for 6 months, didn't work. Did another round of shots along with Ribavirin pills, this didn't work either. After that just yearly blood work watching liver enzymes and never felt very badly so we figured all was OK. My Gastro Doc quit his practice to become a hospital admin so I went to new one who decided to do an ultrasound. We found a spot, very small, but he wanted to find out more. Did a biopsy and discovered it was cancerous. First liver specialist I saw said it was too small to treat so we should just watch it for awhile. Decided to get a 2nd opinion and was told I could have what is called an ablation. This is where they basically stick a rod into the small tumor and zap it from the inside out which keeps the rest of the liver from damage. It went well and there are some other small spots but not bad.

After fighting with United Healthcare for over 7 months and paying an attorney to write letters to both them and the insurance commission I started my journey with Harvoni, 24 weeks regimen. Had no problem taking the drug, no real side effects. After first 4 weeks my VL was down from over 2 mil to like 15,000. With the next blood work the VL was undetected, what we all want to hear. Finished the 24 weeks and still virus free and liver functions well within normal range.

Knew It was gone and all was good and then I had the big 12 week post treatment blood work and guess what, the VL is back over 2 mil and liver functions are slightly above normal again, damn. Certainly wasn't the news I was expecting but it is the news I got, so what’s next? Have another MRI and chest xray next week, doing these every 3 months, to monitor liver and to see if anything else is affected. I am happy for all of you who have gotten rid of this virus and hope someday I will join you.

Bill M Jan 21, 2016

Saludos!

Esta historia no se trata de mi sino de mi hermano de 37 años de edad. Mi hermano sufria de esta enfermedad y así mismo sufriamos toda la familia. Mi hermano tenia mucha experanza y sobre todo queria vivir. Esa es la parte mas importante que todo pasiente debe tener claro en su mente, querer vivir...mi hermanito murio por no poder recibir tratamiento. Un tratamiento ridiculamente costoso y a cambio que las agencias pertinente no lo pudieron ayudar. La parte mas dolorosa de mi historia es que si mi hermano hubiese recibido su tratamiento, tenia el potencial de recuperación hasta un 90% de efectividad. Esta enfermedad tiene cura, lo que no tiene cura son las personas y/o agencias gubernamentales que las administra... les deseo que sigan luchando y tengan en sus mente el deseo de vivir....LA SALUD NO ES NEGOCIABLE. muchas gracias y que Dios los bendiga a todos!!!

LR.

**Greetings!

This story is not about me but my brother who was 37 years old. My brother suffered from this disease and the whole family we suffered as well. My brother had a lot hope and wanted to live. That's the most important part of all. It should be clear in your mind, wanting to live ... my brother died because he was not able to receive treatment. A ridiculously expensive treatment which the relevant agencies could not help us with. The most painful part of my story is that if my brother had received treatment he had the potential to have a recovery which is up to 90% effective. This disease has no cure, no cure for the people and/or government agencies that administers ... I want them to continue fighting and have in their mind the desire to live .... HEALTH is not negotiable. Thank you very much and God bless you all !!!

LR.**

Luis Ruperto Jan 20, 2016

After being diagnosed with Hep C 20 yrs ago I decided to finally seek treatment. I wanted Harvoni but Aetna insisted I try the Viekira Pak first. I'm happy to say the Hep C is now undetectable after 12 weeks treatment. Also, no side effects at all.

Don't wait, it's never too late to get treatment.

Tim E Jan 20, 2016

I am 79 years old. I contracted Hep C in 1983 through an infusion of blood products, a cryo-precipitate. My diagnosis did not occur until 1997 when I had some tests to determine if joint aches were caused by rheumatoid arthritis. The doctor who conducted the test became suspicious when I told her of my blood infusion and she suggested a test for Hep C. The blood work confirmed her suspicion.

I was referred to a gastroenterologist, Dennis Yamamoto of Reno, NV who specialized in Hep C. He, in turn, consulted another specialist from the San Francisco area. Because I am a mild hemophiliac, a needle biopsy of the liver did not appear wise. Also, the three of us decided that the efficacy of the interferon related treatments being used at the time was so poor that I would be better off to not start on any drug regimen. The doctor commented, “You will die of something else before the hep c kills you.”

I was monitored by the gastro doctor with abdominal ultrasounds 2x a year plus quantitative tests on the hep c virus in my body. I exhibited no symptoms whatsoever and the damage to my liver remained at stage 1 cirrhosis. My Hep C genotype is 1b. Viral load averaged 5-6 million.

In 2013 the gastro doctor told me about the development of a new drug which appeared to be able to cure my genotype, 98% success rate. He said he thought the drug would be available in 2014/15.

In early 2015 the drug, Harvoni, became available and together we applied to my insurance carrier, Anthem Blue Cross, for coverage of the drug for a 12 week period. Anthem agreed. I began taking a daily dose of Harvoni on May 21. 4 weeks later a blood test showed that the Hep C virus in my blood was “undetected”. Two more blood tests, at the 8 and the 12 week marks, continued to show the virus as “undetected”. Of course, what is important is the SVR, sustained viral response, over a year. My next blood test will be in February 2016. If the virus remains undetected at that time I believe we can report that I am cured of the insidious disease.

I am most grateful to the scientists at Gilead Science who developed Harvoni and to Dr. Dennis Yamamoto of Digestive Health Associates, Reno, who has so professionally taken care of me for these last 19 years.

Harry W Jan 20, 2016

I was diagnosed with Hep C in 2007. Don't know when or how I contracted it. I never had symptoms. Was in a drug store one day and a nice lady convinced me to have one of the free tests they were dispensing. I said what the heck and agreed. I tested positive. Long story short, I have taken 4 different types of antiviral meds: Pegylated interferon and Ribavirin. I forget the name of the second one. Most recently I was treated with Harvoni. It reduced my viral load but did not eliminate it. This was followed by Viekira-Pak. It temporarily eliminated the virus. But it came back. Evidently I have a resistant strain. I cannot find much literature on Hep c drug resistance. Does anyone know of any literature or studies in this area?

Richard G Jan 19, 2016

Had Hep C for over 30 years. Interferon was no good. Tried other things to no avail. Finally with stage 4 Cirrhosis, I was given Harvoni. 12 weeks later no viral load. Now 9 months later, still okay! Now I have to watch the liver, but that’s ok, I was never a big drinker. I suggest do what you can, beg your insurance company. You shouldn’t have to wait until your liver is at stage 4 to get Harvoni. I’m just glad it was covered or I would have been lucky to live another 5 years.

Scott M Jan 19, 2016

I got hep c as a teenager. Then it didn't even have a name, it was called non a, non b. Years later went through interferon treatment. It was a success, and have had no viral load since.

I am having joint pain, muscle pain, weakness and fatigue. It is progressing. Once the doctors hear that I had hcv in the past they always contribute my symptoms to the hcv.

I really think something else is going on, but they always say it's the hcv. I don't understand how hcv is causing these progressive symptoms when I have no viral load and haven't in over 15 years.

Anyone having a similar experience? Can someone explain to me how a virus is causing symptoms that are worsening, when the virus isn't present?

Thanks!

Jan 17, 2016

Just wanted to share the story of my hep c journey so that others may find encouragement & enough strength to keep trudging along through this journey:

I contracted Hep C sometime in my younger, wilder years through either a piercing or tattoo. Like most people, I did not find out I had it until March 2014. How I found out is rather important, peculiar, and extraordinary all at the same time. I began experiencing incredible pain in my joints. The most severe pain I've had, next to childbirth. It was strange as well as excruciating. It would come on and get stronger and stronger over the next few hours until it debilitated the limb it began in. 1-3 days later I regained use as pain moved to another spot in my body. Then I had several days, sometimes even weeks before this cycle of horrendous pain returned, affecting and debilitating an area before moving on to another, then another, and another. It came in my shoulder, then in my wrists, elbows, fingers, toes, ankles, knees. I have been in a sling, crutches, wrist braces, ankle braces, bed ridden. I used to literally crave ice packs.

I wanted to share this for 2 reasons.

1: I wanted others experiencing this type of pain to not feel crazy! I began to feel a little crazy when every blog I read and everything I had researched never suggested the type of pain I was experiencing to be a symptom of hep c. Even my hepatology specialist would not believe that this severe pain was being caused by hep c as she quickly brushed me off to seeing my primary care for it instead of prescribing something to ease the pain.

2: I believe God manifested this pain within me so that I would go to the doctor to have this diagnosis revealed so that I could seek treatment for it before it was too late. Otherwise I do not think I would have gone as I am not much of a doctor goer. Once I went and discovered the diagnosis I researched for hours and hours, days and days. Like everyone else I realized how scary and dangerous this virus is. To top it off, my very insurance company was mentioned in numerous blogs as being one of the most common insurance companies for denying hep c treatment over and over each time it was appealed by people. This made me incredibly worried. I prayed and got my church involved to pray over me and with me. I knew God had planned to save me but how?? Treatment is absolutely unaffordable without insurance!! Do we sell our house? Take out as much home equity lines of credit as we could? Sell off everything we had?? After seeing the specialist, taking all the blood & liver tests, the doc sent over the request for treatment needed for Genotype 2b. Not only was I experiencing a rare side effect of hep c but I was also one of the most rare genotypes there are in America.

I worried and my faith wavered. The pharmacy called me less than 48 hours later to tell me I was approved and they were shipping the first month of treatment pills to me immediately. I couldn't believe my ears and spent 20 of the 30 minutes we were on the phone grilling the representative to ensure there was absolutely no mistake! He assured me there was not so I praised God more than I had during my entire life, I'm sure. Then I began to worry about the side effects of the drugs I had to take. There were pages and pages of typewritten side effects as I was prescribed Ribavirin and Sovaldi.

God blessed me there as well. I had absolutely NO side effects AT ALL!!! I took the treatment for 12 weeks. Another 12 weeks after treatment ended I was tested again (12/01/2015) and the results were negative for hep c, I was cured!!!! I am sharing this story because I believe God healed me through his Son Jesus who died on the cross for not only our sins but also for our diseases, sicknesses, and all other inequities. I believe He wants me to share with anyone & everyone who will read. I also believe there are people suffering right now who are waiting for approval from their insurance companies, or waiting for the second, third, fourth, fifth appeals to be approved as well as some that are waiting for a liver transplant who need real life encouragement and hope for their own futures. I am here to give that to you. Never ever give up and keep on waking up each morning thinking this is the day that it's going to change for you!! Here are a few Scriptures I clung to:

“For the glory of Your Name, O Lord, preserve my life. Because of your faithfulness, bring me out of this distress.” Psalm 143:11.

“I waited patiently for the Lord; he turned to me and heard my cry for help.” Psalm 40:1

“Lord my God, I cried to You for help and You healed me.” Psalm 30:2.

“Show Your favor to Your servant; save me by Your faithful love.” Psalm 31:16

“The righteous cry out, and the Lord hears, and delivers them from all their troubles.” Psalm 34:17

“My son, pay attention to my words; listen closely to my sayings. Don’t lose sight of them; keep them within your heart. For they are life to those who find them, and health to one’s whole body.” Proverbs 4:20-22.

Finally, I was taught to realize this awesome healing wasn’t about me, but about God’s glory and Jesus Christ’s glory. “So then it does not depend on human will or effort but on God who shows mercy. For the Scripture tells Pharaoh: I raised you up for this reason so that I may display My power in you and that My name may be proclaimed in all the earth.” Romans 9:16

Erika P Jan 14, 2016

My name is Bushra Anjum and I live in Pakistan. In 2002, I had an accident and received treatment in a government hospital. After 5 years I realized a change in my health- fatigue. Because of this reason I went to a lab for some tests. My test of HCV was positive and after seeing my test I was very shocked and worried that I would infect my family. But I came to my senses and went to doctor for advice. He told me that my illness was in the initial stage so I can take a six month treatment. So I took the six month treatment and performed and the testing the doctor required. Thanks to Allah, after the six month treatment my tests were clear and now I am living my happy life without any stress.

Bushra Anjum Jan 14, 2016

I was diagnosed with Hep c, genotype 3a, 8 years ago. At that time, I was offered the available treatment with interferon. I did my research and decided do not take it... Since then, I have been on strict diet. I never drank alcohol even before I was diagnosed with hep C). I exercise, take all natural supplements such as milk thistle, turmeric, artichoke... I’m living a holistic life. I was waiting for oral drug and finally, the FDA approved Sovaldi/Daklinza (that's the medication for my genotype).

I started my 12 weeks on October 1, 2015 and finished my treatment on Christmas day :) . I had blood test on 1/26/15 with result viral load 0, no virus detected. My follow up 1st blood test is in 4 weeks (January 20) and then March 20, 2016.

During treatment, I didn't have any side effects. I was able to work, continue my diet and exercise. I felt tired but it was manageable. I am very positive person and I am confident that my blood test will show no evidence of the virus. March 20,2016 is the day when officially I will say, I am cured!!! This medication is Miracle! I hope, that every single person with Hep c can afford this treatment and finally be free of this horrible virus. Wishing everyone best of luck and healthy life!

Anna Barkhoudarian Jan 13, 2016

I am currently in my 8th week of generic Sof/Ed from China. I accessed my meds through the FixHepC Buyers Club. Only sides are insomnia and the occasional headache. Energy levels are much better too now. All bloods are fine. I was undetected at 4 weeks.

The Australian Government has now listed new new DAA's on the PBS and are supposedly going to spend $1b to treat patients. This won't even scratch the surface!

My humble opinion is that generics are the way to go for those who look like they are going to have to wait extended periods of time for treatment. Of course I believe that the sickest patients should get the treatment first and foremost.

Best wishes to you all.

Lynne F Jan 10, 2016

Hi, I contracted Hepatitis C from a blood transfusion in1982. I am now waiting on a prescription for Sovaldi and Ribavirin for type 2a. I am happy to find this message board for support and encouragement.

Lena W Jan 9, 2016

I contracted hep c in 1982, through a blood transfusion when my youngest child was born. In 1993 I was told I had hep c antibodies in an annual blood test. Being very naive I thought “Great! I have antibodies to fight hep c!”. In 2003, I moved and changed insurance and became ill. We quickly started the full treatment, 3 months later, Dr. said it wasn't working. We will try the next new meds that will come along.

In 2008, I quit my job and tried again for 48 weeks. Just as sick as before but I was determine to do it again. After 48 weeks it didn't work. Meanwhile my husband came down with 4 stage lymphoma (he is in remission now). In 2011 we moved in with my daughter and I tried again but I was very ill. Transfusions, septic, and all the side effects they warned me about, I had at one time or another. It was successful!... for 3 weeks. I got a UTI and pneumonia and had to stop the rest of the course of medicine. Yes, it came back quickly.

We got on our own again after building some strength. In 2015 my doctor had moved on and my liver tests put me in cirrhosis. That’s the first time I heard of Harvoni. It was so expensive and by now I'm 65. I didn't know if they would waste it their money on an old 3 time loser. But Kaiser Permanente has been wonderful with my husband and me. They approved it and it WORKED!

I had to take ribavirin with it but I wasn't near as sick as I had been the other 3 times. I know it has been a long story but I wanted you to know that you can survive. Each time a new treatment came out I said I can't not pray for treatment and not try what was being offered. I am soooo glad for those of you who have Harvoni and one person said there was a generic out too. Good luck to you all!

Jan 8, 2016

2005 -Tested positive for hep c.

2009- Underwent peg interferon cure with no success.

2015- Underwent Abbvie drug therapy for 24 weeks-no success but instead at end of treatment informed of liver cancer with tumor growing in portal vein.

- Underwent 6 treatments of Radiation SABR

-Surprisingly ast and alt levels came back normal then and today, one month after radiation??????

Today- Underwent ascites tap (1st) and removed 8.3L of liquid around the abdomen.

Next- Appt w oncologist on Feb 11 for ct scan then blood work to check viral load again.

Curious as to why ast and alt would come back normal as they have never been in over 10 years?

mark w Jan 8, 2016

Started sovaldi daklinza and ribvirin today. 12 week course. Geno 3a for 14 yrs. Keep you posted. God bless !

donna f Jan 7, 2016

Hep C free life: Not a destination, it is a journey

I slayed my dragon!

Hep C free life is it a dream or reality that I thought was impossible to achieve but now seems so much realistic. After years of infection, I am now cured.

I contacted hep C from a dental procedure 13 years back. It felt like you are being punished for someone else’s guilt. I went through a 48 week interferon and ribavirin treatment. The experience was horrible. I was anemic all the time, fever, ache, chills were my every days companion. Don’t want to remember those days. But treatment was working I was undetectable end of the treatment. But I didn’t achieve SVR24.

Hep C relapsed. For 3 years no treatment. Then come light at the end of the tunnel, oral drug for Hep C. But being a citizen of an under developed country these drugs were out of my reach. Then in Feb 2015 InceptaPharma, a local pharmaceuticals company in Bangladesh, launched the world’s first ever generic version of Sofosbuvir. But being a Gen 1b interferon relapser I was told to wait because generic version of Harvoni (Ledipasvir/Sofosbuvir) will be launched and it was true. Incepta also launched the world’s first ever generic version of Harvoni. From Sep 2015 I started treatment. Initially there was fever and pain. But it was worth it. I was undetectable in 4 weeks treatment. I recently did my SVR4 and still undetectable. Special thanks to Incepta for launching this product. I was told thousands of patients worldwide are using this drug.

Thought I should share this story with everyone. So that everyone can know the name of country from where beacon of hope for Hep C started it journey. For your convenience I am sharing contact details of Incepta.

Asif Mostafa

Senior Brand Manager (Anti-viral)

Email: [email protected]

Cell No: +8801713338492

Mazharul Islam Jan 6, 2016

When I was initially diagnosed with hep C 16 years ago, I was told that I would be dead in 5 years.

I went into a deep depression for 6 months and really felt myself beginning the process of dying. Then, news of a pregnant daughter brought me to my senses. I wasn't ready to die. After a great deal of research I discovered that the liver regenerates. I went for acupuncture as needed for 5 years and used the Gerson diet as a guide to wellness. I used milk thistle and avoided toxic herbs. My viral loads dropped significantly along with much unnecessary weight. I quit drinking and using chemical cleaning agents. I did not take any pharmaceuticals. I exercised by walking.

Now 16 years later I am healthy, still working 60+ hours per week and maintaining a positive outlook, a healthy diet and clean liver. I have watched many of my peers die in the last few years because they believed Big Pharma and felt that they could survive without making lifestyle changes. Life is a choice. All you have to do is make a choice to live!

Eve G Jan 6, 2016

I had some blood work done check to see if everything was ok. I was released from the hospital with Diverticulitis, bleeding from the bowls. This has happened 3 times in the past four years. This last episode I was given 3 pints (Packs) of blood in the hospital. It raised my blood count up to a safe level.

When I went for my follow-up, my blood was not at a safe level with my new doctor. She put me on Iron tablets (2 a day). I was check a month later along with other blood work and she said my blood levels where good but said my liver showing signs of possible infection. On the other hand as I was asking about my other test and she stated that my liver was normal. She requested I come back in for another blood draw. I have to wait until Monday to get the results. I just want to know what I need to expect? Should I get a second opinion?

Patricia M Jan 2, 2016

Today is Tuesday Dec 29th 2015. Yesterday I got my lab results. I am cured from Hepatitis C. I given the Credit to My Higher Power Jesus Christ and OAPA God in Heaven! He gives idea's to scientists and doctors. And He still performs Miracles! If you need prayer and encouragement, call me, James. We have a support group it's called Beyond hepatitis C on Facebook. 4084259396 Viekirapak is my Treatment. I have to keep taking for 23 more days. Just to make sure my blood and liver is clean. God Bless these Your Children!

James L Dec 30, 2015

Hey people...

I found this site today as I was searching to find out if the treatment that I'm on for hep-c ....Solvaldi/Ribiviron had side effects that worsened with time. I've been on this combo for 3 weeks now. My viral load went from 19,000,000 down to 79 within the first 2 weeks. I've never been happier in my life! However, the nausea, headaches and fatigue have gotten worse. Did anyone else find this during your regimine? Also for those of you seeking funds try A CREED or Patient Access Networks @ 18663167263

May God bless us all!

Dec 30, 2015

I (age 39) talked to my mom (age 61) at 2pm... She was fine.

At 4pm my mother was found deceased.

At that moment I decided to take control of my health. I began with a physical and working with my primary to lose weight. Four months later, I went for my annual pap and pelvic exam where I requested a full STD panel. NO SYMPTOMS - NOTHING WRONG..

A week later, I'm called to come in..... diagnosis - HEP C!

NOW, 3 months later, after several tests, and dealing with my insurance (1 week).... I began taking HARVONI on December 24, yep two days ago.

The first day I COULD NOT STAY AWAKE.

The second day I had weird headaches. They'd last for 5-10 minutes leave for about half an hour and return. AND I was up ALL night.

Today is day 3, after doing some research, I’ve decided to take the pill tonight.

Jessica R Dec 26, 2015

My name is James Robert. This is my second entry...

I am almost finished with my 8th week of Viekirapak treatment! I can tell my Liver is getting better. I'm still tired all the time. I don't feel like getting up most mornings, but I get up and pray and go anyway. Life, I must live!

I went to Disneyland 2 weeks ago. My feet hurt the whole time. I wonder if that's from the medication or just old age and lack of exercise? I know I need to get to the gym! Something stops me from going there…

Anyway, feel free to call me (1-408- 425- 9396). I'm in a group called Life beyond Hepatitis C. In Jesus name, I am healed by the Power of God and science! Nothing formed against us will prosper! Be strong and courageous!

James L Dec 23, 2015

In 2000 at age 17 I was excited to be able to donate blood for the first time. I felt fine.

Not long after I received a letter from the American Red Cross telling me not to donate again. That I have Hepatitis C. I had never heard of it before. I might have heard of Hep B but never Hep C.

And I don't know how or when I contracted it other than maybe when I was 9 months old (craniofacial surgery - mild case of Crouzon's Syndrome) or for a reconstructive surgery at age 16. But I'd say it was at 9 months old because when I was 16 I didn't receive any blood transfusions.

Nonetheless, fast-forward to now and I have completed 3 full marathons, 2 half marathons, gave up alcohol in November 2012, have a viral load of about a million (according to CBC taken in 2013) and good platelet, albumin, red blood cell and ferritin/iron levels. The only things not well are my ALT and AST enzyme levels. ALT = 326; AST = 169. Too high. I cut back on my herbal supplementation and am only now taking Super Siliphos (Milk Thistle); Quercetin w/Bromelain (800 mgs 2x day) Selenium 400 mcg day and Naringenin. I am also considering taking Bee Pollen, Propolis and Royal Jelly (Combo supplement) as I've read it helps for people with Hep C.

What really irritates me is I feel lethargic at times but also more easily irritable. Some days as of late I have contemplated going through actual doctor-prescribed treatment but I don't want to suffer the consequences (side effects) which may end up sooner in death. I get so mad at the health system altogether - just how much of what doctors seem to care about is profit and how to attain upward social mobility.

I recently got married and I can see how I am sensitive to things more so than before. I'm just a mess. I wish I could be healed of this poison. But I hate the system that is in place - corporate greed that wants to profit and kill people faster.

Greg L Dec 23, 2015

Australian and nearly 60 years old. Contracted Hepatitis when 20 years old from shared needle use. No drugs since but during my 20's alcohol was frequently used. Back then no treatment given for Hepatitis, just “rest and get over it” like the Glandular Fever I had 12 months previous.

After 37 years it came back with a vengeance with large sections of neuropathy to my lower legs and lower arms through side effect of cryoglobulin and further side effects to neuropathy. Thought I was having a stroke(s) as there was a lot of stress in my life at the time.

Been on Interferon and Ribavirin for 28 weeks and just found out that it hasn't been successful. My only hope was the Gilead drugs which are out of the question at $100k a treatment. A pox on the shareholders and price setting marketers at this company, which seems like massive greed riding over the corpses of many unfortunate people.

No excuses for a self inflicted disease but smaller margins over many users is just as profitable as large profits over a few.

I've had very little side effects over the last 28 weeks but suspect that I've been “coping” with some of these sorts of effects for over 30 years.

Australian Government today, 20 Dec 2015, announced that they will subsidize ALL patients affected by this disease. Gilead treatments will now have a maximum price of AUS$38.00 per prescription, some patients as low as AUS$7.00 per prescription.

EVERYONE SHOULD PUT PRESSURE ON THEIR GOVERNMENTS TO DO THE SAME. IT'S NOT OFTEN AUSTRALIA LEADS THE WAY ON THESE TYPES OF THINGS.

I'll probably have permanent nerve damage to parts of my legs, feet and hands but can function OK if the other disease effects are gone.

GOOD LUCK TO ALL.

Phillip L Dec 20, 2015

I would really like to get into a long story about how I may have gotten Hep C, BUT, in 1996, after an operation to cut off my right shoulder ball at the top of my humerus and replace it with a (man-made) ball, the nurse needle stuck herself, giving me a shot.

The hospital went thru the 'norm' and told me that I had Hep C. The VA eventually treated me in 2000, with a combo of 6 pills daily and I had to give myself a shot in my abdomen 3 times a week. After 48 the VA said, it was undetectable. And NOW I have anti-bodies. SOMETHING in me is saying: If I have anti-bodies, why wouldn’t they have found ALL the Hep C, by now?

HOW COULD I EVER KNOW AND CONVIENCE MY WIFE THAT WE CAN DO ANY AND ALL sex things. A LITTLE HELP HERE.

OH, yes I smoke marijuana - now and back in the 70's - 80's, 90's, 00's

Leroy S Dec 17, 2015

I came to know in 2000 that I have Hep C, when I did blood test in a community clinic, because they offered a free blood test. I was given sealed envelope with a red tag to see the doctor immediately. I didn't have job or any insurance but still I went to Baylor Hospital as an outpatient. The shocking news was that we were sent home. The nurse said “Millions of people have Hep C.”After that I saw 5 liver specialists and none of them did a biopsy, as I was enjoying good health and exercised regularly.

Now I’m 59 and my liver enzymes are very high. I decided to get insurance and do the treatment. But so sad. I didn’t know that HMO will give me a tough time. No one is accepting this insurance in Dallas, TX. I paid a whole year’s premium and now I was advised to change it to PPO if I want to see liver specialist. I don't have a job and NO SUPPORT from my husband. He does not want to listen anything about my liver.

I have taken care with the liver supplement Milk Thistle. I really need support. I need someone who can reach my husband and educate him. Tell him that I need his love and caring word.

shamim Surani Dec 15, 2015

I was diagnosed with Hep C probably 12 yrs ago. I was working in a hospital and the universal precautions practiced in my area were non-existent because I wasn't really in a patient care area. But patients bled on our counters and the house keeper simply used a paper towel to wipe it up. The hospital I worked at doesn’t want to accept I may have gotten the Hep C in the workplace. They rather blame multiple sex partners (more than one is multiple according to them) and intemperate alcohol use. I have never been into drugs whatsoever. I was into alcohol, strictly.

Luckily, I am a Veteran and was able to get the Sofosbuvir and Ribavirin therapy. I have been asking for 5 years. It was only after I developed cirrhosis that suddenly I was eligible for treatment. They took me to the very edge. The first thing I noticed is that I liked the taste of food and quickly gained 10lbs. But it was like I could taste food and I was eating for the first time. I realized that I was sick for a long time with the chronic symptoms. Toward the time I got the cirrhosis diagnosis I didn't even feel like eating and only did so because I was a diabetic. On my stocky frame, 190 lbs looks kind of thin. I was 190.

I got maybe a 2-3 week reprieve before the side effects kicked in. You can get really sick feeling with the numerous side effects that occur. I could have one or two and still function but there was several times where I experienced multiple ones and at those times I laid down ate saltines and drank Ginger Ale all day and took something for the headache. I also would take some Dyphenhydramine for an itch and just to help me feel better.

It was during one of these multiple symptom sicknesses that first found this website and it did give me hope. I think that day I was debating whether or not to go to the ER seriously on two occasions. I kept reminding myself that I was suffering from side effects. I had the fatigue, headache, nausea. I will say the nausea seems to be the biggie that I have had nearly every day. It seems to go hand in hand with my treatment. It also would come in varying degrees of severity. I had the dizziness a couple of times. I also experienced the itching and some muscle aches. Being diabetic and suffering allergies, I had to treat different things to determine if it was in fact my treatment or other. I can say that two times I felt the flu-like symptoms. I have 19 more days of medication and the Liver Clinic sent me a letter, my most recent Viral Load says “Not Detected”.

So if you are tired or just don't feel good, hang in there, seriously. I have the Genotype 2a, I think. Anyway if you have Genotype 1 I know your treatment duration is double the 12 weeks I had to do and may not seem like anything. But like one of my recent classmates said, and he is also a physician, the time will pass. My pastor’s wife who is a physician just said it is a part of the treatment, take your medicine. Take your medicine. I understand that as uncomfortable as it is go through the treatment that the days of Interferon and Ribavirin for 6 months to a year was brutal. So I am thankful for that and I am grateful that I got a “Not Detected”.

I would also recommend making your life as stress free as possible. The anxiety and irritability were also some of my side effects. Luckily, I have gotten one friend into treatment and I really pressed hard because he and his drinking were stressing me out. Life goes on no matter what. My aunt ended up in the ICU with organ failure, she recovered. My mother gets out of the hospital tomorrow after 2 weeks and a day. She was in the ICU with Pneumonia, COPD, and CHF.I had a plumbing issue that in a 24 hour period and I had to totally clean and sanitize the restroom 4 times until the problem could be fixed. The bowl was gushing out water as though there was a pump under the bowl and the tub kept filling up with raw sewage. Yes, I know, infection… That is why I wore a face mask, gloves, cleaned with straight bleach, and immediately laundered my clothes. My steel belts were sticking out of one of my tires. The low profile tire is a rare tire. I ended up paying a mint to put 4 new tires on. Then my drunken friend fought me. It went on and on… So try to keep your life as stress free as possible.

Also, don't drive in the rush hour traffic. If traffic is heavy, get off and take a slower but less stressful route. Believe me when you feel all icky you don't want to add road rage.

Hang on to hope and take it one day at a time. Hopefully, the light at the end of the tunnel will be brighter and brighter as time passes. Thank you for allowing me to share and God Bless each of you. I wish I could be there for you and talk to each of you when you need someone.

Harvey R Dec 13, 2015

Hep C.

38 years.

Cirrhosis varies, Ascites minimal.

Harvoni 12 weeks. Cleared Hep C.

Doctor said 1% chance of getting it back. Two months later- non Hodgkin's follicular Lymphoma appeared. In groin, armpits, down neck, 5% of bone marrow cancerous.

I'm wondering if Harvoni allowed that to happen.

Believing for a miracle.

S D Dec 9, 2015

My doctor diagnosed me with Hep C genotype 1 in 2001. He saw something in the first blood test and did a second.

I am a Vietnam vet and am now 64 years old. I figure that I might have contacted it in the service from inoculation guns used at that time. I did the peg interferon, Ribavirin treatment because that was all they had. No luck there so I asked the doc "what now" and he said wait 20 years until they come up with something new.

In July 2014 I heard of Sovaldi on TV. Went to the doc and found out insurance wouldn't pay. Since I have PTSD from Nam (that's another story) the V.A. helped me with Sovaldi, interferon, and Ribavirin. I did that for 12 wks. and was undetectable….until 3 months later - no go. I thought I'm a dead man now with stage 4 cirrhosis.

The V.A. told me that they were out of money for Hep C because the Vietnam vets were coming out of the woodwork with this disease. They put me on the list and in Sept. 2015 I received treatment with Harvoni and Ribavirin. I completed treatment in Nov. 2015 and I'm undetectable. I still have to be tested in Feb. I hope it's gone but I have small doubts. I've been a good boy not drinking or smoking cigs or dope for years. Time will tell. They put in a pacemaker last week (December) for irregular heart beat and passing out. I’m scared that the

Stage 4 has advanced. Do you see what paranoia can do to a guy?

I wish all of you out there success and please don't wait and please kick your monkeys if you still have time. I'll get back in Feb with results if I can find the site again. Thanks for reading.

Roland G Dec 7, 2015

I contracted Hep C in 1970 from needle use. Was fully diagnosed in 1990. Treated with interferon for 6 months. Felt awful with rapid decline in lifestyle. Did not work. Had chronic Hep c. Stayed alcohol free for 15 years. Occasional use of alcohol for next 8 years . Quit alcohol in august 2014.

Started Harvoni in Sept. 2015. Now, Dec 2015. Blood test every 2 weeks. Virus is non-detectable. All liver enzymes normal. Evidence of slight cirrhosis. Have had no side effects. Feel great, better than I have in years. Will stay with drug regiment until March 2016. Harvoni is a true miracle drug.

Gator Bill Dec 4, 2015

I was diagnosed in 1994 with chronic, active Hep c. I tried interferon but had to stop from convulsions. I have cirrhosis, COPD, high blood pressure, and hemochromatosis iron overload load disease.

I started Harvoni I on Sept 13th. I will be finished December 11th. I was told by my doctor that is was a cakewalk. Maybe a few headaches, trouble sleeping, and general fatigue. That has been anything but true. I have been unable to work because it is way beyond general fatigue. It's called “can’t get off the couch” many days. I feel that these Drs have not been educated on all of the side effects therefore the patients find out the hard way.

I have been cured and am very grateful however when I started having a lot of side effects Dr dismissed me like I was crazy so I got on the internet and did my own research and found many people having the same problems . So my advice to you is to do the homework. Don't trust your Drs info, get your own.

Godspeed to everyone fighting this battle with a cure we have waited so long for. If I can just help one person that will make me feel great. Getting ready to rock my new lease on life soon! God bless to all! We have fought the dragon!

Dec 1, 2015

I found out that I had hepatitis C in 1999 by a fluke. My wife at the time was a nurse and she knew my past history and when I turned 40 I had a checkup and as the doctor was leaving the room she asked the doctor to perform a hepatitis C check up on me as well as all the other tests that one gets when they are 40.

I would have bet a million dollars I didn't have any such thing but when the doctor came back weeks later and told me that I was positive for hepatitis C and went into a deep depression for years. I felt like I was a walking biohazard!

I was assigned an infectious disease doctor. He gave me a punch biopsy and from then on it felt like I had a brick on my right side... It was nearly impossible to sleep on my stomach anymore. Meanwhile I attended classes on how to inject oneself with interferon. I felt like I was living in a horror movie! The people that were on interferon at that time reminded me of the walking dead. At that time I elected to take my chances with life in my disease... After all four years later I was still stage 0.

Don't remember when I jumped to stage 1 but I was at stage 1 for so many years but it still elected to take my chances with life because to me it seems like this very slow progressing.

Something inside me told me that I must get the treatment no matter what in 2012. I didn't care if I would be sick for 6 months... I wanted to be around to watch my grandson grow up.

When I went to my infectious disease doctor and told him I wanted to be on the treatment and once again, I was still stage one... He told me to come back in 2014 because there will be a much better treatment. I was not only frustrated but I was angry! I tend to be a person that wants immediate gratification and when I was denied the procedure, I lost interest once again. This was in 2012.

I waited three years and in 2015 I went back and had a blood test and had my liver checked and I was at stage 3. I couldn't believe how fast it has progressed in only 3 years!

I was immediately set up for treatment with Sovaldi and Ribaspere. Once again I was slightly pissed off but only because I didn't know better! I wanted to be on the Harvoni treatment. With the huge ad campaign that the makers Harvoni we're running on TV, it seemed like the best choice but since I had genotype 2b I was put on the Sovaldi treatment.

I still remember with great hesitation swallowing my first dose... something inside me knew I was going to be sick and worthless for the next 12 weeks, also I remember doubting the 12-week time frame because when I first learned of the initial treatment it was at least 6 months if not longer.

I remember not feeling very sick at all that had things going on inside me that scared me. I am not advocating this, but a good friend of mine and I would go out and celebrate beer:30 & I continued even while on treatment and when my first two week test came up, I remember thinking to myself I' never attend another beer:30 in my life because I was afraid my hepatitis C would be raging inside me. There was no trace of the hepatitis C virus in my body! It had gone into remission.

I am on week 4 at present, I'm anemic but it's really not that bad... I don't have the weird spooky pains that I had in the beginning as badly anymore as when I first started. When I think back, I believe it was the medication burning the disease from my internal organs and my body.

The main reason of my story is to try to convince you to get it taken care of now, don't wait like me... The treatment is a breeze and the end results are like winning the lottery, the lottery of life! You'll get your life back.

I don't think I've ever been this grateful ever in my life!

Mark Denson Nov 23, 2015

I was diagnosed when I was in the Hospital psychiatric unit.

It was my third time going to the E.R after not being able to eat, drink or go 10 minutes without puking. I had such bad stomach pains and bloody bile from a ruined stomach and esophagus from getting sick repeatedly for weeks on end. The doctor said I was suffering from anxiety attacks, PTSD and night terrors/sweats. She admitted me into the hospital psych unit, hooked me up to water because I was so dehydrated I kept passing out and coming back to panicking and shaking. She prescribed me with Xanax, Escitalopram, Trazadone, Chlonodine and Panteloc. I was given the medication on a regular 4 times a day schedule. I honestly felt like a weird happy child but my body felt unemotional and dull- I felt numb.

After two weeks of being there I started to feel better, able to control my vomiting and felt a sense of calm. My doctor wanted to see me one last time before releasing me and she started off saying I got tested for HIV and all three heps and one came back positive but she couldn't find the paper. My heart started racing and after a good 2 minutes she found the paper. She diagnosed me with hep c, at 21 years old.

I took viral tests and found out that I had contracted the disease 2-3 years ago and that it is still at stage 1. My boyfriend then got tested, and he has also been diagnosed with it. We had been using needles for cocaine to get high, and we had at least 20 different people around us during that time. So I guess that somewhere along the way tools got mixed up. We're now drug free, but also still smoke a lot, and drink a lot. We're both alcoholics. Some days I wish things had been different, but I have people who love me and have been by my side no matter what. I hope God is on our side for this hard journey, because everything feels so dark.

-22 year old Canadian girl

Canadian Girl X Nov 6, 2015

1983, at 22, I was admitted to a methadone maintenance program. They told me I had hepatitis, because my liver enzyme count was high. My doctor tested me; I was negative for Hep A and B. After talking with some friends who had also been living the same lifestyle I was, I learned there was another, “new” kind of hepatitis. I went to a liver specialist, and he told me I had “non A –non B” hepatitis. There really wasn't anything he could do about it.

Luckily, I got clean, and never used needles again. But I did drink occasionally. Around the late 80's I started hearing about “hepatitis “. I wondered if that was what I had. In the early 90's I noticed that sometimes I felt a vague pain in my upper right abdomen, especially after working a lot of overtime (I was an industrial maintenance mechanic, doing physical work), or after a night of heavy drinking. Around that time, I heard of Thistlyn, milk thistle extract, being used for liver health. I started taking it about 1994, and took it daily ever since, when I could afford it. I also was big on taking vitamins; especially high doses of vitamin C, knowing I most likely had an untreatable viral liver infection. As time went by, I noticed the pain more often. In 1996, I quit drinking completely. Also, every time I had blood work, my liver enzymes were above normal.

In 2001, I was finally tested, positive for hep C. In 2003, I was turned down for life insurance, after submitting a blood sample, the reason being I tested positive for hep C. When I first tested positive I began doing research online about hep C, learned about the current treatments, and found out they were very difficult, and unreliable when it came to remission rates-still never saw the word “cure”.

Over the years, I heard more about hep C, saw some famous people die from it or complications like liver cancer. In 2005, the person who told me about the liver specialist in 1983, who had also been infected the same time I had (geusstimate) died of liver cancer. But I never got treated (a lot of the time after 2004 I didn't have medical insurance and worked low paying jobs).

Early 2015, I saw a TV ad for Harvoni. I decided it was time to do something. In July, I was also diagnosed with diabetes. Since I now had good insurance, I didn't tell the doctor about hep C, I knew if he was any good he would find it. He did, and sent me to a liver specialist. Mid September 2015, I started on Harvoni. I also have stage 4 fibrosis, according to the elastogram. Today, Nov 6, 2015, I was told the results of my 1st 4 week viral load test-the virus is undetectable, after only 4 weeks of Harvoni. I'm going to continue on it for the full 12 weeks.

I've had this damn disease for over 30 years! I had always believed I would die from it, eventually, but God has decided otherwise. I attribute the fact that I did survive this long, and still have most of my liver left to the Thistlyn, which I take religiously now. I attribute the 4 week result to the fact that I take vitamins and supplements, especially high doses of vitamin C, to boost my immune system. I have always taken vitamins, and since Harvoni works by blocking the virus from replicating, and your immune system kills it off. Your immune system has been killing this virus all along, but it couldn't kill it quickly enough. My advice to anyone reading this is to do your research on supplements for liver health, and take them, especially Thistlyn, or another brand of milk thistle extract. Take a high potency multi-vitamin/mineral (without iron), 2000mg of vitamin C, a vitamin D3 supplement (4000 units), and whatever else your body needs to be healthy. And DON'T DRINK ALCOHOL! For me, prayer is also important, and I truly believe God has given me another chance.

Gene T Nov 6, 2015

I was diagnosed in 1998 with hep c but was not asked to start a treatment.

In 2009, my then specialist told me to wait for a new treatment called Harvoni that was being tested at that point.

Skip ahead to this year of 2015, when my doctor was finally ready to begin treatment. I am now on week eight and just had a blood test to determine how Harvoni was working on the Hep C, and I am so excited to report that I am now Hepatitis free. The side effects were minimal, tiredness and a few aches and pains, but night and day compared to the older cocktails. I recommend that you talk to you doctor immediately, did I tell you how I was cured, such a blessing!

Jim McNamara Nov 3, 2015

I donated blood in 1993. I was told to come back as they needed to verify something. After I donated again, they called me stating I had “HCV” .Needless to say I went into a frenzy and called my mom.

My mom stated that at birth I had 13 full body blood transfusions due to problems with my billiruben. I was born 3 months premature , weighed 3 lbs and had gone down to 2 lbs while spending 12 weeks in an incubator.

As a kid I usually had a hard time learning and looked pasty-white.

So, since my news in college I tried to eat right, exercise, be positive and luckily I didn't like the taste of alcohol nor did drugs or get tattoos. I kept watch on my AST/ALT's which were never over 100's and experimented with Milk thistle/dandelion and other natural remedies to keep my liver healthy.

Right after college I married. Flash forward 10 years later and we divorced- my stout decision. I remember not feeling clear and foggy about my decision but I had to make it. I took up motorcycling. 8 years after my divorce I was able get on Harvoni and 8 weeks later showed non-detect. One month post treatment and I feel so alive and healthy like I NEVER have. I really can't believe the virus is gone but I do because I saw an incredible difference in my energy and evaporation of brain fog. Still memory issues but stellar concentration and engaged in conversations without crossing my eyes! Incredibly, I feel I don't need the motorcycle anymore.

After my “cure” I read about the encephalopathy and neurodegenerative effects which tag along with the virus. I had NO idea my “ADD” was HCV related!!

HCV I blame hugely for my marriage breaking up: I had personality changes, fatigue to say the least, agitated most of the time, I could not concentrate and had difficulty for most of my life learning by reading, forgetful- of my ex's birthday and other things (gads), and anxiety. After treatment I realized there was a HUGE amount of anxiety I carried. Now I am no longer “fixated” or intense on things I do.

In my marriage, I see how I started to covet the remaining energy I did have just for me. My ex and I were constantly on the go and my brain would be overtaxed. Little did we know I was going crazy with the virus and he took the withdrawal as me not loving him anymore. 8 years after the divorce, I still love him. I wish I could have found the strength to stick it out.

I would love to kiss the chemists feet at Gilead's and smack the CEO's all in the same day for the price of this drug. However, I now at age 40 can feel like I am living a “normal” life.

Robin J Oct 30, 2015

Hi, I'm 36. I became ill about 5 weeks ago with what I thought was a stomach bug. I was sick and weak. I was taken into A&E because I started going yellow. I completely freaked and became very ill. I didn’t know what was going on. All the liver doctors told me it wasn't looking good. I thought I would never see my children again. The next day I was told I had Hepatitis C. I broke down. I couldn't believe it.

I was in a relationship with my partner for 15 years when he became a drug addict. Our relationship finished a few years ago because I couldn't live the life he was living. So I had caught it from him because he never told me he had it.

So now I'm home trying to be strong. Lots of tests, etc. are still going on. I'm trying to be strong. I'm still in shock. I'm usually active and I work. Overnight my life has changed I can barely get out of bed. I can't wait to start treatment and to try and beat this. I don’t really understand a lot of it and what’s going on right now. But I put my trust in my doctors because they got me this far.

Rachel A Oct 22, 2015

I am 48 years old now. I found out I had Hep c when I was 33 years old. I did the treatment, Interferon and Rebetron. I was on it for 3 months. They took me off of it because I almost died from the treatment. But I was lucky and survived it and it put me in remission. I have now been in remission for 16 years. I'm trying to find out what are the chances of it coming back if I’ve being in remission for this long.

Oct 15, 2015

I’m 53, had Hep C 31 years.

Haven’t done drugs in 30, haven’t drank for 7. Last time I drank blacked out for 21 days. I know now I almost died of Hepatic Encephalopathy. Had tests a year ago. Slightly elevated liver enzymes and ammonia on brain. Finally had ultrasound. Dr said no Cirrhosis. I don’t entirely believe that.

Have bad insurance. Disabled from Bipolar. Have to take a mass of pills for Bipolar which exasperates my liver. Feel I’ve gotten really worse in the last year. Want to describe symptoms in case others can relate. Changes include, when squat down don’t have strength to stand up. Just like that, never had that before. Overnight can’t spell, even simple words, just like that. Can’t hardly pee. Drink a gallon of flavored water a day, cant pee so sweat buckets. Lost appetite, first can’t eat chicken, than beef, than greens, than fish. Now live on smoothies and cereal. Exhausted, just so, so exhausted, terrified when have to do something strenuous like laundry. Feels like I’m in a concentration camp being forced to dig a ditch and its only laundry!! Everything, washing hair, washing dishes, feeding pets is a serious effort. Favorite thing to do is lay down! Feel guilty constantly that I can’t get things done. To tired to go anywhere or see anyone. Nothing sounds like fun but lying down.

Sister Love Oct 14, 2015

Hi, 56 yr. old female diagnosed with Hep C in 2012. Don't know for sure how I got it (doesn't really matter at this point). Dr. seems to think I have had it for 25+ yrs.

So I had all lab work: ultrasounds, CT scan, endoscopy, & colonoscopy. In the last year I've gotten sickly. I have varicose veins, enlarged spleen, hypertension, edema, severe gastritis, chronic fatigue, nausea, muscle & joint pain, abdominal pain, body itching (that's just crazy), & these little red marks on my arm, hands & legs.

The last round of tests showed my viral load is 9,000,000 and I am at stage 3-4 advanced cirrhosis. At some point the Doctor wants to treat it with Harvoni, but because of my stomach problems & nausea she is trying to get that under control with meds. Like she said until we can control all that she doesn't want to start treatment if there’s a chance (good chance) that I will vomit the meds up. Cost of each pill is like $1000 so I'm kinda at a standstill!

I have read that as we get older the disease progresses at a faster rate. I don't want to end up with liver cancer before I get a chance at treatment! So at this point I think I need second opinion. Which I will try to get quickly! So if you ever think you’re not getting the best treatment or advice from your Doctor GET YOURSELF THAT SECOND OPINION! My prayers are with everyone & their families suffering from this awful disease!

Debbie S. Oct 9, 2015

Hello survivors,

My name is James R L. This will be my first entry. 10-9-015 Fri.

I was born in 1966, I came into this world by God! But the Enemy had a Target on my head from the day I started breathing! My parents were broken people. My father raped my Mom! My family, we're drunks and drug addicts. My father died at 61, Hepatitis C and Cancer. My Uncle Rick died at 58 and he also had Hepatitis C.

I was diagnosed with Hepatitis C at the age of 28. I am now 49. God is finally answering our prayers by sending us the Harvoni medication! I will start my Treatment soon! I've had chronic fatigue syndrome, depression, and stomach aches for years. I drank alcohol and smoked for many years now I'm in recovery with Jesus Christ and celebrate recovery. I got saved back in 1992. Praise God! I now live in Tracy Ca. I want to start a support group! Feel free to Text or call me. 4084259396

James L Oct 9, 2015

Hi everyone,

I completed Viekira Pak + Ribavirin on September 14, 2015. 12 weeks of treatment. I was Genotype A.

I am a 60 year old female.

I was diagnosed with Hep C in 2002 after donating plasma but I kind of knew I had it already. I chose not to get treatment and basically went into denial about Hep C and ignored it.

I began to feel like I had Chronic Fatigue syndrome at times when I was in my early 30's. I did not drink alcohol, exercised and ate fairly well but if I did not take extreme care of myself I would have bouts of not feeling well.

I also had an early menopause starting at about age 37. I mention this because I had no idea Hep C was linked to decreased libido and that it effects our hormones and now I wonder is it possible that Hep C could of caused early menopause?

The last 12 years I had gone into a slow decline and past several years I became disorganized, unable to notice or care about daily tasks such as keeping my house in order. However I continued to function at work the past several years but I did not excel.

Treatment with Viekira Pak began June 21, 2015. Within several days I began to get sick. I became confused and it was a struggle to function. I took off 8 days from work and accepted help from loved one's. I pulled it together by eating good foods, resting and getting rid of any outside stressors. I was able to go back to work after those 8 days and function. What was wrong was that my liver enzymes, ALT and AST, which had never been elevated until treatment had shot up ALT into the 700's and AST into the 300's. I later learned not from MD but computer blogs that in studies one percent of woman get extreme elevated liver enzymes while taking Viekira Pak.

In August I began to notice changes with my body. My eye's had liquid in them again, no longer dry.

I was becoming happy. My skin was clearing of those nasty dry red patches and my libido was returning...None of these symptoms caused by medication but the Hep C.

Amazing, none of this did I expect; I did not realize I would feel so good after treatment. I burst out of treatment with an overwhelming energy. Almost too much, but it is maintainable now. I think maybe in the beginning I did not know what to do with so much energy. I have a sex drive, who would of thought. I have a zest for life. I

I am beginning to get things done. I am becoming organized. I had let so many things go when with Hep C.

My viral load was undetectable 6 weeks into treatment. It remains undetectable and I go get 12 week post treatment viral load check in December 2015. I hope and think it will remain undetectable.

Who knows what the future holds, but I forgot what it feels like to feel, so that in itself was worth the treatment.

I am against Big Pharma. I was a grouch and thought we should all go the natural way but this was worth it.

Good luck to all of you.

Oct 7, 2015

I contracted Hep C in the 80's during surgery. I have been on Harvoni for 6 weeks. My viral load was at 3 million, down from 4 million when I started my treatment. I was stage 4 fibrosis. After taking this wonderful drug for 4 weeks I just got the results from my first blood test. 100% virus FREE. Thank you Gilead Sciences.

The first 4 days of taking the drug my muscles felt like they were being attacked, I have had a headache off and on, and a little diarrhea, not bad. This is a miracle drug!

Oct 5, 2015

I’ve got Hep B and C.

My doctor told me I have Two. Years. To. Live.

I don’t get money for meds. I am retired. If you are poor- you die; rich -you live.

It’s been a hell of a ride.

I’m just waiting to die.

Oct 4, 2015

Just found out my husband of 20 years has Hep C. I don't know what type or how bad his liver may be, but I plan on going to a Dr as soon as he gets back in.

christian l Sep 24, 2015

Hello everyone,

I'm a 31 year old female. I discovered I had Hep C when I was 18. I learned I had Hep C when I finally was able to donate blood at our high school blood drive. Unfortunately, I find out via my parents' voicemail that I had Hep C; Red Cross decided to just leave a message to tell me they couldn't accept my blood donation because of Hep C.

After extensive research and support from my family, my Hep C was traced back to my full blood transfusion at birth. This same blood transfusion is what saved my life due to a blood incompatibility with my mother. I was the first child of 3 to survive; my mother had 2 sons - 1 that died at a week old and 1 that died at a month old. If it wasn't for the blood transfusion, I wouldn't be here. However, because of the immediate, full transfusion at birth, I contracted genotype 4 from a blood donation from Red Cross traced to Egypt.

The irony of the situation doesn't stop with my discovery of Hep C after trying to give back by donating blood at age 18. After my birth, my mother traveled all over the state of Oregon to raise awareness of the importance of blood donations. My mother spoke at various corporations expressing how their donations could save a life like mine. I was on grocery bags and posters all over the metropolitan of Portland, advertising local blood drives and donations for Red Cross. Only to discover some years later, the very blood donation that saved my life also gave me Hep C.

Since the discovery of my Hep C, I have been hyper vigilant about staying healthy. I have sustained stage 1 liver scarring, and had planned to just keep on, keeping on until treatment was suggested for me in the spring of 2015. I was extremely excited of the possibility of receiving treatment, only to be denied over and over again by Regence Blue Cross Blue Shield. The denial letters from my insurance simply stated that until I was in stage 3 or 4 with signs of liver cirrhosis, they would not cover treatment. To put it in another way, I needed to destroy my liver more in order to get healthy. However, I did not let that ruin my attitude. I kept my chin up and a few weeks later, I received a phone call from the specialty pharmacy (that would have provided my meds for my treatment if my insurance had given approval). That's when the pharmacy told me that they decided to cover the cost of my Sovaldi, if I could prove that I made less than $58,000 a year. Since I'm an educator (9 years now), I shared my tax info showing that I was nowhere near $58,000 a year. I started treatment 2 weeks later!

I'm in week 11 of my 12 week treatment. It's been rough since I am on Sovaldi, Interferon, and Ribavirin. I've had the whole gamut of symptoms: fever, feeling of extreme temperatures hot/cold, severe weight loss, rashes, insomnia, loss of appetite and taste, brain fog, headaches, exhaustion/fatigue all day, joint pain, and sores all over my mouth, gums, and throat. I'm 5' 3”; and originally weighed 130 lbs of lean muscle (I'm an endurance and CrossFit athlete), but now I'm 109 lbs. I am hoping to come back strong, but I am in unknown territory, so I don't know how quickly I'll recover.

Thank you for reading my story. I hope you have found it useful. Here's to your health and happiness!

Sarah T Sep 22, 2015

I was first diagnosed with Hep C in 1990 at a methadone clinic (NonA/NonB at the time). I had contracted it sometime, likely, the year prior to that. For several years I had only slightly elevated VL and enzyme numbers and no symptoms. I did not stay on top of monitoring it until I got clean in 2000.

Over the years, however, having been told that consuming alcohol was the worst thing I could do, I avoided drinking; even though I was still using other drugs and believe that played a big part in staying healthy. I've had the virus for 26 years and current blood work shows a VL of 4.1million and liver functions anywhere from 2-3 times the upper normal limits. In addition to abstaining from all drugs (especially alcohol), I regularly use natural supplements along with a healthy diet and proper rest. I do notice as I age the symptoms are slowly setting in, however. Tummy troubles and joint stiffness, mostly. After biopsies and endoscopies in 2004 and 2008, my recent blood test shows fibrosis is still at stage one. I was told in 2008 that I would not be a good candidate for tx due to a lack of positive factors going for me: age, length of time with the virus, and my genotype, which is 1b. My doctor would not give her blessing, believing that the treatment was more likely to cause damage, with little in return as far as a cure. So, for 26 years, I have lived with the fear just below the surface of what is going to happen to me one day when my body can no longer take the wear and tear of fighting the Hep C.

NOW THE GREAT NEWS! I was recently approved by my insurance company's specialty pharmacy to begin one of the oral regimens (interferon and ribavirin free). As I'm online reading up on the treatment I'm about to do, I felt compelled to share my story here. There was a time when, not only was there no hope for someone with this virus, but the stigma was brutal - especially if it was contracted through IV drug use. Nowadays, there is so much support and my experiences in interacting with health care workers is a hundred times better than it used to be. I used to hate the change in demeanor that came over people when they peeked at my chart. Now they are so much more educated and compassionate. It has been a long journey and I cannot even imagine what it will be like to not carry the weight of this worry around anymore.

If you are reading this and feel discouraged - DO NOT GIVE UP!! Take the best care of your mental, spiritual, and physical health until your time for treatment comes. If you're on it or already went through it, WOOHOO!! I used to think that a tolerable tx course with a good prognosis was a fairy tale that simply was never going to happen and now, September of 2015 and I am a couple steps away from it. I have never let Hep C rob me of living my life or cause me to think that I'm worth less than others. Having it lingering in the back of my mind does take its toll sometimes. Regardless of how we got it, we all matter and I am praying that one day it will be eradicated completely.

Norma C. Sep 20, 2015

Hi. Cryoglobulinemia! Never heard of it? Cryo globul inemia. As the first part of its name suggests, it is a problem with cold. When a sufferers body gets chilled proteins precipitate into the blood stream which thickens the blood and doesn't leave much room for oxygen carrying.

How does that relate to Hep C? Approximately 1 in 3 Hep C sufferers will get Cryo complications from their Hep C. For most people the Cryo problem will disappear when the Hep C is cured.

For 3% of that 1/3 it is not true! The Cryo stays with us and is life changing. If you are getting very tired/fatigued or suffering joint pains or eyeball pains or moodiness after exposure to cold you should consult your doctor. Cryoglobulinemia has many triggers, Hep C being the only one I'm familiar with. My Hep C was cured 3 months after diagnosis with Interferon and Ribavirin about 10 years ago. The scary part was that without the Cryo knocking me unconscious one cold winter night I'd never have known about my Hep C with its potentially dire consequences.

Sep 15, 2015

Hi everyone.

This is an update to my other story.

I had my treatment in 2013 and it completed in June 2014. I had Geno 1A and was on the treatment for 48 weeks.

This update is to tell you all that after a 3 month test and a 12 month test to see if it cleared. I am happy to say that it has! I have cleared Hep B and C now and yes, I am very happy that I have completed it.

Thank you for all of your messages for help and support, please keep sending emails for help and advice.

Carl Lancaster Sep 14, 2015

I was an IV drug abuser in the late 70's, and early 80's. In 1983 I got on methadone maintenance. The doctor there told me I had high liver enzymes and needed to get checked for Hepatitis. Went to my doctor, and I was negative for A and B. He sent me to a specialist, who told me I had “Non A, Non B” Hepatitis. Said to let him know if it caused me any problems, which it didn't.

Over the years, I began hearing about Hepatitis C. I had stayed clean for the most part, had a bout with cocaine addiction in 1991, but walked away from that. Was a light drinker. Around the mid 1990's I started noticing some mild pain in my right upper abdomen, especially after drinking. Then I heard of some people dying from Hep C complications. So I quit drinking completely in 1996. Started taking milk thistle. In 2001 I was tested, and was “officially” diagnosed with Hep C.

For various reasons, never got treatment. But I knew I had a liver problem. I had a bad attitude of out-of-sight, out-of-mind. I had read about the miserable side effects of treatment with interferon, and it also scared me away from seeking treatment. In 2001, I was turned down for life insurance because I tested positive for Hep C. In 2008, I had a severe back injury, which required me to be on long term opiate pain meds, which made my addiction problem start back up. No IV use this time, just pills. Got back on methadone in 2009, and am still on it. This year, 2015, started seeing ads on TV for Harvoni. Damn, just what I had been waiting for.

My annual blood work at the methadone clinic had been showing my liver enzymes very close or at normal, which I credited to the milk thistle and heavy vitamin supplements I took. But now I was showing very high blood sugar, and I had a history of diabetes 2 in my family. So I knew it was time to start fixing my health. I knew in the back of my mind I had been infected with Hep C for over 30 years. For whatever reason I had been scared to face it. I also now had a good job and good medical coverage, after 10 years of no medical insurance. Picked out a PCP doctor from the insurance company network, initially for diabetes treatment, but knowing my Hep C would come to light, and I would start treating it. He found mildly elevated liver enzymes, and tested for all kinds of Hepatitis, and I was positive for C. Sent me to a liver specialist, who I told the whole story to. I also told him I want Harvoni. He checked my genome type, 1A. My viral load was relatively low, said I may qualify for an 8 week treatment. Had to get one more test before he could prescribe it, an elastogram of my liver-faily new test, better than a biopsy. Got that done today. I have 15% scarring, which means I do have mild cirrhosis.

Harvoni is the miracle drug we have needed. It doesn't try to kill the virus, and in the process beat the crap out of you too. It just blocks the virus from replicating, and your own immune system kills it. Your immune system has been fighting it for years already, so Harvoni along with immune system building supplements, like vitamin C, should do well. I am ready to get started on Harvoni now, and I pray the nagging fear I have had for the last 30 years will go away.

Gene T Sep 14, 2015

I do not know if you would be interested in my case.

I was treated for Hepatitis C, genotype 2, commencing on December 14, 2014 to March 8, 2014.

12 week treatment of Sovaldi and Ribavirin. My Hepatitis C relapsed June 9, 2014.

I was diagnosed with Non-Hodgkin’s Lymphoma B cell in October 2014. I was treated with R-Chop and Radiation until April 2015.

I am Hepatitis C, 2b positive, Viral Load 15.32 million, 3 Month Remission from Lg B cell Non-Hodgkin’ s Lymphoma.

I carry a high risk of Lymphoma relapse due to constant exposure to the Hepatitis C virus.

In order for me to have the maximum chance of a cure from my Non-Hodgkin’s Lymphoma the Hepatitis C must be treated in a timely manner or my life hangs in jeopardy.

Blue Shield of California has denied my treatment for Hepatitis C, Genotype 2b with the combination treatment of Sofosbuvir and Daclatasvir for reason of medical necessity.

william ewing Sep 14, 2015

So I am 25 yrs old and I got Hep C in my teens due to IV drug use...

I was diagnosed when I was 18 because I went to doctor because I felt like crap. Loss of appetite, itchy, really, really, really tired, depressed, and no motivation. I literally thought I was dying. I haven't gone through any treatments but I feel like I should try Harvoni.

I'm not the same person I used to be. I've been 2 yrs clean off the dope so now I'm serious about treatment, because to this day I still wake up feeling awful. I’ve thought about offing myself a few times but couldn't go through with it. I stopped shooting dope and pretty much any drug you can inject because my liver failed on me and I went crazy (hepatic encephalopathy). I didn't know anything. I went into coma and almost died. They told my parents I had about a 2 percent chance of living, but here I am, Thanks God!!! But I just want the people to know that your liver does not feel. When you get aches there it’s probably cause your liver is swollen and pressing against you gallbladder or another organ (which do feel pain).

At my last checkup I was told my liver got a lot better and I believe it’s due to turmeric, lemons, green tea, and RAW honey, and milk thistle. I don't itch like crazy and my appetite has returned. I'm 6 foot 3 and went down to 135Lbs. I'm now a steady 165 muscular (I'm a carpenter) but I'm still very tired all the time so I'm think I'm gonna go THE treatment (HARVONI). I will update you guys and God bless you all…

john b Sep 13, 2015

I was diagnosed with Hep C in 2011 after a car accident. They did some routine tests and found out. It happened I think in 1985 after blood transfusions.

Did Interferon/Ribavirin/Victrelis treatment and I was cured after 48 weeks . The big problem is that I was not checked by my doctor when bad side effects happened and now I have autoimmune Hepatitis. It is very bad. I have had all the symptoms for a year now but my PD just sent me to banal tests like pillory tests and expensive HEPA tests. These did not have anything to do with Hep C treatment. In a few days I have my 2nd biopsy test. I have painful symptoms and I’m scared. I think everything is about medical business. Even if one PD has told me what can happen. One of my friends was diagnosed about the same time with Hep C. She hasn’t done anything yet and she is happy. No pain, no symptoms. Going on with her life. Me, I almost have liver cancer. Who knows what is next.

All of you who read this don't jump at all the treatments. Do your research and don't believe your doctors all the time. They have reasons sometimes to push some treatments without regard to the outcomes.

Sep 9, 2015

Just want to say to all Harvoni is the miracle we’ve all be waiting for.

7wks into the med. Non-detectable in the 4th wk. 1 more week and I can walk away from this sleeping giant after 40 yrs.

Please know that you too will be cured, just be patient. There is a God, and I was given the opportunity for a new beginning. So I say to you all, don’t give up I never did. I Believed, and prayed for this cure. God Bless you all. Love Jolliet :-x

Sep 9, 2015

My sister has Hep C. She is 22 and used to be hooked on drugs. She seeks a better life now. Please what can I do to save her life? She doesn't deserve this. I can't lose her! We don't have the money!

Varen C Sep 7, 2015

I am following up on my previous posts. I was diagnosed in 1992. I had been taking milk thistle and following a healthy diet. I did not have scarring of my liver, but I had been diagnosed with diabetes, high blood pressure, glaucoma, lichen planus, etc.

I started on Harvoni in January. After one month, my viral counts were negative; and they have been negative since then. The last labs I had done after six months were negative. My hematologist said I am cured. I will have to live with the secondary ailments.

I plan to advocate on behalf of untreated in order that treatment be made more affordable. $94,500 is too excessive an amount to pay for 84 pills.

Sandra D Sep 7, 2015

I found out I had Hep C type 2 and did not know what that meant. I went to a support group at my hospital and was told they had only had one type 2 in years. That really scared me to death. Why was I different? I was finally told type 2 comes from overseas. I had 3 blood transfusions in 1967 in a free public health hospital.

I went to the doctor and he put me on the old drug Peginterferon and Ribavirin. After 2 months I was so sick I had to stop the treatment.

Now the new drug is out and I have been on it for 2 weeks. I’m starting my 3rd week tomorrow. I am taking Sovaldi and Ribavirin. I am having a little problem with the Ribavirin it is making my stomach very sick but I am doing real well otherwise. I was told to take Phenergen to stop the sickness.

I don't know how many people have Hep C type 2 but if there are any others out there please let me know how you are doing.

Carmen B Sep 2, 2015

I had been sick for a long time by the time the rheumatologist said I needed to go to a liver specialist A.S.A.P.

I was in shock. I kept saying no I don’t. I was told that my viral load was so high they couldn’t understand how I was still alive working and raising two children. I should be dead. That caught my attention. Then they asked me if I was born in the 1960s because they didn't test back then. I felt like I was dying because there was so much pain and all my joints hurt.

So this was 2008, Feb 14th. I began interferon injections and the two pills that went with it. It was going to last a year… I lost my hair so bad I looked like a guy. Drs said some people are only sick three days after injection don't believe that. Make sure you have a psychiatrist to help you through this. Have someone check on you. I did this with no one but my shrink. God love her. I threw up all the time on it. I lost so much weight I aged 10 yrs in 6 months. People who saw me said I looked like the walking dead. They were right. I lived in Galveston, Texas and the night before hurricane Ike I looked at my bruised stomach. I put that shot in and I threw the syringe and said, no more! If I was going to die then so be it but not one more treatment.

Next morning I awoke floating on my air mattress and Ike wasn't there yet. I weighed 98 lbs, size 0. I typically wear size 9 and use to weigh 130-135. I had to escape the island but couldn't go to a shelter cause if a kid had chicken pox it could kill me. No immune system left. I went to doctor after the madness from the hurricane. I was apologetic about letting them down and not completing the year. My test results showed it worked my liver, viral load was gone.

Now, it’s lucky that there is a much better treatment. In TWO weeks time you’re done and it cures it! My treatment doesn't cure it. I always have to check liver every 3 months. I don't drink or do drugs. I love my liver and I don't want to ever repeat it. Since 2008 I have come down with debilitating illnesses that doctors can't figure out. I think it has residual effects but I'm no doctor. I'm glad I did it I'm alive and my liver is well. Would I do it again? Yes just not alone, it was a nightmare for me.

Go for this new treatment. I'm not cured I live an alcohol, drug free life because why go through all of this to risk everything I achieved to get better. Good luck just don't put it off. You need this new treatment if you want to live and cure Hep C. I am with you in this trust me JUST DO IT! CHOSE LIFE!

Aug 31, 2015

Hi, about 10 years ago I had a live function test. Got told it's a bit fatty. Did not know what that meant. I moved and found a new doctor who explained that I had a fatty liver. He said many people do, don't worry. But he re-did a liver function test he said your liver is a bit high. He left got a new doctor and explained to her my liver is a bit high, what does that mean? She did a test and, yes, it is a bit high. She wanted to know if I would like further tests. “Yes, of course!” I said.

It came back Hep C. I was embarrassed and upset. I felt dirty. I have never done drugs with sharing needles, never even smoked a bit of dope.

Anyway, I saw the specialist on 8-18-15. She scanned my liver with her machine and a ticket comes out tells how bad your liver is. It is scarred very badly now. Cirrhosis of the liver. There is a brand new medication out but $70.000 a course. I’m on disability for other health issues but she believes they might accept me for a trial for the new mess.

They think I've had it over 30 years from prison in the late 70s. I am drinking apple cider vinegar and lemons squirted in to water with milk thistle, kale, brussel sprouts, broccoli, and spinach in a blender once a day . No one told me I've just been reading what your liver likes. Please, can someone tell me that it does not have to become cancer? I've started a group on Facebook. Damaged livers could use some help. Please help by joining and sharing ideas. Please cirrhosis does not have to mean cancer!

Daniel K. Aug 28, 2015

I was diagnosed with Hep C when I was 27 it's completely in charge of my life...I'm now 36 don't really go anywhere or do much. 9 years ago my fiancé left me 24 weeks into my treatment. I did 48 weeks all together and if I weren't for my new fella and ma mam and sister I would of finish myself off....When I got all clear was best news... And since then I've gained something. I’ve got someone on my side. I've not an idea what triggers the fits but I think my life and illness getting gradually worse.....

Emma W Aug 21, 2015

Hello,

I would like to share my story in hopes to help people that might have similar issues with being denied treatment from their insurance companies. When I was first denied the medication Harvoni I was devastated. When I was denied I filed a grievance with my insurance company Anthem Blue Cross. I was denied again. I then filed a complaint with the Independent Medical Review Board and they granted me an expedited review which took them 7 days for them to overturn the insurance company's initial denial and I received my medication 3 days later. Please no matter what, do not take no for an answer. Do not give up. Anthem told me that it was not “medically necessary” basically saying that I was not sick enough. I told them that everybody has different symptoms and are at different stages of the disease. Because of Hepatitis C I had other health issues associated with this virus. So 3 out of 3 medical specialists said yes, it was medically necessary. Like I stated, please fight, fight, fight. Everybody should be treated for this virus regardless of what stage you have been determined by your doctor.

susan v Aug 21, 2015

Having Hep C has changed my life dramatically. It was 1983 and I was living in L.A working in a recording studio around many celebrities and had my own band. I was pursuing a music career heavily that began at a very young age. I was getting very close to success and then started having pains in my liver area and feeling extreme fatigue. I flew home and had my mom make me an appointment with a liver specialist in Seattle. He was a very well known specialist and began to figure out what was wrong with me.

After exhausting medical visits and tests including a liver biopsy and getting no answers, l was told that my biopsy was clear and he agreed that the pain and fatigue was not “in my head”. After that I was determined to learn how to feel better on my own. After all, I knew this wasn't in my head. The symptoms, fatigue and pain were real. Please understand that this way, way before Hep C had a name.

I flew back to L.A. and began studying herbs and natural plant based medicine looking for anything that would ease what I was feeling. After a few more years of not feeling well I decided move back to my home town of Seattle to be with my family. I married and had two children, a girl and a boy of which neither thankfully had HCV. I was finally given a diagnosis or “name” of what I had when I was pregnant with my first child, my daughter in 1991. I did not do any treatment at that time because the success rates were very low and the side effects were disastrous.

I got to know the woman who headed the first Interferon Ribavirin trails at Harborview hospital in Seattle and followed the results they were having from trials for many years. I began an incredible journey that brought me lots of travel through the U.S and other countries learning of people that were cured of Hep c using very strange remedies. I tried many of them. I cooked up smelly roots and herbs on the kitchen stove and drank them with my nose plugged. My father worked for an international shipping company and had contacts in many countries. I had shark oil shipped from Indonesia. I had powdered clam extract shipped from Japan. I began learning about the liver and about the virus and how it worked to damage the liver. I talked to others and found out anything and everything that others experienced using natural protocols. I tried most of them. I did mega IV's with 50 grams of vitamin C as well as silver IV's.

I know all of this kept my liver from getting worse. It kept my liver from going to cirrhosis by using natural products that healed the liver faster than the virus could damage it. I am not gonna lie, I got into many arguments with practitioners angry that I refused treatments and trials. Honestly, when I reviewed the side effects, I was a mom and decided to take my chances with what I already knew how to deal with. I have lost friends to this disease. I also said that I knew one day someone would “crack the code” and if it took 30 years I would wait!

So, I started adding self help trainings; I studied personally with Anthony Robbins, Werner Erhardt and many other gurus searching to balance both my mental, physical and spiritual self. I understood that what I thought had a great impact on my health as well. I spent three years with a team doing research and came up with a self help course called Invisible Truth that helped me tremendously and also has helped thousands of others searching for health and well being. I began using my business skills combined with my knowledge of supplements and I began a career as a consultant and life coach. If I had not had this journey my life would have been much different.

I am not sure I would have the blessing of the two most important people in my life right now being my two children, both negative of HCV. I waited for the day a treatment would come like Harvoni and it did take some thirty years. Having HCV has been a tough and painful journey for sure. Lots of money spent searching and lots of days not feeling well but I have always kept my spirits up and kept moving! The course that we created on how to keep your mind positive called Invisible Truth became something where I was the first and biggest testimonial.

I just finished my 12 weeks Harvoni tx two and a half weeks ago! I could say so much more. I would just like to say to never give up! That if you have Hep C today chances are you have other issues that stemmed from it. Once the Hep C is gone your body will begin to work on itself in a far better way! Eat healthy live foods. Exercise and bring lots of Love into your life! I am a very thankful gal.

Christina E S Aug 21, 2015

In 1982, on my way to work in West Africa I received what we believe was a tainted gamma globulin shot (however I was no saint and it could have come from “risky” 70's behavior. I have always participated in competitive sports and even today at age 59 I workout 2 hours per day, 6-7 times per week. I have been taking milk thistle and other herbs and vitamins for years (my regimen fills a sandwich baggy-I call it my trail mix lol) I also drink alcohol and more than your usual 2 drinks or less per day. In the late 90's I was diagnosed with Hep C, but a fairly mild viral road. I was on the low side for a clinical study, but got in at one being conducted at Emory. I think it was Schering Plough. It was the Pegilated Interferon/Ribavirin combo. 6 weeks. They had to reduce my dose during the study because I became anemic. It was the worst 6 weeks of my life. Because it was a clinical trial they could not treat me for the anemia. I became totally exhausted, abusive, suicidal and really, the worst 6 weeks of my life. When it was over, the Infection came back in a matter of months. The offered it again to me free of charge as a non responder. I declined. So for the next 10 years (and even today) never really changed my life style. I don't recall when but started following Gilead as a company and even bought their stock. When their drugs became more and more promising, I began visiting a specialist at Emory. I had the sonogram of my liver taken, remarkably perfect condition. As the new drugs began hitting the market I held off until, following my stocks I saw within a week that Harvoni had been approved by the FDA. I work with a great team at the Liver Center run by Dr Norman Gitlin. What a great team. They battled (and mean battled) with my insurance carrier to get approved (insurance company was pushing Sovaldi and Ribavirin). We won. Because I was a previous non responder I took the full 3 month protocol. I was fortunate enough to get a coupon from Gilead that covered my normal co-pay. Yes, total co-pay. After 6 weeks into the treatment I was virus free. Just had my 6-7 month tests. I am cured. The only side affect for me was a little “fogginess” that went away after a few weeks. Finally after Living with this thing in the back of my mind for 35 years, it's suddenly gone. Per various doctors if it wasn't for my dedication to working out and I am sure, the vitamins and supplements, I would be a transplant candidate or worse dead. Hard to express in words what a relief it is to be free of Hep C. If you can get the Harvoni go for it. You won't regret it.

Rich K Aug 16, 2015

I had Hep C for OVER 40 YEARS, which isn't all that unusual. From '95 thru '12 I went through 3 courses of interferon treatment, 24, 36, and 48 weeks, with Ribavirin and Incevik added to the latter treatments. No good, the virus just would not clear. My Hepatitis progressed to cirrhosis. I was itching like a lunatic, scratching myself to pieces, exhausted all the time, and could not think clearly, the result of good ole liver disease ”brain fog” .

Then I got the really bad news--liver cancer, which oddly enough turned out to be good news in a weird way, because it boosted me to first in line for a transplant. By incredible good fortune, I was only on the transplant list for 40 days. I got a new liver in November of 2014 and I've been doing very well ever since. When I awoke from the surgery the relentless itch was gone and hasn't returned, and my energy level has been improving steadily. I still had the virus, though, even after the surgery, but I started on Harvoni 2 months ago and cleared the virus in 4 weeks. For the first time since the early 70's I have no detectable Hep C virus and my outlook is very good, they tell me.

I heard all manner of encouraging words from people throughout all this, some of which was nonsense. But one thing someone said stuck with me because it's so true: “Where there's life, there's hope”. Yes, it's corny, but it's something I really hung my hat on. Never give up if you're still breathing. Modern medicine is a hair's breadth away from miraculous. Hep C can be a slow-moving freight train, and there's always the possibility that there's something that'll work for you just around the corner. You just don't know. I couldn't make it up a single flight of stairs without stopping to rest, and now I'm back to my 3 or 4 floor-minimum-elevator-use rule. So my point is this: hang in there. There's no need to be fatalistic like I was. Don't give in to worry--Hep-Cats should enjoy life just everyone else. Just nine months ago I was a cancer patient with barely enough energy to get out of bed. Now I am in very good shape and looking forward to retirement and a lot of other stuff. I'm fine.

DON'T GIVE UP!

Aug 5, 2015

25 years ago I was given some medication that required a liver blood test. I showed high liver enzymes. The Dr said, “Quit Drinking”. I only ever drank socially, maybe one time per month. He didn't believe me. I thought he was crazy??!!

About 8 years later in about '97 my GP saw high enzymes and said let's test for Hepatitis C (it was the new hot disease). She was almost giddy when it came back positive. She told me “it's like having AIDS” her exact words. So I go to the internet and read all the worst news available. Incurable, liver damage, Cancer and ultimately death. I looked at my 6 year old daughter and prayed to let me see her graduate from high school.

I was referred to an internist that was forming a line writing scripts for interferon treatment. I was given a video to watch on how to give myself shots and what to expect. He said one guy was a roofer. Hard work, but he actually was able to continue working. At this point I felt fine except for the thousand pound elephant placed on my back.

Rule one: get a second opinion. I did and he was NOT aggressive. Said they are making some progress in treatment, your enzymes are not bad. He said go live your life its ok. So I did with the goal of seeing my 6 year old graduate from HS.

Rule two: never drink alcohol with HCV. It's like gas on burning embers. Annual visits to my new infectious disease Dr showed enzymes that went up and down, as did the viral load.

Rule three: know YOUR numbers and what they mean. Viral load went up and down, that's typical of chronic hepatitis. Finally about 7 years ago I was typed for genotype and the news kept getting worse. You have 1a, one of the hardest to cure; turned out to be good news that NONE of us knew at the time. I had a biopsy on my liver...it was easy and painless. Came out at about not great, but not terrible. Some necrosis, no cirrhosis. Dr says let’s wait; treatment is getting shorter....still interferon. In the mean time my best friend from High School died from HCV turning into Liver Cancer. He was diagnosed before me and NEVER STOPPED DRINKING.....it was always 5o'clock somewhere for him. He paid the price.

Rule four: become a health nut. I took vitamins, and supplements and whey protein. I exercised daily, lost weight and generally got healthier and happier......I just felt better with HCV. If I had one year or 20, I was going to make the most of them.

December 2013 my conservative DR says it's time for me to go to a specialist. He referred me to a young DR that specialized in HCV and its treatment. He said I looked healthy enough, I told him I felt good. He said let's do a biopsy. I did, again it's easy!! When I went to discuss the results he said my liver was better than his. He is 35 :-)

My liver seemed to have actually gotten better (see rules one thru four. He said come back in a year, “Cures are close”.

During 2014 Harvoni was approved as was VieKira Pak. I return in January of '15 and the young DR says let's treat, it's time. He prescribes Harvoni. Blue Cross Blue Shield denies it as they use Express Scripts, which made a deal with Abbvie for Viekira Pak. I began a two time a day, 4 pill/day regime for 12 weeks. It was easier than a biopsy, which let me repeat is easy.

On April 15th, 2015, I took my last dosage and a week later was tested for HCV viral load, as well as enzymes. I asked the Dr to fax the report and he sent it and the report came in with his “scribble” across the bottom, “HCV undetectable, CURED”.

My ALT and AST were lower than I had ever seen them. So I am able to live my life, and the major difference is I don't have the HCV tape playing continuously in the background.

My 6 year old daughter graduated from HS in 2010, College in 2014, and gets married in August of this year. I have a one year old granddaughter and I now pray that I will live long enough to see her graduate from High School. You CAN survive HCV, but life is incurable. ;-)

Robby B Jul 29, 2015

I like so many people got caught up in the fast life of drugs, sex and all that comes with it. I started shooting Meth in 2004 while living in Atlanta. My lifestyle landed me in and out of jail. Finally the judge was sick of seeing me. I was sentenced to my first of three prison stays because of my drug addiction. While in prison they ran blood tests and on Thanksgiving Day the doctor brought me into a room where I was told I was HIV positive and Hep C positive. When I got out I went to the doctor again where I was then told I had full blown AIDS. Meth was now my demon, my demon that would always haunt me. My HIV was eventually controlled. My viral load became undetected, and CD4 went up, but my Hep C only got worse. I wanted treatment so bad, but I knew I had other issues to deal with first. I had my addiction to deal with.

Three years past and I fought; I relapsed and got up again. I was sick of being sick and tired. I maintained my sobriety and I started seeking help, while you’re in your addiction you can't do that. My doctor saw that I was ready and fought for me to get on the treatment for Hep C. Three months of Sovaldi and Ribavirin and now I'm undetectable.

I hope that whoever reads this wants to live as bad as I do. I hope if your suffering from the same demons you beat them as well. Good luck.

Jason Carver Jul 26, 2015

I had Cervical Cancer in 2000, had radical hysterectomy and radiation. Have been cancer free since then and even though I had dozens of tests for the cancer, I was never tested for Hep C. I was having terrible joint pain and had a hip transplant in 2008. Still, although I asked doctors, I was told I didn't have Hep C.

I used intravenous drugs in the 70's and some of the people I knew back then had passed away from Hep C, so I was pretty sure I hadn't escaped the bullet. I was diagnosed with rheumatoid arthritis in 2010 and not long after that, Hep C. Although I kind of knew I probably had it, it was still devastating news. Because of the arthritis, the interferon treatments were out of the question. So, I just figured that I would die with the disease.

Lately, I had a liver biopsy and two months after that, my insurance company called to say I was approved for Harvoni. It was as if I had won the lottery. I live in a small town in the mountains and have had so much trouble finding good doctors and such difficulty over the years with insurance companies that I was just astonished that they would approve me for such an expensive treatment without me having to borrow money or do tons of paper work.

I am on the third day of taking Harvoni. If it can do what they say it does will just be a miracle for me. I am in such pain daily from rheumatoid arthritis, that the joint pain from the Hep C just aggravates it. Also, both diseases cause fatigue and if that can be alleviated, maybe I can get some relief.

Good luck to everyone out there who also has this disease, I hoping for the best.

Judy S Jul 24, 2015

This is a different story, one of spontaneous healing.

I acquired Hep C through massive blood transfusions after an ectopic pregnancy that nearly killed me 46 years ago. 6 weeks after the transfusions I got very sick and was told I had severe Hepatitis. No A or B as they called it then. I was in bed for month and it took time to recover. I had a wonderful doctor who told me that if I stayed away from alcohol and meds and ate as healthy as I could (basically poultry, fish, eggs and meats sparingly, lots of fresh veggies and fruits and no added sugars, no sodas and plenty of plain water) I should not have too many problems. I lived by that and took Milk Thistle when I discovered that. In the last few years I have also taken Curcuma dissolved in organic coconut oil with black pepper (half a tsp twice a day). I have had every problem Hep C can give you. Terrible itches, sleep problems, severe muscle aches and pains, joint pains, foggy thinking, thyroid problems, Lichen Planus on arms and legs, my skin is completely freckled. You name it, I have had it.

It was not till 2001 that it was discovered that I had Hep C. I had a viral load of 1.600.000 and enzymes were totally out of whack. Had a liver biopsy, F 1 .My liver specialist advised against treatment because in his book the treatment was worse than the disease and having had the thyroid problems he was leery. Till just this summer I have gone through 3 monthly check ups religiously. In the meanwhile I have had some life threatening unrelated surgeries I have survived not without struggle and worries because of massive antibiotics and meds and long hospital stays. About 3 years ago my numbers started to decline. Last year I became just positive, and this year it has completely disappeared, NEGATIVE, they retested in 2 different labs. The same, it is gone from my RNA.

The Dr. has told me to come back in a year. We are over the moon as anybody can understand. I am conscious that this extremely rare but does happen. I am now 72 and very healthy in every sense.

God bless you all and good luck, with and without treatment.

Jul 23, 2015

I was diagnosed with Hep C in 2001. I had a blood transfusion in 1985. I remember having flu like symptoms after the transfusion. I remember having fatigue for years, which became more severe as the years went on.

I took the Interferon & Ribavirin treatment twice and was a non-responder. Last year I was diagnosed with autoimmune hepatitis & my Doctor recommended I go on Sovaldi & Olysio. I could feel a difference after the 2nd week on treatment - I had more energy, more than I'd had in 25 plus years! I was declared “Non-detectable” for Hep C in November of 2014! I now have my Life back!

Pat W Jul 14, 2015

Like many people who have HCV, I really cannot say how or when I contracted the virus, but my best guess is that I got it from a blood transfusion, which I have had on at least two separate occasions. This was back in the '80's when very little was known about how the virus could be transmitted. Naturally, I was alarmed once the doctor who found the virus after a routine examination told me what the disease actually was. What he told me about it at the time didn't seem to require immediate treatment since I was asymptomatic and believed, at the time, that there was no pressing need to do so. Besides, what I had heard about the virus was disturbing so when the opportunity to be treated arose, against my better judgment, I agreed. At the time, the regiment consisted of a weekly injection of Interferon and a daily dose of Ribavirin. It probably will not surprise anyone to learn that the symptoms were actually worse than the disease. I was able to cope with Ribavirin, but the side effects of Interferon were unpleasant in the extreme but I had resolved to see the treatment through regardless. Looking back on the experience, I think that my doctor misrepresented the facts, as he told me that I was guaranteed to be cured. As I was genotype 1, I was in that category of people for whom the treatment had only a moderate chance of working.

Somewhere around the middle of the treatment-- which was supposed to last for 48 weeks, my doctor decided to add the drug Victrelis to the mix. The addition of this third drug was nightmarish to me; worst of all, it exacerbated my symptoms and because my job was stressful and demanded long hours on my feet (I used to teach high school English), the pressure of the situation became so bad, that I decided to quit teaching at the end of the semester.

The blood tests that I had taken indicated that the viral load had diminished, but as it turned out, this was only temporary. The addition of Victrelis caused terrible mouth sores; so bad, in fact, that eating became torturous and only increased the number of pills I had to take on a daily basis. Although he was initially encouraged by the results, eventually my doctor agreed to stop the treatment as the side effects were making me utterly miserable and also effected a personality change that only made things worse. Looking back now, that was the worst year of my life, given the pressures of my job and the plethora of nasty side effects. This was back in 2011.

I retired from teaching at the end of that year, bringing a 30 year teaching career to a close. Once I went off the meds, I was depressed, feeling like the disease would be with me until I died and my only consolation was the fact that although I had contracted the disease in my early thirties, I was, thankfully, asymptomatic. Since then, I have retired and moved to a new state and had more or less abandoned the idea of seeking treatment.

However, after learning about Harvoni and the promising results it produced, I began to wonder if it might be worthwhile to try again. After all, the numbers were very encouraging and better still, people who were genotype one were responding well to the medication with minimal side effects. At the present time, I have not yet begun treatment but given the good results of Harvoni and other “miracle” drugs, it now seems like I might want to try it one more time. Given the fact that the treatment is well tolerated by most people and only needs 12 weeks to be completed, I wonder if it might be a good idea to try it again. Of course, due to the prohibitive cost of the treatment, it might not be so easy to deal with the exorbitant costs. After all, even a twelve week regimen can cost in excess of $80,000, I have no guarantee that my insurance will cover the expense.

My general health is good and knowing there is a fairly good chance of being cured, I have resolved to try the treatment one more, given the excellent results of the new drugs. I understand, however, that people who have undergone the failed treatment of Interferon & Ribavirin, may have less of a chance of being cured, but since the cure rate is somewhere between 96-99%, it might be worth a try. At the present time, however, I have not yet tried to initiate the new cure. My only reservation is that what if I am one of the few people who might not respond positively to this new treatment? I really would not wish to undergo this treatment unless I am fairly certain that it will work. I know that asking for an iron clad guarantee is unrealistic, but given the exorbitant cost of the drug I feel that this is a legitimate concern.

In the end, I will probably try the new treatment but even so, I have no idea how I will respond to Harvoni. However, I think that if I survived 40 weeks of Interferon, Ribavirin and Victrelis, I imagine that I will survive Harvoni too, but, as with many things, its still not what anyone would call “a sure thing”.

Jul 11, 2015

I found out I have Hepatitis C in 2014. I have taken meds for 6 months and I still have it. My doctor has put me on Harvoni for 3 months. I was so disappointed when she told me I still had it.

I had 2 units of blood in 1983 that’s how long I've had it. When I found out I had the antibodies for Hepatitis C I called my doctor and he said I would never have it so I wasn't checked again until my heart doctor tried to find out why I had a liter of fluid built up on the right side of my heart.

I have had pain today and it scares me.

Jun 29, 2015

I tried Interferon and Ribavirin but was a non-responder. Years later I endured eleven months of hell on Telapravir, Interferon and Ribavirin. I was so ill I just ended up telling myself that I could make it through one hour and then the next. I had so many side effects, skin eruptions and burning sensations, mouth just full of ulcers too painful to drink water, anemia -requiring blood transfusions, no appetite, breathing difficulties, hair loss, eye sight deterioration, severe concentration and memory loss, personality change and the darkest depression, also induced menopause, shingles; the list, believe me, goes on and on... . I endured and fought on and it “worked” and I am now free of Hepatitis.

It's now eight months since I finished the “treatment”. I am sincerely confused because I am still so sick; the treatment has left me a wreck. I took the treatment because I wanted my life back from fatigue and liver pain and I had F3 on Fibrosis scan and was frightened that I would get Cirrhosis. Boy, have I got more than fatigue now. Possibly I was really unlucky - and would I have taken the treatment knowing what I know now - it's a difficult call because you can't really comprehend how bad it can get and become. All I know is that I had a better life before the treatment than I have now and I was a lot stronger. I feel as though the things I enjoyed have now been taken away from me. I have been told that some people who get really sick like me can take a year to start feeling better; but I've been told a lot of things. I am still hoping that I will get better that these ”side effects” I'm left with will gradually fade away. The most distressing side effect is the feeling that you have been left with your brain and memory wiped clean and your living in a strangers broken body- believe me (for some?) this is no easy ride.

N V Jun 29, 2015

In May of 2015 I was diagnosed with Hepatitis C. The doctor told me I need to take this medicine. He said it was very expensive. Over $90,000 for Harvoni for three bottles. My insurance paid everything but $5 on each bottle. I went back for my 4 week blood work my blood level shows HCV “Not Detected”.

When I had my first blood work done my levels were very high. It was 566.850 iu. If you have it don't be scared to see a specialist because this medicine works really well. I haven't had any side effects other than a couple headaches during the first week. It worked really well for me so far. I have another 6 more weeks to go. They say this drug is a miracle drug and it really is.

John Lambert Jun 25, 2015

My husband was diagnosed with HEP C Type 2 in 2008. He took Ultra Milk Thistle and SST recommended by our family doctor. We decided not to do Interferon & Ribavirin because the cure stats and side effects were not good. In 2008, his viral load was 1,050,000. In 2014, his viral load was 300,000. We believe that this drop in viral load is from SST & Ultra Milk Thistle & a good diet and lots of water. In May of this year, he started Solvaldi & Ribavarin and will be done end of July. His viral count is now undetectable.

Marie Richmond Jun 24, 2015

Finally, after three treatments my Hep C is cured all do to the breakthrough drug Harvoni. All I had to do was take one pill a day for 12 weeks. A lot better than the previous two treatments of interferon which were a yr long and made me deathly ill. I was fortunate that my insurance paid the 32,000 dollar a month price considering most won’t approve it because of how expensive and new the treatment is. However, due to the fact that I have previously done two different treatments with negative results and without this one I would have died, my insurance reluctantly paid. Within a month I was cured of Hep C and my viral load was 15. My 12 weeks of treatment is over and somehow the pharmacy sent me an extra half month supply. So if someone is interested in Harvoni please let me know It was my miracle..who knows it could be yours too.

Jun 23, 2015

In 2005 I found out I had Hep C. My doctor convinced me to take interferon and ribavirin for 24 weeks. It was miserable I was tired and depressed. 2 months later the Hep C was back. I quit seeing my liver doctor and my family doc would always tell me I needed to see a specialist. In January 2014, I had emergency surgery for a ruptured appendix. It ruptured 2 1/2 weeks prior to the surgery. The surgeon told my wife I had cirrhosis. I was referred to another liver doctor who had me do 24 weeks of Harvoni and Ribavirin I finished that treatment in December 2014. From July 2012, I was feeling weak and tired and it was getting worse I was depressed lost any ambition I quit fishing, hunting and lost interest in life in general. I started to feel better after I took the last treatment my strength started to return but I don't know if the Hep C has returned or not I have pains in my liver I am depressed I believe the ribavirin has affected my moods and temperament . I am strongly against the interferon treatment it has changed me. My wife could go into great details how these medications have affected me. I just had my blood tested but no results yet. If the Hep C. Is gone then it's the cirrhosis that's making me feel bad. My bones ache, I itch a lot, I feel I'm getting weaker and weaker. I am through taking any more treatments. I can't believe my liver doctor he told me your liver has no pain. I have sharp stabbing pains, pulsating pain, burning sensations and dull aching pains. They all come and go. I'm tired of talking about it to doctors. It seems to me all the doctors want to do is sell me drugs. I wish I could go back in time and never take any of it

Jeff S Jun 21, 2015

I got it from a transfusion as an infant. Got tested once the test was available, and was devastated. Even though I had no liver damage, back then they thought it was a death sentence. I was told I could lengthen my life by a few years if I consented to the torture known as Interferon - Ribavirin combo. Theory was, I would extend my life through the torture, and then maybe a cure would be invented.

I was too much of a pain in the ass to let some little virus win, so I did it. I asked to not be told about the side effects ahead of time so I wouldn't get them psychosomatically. I agreed to just tell them any new body sensations during checkups.

My entire body revolted. Week 1--started losing 1 pound per day even w/o decrease in caloric intake or increase in activity. Then came bad charley horses and joint pain, extreme nausea with a new bionic sense of smell, vomiting, complete loss of appetite, loss of sense of taste (everything tasted like wallpaper paste). Then came the psychiatric symptoms--insomnia for days at a time (I mean NO sleep), depression and confusion to the point that I couldn't function independently. Don't let anyone fool you--hair loss physically hurts as well--not the worst of these symptoms, but not nothing. Lost about 50% of my hair. Couldn't tolerate anyone touching me--skin hurt.

Began concealing my symptoms because my doc said she'd take me off the regimen if it got worse. And I thought that was a death sentence. Finally I had to stop because it was apparent it wasn't going to cure me. Took me 5 months to experience the sense of hunger and 1 year to feel ok.

It's years later and now I'm getting ready to have another round of tests. I hope I can come back here and say I'm cured!

Steve Q. and others, please keep sharing your stories. It does help, even if you don't have a happy happy joy joy one. We need to commiserate--it's very helpful. Thank you.

Ichora S Jun 20, 2015

I was diagnosed in 2014 with Hep C geno 1a viral load 5 million. Likely contracted it in 1991. Thought my life was over. It was a stunning slap in the face with reality. I guess in the rear view mirror, I thought what an incredible time to find out.

I received Sovaldi and Olysio combination for 12weeks. Became Undetected for the virus from the first blood test till now. I take the 24 week post treatment blood work in two weeks. I have had some pretty severe side effects, but compared to interferon and Ribavirin, I am told it is a cake walk. It was not. I am still plagued with scary sides, but hope they will subside. Life without hepatitis far outweighs these things. Best wishes for your treatment journey. Blessings

Jun 16, 2015

I am a partner of someone who is going through the Hep C treatment...my question is has anyone had a bad reaction to giving themselves the injection in the leg? My partner said it hurt when he put it in the leg, which it has never done before. Now he has a gigantic pussy, ugly lump… it looks terrible. He went and saw his specialist and he gave penicillin antibiotics and it seems to be working.

Has anyone experienced the same? Oh and they said it was hard for the partners but I didn't think it would be this hard. :-(

Lynda C Jun 14, 2015

I have had Hep C since I was 16 years of age. I joined the military when I turned that age. The military is where the disease was gotten I believe. I am now 59 years of age. The doctor recently told me I was stage two with my Hep. All I can say is don't drink and eat healthy. Do not let the Hep bother your mental thoughts.

Ronnie R Jun 11, 2015

Started using IV drugs 2010. First rehab in 2011. They took blood work at rehab negative for Hep C. relapsed soon after for the first time. I shared a syringe with someone they found out later and let me know they had Hep C. I went to rehab. I was negative for Hep C. I was very grateful but that did not stop me from using. I just did not share anything anymore.

I’ve been to 2 other rehabs after that last one. In October of 2014 I got tested. I even called to find out the blood work and they said if they didn't contact me everything was normal. Now I am 8 months sober and also 13 weeks pregnant. I went for blood work and my nurse calls me, accusing me, (because I was open about being in recovery first appointment) saying “Were you aware that you would come up positive with Hep C antibodies?” : (

I went for more blood work and tomorrow I go for my 13 week sonogram and Doctor appointment to find out viral loads. I have been so depressed no energy since this news. What are the chances I do not have the virus or the chances I can transmit to my baby and boyfriend? I am so ashamed. I accept that these are the consequences of drug use but worried about my baby and what others think of new just need someone to talk to and not judge me. : (

jacqui a Jun 5, 2015

I was diagnosed with Hep C in 1992 when I went to give blood. I went to my PC Dr. He said no worries you're just a carrier and it will cause no HARM. In 2004 I saw an Internal Specialist and he told me my viral count is 10 million and I should start treatment for Hep C. I went into denial. I mean how could I get Hep C? I’ve been married for 25 years at this point and never used drugs and not into strange sex. How me? So now its 2010, I am sick, I read somewhere that Milk thistle will cure Hep C. After a year of this I know it's not working. Went back to Internal Specialist started Interferon and Ribavirin.

The blood tests and drugs were quickly cleaning out my bank accounts. So I switched to VA Medical to alleviate this problem. I ended up in hospital three separate times. I slept all the time took my drugs as I was told to (even though I knew I would be worse for a few days). I tried to eat and drink but had no appetite and I could only drink water. The hospital stays were for dehydration and malnutrition. Everybody kept telling “You have eat to live” so I ate what I could but everything tasted like cardboard. I went to the hospital once because I had too much ammonia on the brain. I could not remember my own name. It was bad man. But in my mind this monster could not kill me I was going to defeat it. After 12 weeks my viral count dropped to 8 million-good sign. Hope. Only 36 weeks to go now. I had lost about 40 pounds. I got gout in my feet was very painful and started losing some hair which was sad. But I can't stop now, I’ve got to win.

After 36 weeks viral count is at 1 Million thank God. I hit 48 weeks and the viral count undetectable and I am cured. I now weigh 147 pounds started at 305 pounds lost half my body weight but I was alive. Now 2012, time to start recovery. I was 57 when I started treatments. Recovery was slow for me. Muscles in my legs cramped all the time and my hands would tie up in knots. I couldn't stand up on my own. It was BAD. It took about 2 months to stand up and longer to walk any distance. It's now 2015, 4 years have gone by and I am working again as a Software Engineer. I still get tired easily. Legs are slowly getting stronger. But I am alive I and feel healthy. All I can say is when Your Are Standing in Front of the Gates of Hell YOU cannot back down. Treatments are hard but you must gut it out if you wish to live. Help is everywhere. You will be surprised how many people you do not even know help. You have to look. This is your LIFE.

Richard Quest Q Jun 2, 2015

I wrote about the treatment that my daughter and I went through on this post maybe a year ago. We used the Pegasys, Ribavirin and Incivik treatment that was available back then. We got a grant to pay for the treatment. Aside from the Anemia that we had and took Procrit for, the treatment was a breeze. My daughter got it through childbirth and I got it from finger sticks in a blood bank I worked in. But the odds of a cure I think were around 80% which is pretty good. We were both cured. If these newer drugs are so expensive they should still offer the Incivik if the insurance won't cover the new drugs. It worked for us.

Robin S Jun 2, 2015

So I’m back!

I wrote on May 19th that I was on Harvoni n came back detectable on week 5.. But I also said I knew it was working. Well blood work came back from week 10 and it is undetectable/ negative.. Praise God!!. I know now that at week 4 or 5 is just to check if the treatment is working, so even if your still detectable but your viral load has dropped or you’re detectable it is the lowest amount that is detectable. Odds are you will be undetectable after your full 12 week treatment..So hang in there stay positive because the "what ifs" almost did me in..

God Bless!!

Mercy G May 29, 2015

I went through the 48 weeks of Sovaldi and Ribavirin.

It’s been three months since I have been off and they say I'm cured, however it was not a walk in the park. I had to take pain meds to get through it. I had flu like symptoms, bad headaches, joint pain and anxiety. I had anxiety even before treatment. Since I have completed the treatment I feel better now than I did.

I'm glad I went through it. It is hard everyone is different and reacts differently to the medications. I had to turn to my primary care doctor to give pain medicine so I could cope. If you have Hep C (I had genotype 3 which is harder to treat) don't be scared. If you need pain medication or something for the anxiety make sure your doctors are on board. Mine were not. I reached out for help and I’m done.

Good luck. It will pay off in the long run.

anna p May 28, 2015

So over a year ago I went out with friends and had a great night with a glass of wine. The next day I was super itchy. Not just kind of itchy. Itchy all over, itchy. My hands and feet itched so badly that I was itching my body in my sleep. Thought I was allergic to something so took some Claritin. The itching went away. I stopped the Claritin but the itching came back with a vengeance. Called up the doctor and went in and had a ton of bloodwork done. Got a horrible phone message saying this Dr. So-n-So, we need you to come back in and have more blood taken. Went back in and filled 9 more vials of blood. Got another call from Dr and was told I had Hep C. What do you mean Hep C? How could I get it? Long story short, I have no clue how I got it and hate not knowing but there isn't anything I can do. We found out I had Hep C because my alt and ast levels were through the roof. In the 1500 range. I've been monitoring my levels for a year now and I've leveled out. I'm generally at 150 for alt and ast. So that probably means I had just gotten Hep C. Man that sucks but at least I know now. I'm hoping my next liver appt might include a talk of treatment. I will have to go on Valkira Pak because my insurance only covers that. Keeping my fingers crossed. But we might also not treat. I'm trying not to get my hopes up. My last viral load was 250,000 which is less than the 2.3 mil it was before. I have this deep seeded hope that I might be clearing the virus. With have to wait and see what the liver specialist says.

Aaron M May 27, 2015

I'm 60 yr old. I think I've had Hep C for more that 45 yrs. I tried holistic treatments for 15 yrs when the virus was first confirmed by blood tests. Last 2 years my liver got very sick. I'm in stage 4 of Cirrhosis. I started Harvoni 5 weeks ago. After 2 weeks liver #'s were on high side of normal range for the first time in 40 yrs. After 4 weeks on meds liver #'s on the low side of normal. Also Viral load went from 4,000,000 (million) to 20. The Dr’s office called to tell me the virus is undetectable now after just 4 weeks!! I have several weeks of treatment to go. Very excited! No side effects, more energy and clarity of thinking. Ever Grateful!

Rosario Ingargiola May 27, 2015

I have had Hep C, Genotype 2 for approximately 40 years (blood transfusion in 1975 due to complications of child birth). It was detected in 1992 during a routine blood test. Now I also have significant cirrhosis but am not sure of the level. After extensive research, I decided not to go on Interferon/Ribavirin because of the horror stories regarding side effects. I even spoke to people who had gone that route and decided to wait. I really had no outward symptoms all this time. In 2014, I began the 12 week course of Sovaldi + Ribavirin. My virus went “undetectable”; after 6 weeks and I thought I had this virus beat. Unfortunately my 24 week blood test indicated I had relapsed, which was terribly discouraging. My doctors have been marvelous and very pro-active in my treatment, and at first we decided to wait for Gilead's new combination drug which probably won't be available until 2016 or 2017. For those of us with genotypes other than 1, the choices of drug therapies are limited. My doctor has been monitoring the data closely and attended a global conference this year. Finally there are a few case histories like mine where re-treatment with Sovaldi + Ribavirin for 24 weeks instead of 12 were proving successful. Because of my cirrhosis, we decided not to wait but will repeat the Sovaldi + Ribavirin for 24 weeks. I will begin this new treatment period shortly. I had zero side effects from the Sovaldi and a few from the Ribavirin, but nothing terribly debilitating, other than fatigue (anemia-caused). If this protocol doesn't eradicate my virus, then we'll look ahead to one of the new drugs currently going through FDA. I will beat this virus!

P.S.: My insurance company denied this second treatment, however through the experience of the Hepatitis C division of my medical group, I learned that there are many foundations out there who are willing to help you pay for your treatments. Some of the drug manufacturers are even willing to provide their drugs free of charge if you qualify. Don't give up, eat well, be sure you are getting the proper nutrients to support your liver and stay in constant contact with your Hepatologist!

Susan B May 27, 2015

I am a Hep C patient from Holland. I did the interferon/Ribavirin cure in 2005 and had to stop after 3 months, because there was no effect.

On April 8th, I started Daklinza/Sofosbufir(same as Harvoni in the USA) together with Riba, which I was very afraid of. I stopped with Riba after 3 weeks because of the side effects.

Here there are only virus load counts after 12-24-36 weeks.

But the asat/alat was showing good results after 3 weeks.

I am now on week 8 and the side effects are getting less. Side effects like cuffing,headache sleepless no appetite, are still there, but with the oil some are better. I have more of an appetite and I eat much better now, but the worst is the emotional rollercoaster.

I was a drug user in the 70’s & 80’s.

My liver stat’s are now normal for about 42 years!

May 26, 2015

I was young and dumb in Venice Beach, early 80s. I kept testing high in my liver counts back then but was told I had Hep C genotype 1b in 1995. I thought I would eventually succumb to it because there was no way I was getting on injections of Interferon, especially with my background. I thought the feeling of flu and the sight of needles would trigger me. I had biopsies done every 4-5 years and my viral load kept increasing. More and more fatigue. Twenty years later, in walks my miracle cure, Harvoni. This is what I was waiting for. I started 10 days ago. The swelling of energy is fantastic. It began happening 2-3 days ago. The whites of my eyes look whiter and my skin looks more even toned. My only complaint is I have to reprogram myself now. What do I do with this almost forgotten energy? It'll be interesting and exciting to find out. I'm finally looking forward to the future. Get treatment now, is my word of advice.

Jill Haas May 24, 2015

Well I found out I had Hep c genotype 1a in November 2007.. But I really have no way of knowing how long I have had it.. It’s been emotional nightmare for me..But God has certainly sustained me from having a mental breakdown from all the “what if’s”.. But actually there has been no real damage.. But the one awful thing that almost did me in, was the fatigue. It was like walking in cement. I was so physically drained. And my daughters and husband just didn’t understand it.. They just could not understand the depths of my tiredness. In March 2015 the doc’s office called to say I was approved for the new drug Harvoni. I’m on my 9th week. I had blood test 5 weeks in and it came back detectable.. But I knew the Harvoni was working because after 1 week my energy just came back that walking in cement feeling was gone.. I have had no side effects.. I’m feeling 100% percent better.. I’m so grateful and although I have 3 weeks to go I just know that the blood test will come back undetectable... But as I get better physically, my mind has not adjusted to my new energy.. I still say things like I need to rest for a lil' bit but really I’m not tired anymore.. It’s now out of routine.. I have been so tired for so long that I’m finding it hard to adjust to my new self..But I know I can get thru this. I thank God first and foremost and sites like this one who have help me by reading stories of others who have made it. And so very thankful for the researchers that found this new drug and all that made it possible for me to obtain it.. I’m so grateful!!! My life is being given back to me ...you all keep your head up and stay positive.. God Bless

Mercy G May 19, 2015

My story starts 32 years ago, 1982. It's the year I was diagnosed with Hepatitis C, at the onset, I got very sick and weak, I spent over a week in the hospital recovering from the initial attack. I left the hospital feeling 100% better, however I still obviously had the disease.

At the time there were very little if any treatment options, I was told I just had to live with it, as many people live full lives carrying this disease. Jump to 30 years ahead, after all this time, I just felt myself feeling weaker and weaker, and I found it very hard to get motivated to do anything, I also noticed swelling in my belly area. I was at that point determined to do something about it, as I was hearing about new treatments that did not involve peg interferon. This got me very excited, but I was not going to start any treatment until a non peg interferon treatment was approved, even after a treatment of 3 different drugs was approved, the side effects were not something I wanted to deal with, so I waited until Harvoni was available and approved. This proved to be a very good decision, as I breezed through the treatment with absolutely no side effects at all. This was the treatment I had been waiting for, and it was well worth the wait.

I finished the 12 week regimen even after testing “undetectable” after 8 weeks, my doctor said it would be wise to do the full 12 weeks, so I did. I did the full 12 weeks, that was 3 months ago, I recently had a blood test and again tested “undetectable&”. I have 3 months to wait for my last blood test, and if I am still undetectable I will be considered cured. However a recent test showed F2 liver damage, not surprising after 32 years of having my Hepatitis C, but my doctor assured me that this is a mild form of damage, and if I treat my liver right, it should not get any worse, it isn't cirrhosis until you are an F4, so F2 is not too bad. I would recommend anyone whose insurance will cover this treatment to not hesitate, I am so lucky to have defeated this virus that's been plaguing me for so long. Good luck to you.

Joe E May 19, 2015

I'm 56 yrs old and was diagnosed with the Hep C virus 3 yrs ago. My Dr. found it thru a routine blood test. My liver enzymes were elevated. Another test showed HCV. I had genotype 2. I started treatment in the fall of 2012. I was on interferon and Ribavirin. I had a high viral load of 13 million. After 6 months of that treatment the viral load was down to 6 million. When I started the 2nd treatment the load was down to 4 1/2 million. I finished 3 months of Sovaldi with Ribavirin and just heard that the virus is gone!

I can honestly say that the whole ordeal was the worst thing I've ever been thru. I would advise against taking interferon if possible. It gave me huge panic episodes which were very frightening. I did get thru it with the help of my wonderful family. The Sovaldi & Ribavirin were much better and I'm glad I did it. Mainly fatigue, body aches, and nausea with that treatment.

It took time for me to feel like myself again after both treatments. I finished the 2nd treatment end of January and am feeling good now. I am careful to take care of myself- eat well, drink a lot of water, exercise and get plenty of sleep. I wish you well with your Hep C journey!

carol p May 6, 2015

In 2011 I started treatment, Ribavirin and interferon. I did okay at first and then started to have severe skin irritation developed a skin reaction adverse and discomfort. First it was constant chapped lips. They were always cracked bloody and horrible to look at. Then the skin. I looked like I was infested with scabies. That's what the doctor actually thought and prescribed me a cream and a pill of some sort. That really caught up later I went to the dermatologist. I found out that it was a misdiagnosis by the doctor. That was a really weird situation… but that's a whole nother story. I'm just grateful that I am rid of the virus and that I just want to tell other people that they should go ahead and do treatment and this new treatment is incredible and they're so lucky that they get to do it. Just do it, live long, and love hard. I forgot 3 months in I was Anemic. I had to continue on Procrit which is a red blood cells stimulator and it was very expensive. For those who can get treatment, get this new treatment do it quickly. Live long and take care!

May 2, 2015

I started Harvoni on 4-26-15 and I can say so far I have no side affects.

Rosa P Apr 29, 2015

I have just completed 60 weeks of combination Interferon, Ribavarin, and Beceprovir.

I have never felt so sick ever. I have lost 30 lbs. My hair lost all its strength. My teeth lost fillings. They came out. It was horrific. I got so ill and my bloods oxygen was so low that the nurse spoke with my consultant and decided to withdraw treatment but they gave me the final decision. As I was g1and 38 weeks in, I decided to tough it out. I'm glad I did as I was non-detectable at week 4 and completed 8 weeks ago non-detectable. I feel like a new man. I didn't think HCV affected my life until I cleared it and realized just how Ill I was. I get complements on how well I look. The only down side I have been left with patches of eczema on my back that Itch like crazy but it’s a small price.

alan brown Apr 29, 2015

I am a Hepatitis C patient from Nigeria and have treated it for 48 weeks. My treatment finished March of last year (2014) with the Viral Load of 6535 lu/ml coming to Below 43 lu/ml. My Genotype is 4 and the drugs I used was injection Interferon, Peg, and tablet Ribavirin 200mg. But unfortunately 5months after treatment I discovered that the Viral Load has gone up again to 89771 lu/ml and has continued to go up. The liver enzymes are also rising.

I understand that there is a new drug called Harvoni but very expensive. At this point, I do not know what to do because I cannot afford the treatment and need help.

Apr 27, 2015

Itchycoo Park- What did you do there? - I got high!

Man, the seventies ravaged many of us “Small Faces” who went to Itchycoo Park.

I was on 3 different treatments for Hep C -Geno#1. First 2 treatments didn't work. Tri Treatment worked! The one I was on was Telaprevir, Interferon, and Ribavirin. It kicked my butt, but it worked. Treatment was late in regards to developing Cirrhosis (compensated). Three months after 48 week treatment I had an ischemic stroke. Have right side deficiencies.

Hey, Rock Is (was) my life, and this is my song (B.T.O.) When the music was over many did not survive. I am very glad though that I survived, I have been SVR for 2 1/2 years now and the Cirrhosis is stable. Man, don't wait to get treated.

Hebrews 13:6 (NWT), be of good courage!

Be Altruistic, Get Treatment.

Rodaja J Apr 27, 2015

I have been diagnosed with Hep C 2 years ago. I don't know when l got this devil.

I finished treatment with Harvoni on April 5th. I did blood test to see if is positive or negative. It was positive. I did not check the viral load.

That means I am not cured? I am scared to go to the doctor. What can I do? Please help!

yvonna C Apr 27, 2015

Hi everyone, I am a healthcare provider and I was just recently exposed to HCV from my mother.

As crazy as this may seem, I was popping an abscess on her back and a bit of pus squirted in my eye and caused mucous membrane exposure. I was overcome with anxiety because the pus probably contained blood and irrigated my eye consistently with a substantial amount of water. I was mostly upset with myself because being a healthcare provider I should have used goggles to avoid this situation from even happening. My mother contracted the Hep C virus after a blood transfusion after child birth. I also was born Hep C free even though my mother had the virus. Until this day my curiosity has led me to research as much as I can about HCV. I’m trying to find out how many reported exposures have been documented after mucous membrane exposure (eyes). I still have yet to find it. Also, I’ve been researching what cells other than red blood cells may contain the virus. My mother has often stated her case is minor. She has never had HCV medications prescribed to her and has yet to acquire liver damage from HCV. I have read everyone’s stories and I wish the best to everyone including myself. I plan on obtaining a blood test in the next 4 weeks to ensure I have not been infected. It’s a very scary and hard situation to deal with no matter how big or small.

Any insight anyone may have is well appreciated.

Best of luck to everyone who has HCV and many thanks for sharing your stories.

Apr 25, 2015

I was finally approved for three months treatment for Harvoni. I called the pharmacy to get my last refill and to my surprise I was denied. My treatment had been going super. A few side effects but a lot easier than expected. The insurance company said my gastro Dr did not send the right paperwork. Not really surprised. The things I wanted to know I researched on my own. I had no support from anyone in my Dr’s office.

Sorry to go off track. I went one week not taking Harvoni. I was very scared and worried about my treatment. After a week of pure hell I finally got my last refill. I am now finished. I feel worse maybe because of a week on phone listening to people passing the blame.

I was wondering if anyone out there has missed doses for any reason and if any did it cause any changes in treatment?

Thanks for any answers!

May God bless you!

Connietiger B Apr 24, 2015

In March of 2012 I signed up for a medical research study. The study was for 2000 volunteers who would be monitored for 10 years for cancer research. To participate I had to have a thorough medical so that they had a starting point for the study. During the extensive blood work, I was informed that I had Hep C Type 3. I was shocked to say the least. I had given blood at Thanksgiving in 2011 and now 6 months later I received this news. I did the 6 month treatment beginning in August of 2012. My blood count bottomed out in September but I held in there believing that I could make it even through the blood transfusions and being pretty much bed ridden. My hair fell out, weight dropped to under 100 lbs, blood pressure was hovering at 70 over 50. I was tested at 4 months and then again at the end of treatment. The last 4 weeks I cut my Riba down to half rather than quit but kept the Interferon dose as prescribed. I completed the treatment, tested clear and have been clear ever since. I still fear that it will return (I never really knew how I got) but have no scarring of my liver. My health before treatment was considered excellent but now I am constantly fatigued, on thyroid meds permanently and a suppressed immune system but I made it to the end. I am still in the research and think of how fate brought the silent killer into the open.

Jo M Apr 10, 2015

I am 57 yo female.

Feb '14 started throwing up blood, rushed to ER, cirrhosis and esophageal varices almost did me in. Found out I had Hep C Gen 1 from a blood transfusion in 1980 when my son was born. Never knew. Started Harvoni 8 weeks ago, my blood ct. was 14,550,000! Yesterday at follow up, I'm clean (0). NO side effects of med. Felt a little tired once in a while, that's it. All my liver labs are normal since taking Harvoni. But now I have to live with the damage it did. I'm healthy otherwise so hopefully I won't develop CA and my liver will regenerate enough for me to live out my life.

Patrice G Apr 10, 2015

I got Hepatitis C around 4 months ago while injecting heroin. I stopped injecting heroin now and I don't know what to do; whether to start treatment. I don't know. Would anybody give me some advice?

Thank you

Alan

Alan M Apr 9, 2015

Hello

I am 71 years old from India. I have completed 48 injections of Interferon & Ribavirin tablet course on 20th Dec. 2014. I will be taking viral load test around last week of June2015 i.e. after completing six months time after stopping treatment. I have two questions:

01. If my result is positive then what should I do?

02. If my result is negative i.e. viral load < 15 then what should I do?

Eagerly awaiting your reply.

Anil M Apr 8, 2015

My story started in June of 1999. I was almost killed in a road crash. I was told had Geno 2 Hep C. My doctor said he will put me on treatment in December 2015 but really is too long to wait. No idea what to do. This illness has made me very sick.

John

john m Apr 7, 2015

Had a blood transfusion in the seventies.

This is how I contracted Hep C. In the eighties a blood test showed I had what medical community refers to as the non- A/non- B virus. In 1993 identified virus as Hep C.

I have had to deal no energy and just not feeling well although the Drs like to say most people don't even know they have it. I knew after that blood test. I've never felt well.

For 3 wks I'm taking Harvoni. The side effect is that I am extremely tired. After the 8 wk treatment will give a follow up report.

D B Apr 7, 2015

I am 55 yrs old. Contracted Hep C 1997 via a motorcycle accident. Person that hit us had used drugs. Hep C

I just finished Harvoni. I drank lots of water and coconut water. I would wait 2 hours after taking Meds to let my body get full effect. No food but drank 6 glasses of water in that time.

Never had any side effects. None

4 weeks into it, viral load went from 3 million down to 46. Liver Enzymes: 40 to 14 .

Progress . Yay ! !

8 weeks 46 to 12 ...and 14 to 12

Disappointed

And now I have hives on my back. Itchy as anything. Heat irritated more. Ie. Shower

Dr said I'm the second patient she saw now with this. I took Benadryl. (Children's, lol) only at night.

I'm am on no other Meds at all I do not drink alcohol never used any drugs.

Went for blood work three days ago. Just left Drs office. I still have it!!!

UGGH!!!

I have no history and no cirrhosis (before the pills) my liver aches now I don't get it. Going to another lab for blood work. Dr's orders. She is stunned also.

I will keep in touch.

Donna A Apr 7, 2015

I was diagnosed with Hep C back in 2000 and could have contracted it as early as 1980. I tried the Interferon therapy around 2005 and it did not work at all. It was dropping my white count and I was so sick I was taken off after 3 months. I have been waiting for a new drug that does not have the Interferon in it for years now.

I started Harvoni in Dec of 2014 and just finished in March of this year (2015). Prior to starting it I was getting quite sick. My weight was down to almost 110 on my 5'8 "; frame and I spent most days sleeping although I would still have days that were good and I would live life in fact even go out and sing with "the band "once in a while. Many people did not know I was sick but wondered why I was so thin and would remark that I "looked tired ". My viral load was 6 million and I have bridging fibrosis.

The good news is that I BEAT this sucker! My viral load is undetectable. After over a year of not being able to eat much of anything my appetite is back and I have gained 20 pounds! I have never been a drinker but will now celebrate with a very rare occasional glass of wine as I don't want to stress my liver. I am hoping the Harvoni can help with the cirrhosis as well as I have heard it can.

I am very optimistic that in 3 months when I have my recheck it will remain undetectable. This is a miracle drug and is worth taking in my opinion.

The best to you all as I know this is such a difficult journey not only physically but mentally and emotionally. There is a lot of stigma attached to this disease but we need to hold our heads high because we all deserve to benefit from the cure that is now offered from this drug to live our lives to the fullest. I know I was dying and now I am living Hep C FREE!

Donna G Apr 5, 2015

I just found put I have Hepatitis C last year and I am 31 years old, a little overweight and anemic but pretty healthy! I had an ultrasound and blood work done and I am not sure what strand I have but there is very little damage to my liver and it is very slightly enlarged! My liver enzymes are slightly elevated! I just got my health insurance from my job and my Hepatitis A and B vaccines! I am pretty sure my insurance will not cover any new and expensive medications so I will probably be on the dreaded interferon! I was on drugs for 8 years and clean for 3 years! I actually go to a clinic and am on Subutex! The way I figured it I have had this for about 6 years! After reading all of these horror stories I am pretty freaked out about starting treatment now lol! I already have thinning hair and have extremely low energy and high fatigue probably due to the Hepatitis C! I just want to know how bad everybody's side effects have been and what I should expect! I am also curious and hopeful about how long I will have to be on these meds? Hopefully no more than 6 months I was hoping since I am young and healthy it will not be too long! Is interferon a shot? Where do you do it at if so? Do you need counseling and constant monitoring and blood work while you are in treatment? The only symptom I think I had was SEVERE fatigue like my legs are made of cement and I cannot get out of bed and get tired even taking a shower!

Heather B Apr 3, 2015

In 1994, I noticed a lump in my throat. My doctor ordered blood work. The results showed that I was Hepatitis C positive, though that wasn't the cause of the lump.

I had never heard of Hep C. I was much more concerned with the lump. I put the news aside. The lump was on my thyroid. I had a partial thyroidectomy. I was relieved that the biopsy tested benign.

In 2000 a gastroenterologist prescribed the interferon/Ribavirin combination. I lasted on that therapy for 7 months. Then my blood count nosedived and I was taken off that therapy temporarily. My attempt to resume the therapy failed; My body simply would not tolerate it.

I tried peculated interferon about four years later. My body said no. I tried again two years after that and that attempt failed too. My current GP alerted me to the success of Olysio and referred me.

In November, 2014 I started on Harvoni.

I was diagnosed non-detectable for the Hepatitis C virus at the first blood test after starting with Harvoni, 4 weeks into the therapy. I am now in week #16 and non-detectable. The side effects have been negligible. Interferon/Ribavirin therapy was a nightmare. Harvoni is so mild it is hard to believe that it is working.

I am in awe. Harvoni has slight side effects. It works inconspicuously. I hope the result is permanent. If is a permanent cure, then Harvoni is a miracle drug.

Anthony L Apr 3, 2015

I was diagnosed in 1993 after getting a horrible headache and stomach issues. At first I had three pos/neg then by 94 was properly diagnosed. I am not a drinker. I treated with everything I could find holistically with much research. I am an herbalist so doing these treatments has been hard to come to terms with! I am # 3 Geno and in the third stages. In 2001 I did the Peg with Rib for six months giving self injections 3-months into. My R/B count dangerously dropped. Dose was changed. I completed six months. Liver enzymes were almost nil but came back full force. I am 125 weight; 102 by end of treatment. I lost 3/4 of my hair but grew back thicker. I read a woman's post asking for feedback. Sense I have been riddled with body aches muscle spasms not in any one place, horrible stomach pain, fatigue, just in past 2 months my sleep patterns have been great. I was averaging 2-3 hours a night if I was lucky. So here I am after being told I have fibrosis two m/ ago and after six months of trying to get Sovaldi, Obamacare did not pay and I was turned down by two clinics that help people who fall thru the cracks. So yesterday my two week supply arrived. Today I started 400 mg Ribavirin at 9:00. Sovaldi at 6:00. 400 mg Rib 9:00.

I won't to live and watch my grandchildren grow up if I have any chance. I wish everyone a healing journey with the grace of God.

Cynthia

Age 54

Cynthia K Apr 2, 2015

Hi all,

I did treatment with Peg and Riba back in 2000 and did not respond. I then did treatment with Pegasys and Rebetol and ended up in looney ward. I then decided Peg/Riba was not for me and didn't want no nasty side effects from Incivek or Victrelis so I postponed treatment until now.

3 days ago I started Harvoni after a fierce fight with my insurance company, Support Path got me covered for free. The only side effect is a bit of nausea at night which I treat with ginger. I'm so happy to finally be taking a decent regimen but now I'm concerned about what someone mentioned in regards to mutation when one has geno 1a. I hope this isn't my case since I'm also co-inf with HIV. Other than that I'm optimistic and ecstatic.

I wish nothing but a cure for all my fellow heppers here. For the fellow with geno 1a perhaps Viekira Pak can be your chance at a cure. There's a lot more coming on the pipeline so don't lose hope. Beat the dragon!

Loui P Mar 30, 2015

I just feel this whole Hep C thing with me is getting SO old. Diagnosed 1996 - then in 2004 finally started the Pegasus 48-week series - I was 45.

First treatment: instant menopause.

Second month: heart palpitations (wearing monitor, etc)

Third month: OMG migraines!

Fourth month: WTF restless leg syndrome.

Can this get worse?....

Fifth month: started blowing up like a Thanksgiving turkey - Then the depression and fatigue, but YO! No 1a viral load - Whee.

So I lived through the 48 weeks - and then, guess what? 12 weeks later - IT'S BACK! But now I still had most of those side effects to contend with. I kinda gave up at that point - No new treatments available for awhile...Then the RA kicked in 3 years ago - first one foot, then the following summer, the other, now hands, hips, knees. Since I have Medicaid now, and have great reports from several friends about this new treatment - I'm going for it again because I HAVE NOTHING HEALTH-WISE LEFT TO LOSE. The biopsy was excruciating (liver) this time - terrified of the colonoscopy...and I keep thinkin': what's the point of this? What will be restored to my health? 57 now -

Diane g Mar 29, 2015

Just enjoyed my 60th Birthday with the Hep C I have had for over 40 years now. I am classed 1A, and yessir the disease does steal away your life, BUT awhile back when it was explained to me that I was somewhere around 10% liver function left working. I about pooped, and then I got smart about it. Tired of the Doctors drugs, and Interferon and Ribavirin after six months was doing nothing but increasing the viral load. I stopped it all, and I do mean I brought everything to a big screeching halt.

I knew it was time to seriously study what I could do myself to help myself.

I had blown up in weight to 4 pounds under weighing 400 lbs. I was having a lot of issues with breathing, and thought yeppers I am a dead man soon enough.

I stopped all the meds with my doctors monitoring me. It was certainly my call so I did it. I changed almost everything you could imagine that can be changed.

1. Diet was altered to just plain healthy vegetables, lean meats, NO alcohol of any sort, NO refined sugars, No Drugs, No garbage in- period. Meds have to be carefully selected as I refuse to harm my liver any further, or make it work any harder than I need to.

The weight loss was fantastic, and gave me tons of welcome energy. Caffeine is filtered mostly by the kidneys so a little xtra go-go juice helps when I feel totally exhausted, and I do get tired out pretty badly.

Through careful study and asking the medical world lots of questions I developed a program that works wonders for me. Here is what I take and do:

1. Two ibuprofen for the aches and hurts.

2. Two Acai berries twice a day to help as an anti-oxident.

3. One Zinc, (haven't had a cold in over twenty years now).

4. One Potassium

5. Two Magnesium

* I do take a liquid form of B12+ when I need to spend some serious energy doing something. Gives me energy for about 4 hours then it tapers off fairly quick.

I walk a lot, and keep a very positive mental attitude. Gall bladder had to go so that is now gone, so obviously fatty foods were out, but then I had already chopped them anyway, so not too big of a deal.

I have my down days, so I just simply rest as I can. After forty years with this disease, I still do not get the sores, nor have I turned jaundice yet.

My Dr once said to me that it is likely that someday I will pass from something other than the Hep C, and that it is possible to live with only 10 percent of my liver functioning. Guess what? I'm still here, and doing pretty good all things considered. I still chase my hobbies, and love those around me. Keeping a positive attitude is what I think helps the most, and then think and respond to your bodies needs in a most healthy way, and then enjoy life.

Perhaps a transplant might be in my future, either way I'm happy that I am in control. I will keep you all in my thoughts and prayers for healing, as well as for joy in your hearts.

Your Ol'Bud

Tomboy

P.s. Chase your dreams and make them happen, and if you have folks in your life that you adore and love then make certain that you tell them often.

Thomas F Mar 29, 2015

I contracted Hep C about ten years ago. I was a drug user at the time, but I had never used needles. My boyfriend at the time did; however, and I assume I contracted the virus through him. I was diagnosed with genotype 1a and my Dr told me not to even bother with treatment. I was 19 and he said it would put me through hell and probably wouldn't help me at all.

This December my Gastro Dr told me about Harvoni. I was so excited. I have insurance through the VA and wasn't sure how it would work with the copays and so forth, but one of those Hep C programs picked up my copays up to $10,000 and I did not come out of pocket for any of the treatments.

I took the pill daily. The first two to three weeks I was completely exhausted, but I guess my body adjusted to the meds and I regained my energy. There were still some days, though; that I was unnaturally tired and would go to bed at 7:00, but that's a small price to pay for a potentially life-saving medication.

I was told the treatment would take 12 weeks and I would be doing blood work before starting, and then monthly until treatment completed, and follow up blood work three months after. I was told most patients would see a significant drop on their viral load after the eight week mark, so I was completely shocked at my four-week appointment when I was told Hep C was undetectable in my blood. I had to get up and look at the doctor's screen myself. I just couldn't believe it. I was beside myself. I have recently completed the final treatment and I'll have to do blood work again in three months to be sure the virus does not come back, which my doctor assures me it won't.

God is good. Every step of the way, He has helped me through this. I am so appreciative of my healing! I feel like I have a new start and a fresh chance at life! I want to be an organ donor! I want to donate blood! I want this healing to go beyond me and to reach others! There aren't words to describe the feeling of knowing the disease is beaten! It was always in the back of my mind gnawing away. I had gotten something on my hands once which turned part of my palms yellow and I thought I was dying and going through liver failure at the age of 28. I have feared so much and have been ashamed many times. I kept my diagnosis from many people, and now I want everyone to know! I have been telling people now of the diagnosis just so I can tell them about the victory!

Marie d Mar 28, 2015

My story:

Drinking alcohol is a No No.

Take only medicine that's needed.

Stay away from animal protein- complete vegetable diet if you can.

Juices at breakfast, lunch, and dinner.

Stay on top of your medical records.

Lab work- check for errors.

Compare previous blood work to the present.

Seek more information and don't use any drugs with acetaminophen, or Opioids.

The Hep C can damage your kidney and arteries.

Robert L Mar 27, 2015

I had hepatitis C of the worst kind. Genotype 1 and my count was 13000 when I got sick. I'm here to tell you I am 100 percent cured. It is gone.

Now this is my story and advice.

I went to a specialist in treating Hepatitis. Oh, and I took milk thistle. It helps your liver. So take milk thistle and do not take iron. It's in multi vitamins. They have them without iron. Do not take Tylenol or drink. I drank 8 glasses of water every day. Put Crystal Light in it. You must do this to recover. All advice from my specialist. Stay away from trials. Interferon is what works. Don't put your body on trial and expect results. I smoked pot for nausea and it worked for me. I felt like a sinner because I used on Christmas Eve and that is when I got Hep C. So I wanted forgiveness and believed God would forgive me. I never let my thoughts believe that I would not be healed. I knew that one year of suffering was worth saving my liver. No back and forth. Once I started the medication I kept taking it. Yes it was hard but somehow acceptance was what helped a lot. If you have the flu you accept it. This is no different. I tried to work for the first three months then I couldn't keep up so I gave myself permission to rest. How can I heal if I don't rest? Your body needs rest. I went to a church group once a week. So take one night or day to be around supportive people. Uplift your spirit. So important. Then I watched comedies to fight depression. It made me laugh, good medicine. So nutrition and HOPE. Do not doubt that you will get better. Claim it and don't fight being sick, accept it. What is a year compared to the option of having a liver? Why fight against it. I would not be here if I had given up. It's okay to be sick. If you will be healed. Faith one day at a time. Milk thistle, no Iron, Tylenol or alcohol. 8 full glasses of water. You can do it. I suffered but my liver is good. I hope this helps!! :-) :-)

Kinya K Mar 26, 2015

l got infected 10 yrs ago through drug use. l was a heroin user [injecting] 5 times a day with crack in the mix. Now l am 12 weeks into the interferon + Riboflavin treatment with 12 weeks to go. It's really horrible. l can't sleep even with sleeping tablets, brain fog, l get tired easily, and l also get angry so quickly, l hope this treatment works and cures me coz l want 2 slay this ugly a**ed dragon!

MIKE K Mar 26, 2015

The doctor has been telling me I have Hepatitis C.

I have severe pain and can't push on liver.

No treatment scared of it.

Gloria H Mar 25, 2015

Well I'm 69.

Probably contracted Hep C some 30 yrs ago, or so. Last year did Olysio and Sovaldi.

Was "fortunate? ". Got the meds at no cost. Had an ultrasound and blood tests at the start. Ended 12 week program with undetectable viral load, started at 2mil+. Now 6 months, waiting for viral load results, but all else indicates no virus. BUT now my liver is hurting, tests show sclerosis, need to find out to what degree, F2-4.

MY QUESTION NOW IS DID THE MEDS SOMEHOW increase the "volume" of scar tissue?

I believe and try to live eating healthy, no drugs or alcohol. Now I am not sure if I rushed into the drug treatment, maybe should have tried a more holistic approach. I would like to hear back from Olysio/Sovaldi folks and how your liver is doing.

My dad told me before he died that once you step into the theater of conventional medicine there is no turning back, because the unknown side effects keep piping up.

My email: [email protected]

Peter J Mar 24, 2015

Started Harvoni and had no trouble getting meds. Never did I have a side effect. After less than 28 days on meds retook blood. No evidence of virus found. A miracle drug. Hope there will be no after effects years down the road but for now I feel and look like always but then again I never felt ill from Hep C. For those that have effects it may all be in your makeup to complain.

jane d Mar 24, 2015

I am a 45 year old man who no longer has HPVC!

I just had my second 6 month check which is all good news! My Doctor told me again that I am a rare individual and very lucky. I wanted to share this as I believe I have been leaving with this disease for more than a decade before being diagnosed. I was a very heavy drinker up until I was diagnosed. I mean a lot. I quit pretty much on the spot and started researching the disease more. I have always been fairly active so I approached the mental game with fitness to help me sleep! I couldn't do this unless I fatigue the body first.

Second I stopped eating red meat (beef). I will only eat lean pork, chicken, turkey and fish with 5 servings a day of carrots, broccoli, and green leafy vegetables, raw not cooked or seasoned. Every morning I would eat honey nut Cheerios with a quarter cup of blueberries or some kind of berries every day. I dropped 40 lbs in less than two months and I have kept it off for 2.5 years! This is how long it took me to finally see the magic pill finally work and I have told myself it can't hurt!

I have a wife and two children with a good job were people have to count on me! I know other Hepatitis C victims and they all thought I am nuts. I only look at my liver and choose foods that were not hard on it or over worked to cause stress to it. My liver has a stage 2 liver damage almost a three and it does not ache or burn like it used to but I can never forget what caused it! I will keep living a healthier life style and I enjoy ice cream and Dr Pepper as my outs! Sometimes I over-indulge but I pay it back later!

Mike G Mar 23, 2015

I was diagnosed 25 years ago with Hep C just prior to my wedding when I did a blood test for life insurance. I was told by my first Gastroenterologist that I had a year to a year and a half to live. Well 2.5 courses of interferon later (couldn't tolerate Ribavirin) which appeared unsuccessful at the time. L

Last treatment and testing was 20 years ago.

I am still here and healthy. I am not a drinker or drug user and take reasonable care of my health. However, living with the Hep-C " the Sword of Damocles " hanging over my head has had perhaps a positive impact on the way I live and experience life. The 1st symptom I have that I feel is Hep-C related is constant fatigue. Because of this I went to a hospital here in Thailand for blood work re: genotype and viral load to see if I am a candidate for Harvoni. I will get the results next week and if I am still infected I will explore buying generic Harvoni in India.

Mark a Mar 23, 2015

WALKING MIRACLE. Contracted Hep-C in 1978 through blood transfusion. My life has definitely been a struggle. There are too many events with my physical decline to tell about..but here is my greatly consolidated timeline:

1984 - Identified Hep-C as GT1a.

Went through 3 different clinical trials within 6 years and no luck defeating virus. Always returned with a vengeance. No other trials available for someone with my history of failure to respond. Many years proved how Hep-C can ravage the body....no hope only depression and anguish over what my family had gone through watching my decline.

December 2010 - Liver cancer - 4 tumors - 6 months to live.

March 2011 - Liver transplant (within 13 days of being placed on transplant list).

2012 - Metastatic lung cancer. Successful radiation eliminated cancer in lung.

Feb. 2014 - Began Harvoni/Ribavarin to cure Hep-C

April 2014 - HEP-C VIRAL LOAD UND...!!!!! Hopefully remaining so for the next 6 months to be sure.

Sooooooooooooooooooo relieved after 36 years of my body and mind battling this disease, it's finally over and I WON.

Message to everyone...HANG IN THERE AND NEVER, EVER GIVE UP.

Michael C Mar 19, 2015

I need help badly. Co-infected 8 years ago.

Took 2 years of treatment with interferon to clear the virus. My treatment was a nightmare. Heavy depression. Now, 6 years post treatment, I still get severely depressed. I say it's chemical induced and the VA says it's a head issue.

Question: is it possible to suffer depression 6 years post?

I need help please.

MARV C Mar 19, 2015

I really need some support

I went through the Pegasus, Ribavirin, and even Victrelis, in 2013 and had 2 negative blood tests but about 1month later the blood test came back positive, so I still have it. I am geno type 1a and apparently the hardest to treat.

I have some questions:

1) What condition is my liver now after putting all those very strong medication in there?

2) they have discovered another new thing with people who are my strain, 1a, the reason the treatment did not work because some of us with this strain have a mutation ,as my specialist called it and when on treatment it hides and after the medication they come back. I live in Ontario, Canada and my blood has to be sent to British Columbia to see if I have that. Apparently they just discovered it last year, that is what I was told. Has anyone else been told this or knows anything about it?

I am terrified to take any more experimental drugs to find out years from now that it has caused something else.

THIS IS A NEW DISEASE AND I HAVE HAD IT SINCE OCT/85, but they only started testing in 1992. They have had such little time to study this disease and are still finding new things about it. Like the mutation that only some of us have, why?

I would think twice about getting treatment , find out , if you are geno type 1A then get your doctor to do the test for the mutation because u

You will go through 6 or 24 months of hell for nothing. Please listen I know because I am going through it now and do not want any medication till they tell me how my liver is now.

Things to talk to your doc about. I am at 30 years and this is when it supposedly goes bad, I already don't eat, but don't lose weight , I eat every night and I have to smoke a bit of pot to get me hungry which I do not get legally. Lucky charms with nuts and Smarties, everyday now for about 7 months but none of my docs seem to think it is a problem. I have lost all my taste for food, I will cook it but not eat it. Please is anyone else going through this or is it just me losing my mind?

Corey b Mar 17, 2015

I' m New Here and I Have Humana Medicare Advantage PPO in Virginia. On SSDI For Bipolar I + Psychosis and I Doubt My Liver Is Very Damaged At All Because I Contracted It So "Recently". I want Harvoni NOW-- BEFORE The Damage Happens!!What Do I Do!?!?

I have a Medicare advantage plan through Humana with Part D coverage--Humana Gold PPO. I live in Richmond, VA and I see a hepatologist at MCV/VCU medical center. I'm 35 years old, but you'd swear I was 22, and the child inside this man's body is scared sh*tless. I have Hepatitis C 1a. Through some insane brainstorming, me and my PCP pretty much narrowed it down to I probably caught in 2010. My AST is 66 and my ALT is 125, the test prior had my AST at 206 and ALT at 306!! My viral load is 8 million. I really love my doctor and I know he's going to do his best with his team to get me onto treatment ASAP. I trust him too--he did his Hepatology residency at the mayo clinic...so at least mentally I feel like I'm being well taken care of. I need more blood tests and a fibrosis scan he tells me before we can try to submit for insurance. I have no doubt he will be putting me on Harvoni--we spoke about it. I already suffer from severe bipolar type I depression with psychotic features, so interferon and Ribavirin are out of the picture right now anyway. Because of that condition I am on social security disability (SSDI) and I make less than $1200/month BEFORE any medical premium deductions. I'm hoping "mysupportpath" can get the monthly co-pays down to something I could handle. I'm not even sure they'll deal with me since I'm partially insured by the govt. (Medicare advantage) *shrugs*

Because of my income, I get from Medicare an addendum to my coverage what is called "extra help paying for prescription drugs" this makes it so any Medicare covered drug if generic is $2.65 and if brand name it'd be $6.95. Of course, I do not know how much Medicare "help" would pay for what is called, if Humana approves me, a "drug".

I'm wondering if anyone here has been in a similar situation and knows what would happen in such a scenario, or if anyone here knows anyone who's been through a situation identical to this, or maybe yourself. I would greatly appreciate any information. I just found out I was sick in December and, I have to admit--I'm just really scared. Have been doing lots of crying. My younger brother has cerebral palsy and my mother is just turning 60. I'm going to need to be here to be a caregiver to a certain degree at some point--I can't be suffering the physical and mental issues from chronic HCV--already feeling the "early" symptoms, albeit in my head they just may be. Hope so, I have killer anxiety and am already something of a hypochondriac.

Again, I live in Richmond, Virginia, btw. I don't know if that has any bearing on how Medicare and advantage and part d work in this region as opposed to any other, although I HAVE heard of the majority of patients being approved for Harvoni are with Humana, as their Right Source mail-order pharmacy made some small deal with Gilead; I believe Cigna did as well.

Anyway, sorry for my rambling. I'm just--as I said--scared. All I've been doing is sleeping, trying to forget I have 8 million little viral bastards trying to eat away at my liver and I can't do anything about it right now.

Luckily I hate alcohol, and I've been eating lots of greens and fruits, as well as milk thistle supplements and lots and lots of water. Always tired to the point of basically being comatose, never hungry, and dull empty pain in my gut. Maybe the physical symptoms are psychosomatic, but who knows? Probably a little bit of my body and the remainder in my head--anxiety for me takes mind over matter to an entirely new level--ESPECIALLY when it deals with my body. Any weird sensation or strange noise/gurgling--I'm online scaring myself almost to the ER.

I guess I'm just looking for some advice/info as far as dealing with insurance companies' Rx approval departments. And also, I guess, help dealing with being denied. I'm all new at this. I thought I was young and invincible. I'm neither and I could really use some kind words of experience and maybe some online like-situational acquaintances....josh. :-)

p.s. I guess the advice is vital, but the support and kindness is appreciated and will definitely be reciprocated.

35 years old

HCV 1a--likely contracted between 2007-2011

Viral load: 8 million

AST:66

ALT:125

(fibroscan on next visit--in about a month)

josh k Mar 16, 2015

On day three of Harvoni, so far just tired but not sure if its daylight savings time. I have Hepatitis C, I have had a case of Ascites but fluid has been removed but on diuretics. Since starting Harvoni I have been going to the bathroom more. Not sure if it's the diuretic or the Harvoni adding to it.

Randi P Mar 13, 2015

I went thru the Hep C Interferon -Ribavirin- Incivik. My Hep C came back after 22 weeks. I then went on Sovaldi and Olysio for 12 weeks. It has been about 6 months and not a trace in my system. 12 is my viral count.

Mary K Mar 11, 2015

Hi. It is my deepest hope to find a miracle cure, something that will help me to recover from successful Hep C treatment!

Yes, I'm grateful to have finally cleared Hep C after the second attempt!

Seems though, that the 72-week-long course of Alpha Interferon/Ribavirin that it took to clear the virus left me with a body that's now wracked with chronic pain and fibromyalgia-like symptoms. (mainly widespread myofascial pain, brain fog, depression, insomnia, and mood swings.)

I strongly suspect that the symptoms I now experience are long-lasting (permanent? God, I hope not) effects of the course of treatment I did to eradicate Hep C. The pain, cognitive defects, and unstable mood are adversely affecting the quality of my life. I have goals and and dreams and things I want to do in life, and being debilitated and in pain is getting in the way!

If anyone has suggestions of where I might turn or a course of action I might pursue to find relief, I will be extremely grateful.

With Gratitude,

Jen

Jenni J Mar 10, 2015

Like many I got out of the service with a drug problem that only got worse when I started using needles with other people. Before I knew it, my skin was yellow; my eyes were yellow, dark urine, very sick. Went to VA hosp back in 1972. There were no drugs or cure but rest and diet. After months I got better and for years I seemed to be ok. Now at 65 I feel like I'm having a relapse. Not full blown. Yellow eyes and very tired all the time. When I retired and lost my HMO insurance. I had to go to the VA and I tested positive for Hep C 41 yrs later. After reading that so many other people that have same problem I guess I will get tested again but after hearing of the side effects I'm not sure I want to take the new drugs that are out there now.

michael s Mar 7, 2015

I did post before here stating I was denied Harvoni treatment for Hep C 1a because I wasn't sick enough. After I got a hold of my Senator and stated "Why do I have to become sick and liver damaged before I can get treatment?" Makes no sense. Well the VA sent me a letter saying I was approved. What a shocker, huh? I got the 12 wk treatment and within 30 days I tested 100% clean. I have had NO side effects. I'm on my last 10 days now. God I hope this works. By the way the VA has been great to me very caring. Maybe after the Senator was involved, lol. The decision as to who gets treated and who do not get treated are made by the people you don't see. But you still have to fit the treatment profile. No drinking, no drugs. I fit the profile from the very start. Good luck to everyone.

Male61 M Mar 5, 2015

Hello,

I'm sure I got Hep C when I experimented with drugs when I was eighteen years old. I am now 62. I found out I had Hep C when I had a physical at 50 years old. So immediately I wanted this out of my body and tried the Interferon treatment with no success. But OH MY GOD! I have been beat up, run over by horses, broke both arms, left leg, nose and ribs so I thought I had felt pain before. The only way I can explain Interferon is like sitting with the devil. I am now on my eighth week of Harvoni. The virus was undetected at 4 weeks. The only effects I feel are a slight fogginess two hours after I take the Harvoni which goes way. Then about eight hours after I take Harvoni I will have a slight dull headache which is cured by a cup of tea with two teabags in it. Other than that, this is like eating my Granddaughters gummy bears compared to the Interferon. So to all of you that have to go through this, no worries, just take your pill and drink lots of water. I thank God to be given this second chance.

Tom J Mar 5, 2015

Hi, on day 7 of Harvoni and NO side effects at all! OMG, great!

howard h Mar 4, 2015

Just a follow up.

Got some blood from operation in 1985. I think that's where I got Hep C but I was in Vietnam 1970 so... Anyway never had any idea. Drink tons. Went to VA for health benefits. Blood work showed Hep C, geno 1a, load 6 mil. I chose to wait since I had no problems.

I still drink heavy, as did my brother. I told him. He got tested had type 1a. He also never had issues. He got a biopsy, no damage. I chose not to. I don't like the idea of doing it. When Harvoni came out I signed up still had no problems. VA checked again before letting me have Harvoni. This time viral load was 3 million. I asked why it went down? The doc said my body was fighting it off. I really don't buy that. Cut in half? No. Then he told me to wait for 6 more weeks. Ohhh... so that's the way it is.

Anyway, since I am 100% SERVICE CONNECTED (Vietnam) I said I wanted to start treatment now, please.

Today is day 7 and no side effects at all. None.

I wish everyone good luck. May God bless us all, the USA, and most of all bless and take care of fighting MEN.

Howard H

howard h Mar 4, 2015

I found out I contracted Hep C 3 years ago due to IV drug use. It was devastating to me emotionally and I was noticing the symptoms worsen liver pain, night sweats, and terrible bouts of fatigue. I am a veteran so I receive healthcare at the VA. They started me on the treatment called Harvoni for a 12 week cycle and after only one month I was showing undetectable for the virus I am now 2 months post treatment and I do blood test once a month and my last came back undetectable.

I am so thankful to have been given the chance to receive Harvoni treatment through the VA because I could not afford thus wonderful treatment otherwise. Stay strong and know you are not alone and there is hope don't beat yourself up like I did for my mistakes it is a beautiful world out there!

david m Mar 4, 2015

Please help.

I'm in my 8th week of Harvoni. I thought I was off to a great start, and then the rash started, and then blisters. Scratching to the point of bleeding everywhere but my face.

My doc says no one else has this. I haven't slept. I feel like wasps are stinging me. I've tried so many things. I'm afraid it's a sign my liver is shutting down.

I have stage 3 geno 1a.

I'm 60 years old. I was a bodybuilder and runner. In the last 4 months I've watched my muscles go away. Don't have a lot of family. Work as a realtor on commission so I've taken a minimum wage job to make sure income is coming in.

Please help me. 4 am- can't sleep my body is red and looks horrible I feel I'm being taught a lesson.

I don't want to be around people.

Thanks in advance.

Carolyn w Mar 2, 2015

Hi,

I have visited the clinic for a periodic checkup,

My HCV, showed positive and then the doctor did another test. It should non-reactive and the doctor told me that the percentage was 0.1555.

Can someone advise on this matter

Regards,

Ali

Ali I Feb 26, 2015

I was diagnosed with Hep C genotype 4b in 2014. Viral Load of 2000 mil/u.

I am on week 10 now on Rib and Reiferron. I have no side effects at all. I do not feel like I'm taking meds.

Can anyone help me, how long will it take to treat my Hep C?

Ayuel D Feb 25, 2015

I'm on week 7 of treatment. My hair is falling out. its long so I'm going to get it cut. I have an unbearable itch 24/7. I've been told its raised Bilirubin levels because of the pills. Anyone have any idea how to stop it? I'm going mad with it. Thanks.

Geri

geri t Feb 22, 2015

I am a chronic sufferer of the Hepatitis C virus. I live in Central Africa, where people are not very open about this disease, or its effects on neither its sufferers nor their families. I went through the Ribavirin/Interferon combination treatment for 48 weeks April 2007 to February 2008. After the treatment the virus was undetectable, then 6 months later I tested, and the viral load was right where it was before the treatment. Today, I hear about this new treatment with Harvoni, and I am wondering whether at 57 years old, and the high cost of this new drug, if this is the right time to undergo another treatment? If it is, how long will this treatment last? Since the treatment, I regularly cleanse/detox my liver with weekly Robusta Coffee Enemas and I sometimes do a 60 ml Organic Castor Oil enema an hour before the coffee enema. My diet is more vegetarian to about 70%. I exercise for an hour 5-6 days a week, and for 5 of those days I add 30-45 minutes of Yoga, and 15 minute of meditation daily. I have not looked more radiant, not felt well in a very long time. My BMI is 24.2, and Green teas are my preferred hot drinks. I do drink 1-2 glasses of Red wine during meals very, very sparingly. Any advice from someone out there who understands exactly what I am talking about?

Mary L Feb 21, 2015

I was told that I had Hep C in 2003 and from that point on I attempted to treat myself with liver aids and vitamins and most of all remain drug and alcohol free. Which I have done up until a few months ago when I decided it was time to get the real facts and go to a doctor and have lab work done and low and behold my Hep C I was diagnosed with came back UNDETECTABLE!!! I ask why and was told my bodys immune system actually fought it and by not using drugs or booze and eating right helped out tremendously so all I can say that I was blessed. I know the treatment they have now is great because I have good friends being treated now and coming back undetected after 7 weeks! So get help!!

Rudy A Feb 20, 2015

Hi there,

I am in my 3rd week of taking Harvoni and experience a headache every day, for about 5 hours after I take the pill. I realize that my side effects are nothing compared to those who were on the interferon, but these headaches are really getting to me. I only have to be on the Harvoni for 12 weeks so I am going to tough it out and with God's help, I will be cured of this darn Hep C.

Blessings and good luck to everyone.

Tamera T Feb 19, 2015

I am the mother of a beautiful 29 year old daughter who contracted Hep C approx 2-3 years ago. We do not know how she got it, but here we are and well you know the story.

I want to tell you we have NOT done ANY conventional treatments at all. Because she was so sick and weak it would have killed her to do interferon and NOW we are waiting to see how the HARVONI treatments are turning out since it hasn't been on the market that long. For those of you who need to get the virus off of your liver fast. PLEASE WATCH THIS TESTIMONY OF WHAT WE DID...

TEST RESULTS INCLUDED. Still has virus but is off her liver...see below

https://www.youtube.com/watch?v=9L6ujhjUeeY

My daughter also had chrones and ulcerative colitis and this is how she got cured!! see below

https://www.youtube.com/watch?v=ooU68vTLwrQ

God Bless

Penny

Penny M Feb 19, 2015

In 1998, my wife and I donated at a blood drive in our neighborhood. We were contacted by the blood people we had Hep C. We researched and went to Dr. specializing in the disease. He misdiagnosed us as 1b, not his fault that was the limitations of testing back then. We are both 1a. Neither of us showed symptoms and seemed to tolerate the virus, so we denied the interferon treatments available at the time. They seemed worse than the disease. I did liver biopsy and stayed up to date on new drugs coming on-line. Through the years and annual check-ups, my glucose levels kept on climbing. Until last year I was at 180. When the Harvoni treatment was approved (2014), my Dr. applied to insurance company and we were denied. He would not appeal because he said it would do no good. When the Abvie, Viekira Pak was approved, I immediately applied and was approved for treatment for both of us. We have been on the Pak and Ribavirin four weeks. My wife, who had low counts about 1.2 million is progressing very well. Her Liver numbers are perfect and she feels great. I'm struggling a bit. My glucose has spiked to 292 and I have difficulty breathing. I am on a no carb diet and am forcing myself to exercise. So far that is helping. My counts were over 9mil. I am hopeful that ridding the virus in my body will allow the liver to process the sugars and work the way it's supposed to. We are very lucky to have the new cures that are available and that the prices are coming down. I still wish we could have gotten the Harvoni treatment. I believe it is the superior drug with fewer side effects.

Mike C Feb 18, 2015

I gave blood through church in 1988. My response was I had Hep B antibody, which is a good thing in a way as I could never get it again. Also had something else, which later turned out to be Hep C chronic. Must have gotten both when I received blood products in a base hospital when my husband was in service in 1953. I always had to work and had 2 children. Was tired always, but my husband convinced me I was an over achiever. Was diagnosed with Osteoarthritis at 35. Have worked out most of my life and it has not been easy. In 1990, I went to the University Of Chicago to be part of the testing to test for Hep C. Not long after that I learned that that was the other thing the expected when I gave blood in 1988. Had a liver biopsy and it showed minimal damage. Have elevated enzyme levels but have kept them stable. Went to a specialist, also joined the American Liver Foundation. Specialist released me to my doctor for yearly tests but before he did I learned my viral level was over a million and I do believe I am a geno type 2. Learned about all the vitamins and herbs that were good for me and took them faithfully. I was never a drinker so I never drank for many years. I will be 80 this summer and I would like to get the new pills that are out as I want to be free of this once and for all. I believe my vitamins, milk thistle and lipoid acid kept me going. Have Osteoporosis now, but still work out as best as I can. I believe my strong faith trusting God would lead me in the right direction. The only medication I take is for blood pressure. I still am tired all the time...also I have always had nausea, which I have taken papaya enzymes....which seem to help.

Beverly L Feb 18, 2015

Hello, my name is Tamera I am 54 years old and have had Hep C for about 25 years. I was approved for Harvoni 12 week treatment 2 weeks ago, $0 co-pay and am on community health plan of Washington. I feel blessed and am very grateful since they tell me each pill costs $1,125. I couldn't even afford a co-pay if they asked. I am getting the headache every day and end up taking Tylenol for it but get very little relief. It's better than the side effects that the other cures cause but it is really getting to me. I have seen others going through the fatigue and nausea that the interferon caused so I realize that I don't have it too bad. I'm just a big whiner when it comes to being sick, sorry. I am grateful to God for providing me with this and I suggest that if you have Hep C, go get checked out ASAP! This is not something to mess around with. Harvoni is amazing and there are very few side effects. Remember to give thanks to the Savior Jesus Christ and ask him to bless the scientists for all their hard work and all the health care workers involved in getting this medication to us. Blessings to all.

Tamera T Feb 17, 2015

I am 25 years old. I was diagnosed with Hep C in September 2014. I cannot pin point how I contracted it. I have experimented with lots of drugs (never with a needle though) and have gotten tattoos and piercings (at all reputable places), have been extremely promiscuous in the past but there is not one single incident I can blame because I truly don't know. I found out I had acute hepatitis after my liver started to fail. It was all very scary. I am waiting to be approved for the treatment, but so far, I have not heard anything back. I keep reading posts about how it's difficult to get treatment approved from insurance companies if you have a low viral load (which I do.) But I am trying to stay optimistic because I truly think that helps in healing. I got sober from drugs in October and my liver enzymes have since gotten back to normal. I am no longer having liver failure. My symptoms so far are anxiety, extreme fatigue, and having upper right pain. I have switched my diet to mostly healthy (I'll still have a piece of cake sometimes!) and have started to do yoga. I try not to focus on my disease and limitations at this moment in time, since I am in waiting approval/coverage limbo and there is nothing I can do in the meantime. It still consumes my thoughts though and I worry myself sick. Your stories help me confront mine, and comfort me at the same time; thank you.

Kathy R Feb 16, 2015

Just finished my first week of Sovaldi plus Ribavirin 800 mg. 11 weeks to go. Side effects are not too bad so far - itchy, poor sleep. Already had those. I finally got old enough to start on Medicare. Age 65, geno. 2b, F2, vl 126,000. First got tested 10 years ago. Liver function tests have been in the normal range. Probably had this virus about 40 years. I feel grateful to finally be on treatment! Thanks Gilead! Looking forward to shorter treatment times, lower prices, and generic options, so everyone can get tested and treat.

My excellent hepatologist retired so I found a great nurse practitioner who has been treating lots of people. I did feel discouraged in November when she said that Medicare was only covering F3-4. I was thinking of possible ways to get the drugs, traveling out of country, etc. Had seen the movie Dallas Buyer's Club. I've been self-pay most of my life so I'm used to shopping around for drugs and lab tests. Found a friendly less expensive lab that usually has no one in the waiting room and I can go back in a few days and get copies of the results. I went ahead and got all the necessary labs drawn and went back to the medical office in January. Heard from the specialty pharmacy in 3 weeks that I was approved! Co-pay about $3900 (not sure if this is total or per month?) which I would have paid from savings, but the Patient Assistance Network (PAN) covered all of it. They didn't ask for any paper records like tax return, just asked me what my yearly income is. Humana transferred me to a different specialty pharmacy, and some of the necessary info wasn't transferred, but I was able to fix that and keep things moving with one phone call. So you need to be proactive, write everything down, who you talk to and when, keep a file with all copies of your labs, etc. Don't give up, keep the faith, perseverance furthers! Took about 5 weeks total after application to actually receive the drugs.

My best friend from high school who is still my best friend and who had geno3 cleared last year after 24 weeks of treatment. Another dear friend geno1 just did 12 weeks treatment thru the VA and the results are looking very good.

My little brother who had geno1 went through 48 weeks treatment in 2001 but relapsed. He never stopped drinking, even during treatment, and died from liver failure at age 51, 10 years ago. I was the only one with him in the hospital when he passed. Those last few months were bad, we were mad at each other and I felt like I was living in the movie The Shining at times. Due to the Encephalopathy he would sometimes forget that he was mad at me.

Eat lots of fresh fruits and vets and drink lots of water, take walks, do whatever you need to take care of yourself, and good luck to everyone!

Cathlene E Feb 15, 2015

I am in my fifth week of treatment with Harvoni and my lab results show I am negative for the Hepatitis C virus! I still have the remainder of the twelve weeks to go, but I am elated! After over 30 years! I haven't really been sick, other than a few headaches and feeling a little tired but not enough to slow me down.

I read that the cost for the generics will be so much less expensive, so soon most of us will be able to receive treatment. Thank God!

Sandra D Feb 14, 2015

I stopped the new treatment in September with no detection in my blood work.

I've been very happy for 6 months. I have a blood test in March.

Can anyone tell me why my hair is falling out? It's all over the floor. I brush it and it comes out. 10 to 20 strands each time. I have lost more than half my hair!

debra z Feb 12, 2015

I was 18 when I contacted full blown Hepatitis C through drug use. I had yellow stool and red eyes and rash on stomach. I was very ill for a couple of months. I've was given a Gamma Globulin shot and I would have symptoms a couple of times. Through the 20s and 30s I was not a heavy drinker so I stayed away from alcohol all these years and I never took over the counter pain meds or aspirin except when in bad pain. Then only 20 mg's at a time. Everyone said one won't hurt but if I drank or took Tylenol I would get the rash on belly. So I stayed away from it. When I was forty a blood test said I have it but the numbers were too low to treat with new drugs. That's great. I am now 61 and I had a test again. A Hep specific test that showed I am Hep C free. It is no longer in my body. My blood is free of it. I never received any treatment for it.

Ann P Feb 10, 2015

Hey,

I need to write this down and tell you honestly what this disease has done to my life.

I experimented with intravenous drugs when I was 15-16 and I also got a tattoo when I was 15 but I believe it doesn't matter how you got it, it just is what it is. No judgments. I found out in 2000 I was infected through a routine physical. By the way I was doing cocaine and drinking like a demon at the time. I ignored what I was told and when into serious denial. But I had to think of my children, I don't have the strength to help myself but for them I would do whatever I had to. I cleaned up my act and had my kids tested, both negative and to me that was a sign. My viral load was low at the time so they said to wait for a less hellish treatment. In 2010 my viral load went way up and it was time to treat. It was Ribavirin and interferon once a week. I started out well enough but when I look back now, I had completely lost my mind. I stopped being a compliant patient and started injecting Ritalin and morphine which I had never done in my life. I really believe I was very mentally ill but didn't tell a soul. My husband caught me and that was that. I would not lose him so I stopped. I had gone off injecting about 10 times when he found out. Needless to say I never cleared the virus and this was a very low point in my life.

So Doc said we would wait for Incivik to come to Canada and also to be funded by the government. This happened in 2013 so in September I went into round 2. I was very much more prepared and understood what I was in for. I asked my Dr for antidepressants and sleeping pills right off the bat and also for prescription antihistamines for the allergic reaction to Ribavirin. My husband also watched me take my injection and then got rid of the syringe so it would not be in my face or make me want to f*** up again. I did 48 weeks of pure hell!!! All my hair fell out and I had every symptom there was including blood transfusions. I am six months post treatment and clear of the virus. I appreciate life and have joy in my heart every day. I literally could not have done this just for me; I did it because of my husband, kids and 3 grandchildren who are the light of my life. Sometimes I still don't believe it's gone, I can't explain the feeling it's like you had something for so long and you can't quite believe you don't have it anymore.

I'm getting a tattoo on my leg next month which will have a dragon and a warrior looking woman with a sword. The script will say ''Dragon Slayer '' because that is what I am. With all my flaws and bad decisions in my life, I finally forgive me and feel like I deserve a second chance and so do all of you.

I send all of you healing and positive thoughts. I want the best for each one of you.

Loving life,

Maxine

Maxine l Feb 7, 2015

Found out I had Hep C 2 years ago. I started taking Sovaldi/Ribavirin on 11/11/2014. No bad effects except sleeping on some days is difficult but I had retired a month before treatment (I'm a 62 year old male) and I'm able to make up the sleep during the day. Two months into the 3 month treatment I was told that I had cleared the virus.

Today, 2/2/2015, I took my last pill about 4 hrs ago. Good luck to everyone starting treatment.

Jack K Feb 3, 2015

I'm so afraid right now.

I was recently diagnosed with Hep C. I don't know how or why this is happening to me. I was so afraid and terrified I waited two days before I even told my boyfriend of eight years. Even then, I didn't tell him, he found my test results. The trust we shared is now gone because I didn't tell him right away. I can't fault him for his future actions in our relationship. How dare I not let him know what was going on with me right away? It has always been difficult for me to let others know what's going on with me. I would rather deal with it alone. It feels like I'm losing my best friend during the hardest time in my life.

N J Feb 2, 2015

You know I have tried three treatments and they all did not work.

I am taking the new drug Harvoni for three days now and my insurance said I was denied for the rest but my doctor said they do that. She said they will approve me. I get what they call county care. This is for people who can't afford insurance under Obama-Care, I think. I am 51 years old and after hearing some of your stories I wish I was able to see someone more deserving get the drug.

I have been sober for 12 years now and did not find out I had Hep C till I was five years sober but for me I have to remember I did this to myself and just try to be grateful for today. Today is what matters most to all your loved ones, believe me.

gregg c Feb 2, 2015

Hello fellow helpers, Nicole Cutler, and curious guest!! Thanks!

First diagnosis was in 2000 (found out by mishap. If I didn't I would have never known) .Geno 1a,Viral Load was sky high. Stage 0: loss of appetite. Weak. Fatigue. Tired every day.

Treatment #1(2009): 48 weeks of Pegasus /Ribavirin. Cleared. 3 Months post treatment -relapse

Treatment #2: 12 months of Interferon/Ribavirin. Cleared, again. 3 month post treatment -relapse

Treatment #3 (2014): 12 weeks of Sovaldi/Ribavirin. Cleared at week 2. Viral Load= 0. Treatment was discontinued @ wk #8 due to anemic issues (the Ribavirin did it). I was never ever anemic at any period in my life.

So back w I started, I was so close!!!!

Treatment #4: ,Viekera Pak with Ribavirin (modified dose). I start treatment March of 2015.

raymond k Jan 30, 2015

I found that I had Hep C during blood tests to get gastric bypass. My enzyme levels dropped just long enough for me to get the surgery but I started Prednisone for 6 months and then a daily long term regiment of Ursodial and Azaiothropine. The only symptoms I noticed with the disease, which tipped my doctor off, was a rash and itching on my arms and legs which occurred EVERY morning. I was diagnosed at stage 3 and am awaiting results of the first ultra sound that I have had in 3 years. Otherwise, my health is great and I'm feeling good.

Brenda W Jan 30, 2015

I want to share my story today because I feel today is the first day of the rest of my life. Today I started my treatment with Harvoni. After reading many blogs and posts on this site, I am very encouraged there will be a positive outcome.

I turned 59 my last birthday, and just a year ago, never even suspected I had Hep C. My ex-husband passed away last year, and it was then, when my children told me what he had passed away from, cirrhosis of the liver, cancer in the stomach and lungs, due to heavy drinking and Hep C, which he did not know he had until just weeks before his death, that I was tested for Hep C - and, the test came back positive. I was then referred to a specialist and tests revealed I was type 1, level 1, with a 400 million count. I possibly have had this for as long as 40 years. I have lived my life, what I have always called, zapping out, meaning I wake up energized, start doing things, and suddenly I will stop in my tracks because I'm zapped - tired - time for a nap - I now think this could be tied to this disease, when I've always thought that's just me. It will be interesting to me if I see a change, a new way of living life, in the near future.

I feel, we need to educate, encourage, and promote the testing for Hep C, and not only for baby boomers, but for all. It saddens me to think it took the death of someone I had been so close to for more than half my life before I took that step.

Theresa W Jan 30, 2015

In 1997, I was diagnosed with Hep C. Just the screen test. I chose to not do anything about it.

In 2012, I was then re-tested, and told yes, that I had it, but that I also needed to know the viral load, and genotype. So I found out then, that I had genotype 2B, and my load was over 8 mil. I was also diagnosed with stage 1 breast cancer. I did the treatment for the cancer, and then saw a gastro dr about the Hep C.

It took another year, because he suggested that I could wait. I stopped all drinking, even though I rarely drank.

Good thing that I did. I found out that I could treat with Sovaldi + Ribavirin. On Dec 29th, 2014, I started my treatment with Sovaldi + Ribavirin.

Two weeks into treatment, I took my first blood tests. I went to the Dr yesterday, and the results came back with 0 virus! I'm amazed!

Sovaldi + Ribavirin isn't a cakewalk, but, it's not that bad. I am getting nauseous, a little dizzy-headed, some diarrhea, tiredness, a little cranky, and melancholy. He prescribed Phenergan for the nausea, which also lets me sleep well.

I have nine weeks to go, and I'm feeling really excited to get rid of this dark cloud that has been hanging over my head for so many years. :D

Joanne O Jan 22, 2015

Hep C is scary; I found out in 2010 I had Genotype 2 and probably have had for 30 years. I also found out I had Type 2 diabetes at the same time. I found all this out because I had a subarachnoid brain hemorrhage and lived to tell. Unbelievable, since then I have had many close friends die from SA Brain Hem. So I lived to only have to fight the Hep C and diabetes. There is Hope in Christ, I took Interferon, Ribavirin for 17 months and couldn't handle it anymore, no cure, second attempt was Interferon, Ribavirin and Sovaldi that did the trick, and I have been cured for 12 months. Working on controlling the diabetes. I have never felt better or enjoyed life so much as now. Never, never give up Hope. My love and concern to all that suffer these!

Kevin D Jan 20, 2015

I had two blood transfusions in 1981. Two years later I had pancreatitis. I was diagnosed with hepatitis C in 1993 and was told by doctors I didn't have long.

I started a regimen of milk thistle and other homeopathic remedies and got better; however I continued to have slightly higher reading on lab tests. There has been no scarring. My doctor told me that I was healthy and to wait for a treatment that would not make me sick. I only had lab tests and a few liver biopsies.

I did develop diabetes 2 and high blood pressure, along with other secondary diseases. I was recently put on insulin because we could no longer control my diabetes with oral medications.

When I visited my GI doctor in October, he told me about the new advancements and referred me to a hepatologist.

I saw the hepatologist the beginning of January, and within a week, I was approved for Harvoni. I am on my fifth day and am doing well. I can feel that I have taken a strong medication and am slightly sluggish about an hour after taking Harvoni. The feeling lasts about an hour.

I noticed two days ago that my blood glucose readings have been lower, so I am keeping an eye on it. I will also check my blood pressure to see how that goes.

Since I am in week one of treatment, I don't know my status; but I will post after my labs and follow up with my doctor. I hope and pray that I make it through the twelve weeks.

Sandra D Jan 19, 2015

Hello, my story is maybe typical. I'm 58. I started feeling like crap 8-10 yrs ago. Go to drs and they tell me I'm diabetic, type 2. So I start taking that stuff, watching my diet. Some friends of mine also have diabetes Type 2. When we talk about our blood sugar levels mine would be great and still felt like poop. I could not understand it. I met a wonderful woman that got me in the right direction to have blood test to see if it was Hep-C. There. Positive after all those yrs of feeling like crap. Finally went thru interferon/Ribavirin treatment. That was like a BAD ACID TRIP EVERY SECOND OF EVERYDAY. With her love and care made it thru. Now still have high viral load and have just started the Harvoni treatment. I feel hope again. No drinking and no smoking. I don't know if I can quit. Guess I 'm paying the price of being a wild teenager. I really never knew how I got it. No tattoos. I just hope this helps someone else somehow. Oh! Trying the milk thistle pills. Heck if they told me to eat the moon I d' do that. Lol

Good luck everybody. I know there are worse things going on in this old evil world. Peace. Imagine.

richard m Jan 18, 2015

Found out a few years back I have Hep-C on a routine Doctor visit. I just finished Sovaldi, Olysio, and Ribavirin and I'm at 0. So I thank God its working. We will see in 3 months if it stays. Really missing a cold beer but I guess life is a little more important. :-) 51 years young

scott d Jan 17, 2015

I have had Hep-C since 1975 (I was in Germany playing army when I was infected). I had two treatment cycles Pegasus with severe reaction (heart attack was the worse). I have taken the new treatment (real costly) but it was not too bad for side effects compared to the old treatment. I am three months out and my viral load is 0. So there hope of a cure for this God awful thing.

eugene s Jan 16, 2015

First of all I was diagnosed with non alcoholic cirrhosis in 2004. I drank somewhat but for depression and boredom. So it wasn't hard to lay the drink down for good. I received a liver transplant Aug. 2003 and almost died as my donor was allergic to Bactrim (as sulfa antiviral) and they couldn't find the cause of my platelets being hardly 2000. After 4 weeks, and after process of elimination, they found it was due to donor liver being allergic. I was also diagnosed with Hep-C and they said was at very low levels. Even after the transplant I received a liver biopsy every year for 7 years, for about a total of 10 in 9 yrs. I still have Genotype 1 and my transplant nurse said I was an ideal candidate for the Harvoni and Ribavirin. I started taking it 2 weeks ago. Headaches, metal taste (which faded), and my right side hurts. Would like to know how other post transplant patients faired with their treatment. I have 10 weeks to go. Pray for me. I get confused at times and very tired but I want rid of this disease. Let me know how you are and thank God for all who have been cured and for those about to be and for those who are waiting. I will be praying for you all.

Patricia B Jan 16, 2015

I donated blood a lot back in the late 80,s early 90's, till one day I received a letter telling me I had Hep- C. I was young (in my early 20's) I was into drugs, tattoo's and reckless sex. So I never did or thought about it again.

Till I hit my thirties and that was because a friend freaked me out about it. So I started seeing a specialist By the way I am a gay female and the chances of passing the Hep-C sexually between two women are nil to none, it is a little higher if you use toys and share without washing but both of them have to be bleeding.

I have the genotype 11 Hep-C which is the hardest to cure. At the time I went on the Ribavirin treatment the chance of it not working was 98%, so I had a two percent chance of getting rid of it. I went through with the 1 year regimen.

Let me tell you it was no walk in the park. I felt like I was on chemo. You cannot drink alcohol or do any recreational drug usage. My body ached, I was lethargic, I didn't have enough energy to go to the mailbox, and get the mail, ON MY PORCH. My hair thinned. It was just a very crappy feeling to have all day everyday for a year!! You have to give yourself injections once a week. This will be difficult for anybody who uses, to do drugs intravenously. The thing I found most helpful (considering I have adult ADHD) was to think of a vacation or something you enjoy, reading a book anything to keep your mind from wondering down that road. Well down to the day of the year, I was so excited when they said that I was negative.

My next appt. (3 months later).

I tested positive again. I was bullshit. They did a biopsy at this time. (If I were you I would get the liver biopsy first) after the treatment, which in my racing head I thought wouldn't it have made more sense to biopsy my liver before the regimen. So I always have that question in the back of my head; did the regimen actually do the damage or the Hep- C. So my advice is to ask for a biopsy first. That was the last time I went to a doctor about my Hep- C. I have never had any kind of side effects from Hep- C. Since I got it. Oh yeah there are a few new regimens out now that are 3 month regimens that are a lot less debilitating.

I have also been very, very physically active since I got sober in my twenties. Exercising, weights, kickboxing. I was spending hours at the gym and training for kickboxing fights. Being healthy they say. Eating right and exercising helps keep you healthy? Which may or may not be. I only say that because my younger Brother by 3 years was diagnosed with the same genotype Hep- C as I was. He has had it about as long as I have, from sharing a needle! (not with me, with a friend). He on the other hand still drinks a lot of alcohol and eats crappy. He has never gone thru the regimen.

Nor does he exercise. He also does not show any side effects of having Hep- C.

I am 50 yrs old now and I still feel like I am in my mid thirties, and no side effects or abnormal sicknesses. Even though when they did my biopsy ( mind you I had been a huge alcoholic and drug user) on a scale 1-4, I was diagnosed with fibrosis 2. I still scratch my head. Did my alcohol drug use scar my liver or did their medication cause it?

My viral load is astronomically high, but my liver functions fine.

This is my story!

I just want to remind anyone who has or thinks they might have Hep- C, DO NOT share razors or tooth brushes and always inform a new partner of your condition.

Wavel G Jan 14, 2015

Just wanted to share with you all I have Hep-C for 30 yrs now. I had a car wreck and had to have a blood transfusion. 10 yrs later I found out I had Hep-C. I'm 57 yrs old now the last 5 yrs have been really bad. I had to go on disability 3 yrs ago because of my heath issues. 2 years ago I was sent to UAB in Birmingham, AL because I was weak and my liver had gotten really bad. On February 14th, 2014, I was put on liver transplant list and on April 19th, 2014, I received a gift from a loving donor and God. A new liver. I have had no rejection at all. My doctors put me on Harvoni the new Hep-C med on November 22, 2014. I am now into 9 wks of Harvoni and my heath issues are a lot better, other than I have no energy. My viral lab work was 150,00000, after 3 weeks of taking Harvoni it came down to 1000. That's how fast its works now let's just hope after 4 more weeks of treatment I will be a 100% cured by the grace of God our Father.

I have Medicare and Humana Ins this medicine was $34,000.00 for a4 week supply. My co-pay after Insurance $4,000.00. I got on a patience assistance program to help with my co-pay, so my out of pocket cost for Harvoni was $0!!!! If I can be of any help to any of you please let me know. GOD BLESS AND WISH ALL THE BEST OF LUCK.

Bobby D Jan 14, 2015

Pretty sure I got Hep C 30 years back when I was young and experimented with drugs (dumb!). I did not know, but for the last twenty years I suffered from fatigue and then 2011 things got bad with my health. Hep C attacks more than your liver. I developed many health issues and after two years I was finally tested and BAM!!! Suddenly I felt dirty disgusting and like a worthless human being. Degrading feeling to have a disease with a big stigma. Nurses treated me differently; my other Dr's cut my meds thinking I'm an addict (ridiculous!!!). I don't use drugs and haven't for twenty years so this stigma pissed me off. I was treated two years ago and will forever be different. Exhaustion is my main complaint and interferon/RIBA tanked my thyroid, so on meds for life! I am SVR and very outspoken about Hep C! It's nothing to be ashamed of even if you did make the mistake of using needles. I heard the new meds are better, so treat if you can!!! Don't wait till you're too sick. In my old support group, I lost quite a few and I also had a cousin pass from it. Please get treated, it's a horrible way to die!!!

Pamela R Jan 13, 2015

I like many of the others on this site have been living with this God horrid bug for some 30 years now. I did the interferon which left me with 30+ nodules throughout my lungs; caused my thyroid to become hyper/hypo. It's progression has caused continual body pain, exhaustion and all the other lovely side effects caused by the virus, and of course the interferon and Ribavirin. Well I just got started on the new cure Harvoni from Gilead sciences. I'm on week 2, there are side effects but ''nothing ''; near interferon, just exhaustion, and an emotional roller coaster, but definitely bearable. The cure rate is 93 percent, please go with this drug, it'll give you your life back.

CARMINE F Jan 11, 2015

I found out I have Hep C in 2001 after I donated plasma! When I went to my primary care Dr, he didn't seem concerned. We did do tests every once in a while to see how it was going. In 2006 I went to a specialist and he wanted to do a liver biopsy, but I was afraid and put it off. Fast forward to 2014. I have never had any symptoms, but my ex-husband passed away from the disease in Feb. I started seeing billboards saying they had new treatments available and made up my mind to take care of it. Later I was going to a different doctor for something else and he said my liver count was abnormal (162) I don't know how bad that is, but he told me, they have new treatments now, you should get it checked out. I was referred to a specialist. After 14 vials of blood and all the tests he said I was a number 3 genotype, which is supposed to be easier to cure and from 1 thru 4 I was 3 leaning to cirrhosis. I am waiting and will know by January 19th 2015 if my Medicare/Medicaid will approve me for Sovaldi and Ribavirin for 6 months! He is confident it will cure me! I am excited, anxious and scared, but thankful I am getting a second chance at life!

I have had problems with alcohol off and on since I was 14, but quit that very day I got my results and treatment plan! I prayed to God to help me be strong to quit the alcohol. I haven't drank in a month now! Now I am just waiting for the insurance approval on Jan 19th. I haven't told my boyfriend of three years yet; I'm afraid he'll look at me as a burden or damaged goods. I am a little leery of the side effects of depression since I am already on antidepressants.

Just praying to stay strong and praying for others that have Hep C also! Don't delay and get it taken care of! Going to try to stay positive and I am so grateful I went when I did, before it advanced! Would love to hear from others that have had or is having the same treatment! Love hope and prayers to all of you!!!

Tracey S Jan 5, 2015

I was in a car accident in 2000 and while in the hospital I found out I had hepatitis C. My wife and I were devastated.

In 2005 I began Pegus-interferon treatment. Was supposed to take it for 6 months however I was in jail in Idaho Falls, Idaho and the jail would not give my North Dakota doctor my blood tests so the doctor cut my treatment off after 3 months. After being shown where my liver was I self consciously felt pains that probably never came from my liver. Haha! 2010 I had a liver biopsy and was told there was nothing to treat and that the hepatitis C had rid my system. Being told no one can be cured of HCV I checked into the Dr's notes. It stated that there was in fact Hepatitis activity in my liver.

I asked a doctor in St. Cloud, MN last month to cure me with the new medication. Blood tests were done and again and I was informed she cannot treat me, but I was told this time that the levels were not high enough to treat.(come on, not high enough?) This concerns me because with it still there I can still die later from problems stemming from what's still in my liver. I know this is not reassuring but I'm very concerned. I hear there is a cure yet, I can't get treated because it's not at ''HIGH'' levels. Obviously, it's still in my liver.

If I were president of the United States, would I still be told there is no treatment with levels too low? This means I put my children at risk every day if I cut myself not noticing and a child does also. I bet my doctor would be very worried if her child were cut on the same piece of metal I was cut on.

I just need to know how I can get the new Medicine to cure it since there is still in fact hepatitis in my liver.

Do I have to wait until I develop cirrhosis in my system before there is something to treat? Well, at that point it will be too late.

Any answers please contact me at 218-731-7678.

Thank you.

Jerry

Jerry E Jan 4, 2015

Hi, my name is Ivan. I have had Hep C for a long time. More than 20 years. I found it out in 1998 after a blood test. A year later the doctor told me you have very bad cirrhosis.

So they start checking me with cat scans every 6 months to see if I had any cancer tumors. So last summer the first cancer tumor appeared on my liver. When the doctor told me I was devastated. I was just thinking about my grandchildren and my family. Well to make the story short, they performed a Chemoembolization and thank God the tumor was gone. If you don't know what a Chemoembolization is you can look in Youtube to see what it is.

Unfortunately, I am not cancer free. I am in the Westchester Medical Center in Valhalla, NY on the transplant list. Okay.

Thank you all and God bless you and keep yourself healthy don't drink alcohol don't use drugs and you're gonna be all right. Bye

ivan g Jan 3, 2015

Well I'm still around, which I guess is good but don't know for how much longer.

Hep C GT 3a, stage 4 cirrhosis and type II diabetes. No transplant for me and no cure in sight, depending on the doc I talked to I have 1-3 years left. I fire every doc who gives me a timeframe but finding one who says we can fix you is rare. The last one that said that also said ''even if it kills you'', thinking I wouldn't hear him....FIRED.

I'm now on doc 12 in only 3 years. The only one who seems to give a dang is my PCP and she is just a LPN.

Do a lot of research on your own, if they won't help, find someone who will. I save a copy of all my work and spend a lot of time on Google seeing what it all means. I am my best doc. Never give up. DON'T drink. I quit as soon as I found out what was wrong with me,7 yrs. now and after a ct scan found a 11mm spot on liver, my PCP said wasn't cancer and my liver seemed to be improving so clean living will help. Even though I have been turned down by insurance for Sovaldi 3 times, I refuse to give up.

I guess what I'm saying is never quit, do lots of research, even though it makes some docs mad when you know more than them. Be nice to your liver, it may be the only one you will ever get.

jack c Jan 3, 2015

I took interferon and Ribavirin in 2008. After 6 weeks I was undetectable. I finished a 6 month treatment. I am still in remission in 2015.

Praise the Lord Jesus Christ and my doctors and nurses.

Catalina R Jan 1, 2015

ALMOST 50 YRS OF HEP C.....

My husband was in Vietnam and believes he contracted Hep C in a field hospital. Over the years it has taken a toll on his liver. He has cirrhosis and had a small tumor that thankfully was caught early and stopped. He tried the interferon/Ribavirin years ago, which was absolutely horrible and did not work. He went through ALL the tests for a liver transplant but, due to vascular disease and other health issues, they did not think he would survive it.

Thank GOD and lots of praying, his gastro doctor had him approved for Harvoni. He has been on it about a month and his viral load is sooo low! Almost undetectable! He must be on it for 6 months since he has cirrhosis and tried the prior treatment that did not work. We have already seen remarkable improvements in his health, i.e., gaining weight, more energy, low and consistent sugar levels (he is type 2 diabetic), no confusion/foggy brain, much better memory. He has not shown side effects or very little issues. Harvoni is TRULY a miracle drug! GOD Bless the researchers who developed this drug, the doctors that have been overseeing my husband's medical issues and family and friends who have stood by us through all the years of misery with this horrible disease! I pray that EVERYONE with Hep C has an opportunity to be cured. There are meds now that can do it and everyone deserves a chance for a better quality of life! The issue we are still concerned about is his very low platelets and enlarged spleen. Does anyone have this problem and, after successful treatment, will this improve? As Kristie H said on 1/23/14, I want to shout it from the roof tops, I have my husband back. We have a future and not pre-planning his funeral.

Wishing a Cure for everyone.

12/30/14

Barbara F Dec 30, 2014

I was told about 19 years ago that I had come in contact with HCV. I asked doctors if I needed medication at that time they said no. So I went to a doctor that specializes in HCV and other internal diseases. My liver enzymes are being tested with blood tests there are no problems. Why didn't I get treatment?

thomas p Dec 29, 2014

50 years, Hep C Cured.

I had facial bone tumor at 12 years old in 1963. In the second surgery, I lost 2500cc blood and received 1500cc blood transfusion. Dr told me after blood transfusion I should not drink alcohol and avoid unnecessary medicine to protect my liver. Since then I felt tired all the time. First, I thought its anemia. However, I was never recovered like the way after the

First surgery. Early Hep infection evidence includes dark urine at age 19 and whole body skin rash after I drank two glasses of wine to thank my thesis adviser at age 25.

During college, I cannot concentrate in class rooms since there is not enough fresh air. I always went back to my dorm and read books myself. I knew my body has some problem. Therefore, I always worried about whether I am capable of any activities requiring more physical endurance. In 1992, I became very tired during daily work as an engineer. A blood test indicates I am a HCV carrier with geno type 1b. My enzyme level is around 200. After regular exercise, the enzyme level dropped to normal. In 1999, a new job requires 2 hours daily commute. This plus, the work stress lead to my enzyme level very unstable. I have seen enzyme levels like 500, 900, and even 2000. I had a liver biopsy which showed my liver has level 2 fibrosis.

I was treated with Pegasys (interferon) and Co-pegasys in 2003. After 48 weeks difficult treatment, my HCV was cleared. However, the virus came back 3 months later. My liver enzymes were normal from 2004 to 2006. Since 2007, my enzyme level raised to ~150, until October 2014. In January 2014, my Dr prescribed Sofobuvir and Ribavirin 24 weeks for me. I rejected since I had a problem with Ribavirin and the SVR rate is not that good. I started with Harvoni 12 week treatment since October 23, 2014.

After the first week, the virus count dropped from 6 million down to 70. I haven't seen my blood test result at the end of the 2nd week and the end of the 8th week. However, I knew the virus must be cleared. Before treatment, I can feel my heartbeat after climbing stairs for only two floors. Now, I can easily run 40 floors as my daily exercise. I feel the 12 year old me is back in me. I am 63 years old now.

I am a Christian. My faith helped me a lot. I received my PhD from a top college in southern California.

I authored several dozens of science and engineering technical papers. I had more than a dozen inventions, disclosures, and patents awards. I also received a US government medal from NASA for my contribution in planet exploration. I must say my life is very, very tough. I always felt I am not a good enough husband and father. However, I knew staying alive to see my three children grow up may already be a significant accomplishment.

I felt I had no choice but to fight the virus. Faith, positive thinking, Dr's help, healthy life style, and Hep C knowledge is my support in this fight.

I can overcome this virus, so you can do it too.

Michael J Dec 26, 2014

Was diagnosed with Hep C after an 8 month severe case of gallbladder and bile duct blockage which caused my liver to become inflamed from all the toxins, from all the drugs I used to use back then. After passing out in California Valley State Prison from the pain, they found out that the drug use caused me to contract HEP C. They gave me 10 years before it would start to affect me and my organs.

In 2009, the doctors at an ER told me I was at Stage 2 cancer of my liver. After doing 6 months of chemo it went into remission. But my Hep C Viral load started to rapidly increase in the past 6 months. My viral load was 50 million and after starting the Hep C treatment with Sovaldi and Ribasphere only 3 weeks ago, Dec. 7, 2014, my viral load is down to ONLY 76! The only side effects I have are a little fatigue and mood swings. Other than that I feel great.

This drug is amazing and I hope it does cure me and many more. This is a super cure. God Bless all the scientists and doctors and fund supporters and insurance companies for this medical breakthrough for this horrible disease that has killed so many before their time. May they all be remembered and to all that have the Hep C virus get treated ASAP. There is a cure and it works. Thank You again!! Thank You Jesus for this second chance to live.

Victoria S Dec 25, 2014

I am 57 and have had Hep C since the 80's. I found out thru Red Cross after donating blood in 2008. At the time I was unemployed and did not seek treatment right away. Anyway, to make a long story short, I had a liver transplant last year. A liver was found for me just in time. I had to wait almost a year and I started the Sovaldi and Ribapak Oct 2014. So far other that profound fatigue, I am doing well. My latest blood test had the Hep C barely detectable. I am hoping with my next test it will be 0. I have to travel about 150 miles from my home to Atlanta for my treatment, but it has been well worth it.

There is hope. It is a fight and sometimes it is a struggle, but I keep on trucking. Wish the best for you all.

Sharon M Dec 24, 2014

I have read the stories well here's mine. I was diagnosed with Non A/Non B by liver biopsy in 1977, after getting sick. I was in the Army as medic I was 19 at the time. After about six months I was feeling better. But I've had problems on and off ever since. I spent 16yrs in the Army and the whole time I was sick with minor health problems. In 1994, I was working as nurse and MD. I was living in L.A. and was tested for Hep C and diagnosed but no treatment. I moved to treatment in 1994. My husband was diagnosed with end stage liver disease in 1996 and placed on a transplant list. I was placed on interferon treatment because I became more concerned about my health and my husband's Dr pushed me to be more aggressive and concerned. By 2000, my husband had a transplant. My health started to decline from stress. I developed fibromyalgia, blood pressure problems, memory loss, brain fog, chronic fatigue syndrome, end stage liver disease. By 2005, I was getting MRIs, cat scans, and an endoscope of upper GIs every 6 months. In 2012, my husband died from complications of HEPATITIS C then I was diagnosed with liver cancer as result of HEPATITIS C. I received radiation treatment and placed on a transplant list. I still have HEPATITIS C and I am currently waiting to start the new treatment. I am still cancer free and waiting for a transplant. I am hoping that this will be soon I have two children that I am responsible for. A 17 and 21 year old.

Brenda b Dec 24, 2014

I was diagnosed with Hepatitis C in 1997. In 1999, I was diagnosed with diabetes and my health has gotten progressively worse. From extreme weight gain to high blood pressure, severe nerve pain and nerve damage, arthritis, hair loss, depression and anxiety, you name it (yes! I was in bad shape.) I lost my job after 6 years of service (no fault of my own) and there went my health insurance and benefits. I was in bad shape, cried all the time, in pain most of the time and extremely depressed. I reached 327 pounds at 5 feet 7 inches and I cried every morning because I couldn't understand what was happening to me. I applied for disability and was approved in September 2014. God is so amazing! I automatically qualified for Medicare/Medicaid and that was more important to me than anything because now I could receive medical care outside of the county hospital where there is a budget and less then quality health care. All this time I had been comfortable with living with Hepatitis C because the doctors would always say my viral load was very low (888,000) and never suggested treatment nor shared with me the important functions of the liver nor did they tell me about the complications that develop from liver disease such as diabetes, high blood pressure, constipation (I've had 4 colonoscopies), Arthritis, Vitamin D deficiency, acid reflux just to name a few. I researched all this information on my own. Now they say after performing a fibroscan that I am in between stage 2 and stage 3 (there are only 4 stages and cirrhosis is the 4th stage.)

I prayed for a miracle. I prayed for my health and my prayers were answered. I began taking Harvoni December 4th 2014. It's now going on the 3rd week and I can tell my health is improving. Already I see the change in my blood sugar levels 110-180) which is a gigantic drop from sugar level numbers (235-380.) And my stomach has gone down tremendously. I have experienced a few side effects, actually the first 10-12 days were really rough and I contemplated whether or not I could continue, but I am determined to get well. I am very excited and can't wait to get my labs.

Lynn H., you and I have a lot in common. We are the same age, both drug and alcohol free and abstinent for the same amount of years. Medicare does cover treatment. Please don't get discouraged. Do extensive research. Ask a lot of questions and search for a gastrologist or hematologist who is genuine. Above all, don't give up. You deserve all there is to offer. I don't know if you will refer back to this link as you had posted 11/02/2014 but Bless You in Your endeavors.

Nita C Dec 24, 2014

I was diagnosed with Hep C in April 2014. I hear most people go to gastrointestinal doctors. I went to an infectious disease doctor. They specialize in this stuff. My viral load is 350 thousand. My doctor said that wasn't bad, that most people are in the millions! My insurance denied treatment with Harvoni at first, but my doctor somehow got it approved the second time. They approved me for 60 day treatment because my viral load count was low. I just started Harvoni yesterday, so far no side effects. I would advise people to go to an infectious diseases specialist. They seem to care more than gastrointestinal doctors. Good luck to everyone I hope this helps.

erik e Dec 23, 2014

My Mom died from complications of Sovaldi & Olysio.

She was fine in April 2014 when her liver doctor put her on this new medicine Sovaldi & Olysio. Within 6 weeks of treatment, she became very ill. He continued her treatment and at 12 weeks, she couldn't get out of bed and needed a walker to walk. She started bleeding from the nose and mouth. Her liver doctor could not find anything wrong and dismissed her to other doctors. We sought help everywhere but no one could find out what was wrong. An oncologist got involved and she started to need platelets and plasmapheresis for her blood. She was extremely ill and was hospitalized in early August. She continued to need platelets. In October she was hospitalized again for thick blood, and she had a massive stroke to her brainstem. She died 7 days later.

No one wants to hear my story. I have been kicked off of almost every hepatitis forums including the one Lucinda Laporte runs. She personally kicked me off and will not let me back on. I don't understand why. I am just looking for answers. Please contact me at [email protected] if you would like to hear more of my story.

Karyn R Dec 22, 2014

I was diagnosed in 1999, although I suspect I contacted Hep C in the 80's.

I was told during a routine blood test for life insurance.

I was told in 1999 that my viral load was high. I was referred at that time to a GI doc. I just had blood work done every 6 months the make sure my liver functions were ok. After 7 years of that I went to blood work once a year. 3 years ago I was released to my primary care doc. I laid low until I started seeing 'hope for Hep C' ads. It got me thinking that I wanted this virus gone!

So... This fall I asked my doctor for a referral back to the GI specialist I saw back in 1999. That is how we got the ball rolling on the treatment!

After getting my genotype (2a) and my viral load (7 million) I got a liver biopsy. Stage 2 fibrosis Grade 3

Next came authorization from my insurance (Aetna)

I was approved! Began treatment Oct 10th, 2014. Blood work done on Nov 6th showed HCV was undetectable! Yay! Dec blood work shows low red blood cell count. Headaches subsided after 7 weeks. I was fatigued but this is a worthwhile treatment. I am 53 years old with grandbaby #3 on the way and I plan on being around for a long time. Stay positive and be proactive!!! Don't wait another minute. Side effects are minimal and you are worth it! Be well!

Jane M Dec 17, 2014

This disease is so hard, mentally, emotionally and physically! I'm amazed at the lack of education by the public and the physicians creating a stigma that only street people can get it, when in reality most contracted it through blood transfusions and operations before it was detectable in the blood banks. I also believe most of us believe our symptoms are age, lol. I also find that we feel or sound like hypochondriacs and are left thinking it's just the thyroids, anemia, diabetes, arthritis, low blood platelets, depression.... we look healthy so we must be ok, NOT. Inside you feel sick, tired, physically fatigued, mind fog, memory impairment and the mind games of wondering how everybody else does it and your struggling to make it through some days. The truth is most of the side effects are directly related to the Hep C and liver disease. I have seen diabetics, high blood pressure, etc... disappear when the treatment is successful. The trick is being aggressive, proactive and DON'T take no for an answer.

Here's my experience. I contracted Hep C May 2003, geno 1A. I learned there were 4 of us and I am the only 1 left to carry on. I am on my 3rd treatment. 2003- My 1st was Ribavirin and interferon, 0 response and I worked thru in denial and a lot of side effects. 2005- 2nd treatment was 1 year and I only worked for 1st 6 months, Pegasys and interferon which came back 5 months after completion of treatment and it also had a lot of side effects. 2014- 3rd treatment is only 3 months Sovaldi and Galexo with no side effects. We are at the 1/2 point and my viral load is at 0.

Have I mentioned I don't drink or do drugs, I exercise, eat right, live good and we have a successful business. I have only had this disease for 11 years and I already have stage 3 liver diseases, which means Cirrhosis has started, many blood clots, itchy, fever, rage, altered moods, nausea, edema weight loss.... The point is - a lot of Dr's will tell you your fine for 20-30 years or it won't kill, truth is, by then it's getting too late. 1st the disease needs to be eradicated, and then the damage needs to be addressed. Be pro-active about your disease, ask questions, don't give up, it's your life you're gambling with. What you feel and the situation now will be different in 10 years, 20 years and 30 years. Dr's are having a hard time keeping up with all the changes in the fields and population, also remember there only human, not gods.

I am in Canada and I am disheartened to learn that 250,000-300,000 are infected in 2014 but only 12-14 people will be covered by government and 20-25 people will be sponsored by pharmaceutical companies. Am I the only person that is scared by these numbers and let's not forget that only 2% of them have 3rd party medical insurance coverage that will pay for the new treatments. Don't get me started on the cost for liver transplants (it's cheaper to pay for the meds that cure us) and the devastation the family and patient goes thru dying or waiting for a match. I can't believe that most of the countries in the world offer this to their people and North America is suppose to be a wealthy evolved modern country with high taxes and people are dying because they can't afford the cure.

I'm sorry for rambling on but I have just cause! I contracted HEP C while serving in the military overseas at a dentist the military provided. Instead of fighting overseas, I should have been fighting for our people? I love my country but I'm not impressed. Point is don't give up hope, build a group, start a movement, keep trying, a lot like AIDs, don't be ignored. I went through a lot of Dr's till I found a Dr and support team that cares about us, the victims of this hidden disease (Thank you -Chris, Leslie and Courtney, along with my peers and support group) and of course my family that has been my main reason for getting up every morning.

Dawn c Dec 16, 2014

I was diagnosed in 2007 with Hep C 2B. I was to be treated then and again in 2008 but since the side effects with the treatment available at that time were extreme from depression, etc, I decided not to be treated. Every year at my physical, I would have the viral load checked to keep track of it. During the years the only symptom I would get is tiredness. Other than that, nothing.

Now that I became older and wiser and with the arrival of the newer treatment of Sovaldi with Ribavirin combo, I was ready to start! I had to wait on approval for about a month and was afraid of having to pay a huge amount out of pocket. Thankfully for me, it wouldn't cost me anything.

Well, I started on Nov. 19, 2014 just about 4 weeks ago. I have been getting headaches which are one of the side effects. But nothing that I can't handle. Since I don't like taking meds to begin with (never did) I wait for it to go away on its own. But you can take Tylenol which is what my Dr told me. I want to also add that I never had the actual liver biopsy done where they take a small piece of your liver out. There is an alternative way and that's through a special type of blood work, can't recall the name. And that came out good. No signs of cirrhosis at all. This Thursday I go for blood work to see how treatment is working so far, to check if I have anemia because the meds may cause anemia, and also a pregnancy test. It was expressed to me that it is extremely important not to get pregnant during treatment because the baby may be deformed. How sad is that. Well, I hope for a cure in February when I am done. And I wish a cure for you all!

Stay positive. Hugs.

Nuno V Dec 16, 2014

I have had Hep C since 1987. I now have Hep C cirrhosis stage 4. I am unable to take interferon. I am waiting for the 2nd drug to pass. I do not have $75,000.00 for this treatment. If you are new to Hep C do not wait. Seek medical help. Good luck to all.

Jam L Dec 14, 2014

I am 57 and contracted Hep C back in the 70's. I have known I had Hep C now for 22 years, accepted it and never dwelled on it until it started showing a worsening in my blood after 50. Kept track of it with my Doctor for many years, then tried the Interferon Therapy 10 years ago - unfortunately I was allergic to it and had to stop. Last year when my blood work seemed to show the disease was really making a statement, I started seeing a Johns Hopkins Doctor who specialized in Hep C. Fortunately Hopkins is at my back door. Best move ever, he actually ran most of the HCV trials for Hopkins. I started on Harvoni 40 days ago (it was very stressful waiting for this drug to be approved by the FDA, then by my Insurance Co.) My first blood tests look good but I don't see the Doctor till next month to discuss with him (yes I have learned over the years to interpret some of these blood tests) I am so excited! Since I have some cirrhosis I will be on this medicine for 6 months.

Only side effect right now is headaches, they come on strong but don't last very long. Used to suffer from migraines, so I can deal with this. I feel very lucky and that I am given a 2nd chance, but I also recognize I have to change my lifestyle to eat better, etc. to help my liver since damage is already there and permanent. There is hope.

Cindy G Dec 13, 2014

I was diagnosed with hepatitis C in 1989, which was 26 years ago. I remember getting very sick in 1985 a couple of times but recovered quickly. I never thought anymore about it until I was diagnosed. I have never had any treatments and my liver in enzymes stay very, very low. I've never had any problems with my liver, I have been very fortunate. I'm 63 years old now and I just got diagnosed with type two Diabetes and I'm wondering if the Hep C could have caused it. My fasting blood glucose was 149 and my A1c is 7.9.

Mitzi A Dec 12, 2014

I have been free of the virus since completion of treatmrnt in 2009. I was treated interferon ribvarin combo. I am fortunate and gratfeful.

I was on treatment for 1 year. Medication side effects continue. My age (65) when I began treatment, may be the reason.

george b Dec 11, 2014

I have had Hep C 1b for 45 years. I have always gone the natural route. I take a lot of immune system herbs such as green tea, cilantro, dandelion etc. I take Immpower about 6 a day. I try to eat healthy food, stay away from sugars and things that feed virus and supplements such as digestive enzymes and probiotics.

Above all I believe what the Bible says that God is the healer of ALL of our diseases. I believe that He loves me and has a plan and a purpose for my life. I hope this can help some of you. Don't give up or get discouraged just pray, pray, pray, and ask for wisdom and look out you will get it.

Best to you.

: )

Jane R Dec 11, 2014

I am a 28 yr old female who recently contacted Hep C from iv drug use. I want everyone to know that you can get extremely sick from acute hepatitis. I have been hospitalized four times in the last month, my levels got as high as 2000, which is liver failure. My gallbladder was inflamed (cholecystitis), I suffer with all the classic symptoms, hot cold yellow achy frequent urination fatigue nausea vomitting severe pain itchy, just because the person you got it from didn't get sick doesn't mean you won't. It's a horrible virus, and they can't treat you if your acute.

nicole o Dec 8, 2014

Joanne C -

I appreciate your story. I have been through two courses of Pegalated Interferon with Riboviran and am anticipating the 12 week course.

I am grateful but terrified.

Thanks for sharing.

Heather P Dec 7, 2014

I was diagnosed with Hep C (1) 16 years ago. Although expect I have had it much longer… my docs say much scarring and severe cirrhoses has destroyed my liver. I am on transplant list at UNC N.C. which I really don't want to do. I have put this off for years waiting on a better way. I tried the interferon, Sovaldi and Ribovarin and ended up in hospital after 11 days due to side effects...blood counts fell and ended up with sepsis. Now along comes Harvoni which seems like the answer. Problem is my insurance isn’t paying for anyone....I had to go on Medicaid when this all started (they have helped me out till now) I am thankful. Not sure what to do now. My docs are fighting for me. I'm going downhill faster now. A transplant cost more than Harvoni...I don't get it.

marcy P Dec 5, 2014

Hi, I was diagnosed with Hep C. I did a year and a half treatment and they said I cleared it it felt good. Still kind of worried that it could come back...

Rob s Dec 1, 2014

I started taking Harvoni 9 days ago I allready feel much better. I have lost about 15 lbs. Still have the itching problems but somewhat better. I have a head ache and it feels like my skin is on fire and can't sleep good at night. Anyone else have any side effects like im having?

Bobby D Nov 30, 2014

I was diagnosed 8 months ago with Hep C. I thought that's impossible. I don't use needles and I have not been in a romantic relationship in over 13 years. My youngest child is 24 years old and she is free of this disease I was referred to a Hep C specialist who said it would take 6 months to be seen. Then they called and cancelled the appt. just a day before and said it would be another month to be seen. My attitude was if they don't think it is such a big deal it must not be. Right?

My personal Physician has not brought it up, asked about it or prescribed anything for me to take or do. What's the big deal? Nobody else seems to think I am ill enough to be treated. My Dr. did not tell me what kind I have. I am in the dark. I am very tired and have some symptoms that I think are related, such as having a fever of 103.9 for nearly 3 weeks. I went to my Dr. and she said if I still a fever the next day (a Saturday) go to the ER. I went to the emergency room and they could not tell me why I had a fever and sent me home. I took some expired Amoxicillin I had from a dentist. About ten old ones and by the time they were gone my fever went away. No big deal right? I'm just too much of a problem to deal with.

Wrong type of insurance I suppose.

Charlene C Nov 30, 2014

In 1983, while working as a transplant nurse at a transplant unit, on one one of my routine blood draws (because I worked in a high-risk area), I contracted non-A, non-B hepatitis and was followed by the transplant team. I went on bed rest for a month and my ALT went from over a thousand to a baseline level in the teens. I had fluctuations in my enzyme levels for a couple of years and then they leveled out. Back then, it was believed you were likely someone who cleared the virus if your enzyme levels were normal for a couple of years after the acute phase.

Fast forward, later in life (after leaving nursing for another career) I realized that I may have Hepatitis C and got tested. I did have Hepatitis C.

I am glad to report that I just recently found out that I am SVR (cured) after a three month treatment on Sovaldi and Ribavirin (I was genotype 2). My ribavirin had to be reduced during treatment at 2 weeks to 800 mg due to anemia, but, other than that, the treatment was very tolerable. I worked full time and exercised (though I needed to curb my cardio a bit) throughout treatment.

I am fortunate that I had minimal fibrosis (F0-F1) and have hope for complete reversal of any damage that I may have sustained over the years.

We are living in miraculous times.

Jo O Nov 26, 2014

I am 55 and live in Sydney. I contracted Hep C from dirty needles during a heroin addiction stage whilst using in India in the early 80's. I went to rehab in 91-93 and have been clean since. I have 1A for at least 30 years and the last few years it’s got pretty bad to the point I have Cirrhosis.

Two weeks ago I started on Peginterferon weekly injections and 6 Riba and one Sovaldi (Olysio) daily. It’s pretty hard going with extreme fatigue after the interferon shot and the appetite loss is a problem. I am 6 foot and weight 68kg. I am losing weight but take supplements. I am thankful I get the treatment for free and the team treating me are pretty good. I always suffer from anxiety and this has increased during treatment so I may need to medicate with Xanax etc to deal with this issue.

In general it is about what I was told to expect and I just hope my body starts to recognize the treatment and I get some tolerance to the treatment. It is sure better than a horrible death to Liver disease if I can beat it. Luckily I work for myself and can take time off when needed. I would imagine for many people work and treatment would be highly debilitating. All the best peeps, with your treatment.

Mike G Nov 26, 2014

My husband was diagnosed in 2004 and had Genotype 1a. At the time of diagnosis, he already had cirrhosis throughout his liver and his treatment options were limited to Interferon and Ribavirin with a very small hope for cure. He did like a lot of people and did nothing hoping to make the best of the time he had left.

Fast forward to 2014, we went in to see his hepatologist about possible treatment options with the new drugs and we were basically beyond the point of therapy. He gave us this grave look when my husband asked about hoping to live to see our children graduate in 2 years, and said I can't make any promises.

We had already been referred for transplant to Vanderbilt University and he was not eligible for a transplant or any other treatment options. We were then referred to Piedmont in Atlanta and the doctor immediately said your labs don't look that bad and we try you on the new Olysio and Sovaldi treatment, it is off label but we have been able to get it approved because of the high success rate. The Dr. from Piedmont wanted our local doctor to oversee treatment. Our local doctor refused because it was off label. The Dr. from Piedmont said no problem we will handle it from Atlanta. They did, they got the drugs approved in less than 1 week. They had a pharmacy in Atlanta handle shipping monthly Fed Ex shipments to us. After 2 weeks, his viral load had gone from almost 1,000,000 to 171. By week 4, his viral load was undetectable. He has had virtually no side effects and felt the virus leaving his body.

I think it is a crime that this combo of Olysio and Sovaldi only is not the standard treatment. He had a difficult genotype to treat, he had been deemed beyond treatment and now he has his life back. He went from a hospital bed and wheelchair to cooking dinner, going out, walking into appts and if we had not insisted on pushing for more treatment options or listened to his local doctor he would be dying still. I feel it is an injustice that everyone is not offered this little to no side effects treatment and is still being offered Interferon and Ribavirin that is so dangerous and filled with side effects.

To anyone considering Olysio and Sovaldi, there is nothing to fear and everything to gain. Don't take no for an answer. Find someone who will get the cure for you. We are week 8 of 12, still no side effects.

I want to shout it from the roof tops, I have my husband back. We have a future and not pre-planning his funeral. I can't say enough about this dual therapy.

Wishing a Cure for everyone.

Kristie H Nov 23, 2014

If you can manage to be patient, I personally am waiting for the new Gilead patent with India for their generic manufacturing that will be done there to lesson costs of the cures. By the way, the same meds in India right now are 99% less. Also, who can afford over $94K for Harvoni, unless you can get help via the Patient Advocate program? Even with saving our life, most of us have responsibilities and family where we do not want to end up homeless for the price of saving ourselves. I never wanted to risk the IMPOSED upon Pg or Ribavirin, being stubborn regarding Pharmas, when I did not wish to be ill and lose everything, with no help in sight. I have had Hep probably over 40 years now, and am in my 50s, in decent health. Just have some fatigue. Found out I had Hep C by donating blood around 2001. Liver alts always normal all these years, but viral load in the mils. Since 2001, I have done Milk Thistle as the primary ingredient. I never drink the fluorinated water anymore, using a reverse osmosis that I swear by. A regimen using these healthy things helps you get new hope and often makes you feel better. Lately, I have done more of a vitamin/nutrition program to help keep the condition sustained awaiting the cure, a one with no or little side effects. And alas it is here. I am considering medical tourism or online medicine from reputable sources when the generic comes out. Please do not give up or move so quickly. Doctors are not God, God is God.......believe, look for positive things, get answers, research. I have seen a YouTube video of a guy doing the Sovaldi, but have heard it is not the best for Type 1a that I had, but that Harvoni is. And I have learned to never let them push the other "rat" poison with it. In clinical trials the products ending in "evir" such as teleprevir seemed to work just fine ON THEIR OWN. The development is great news and please do ask a pharmacist you trust. I value their knowledge above any Dr, about what is really going on. My liver specialist is blah.....no comment! I will not just go into nuking everything right off, just my 2c worth. These new medications are very, very promising with such a high success rate, and they are getting better and better all by themselves.

GoingtobeatHepC Nov 22, 2014

I was diagnosed with Hep C in the 1980's. I went thru 3 interferon and Ribavirin treatments to no avail. I am supposedly stage 4 according to my gastro Dr and my transplant surgeon. I have been going to them for 1 year. So far neither Dr has shown common courtesy or concern about me. The only they have done for me is when I start swelling is when it gets bad enough go to the ER. Ascites is completely controllable thru different medicine combinations. There also are shunts, catheters so you can drain the excess fluid anywhere or anytime. There is no reason it should take 2 to 3 wks to have the excess fluid drained. It causes kidney problems, internal bleeding when you have the pressure from swelling on you.

I hope you have better luck with your Dr's. If I was going to take the high dollar pills I would get them from Canada or Israel or anywhere other than the US. 10 times as expensive here for the exact medicine. Same manufacturer, just verify authenticity. Same as with a transplant. Compare costs and survival rates before getting a transplant. My hope is for everyone with Hep C is to be cured. I have made peace with whatever my outcome is. I have raised 3 sons and am proud of all of them. I have always received compliments on how polite and respectful they are. 2 are degreed professionals and 1 followed in my foot steps as a Master Electrician who takes pride in his work as a craftsman. Do not fear death. Meet it with pride. Only the physical body dies I truly believe that when our body dies our spirit lives. Be kind to nature and other people. Lend a helping hand. This might sound morbid but plan for death. Update your will, beneficiaries, talk to a financial planner because when your time comes the tax man comes faster. I am currently putting together statistics for liver transplant, what country is best, cost, life expectancy.

I am not a GOD or a DOCTOR. I would like to know the truth. I am willing to bet the answer money, power, and greed. That is what I think about Doctors. Question everything. Be as well informed about a question before you ask it. Maybe they won't step on you like a bug. If they get mad because you asked them a question or to explain something to you FIRE THEM ON THE SPOT. One thing to keep in mind DR's have a bad tendency to tell other Dr's you fired them. You will have a hard time getting another Dr to accept you as a patient. Always call prospective doctors with the problem's you are having and make sure they will take you as a patient.

Remember these have been my experiences and opinion only. I am going back to herbal medicines. There are too many side effects and contraindications is so called modern medicine. I have always felt better when I was taking them.

Rick M Nov 22, 2014

I am 57 years old and diagnosed with Hep C 3 years ago. My youngest child left for college, I thought I was suffering from empty nest syndrome. I knew I didn't feel well, thought I was depressed and went to my PCP for a prescription for antidepressants. She has known me for 30 years and said "Its not like you to be depressed. I want to do some tests I think you may have an illness". She put me on that antidepressant BUT SHE did about 1000 different blood tests as well and I found out my "feeling right" was Hep C.

I had a VERY HIGH viral load and I immediately went to a specialist and had a biopsy. I did have liver necrosis. Thankfully Sovaldi was just months away from becoming available. My wonderful doctor had me wait and I when it became available I went on Sovaldi, Interferon and Ribavirin. 12 weeks later I have a ZERO viral load! It was not an easy 12 weeks but worth every minute! I hope my story encourages others- I am now Hep C free! A true survivor!!

chris B Nov 21, 2014

Hi, I'm a 45 year old female. I was diagnosed with Hepatitis C after a check up with blood panel done. It came back that I had Hep C and was referred to a Gastroenterologist specialist. They redid my blood work and apparently I've had it for about 15 years. I never had symptoms. Maybe two to three times a year I would have severe pain on my left side, which I now know was my spleen. When the doctor comes in he says I'm too sick for the treatments. I reply well what do I do just live with it? He came back with well no not too long. I'll never forget the look on my mother's face but the doctor suggested I come back in a month and recheck. I did and was able to do treatments. So they taught me how to do the shots and I started the treatments. The shots are more scary thinking about them than actually doing. I got used to them. I took the shot 3 times a week. I took them in my stomach and the pills as well daily. At first it wasn't too bad. I had a lot of complications with low platelets. So some weeks I went to the doctor every day as I continued the treatments. I began to get very sick to where I couldn't put my own shoes on I couldn't get myself something to drink. I couldn't walk up steps and then ended up having hospice come to my house every day. By this time I lost most of my hair and probably down to about 88 pounds. Neither I nor the doctors thought I would probably make it. My body hurt so bad I couldn't eat at all. I'd take a bite, maybe eat half a bite, and spit the rest out. I was put on morphine for the pain and Roxy thirties 4 times a day and they really gave me no relief. My electric blanket helped a whole lot. A lot of people turn yellow but not me I turned black. like I had went extremely overboard with the tanning bed or laying out in the Sun. a lot of people thought my older sister was my daughter. But even going through all this my levels were going down and I was determined I was going to make it. I wanted to see my daughter grow up I wanted to play with my grandbaby. The hospice nurse gave me a toilet paper roll to use for weights. At that time I was using a walker to walk. It was a slow process and a lot of people don't finish the treatments because of how sick it makes you but there was no way I was stopping just to start over. I wanted to increase my time to live.

It's been three years since my treatments my hair is back. My doctor said hair loss was from not eating. An old lady told me to use Downy as conditioner. That it would help my hair grow and thicken up and it did. I'm back to normal weight my aging went away. I do blood work and CAT scans every 3 to 6 months. I go to a pain clinic. Unfortunately my pain has never gone way my body hurts. I'm very tired I'm now. On disability but I do work part time 15 hours a week. I am Hep C free. It was hard and I truly thought I prayed my last prayer many nights but even with the pain I'd do it over for the peace of mind of knowing my daughter Isn't motherless at 17 & my granddaughter knows and loves me.

I hope my experience helps someone. You can do It don't give up.

lisa s Nov 21, 2014

I was on the Interferon/Ribavirin treatment in the past! Not once-but twice! It didn't work either time. I went through all of that misery for nothing! I'm now on week 8 of my 12 week triple therapy. My viral load was 33 million when I began this program. It was down to 30 after just 4 weeks. I find out on Dec. 30th if it's zero! I'm taking a combination of Ribavirin, Olysio, & Sovaldi. I'm pretty amazed. I've not experienced any of the harsh side effects as in the past. I go to work every day. By the way I'm Genotype 1.

I hope this story will encourage others to not give up! There's hope! Good Luck to all that get on one of these new treatments!

Joanne L Nov 19, 2014

I was diagnosed in 2011. I have tried the interferon treatment and it failed. it has left me financially, mentally and physically disabled. I'm not sure when I can or if I can go back to work. I now have myalgias, my whole body aches from head to toes. Parts I didn't even know existed. There’s no sleep. What’s worse is no one can understand, family or friends, and now the medical system has basically kicked me to the curb. My thoughts each day and everyday is suicide. Please contact me if you want to talk because I could use a Hepatitis C friend.

Joanne m Nov 17, 2014

I am 57 years old and was diagnosed with Hep C about four years ago. Accidentally. I was getting a physical and my PCP knew I had been a nurse (many needle sticks) for a long time so asked if I wanted to be checked for HIV and HCV. I said sure, why not?

I considered Ribavirin and Interferon but after reading up on it decided against it. My hepascore was low and liver enzymes not elevated. So I waited. I have also been on Coumadin, a blood thinner for about 15 years and I read in Europe they found it protects the liver from fibrosis. I was diagnosed with Lupus six months ago so my symptoms are adding up.

I continue to work at home as a case manager but it's very hard getting everything done. I plan on starting treatment with Ribavirin and Sovaldi this week. I am terrified. I don't like medications and know there are always risks. I hope I can continue working.

Please pray for me if you're the praying type. Thanks.

Beverly M Nov 17, 2014

In 2003 I was diagnosed with the Hep C virus. I learned that because I had blood work done at a Methadone clinic and from there I was referred to my primary care doctor who did the test which came back positive. To make a long story short, I remained on the clinic but did nothing about the hepatitis, I just made believe I didn't have it and I never thought about it again. I knew the treatments at the time were terrible, I had heard all the stories and I didn't need to go through that so I went on my own meds like liver aid, milk thistle, and Riovibin. I stayed off any type of drug besides the methadone. I stopped the self medicating because it was expensive. Well now its 2014 and I started to hear about all the positive new treatments and talking to people who were doing them and it WAS WORKING. So I went and had a full blood work up done since I had no clue how bad I had it. Well yesterday I went to hear the bad news (from what I thought) since it doesn't just go away but IT CAME BACK UNDECTABLE!!! I cried since I was scared for a long time and I had grandkids since when I was first told I had it and that's why I knew I had to go get treated. I was told they didn't even need to do a viral load test since it came back they way it did, I asked how did this happen and I was really given no solid explanation besides that I was one of the fortunate ones that had my body fight it off somehow. So it can happen and I thank God that I will be able, God willing, to spend more time with my new grandkids since I would have short changed them (and me) if I didn't go for help. I wish everyone the best and if you have it the treatment now is like a CURE. So go get help. Ok?...I hope this pushes someone in that direction since I was never going to go but I couldn't look at my grandkids anymore knowing what I was doing by not getting help!

Rudy A Nov 15, 2014

Started Harvoni yesterday, next dose tonight. 34 years old, genotype 1a, stage 3 or stage 4. Took interferon 3 times, year at a time. Feel pretty good on this there are not side effects with this, except that I am tired now, been going all day. Approved for 24 weeks. I wish and hope everyone gets a chance to get cured. Be proactive that's what you have to do. God will led you if you allow.

Rebecca k Nov 15, 2014

Has anyone started the new drug, Harvoni for genotype 1a? I am trying to get the meds now through my insurance. We are on the second appeal. I don't have liver damage yet but I'm scared the longer it goes I'll wind up with it. Any info about how Harvoni side effects would be greatly appreciated. Wish all a good day.

Heidi H Nov 13, 2014

I relapsed in 2002, after 6 months of treatment with standard interferon and riba. I declined Victrelis in 2012. I was warehoused with stage 2-3 until 2014. In 2014, I completed Sovaldi Olysio in 12 weeks achieved svr! I was examined for a small lesion but it turned out negative. I'm very grateful for the quality and quantity of knowledge with the staff at the University of Miami Hepatology Center. Particularly Dr. Paul Martin. It's been a long and harrowing journey. I also need to thank Dr. Phillip Grossman, a hematologist in Miami, who led the way for me since 2000. I was genotype 1b.

Fernando M Nov 12, 2014

Hi, can someone answer this question for me? My husband was diagnosed with hepatitis C two years ago and he did not know he was carrying the disease. Now, due to his ongoing drug use, he was just told it is too late for him to get any treatment. Even though we have been separated for almost a year we are still married and I just don't know what to expect. What is next? He recently completed rehab and is going for a second opinion for treatment of the Hep C. We do talk on the phone and he said that he feels good but I'm worried that the results may come back the same, that he is too late for treatment. What should I expect next?

cassy y Nov 10, 2014

I was treated back in 2003, 1B, only tolerated 9 months of treatment having ended up with neutropenia. Dr's now won't touch me with anything with interferon. It's time for a liver Biopsy. I've made a move & new Dr's. I see there are new drugs and want to try again but am on Medicare. I have also been diagnosed with Rheumatoid Arthritis & Osteo Arthritis. I am at a loss, no Dr's seem to take me seriously & now without a job drug coverage is impossible. How do I begin to start this journey again? I am female, just turned 60, abstinent 11 yrs and feel like a leper. It has me depressed as when I mention Hep C people automatically assume I'm a drug addict. I got Hep C from blood transfusions. I am alcohol and drug free & in pain with RA & OA. Try to live each day to the fullest & stay active. I'm at a healthy weight but have more bad days than good.

Lynn H Nov 2, 2014

I had Hep C Gen type 3A. Went through the Interferon & Ribaviren in 2012. It worked at worst, but the disease came back 6 months later. I just finished 6 months of Solvaldi & Ribaviren. The test came back Non-detected. And again NON-Detected 3 months later! Thank you Gilead. Praying this is it. I am VERY, VERY thankful

Cindy E Oct 30, 2014

I contracted Hep C through intravenous drug use. I found out in 2011-genotype 2b. Before treatment, I dealt with extreme fatigue, brain fog, body aches, and a constant state of deep depression. I'm 8 weeks into Sovaldi and Ribavirin treatment. The virus has been undetectable since week four of treatment. I can't be more grateful for this outcome. This is a second chance at life for me. Four years sober, and before treatment, I had a constant reminder of my shortcomings, and complete disgust with myself. I expect no sympathy. I brought this on to myself. Lots of people with this condition contracted hepatitis through terrible, terrible ways, like blood transfusions etc. To sum it all up these past 2 weeks I really feel like my old self, before the Hep. The fog has lifted, and I have my energy back. To anyone living with Hep C there are options available to getting cured now. If one can afford it get a decent plan through the Obama care. I have paid $2,500 for premiums, copays, and medication-while the total cost for Sovaldi alone is currently $86,000-for a 12 week supply. There are also foundations that help with the cost of Hep C medications. Don't wait until it's too late! Get cured now if you can! Best wishes to all living with Hep C!

Emily B Oct 30, 2014

I came down with Hep C in the late nineties either via a blood transfusion I had, or my mother who also had Hep C. I went through the interferon injections and literally thought it was gone until an abnormal blood test ten years later showed it had returned. At first they wanted to put me back on the injections and my response was not very enthusiastic, so they advised me of the magical pill coming out in January that was labeled a cure and recommended I wait for the drug. And wait I did, imagine my surprise when I finally got the script called in only to have it denied by my insurance company stating they would only approve me going back on the interferon. I was livid considering I had already done this and it returned, my mother had done this and it returned. I appealed their decision three times stating prior cases I had doctors letters recommending it. I had the print out from their approved drugs list showing Solvaldi was an approved medication and they just wouldn't budge. I really lost faith in our healthcare system at this point considering my thought was if I had $300,000 I could get cured. To add to this I lost my mother from the disease in February after watching her slowly decay and lose her mind. Her brain filled up with toxins and the confusion got so bad she didn't know who I was or what was going on the last month of her life. Then my luck improved when I got word my employer was switching over to Coventry Health Care. I resubmitted the pre authorization and it was approved finally 9 months later. I have started my first week of the Solvaldi/Ribavirin treatment. So far so good no major side effects other than anxiety, which makes me feel like a crazy person. But if this anxiety for 6 months can cure me of this shameful disease then it is worth it. I use the term shameful because nobody other than my father and my wife know I am sick. It's not something I advertise out of fear that I will automatically be labeled a drug user or any of the other labels that come with this disease. This disease has made me feel absolutely nuts at times with the brain fog. The inability to focus or think straight and the constant confusion is so very frustrating. I know I take it out on my wife, who is amazing, and tries to understand but I don't think she can. I don't think anybody who doesn't have can possible fathom what a brain fog is, or what confusion is, or the freaking fatigue.... I hate the fatigue I really am hoping that my energy returns to me. I have been trolling all the support forums and reading all the stories searching for hope that one day I will feel like I used to... I am absolutely positive when I tell my spouse about the issues she assumes I am exaggerating because of what I witnessed caring for my mother. It has caused me a great deal of confusion I.E. Are these symptoms real?, which fades in for about five minutes then immediately are dismissed as I know without a doubt how dirty and confused my mind feels. So again I am extremely hopeful this medication is what I have read about it and again I hope that these symptoms fade away with each week I am on the treatment fingers crossed...

Scott C Oct 30, 2014

Over 25 years with Hep C. Don't know how I'm still kick'n. Failed interferon / Ribavarin about 10 years ago. Slowed down on the partying considerably even though doc warned me to stop completely. Last couple years for some reason I developed a taste for bourbon.

I never really cared for hard liquor before, and mostly drank wine or beer, but for some reason I went to harder liquors like scotch & bourbon. I drank even though I know my liver was sick. Felt like Crap all the time, and just kinda gave up on life. Started feeling new things going on inside me and started losing my memory. Doc now says I have Cirrhosis. That's when I got really scared. Can't leave right now. Got 3 little kids. Anyway fast forward...Doc prescribed Harvoni 24 weeks, and I am so grateful that I've been given a second chance. I feel really good about taking this medication. I know it won't cure my cirrhosis but it'll remove the virus that's been attacking my liver for so many years. Between that and abstaining from booze... maybe my liver can finally catch a break and heal a bit. Yesterday was my first dose, today my second. So far so good. If anyone out there is on this trip too...I wish you much luck. We will beat this thing down and throw it out on it's a$$!

Sir Osis S Oct 27, 2014

I just discovered I Hep C 1. I've felt like crap for so long and everyone thought it was all in my head. Well I guess it wasn't! I'm so pissed right now I don't give a rats a$$ anymore. I've told my Doctors that I don't want treatment. They tell you how bad it is and then they tell you these horrid things you'll have to do. Then they leave you hanging to think about it. Well screw that. I'm done. What will be will be. If I feel worse I'll take a long walk off a short pier. This is all such bull$hit!

karen f Oct 25, 2014

I was diagnosed in 1993 and I don't know how I got it and who cares?

I think people spend too much time defending and worrying about how they got it. It's not easy to get; on the other hand, it's blood to blood and can survive for two weeks on a toothbrush...If you were drunk one night in college or wherever and used someone's toothbrush who has bleeding gums, you could have caught it, so focus on what you can do to manage or better yet, CURE IT. At that time, I was working and not sick so I didn't even think about getting any treatment mainly because I knew very little about it. Years pass and after a hysterectomy at age 51, I started having a lot of aches and pains and joined a HEP C support group and was on a little bit active on some online support groups. I have always been health conscious and decided that I didn’t really see that many people who seemed to be getting better with the interferon treatments available at the time and the people I met were not that interested in alternative treatments so I just went on with my life and tried various alternative treatments. Rife machine, acupuncture, food supplements, IV treatments, Essiac tea, diet, exercise… all this seemed to manage the illness as my liver enzymes were always within the normal ranges although my viral load would go up and down from a high of 99 million to a low of 10 million. About a month ago my liver enzymes went up and I saw a gastro MD who wants me to try the one of the new treatments like Olysio, Sovaldi or Harvoni but I'm not convinced as these have only recently come on the market and where's the proof of cure? I tried to read through all the stories but there doesn't seem to be anyone who has not also used interferon. Seems like only a handful who are actually cured but hard to tell. Reading one or two people's stories isn't enough to convince me that it will be lasting and not have dangerous side effects that I take very seriously after what I've gone through previously with some supposedly non-invasive surgeries which seemed to devastate my immune system. One thing I've taken randomly is colloidal silver but only when a friend gives it to me; I never get "sick" but he doesn't even know how many parts per million. Now I'm taking this more seriously and I am anxious to seriously use the colloidal silver as prescribed for this disease. I have done a Google search and there are people who claim to have “CURED THEIR HEPATITUS C JUST WITH COLLIDAL SILVER” and I want to try it as if you don't over do it, it's not dangerous as all. Don't be surprised that the FDA doesn't give it good reviews but look at all the pharmaceuticals they have approved and later had to eat crow so I'm pretty sure that I'm going to take my chances and buy my own kit (from Silver Lungs) and try this properly for about 6 months before I take the chance of a new pharmaceutical drug which EVEN MY Primary DOCTOR WAS UNABLE TO FIND ANY OF THE SIDE EFFECTS ON THE COMPUTER RIGHT IN FRONT OF ME! (All they admit to is fatigue, nausea and headaches but I want to know what is behind that). With the silver, I'm expecting fatigue from die off...not because it is doing damage to some other organ or whatever. If anyone has tried this, please contact me even if it didn't work for you. I promise to come back and share my experience with my Hep Central friends as we need to support each other. I'll try to keep a journal too as if it works. I want to be able to share what I actually am doing. Also, if the colloidal silver along with some Chinese herbs I'm also taking don't work to lower my viral load, I will be willing to take the new drugs as the bottom line is this is a SLOW MOVING DISEASE AND I DON'T WANT TO WAKE UP ONE DAY TO FIND OUT I HAVE PROGRESSED TO CYROSIS AND WORSE. I see a lot of you very afraid and want to give everyone a big hug and tell you to KEEP THE FAITH. Live your life to the fullest that you are able and don't live in fear. Yes, money would make life easier but it doesn't buy happiness. Having the energy and vitality to do what you want share with others fully is what brings us joy. In spite of the darkness thrown in our face on a daily basis, there is much in life to be thankful for and we must learn to look at the beauty and goodness that is also alive and well if you stay open to experience it. We can get through this...moment by moment, day by day, and tomorrow is another day.

Anne M Oct 25, 2014

I am on Day 4 of Sovaldi plus Pegetron Hep C treatment. 1 Sovaldi tablet daily with 6 Pegetron capsules (3 twice a day) and the Pegetron Injection once a week for 12 weeks.

It had taken me just under a year to arrange my insurance, testing, and Gilead and Merck discussions.

I live in Canada but these med's are not covered by Provincial Health Care (indirectly a very minimal amount). Fortunately, my wife's insurance covered the Sovaldi almost 100% and my work insurance covered the Pegetron almost 100%. There are small co-payments which will have cost me $330.00 in total while entire treatment is $66,000 for Sovaldi and $6,000 for Pegetron. All of my medical tests are covered by Provincial Health Care as well as the Liver Specialist.

I found out I had virus in 1997 and determined I had contracted it around 1975. I had the good fortune to curtail alcohol consumption since around 1990 when I started being healthier for my family’ sake even though I had no idea I was infected. Probably saved my life. On Day 1 I experienced many side effects but since then, I can't even tell I'm doing the treatment. In fact, I feel really good..?..

Does anyone know if this could be my body reacting to meds kicking the crap out of the virus..? I mean I cannot believe how good I am feeling both physically and mentally (Worst side effect is head foggy and memory). I am prepared for anything but if you've any knowledge on this, please post on this website.

Post it as Canada "C" please.

Thank you

RS

Rod S Oct 25, 2014

I contracted Hep C from a blood transfusion in 1974 after a car accident, 2 week coma, head injury and bunch of broken bones at 18years of age. As time went by I could tell my system had changed, bowel movements etc, lots of low resistance change , getting colds etc. I continued drinking, smoked marijuana.

I lived with the disease doing clinical trial with interferon in 2001 about age 46. I went to the doctor and they checked me for hep C at age 36. I lived with a horrible marriage and three wonderful girls from that. My body did not respond to the interferon so I was taken from the trial. Left with nothing.

I finally divorced my wife in 2006, my children were almost grown at this point. I married a wife with Hep C, who told me I should go on living and not give up. We had our ups and downs.

In 2011 on oct 23rd , I had an accident at work with compound fracture to arm, fracture to hip and pelvic bone and contracted MRSA from the hospital stay.

With my wife's help and my father's I got past all that and then in April 2012, I became dizzy, nauseated, my wife took me to ER and I had internal bleeding from Esophugus, apparently for some time since I had been on NSADS. After 4 to 5 pints of blood I came home. The nurses thought I had passed away. It was caused by the pressure from the Liver and the accident affected that along with the fact I have scoliosis of the spine with bruising, bulging, disc.

Dr. Ford at Emorey, started treating me and Dr. Sanjay Parihk in Atlanta Gastro, in Snellville, Ga. saved my life from internal bleeding.

Finally , medicare kicked in and at age 58 soon 59, I am HepC free due to Dr. Ford putting me on Olysio and the Solvidol Cure thats out. My wife is getting treatment soon. We are so excited just to be free of it. We are planning to sell our home and move near the beach where we both have always wanted to be. We have hopes that the confusion our family members experienced reguarding our illness and the separation out of fear will fade but if they can not do that we want to walk humbly with all thankfulness for being provided the priviledge of the cure. Our Hearts are so Grateful for Emory and all the staff and all the staff with Doctor Sanjay Parihk. We are thankful for our faith, our church, the prayers. We want to live out our lives what remains of it in Brightness and carry much Love and compassion to others.

David o Oct 19, 2014

I called Accredo with express scripts yesterday afternoon and I was told that my Harvoni was denied. I was told that my paperwork stated that I do not have Hep C and that I did not have a liver biopsy., crazy! I called my doctor's office and they were aware that it was denied. They told me they are going to appeal it. They said they would work on it Monday. I was told it could take up to 14 days to appeal it. I called GEHA, my health insurance and they were not able to help me. I told them you have all my paperwork stating I have Hep C and I had a liver biopsy. You paid to have all of this done! I was on prior treatment for 14 months, over 10 years ago with peg and co-peg. I called Accredo again, they are a speciality clinic for express scripts and I asked for the approval dept. I was told that my paperwork is still being processed for Harvoni. I am thinking that I am getting the run around with Accredo because Harvoni is very expensive. Home delivery is $87,898.21 for a 84 day supply. I pay $5 with my co-pay coupon. I think they are trying to push Gilead to lower the price. I was on the phone for over 3 hours yesterday evening trying to straighten all of this out. I can't understand what is calling on. I was so confused over this. Each person I would talk to would give me a different story! I was so excited, and now I am really bummed out. I don't no how long they are going to stall this, and when and if it will get approved! I have the second largest health insurance company, GEHA, with the federal government. I will keep you all posted.

John S Oct 18, 2014

I have a unique experience. Due to so many horror stories I was told I put off treatment when all they had was the Ribvarin and Interferon therapy. When Solvaldi came out and reduced treatment time to 12 weeks and with a 90% success rate I made the plunge. My physicians and many people I knew said the first month was the worse then your body should adjust. Well I had the reverse. First month and a half was a breeze hardly any side effects other than slight fatigue but the last 6 weeks beat me up a bit, but I was still functional, going to work etc. But I made it through,and now undetectable. So all of you putting it off, if you can get the treatment. Please. Please do not wait, twelve weeks is very do-able. New drugs coming 2015 will eliminate Interferon and a 30 day regime is in testing. I wish you all successful treatment.

Brad E Oct 15, 2014

Started Solvadi/Olysio yesterday, 10/10/14, for a 12 week treatment. I've had this virus for at least 26 years. Didn't clear on my last Interferon/Ribivirin treatment. But feeling positive about the outcome of this one after doing much research. Praying everyone finds great health through their treatments.

P S Oct 11, 2014

I have had hep C for many years. I suspect since 1978 from dental work. When I started to feel sick (extremely fatigue constant sore throat, body aches,muscle pain....).After visiting many doctors i was diagnosed with CFS (CHRONIC FATIGUE SYNDROME) and later Fibromyalgia. Only in 1997, when I was tested for Hepatitis C and it came positive, only then, I started to understand what is going up with me. In summer 2013 I was lucky enough to get into Gilead study with Sofosbuvir/Ledipasvir + Ribavirin. I felt sick before treatment, but I feel even sicker after, practically bedridden. I'm wondering if anybody, has same experience, or am I the only one.

Sonya G Oct 10, 2014

I was first diagnosed with Hepatitis in 1976. I never became ill. I was alarmed when I noticed the whites of my eyes were yellow so I went to a hospital and was told I had hepatitis. I don't remember them stating whether it was A or B. Type C was not yet recognized. I was told to get lots of rest and to eat healthy and it would pass. I lived a wreckless lifestyle in my youth. I drank heavily and dabbled with intravenous drugs throughout the 80's.

In the mid 90's I was denied health insurance by my employer because a blood test revealed elevated liver enzymes. I simply attributed it to my high alcohol consumption. I began to hear PSA's on the radio about Hep C in the late 90's. I didn't get tested mainly because I did not have insurance. It's easy to deny your condition when you have no symptoms. In 2004 after a routine physical it was revealed that I had Hep C. A hepatoligist explained the treatment option at the time. Interferon and Ribivarin. He explained the nasty side effects and the success rate was only 40%. My wife and I didn't like the odds plus the cost. So we decided to ride it out. I still had no symptoms. By 2008 I noticed that I seem to get fatigued easily but I chalked it up the age. I was 53. In 2009 I began to get ill. I began to suffer from ascites which my doctor managed with Lasix. Next I began to suffer hepatic encephalopathy which I was prescribed Lactulose. I continued to work though it was difficult. Lactulose is a laxative and I constantly had to use the bathroom. I began wearing diapers. In June of 2010 I was finally forced to stop working when I suffered a varices. Fortunately the company I worked for had excellent health insurance and I was able to keep the insurance through COBRA. Thanks to my wife's foresight I was able to get on SS disability as soon as my long term disability was up. With financial help from my sister I was able to maintain my insurance. My hepatologist referred me to the Mayo Clinic which is in my hometown. I was accepted into their transplant program and placed on the transplant list sometime in 2011. I progressively became sicker. I was hospitalized several times for a week each time. I was finally hospitalized in late Nov.2011 for the last time. By January 2012 I was "circling the drain"; as the nurses say. I was transplanted on January 6th. I have responded well to the transplant. I spent a week in the hospital due to a CMV infection the first year out but it's been 2.5 years now and I haven't really had any problems although I still get fatigued pretty easily. I not sure if that's not a mental thing as opposed to physical. I have my blood tested monthly. I undergo a battery of tests annually at Mayo. I still have Hep C but up to now they have not suggested any treatment for it. I don't know if is because of my compromised immune system or not but I am relying on their expertise to make the call. I believe that by the time I was diagnosed no treatment would have helped me. I had seriously abused my liver for years and I'm sure I was too far gone. The treatments have improved significantly since I was diagnosed and if you even suspect you may have Hep C then by all means get on top of it. I don't know what the future holds for me. If this liver begins to fail I'm not sure if I won't to go through the experience again. I've lived my life, my children are grown and I think I would rather someone else get a liver instead. I thank God everyday for my wife who saw me through it all and I'm glad to be alive!

William C Oct 9, 2014

I was diagnosed with non specific hepatitis in 1977. I was a drug shooter. I continued in this way for the next 30 years. Getting weaker, and suffering from joint pain and pain in my right side of abdomen. I felt a sense of hopelessness and shame, and attempted suicide, because I was just so tired of the misery . A wonderful woman that I am now married to led me by example, to the church. Out of desperation, and wanting relief, I asked Jesus to help me change my life. I started to try and make a better, cleaner life for myself. I found hope because of the examples in the bible. I was finally drug free, and cigarette free. No more alcohol for me! After living a lifestyle based on cleanliness, and holiness, Romans 12:1-2, I was praying for God to settle the hepatitis problem in my body. Later that day I received a call from a hepatic specialist. I am diagnosed as hepatitis clear. No hepatitis in my body. Liver function normal. I am free of hepatitis after more than 40 years! I attribute the outcome to the lifestyle changes which included no alcohol . No illicit drug use. No cigarette smoking. And most of all prayers. .. Thank you Jesus!

muata Oct 7, 2014

Hello, over the summer I shared a weed pipe that belonged to a friend of mine several times. We got into a conversation on September 15th of this year and she told me she had Hep C. I freaked out and she said that I didn't have to worry about anything because it's not transmitted from saliva. I've been freaking out ever since. I tested on October 1st and came out negative but it's still early. I can't function a normal life. Please help.

irene h Oct 6, 2014

I am so frustrated with the medical help I am receiving because of doctors still refusing to understand what is going on with me, and my symptoms. I am told Hep C does not cause those symptoms, and completely disregard it as me being hard to work with. I was diagnosed back in 98 with greater than a million viral level of Type 1a, with Cryoglobulinemia in the blood, and the specialist told the doctors specifically all my symptoms are coming from the combo of Hep C type 1a and Cryoglobulinemia. They still didn't believe. I went paralyzed on my left side and face and they took me off of the Rebetron combo therapy. The specialist put me right back on saying that was a mistake. The paralyzation is the virus fighting the therapy. The doc giving me the combo called the paralyzation Bells Palsy, even though my left side was paralyzed, LOL. I finally got a pain doc that had good contact with the specialist, and life was tolerable, because I was given the meds to help me, specifically Marinol for the inflammation, and pain meds. I was getting better and then the pain doc died. My iron clad records were lost because they didn't believe Hep C would cause my symptoms, LOL. Passed around like a hot potato because they thought I just wanted pain meds, obviously I am in pain and now irate because I can't get Marinol which really helps with inflammation and pain, and to boot, I fail drug tests for things I was not taking. That's the way they would get rid of me. Don't doctors take an oath to help the sick? So here I am now fighting for my life and docs still looking at my liver function saying there is nothing wrong with you, and Hep C is not the cause of your so called symptoms. My doc does know I am in pain, I know that, but to what extent and what is actually going on with me no, not a clue. I watch patients die because they follow the liver function panel and when It says bad liver it's too late for a replacement, and they die weeks or months later. Sad. Good people fighting and in pain because docs here do not believe Hep C has pain. Honestly, I don't know how I am still alive, I am in so much pain, bleeding, and just all over hurt, joints, sciatic nerve, sweating at night, high blood pressure which was not cured with high blood pressure medicine but instantly with cannabis. My doc realized this may help after 4 years of begging, but after about a year of use I got better was getting out and was so thankful. Every appointment I would thank him for this and explain how so many things were getting better including my blood pressure which he was amazed. I could sleep. I didn't pee thirty times a night. I didn't go through 5 shirts with sweat each night. The uncontrolled nerve jerks stopped, migraines went away. Left arm numbness and feet and toe pain went away. Ankle swelling went away. My spine and neck hurt so much less. My back bone didn't feel like it had spines poking out of it anymore, poking into my liver and kidneys. Liver lightning pain went away, my God I was able to have sex and actually got a girlfriend. Guess I was doing too well, he said I would not be tested for marijuana. I still don't know why he couldn't put me on Marinol that's what the specialist said I needed. Anyway, brain confusion and irritability got better. He put me on testosterone because of no testosterone on tests, and boom it was off the chart. So I get tested for marijuana and was told I failed a test, if I wanted methadone I would have to pass a test clean, but you told me I could use marijuana. Here comes the amnesia, no I didn't, I can't give you Marinol because you don't have cancer or aids, but I do have cirrhosis of the liver, doesn't matter, I really feel like I was set up and now made to look like a drug addict. Only given methadone, my kidneys are starting to hurt I know I need to get to a lower dose of methadone and back on Marinol to help. My veins even came back on my arms with eight months of marijuana use, and only a puff or too at night, to sleep, and occasionally to eat in the day. Had I used more I could of gotten off of the methadone. I was cut off cold turkey before and have no idea how I survived. A patient with Cryoglobulinemia should never be stressed, and should be given meds to ease the pain, and If there is something that helps so much, why aren't thet given it? I am not asking for something bad. I have inflammation that is painful, this helps. Now I have high blood pressure again and Lord knows what damage has been done with this stress. I was doing well and enjoying life once again but as soon as I start to do well I am hit with a test that I was told I would not be given. They do not understand what I am going through. When I try to educate them I am told I went to school for this did you? Yet they still rely on liver tests to determine what is going on with me. I am stuck now because I have a failed a drug test. No doctor will take me. Now he is free to do whatever he wants, which I guarantee means I will be taken off of methadone which is the only thing I can get anyone to give me to help with the pain. I am being made to look like a drug addict because they do not understand Cryoglobulinemia or Hep C which is mimicking MS and Crohn's with me, which is what the specialist said. Marinol helps greatly and is used as a inflammatory medicine. Also for nauseous and actually as an antidepressant. When did the doctors stop listening to the patients on what actually helps and what the specialist says I should be on? I was actually able to not get mad at everyone and that is a great feeling. The irritability that takes over. They think it is just me and I am not that person. A huge difference was noticed on cannabis and if I had the money I would of moved but I don't. I was on the way to doing something about that but now I can't. I am trapped and looked at like a drug addict instead of someone sick needing help and I see so many people in the same boat who go to street drugs for relief and don't last long. I am trying to do what is right and get help from my doctors but can't get it I will die and there will not be on second of thought about. If I had given him Marinol he would still be alive? No, I will be another addict who died and the world is a better place without me. I can still be someone who can benefit society only if given the tools so I can fight the terrible disease. I really don't understand WNC. It is such a beautiful place and people, but backwards in helping Hep C patients. Now If I had AIDS it would be different. But I am glad I don't. I do think my symptoms should allow me to be put on Marinol. A doctor has the legal right to allow me to use marijuana if he thinks it would benefit the quality of my life, yet, I am told his hands are tied. I know his job is more important than my life yet he could ask his boss for special help with a Hep C patient since I have Cryoglobulinemia in my blood and he has seen himself medically how Marinol would bring down my blood pressure and help me. Also cirrhosis of the liver should be enough to allow me. As well as the nausea, swelling of ankles and backbone, depression and irritability, night sweats, the list goes on and on.

I just had cataracts. I came in and said I can't see. The doc said "I don't see anything wrong but I will send you to an eye doctor anyway". 49, with cataracts. Probably because of Hep C but no, they don't think so. I am treated like a criminal. It just isn't right. I am not believed and that hurts. There should be some sort of patient's rights for Hep C here in WNC and I need help getting the respect understanding and medicine to live. When I start listing all the things I am diagnosed with I get laughed at. Shoot! Shouldn't inflammatory bowel disease be enough to get Marinol? And with a failed test, I am screwed. I will not be taken by another doctor. I am being used like a puppet. When I die it will be too late. They think I will go down slow but I will not. I have seen too many go through it yet still they have their belief. I was told Hep C is like the flu and you will get over it in a week or two. LOL! This was from a Gastroenterologist. LOL, my God. I was told I was faking the paralyzation, lol, and was yelled at by a nurse. I think I have been yelled at and not believed for so long there is no wonder I have a bad attitude and when I simply ask why am I being charged 12 dollars for two testosterone syringes, because I can buy them for 30 cents a peace down the road. I am called a trouble maker and was reported to my doctor. I am being pushed into a corner and really have no options but to either go to street drugs to live, which I will eventually die from or wait another 10 years for the laws to change, which they will but I don't have another ten years. If I were not dependent on the methadone I would have some choice words for them and I would medicate myself. I know I cannot go through another methadone withdrawal I don't know how I survived the first but it hurt me bad. I am being put in a situation to act a certain way. They count on it. My medical record is being destroyed making me look like an a$$hole and I have no idea why a profession person acts like this. I am not a professional. I don't have to act like it. I am sick, scared, in pain, and acting like I am. I thought I had a great doctor who understood. I was being manipulated only to make me look like a pot head. Yet the proof is it helped and they refuse to look at it.

Steven Dane L Oct 5, 2014

I am 29, female. I had few blood transfers within 3 days after my birth. I found out I had HCV some time ago. The guy I am in love with disappeared within a week after I told him. What a heartbreak. I never did drugs, didn't like alcohol. Unfortunately, now I don't see a reason to fight. I don't like my life and I don't feel strength to change anything. My family is supportive, but they only annoy me with saying that my liver is ok, so I don't have to worry. My liver is fine but my soul and brain want to quit. How can I dream of love and babies when the bomb is ticking? It is the most stupid illness in the world. I didn't do anything wrong to get it, but I am ashamed of it and have to suffer quietly. No one feels really sorry, because they either judge you or say it's nothing to worry about. It's either a judgment or ignorance. Neither helps. I feel so sad and lonely :(

Kate L Oct 5, 2014

I'm a 50 year old male who was in a motorcycle accident on July 3, 1990. I lost a lot of blood so they gave me whole blood and packed cells. It happened in Bell Gardens, CA. I was torn up. I tried to stay employed but because of the accident and because of Hep C I've lost everything. I don't have a scooter. No more feeling free, just riding, especially at night during the summer. Hep C has been a horrible existence. I may be alive by doctor's standards but by mine it's a rough time especially when I see guys cruise on by me. I think for me that is the hardest part. I've finally gotten rid of, or should I say that I am what they call undetected with Hep C genotype 1. After Pegasus and Ribavirin I, interferon, Ribavirin then Infergen, and Ribavirin then 2 other types of treatments, I lost my teeth, my hair, and now I feel like I've lost myself as well. My hope is that if anyone reads this and they just found out that they're Hep C positive by all means follow your doctor's instructions. Take your meds get a strong support group be it friends or family. Sometimes talking to a stranger helps a lot because sometimes you don't want your loved ones to worry. If you have a strong support group behind you I would imagine it would be easier to cope with everything. Stay strong keep your faith in GOD or whatever you hold dear. To each and everyone out there who has contracted this horrible disease DON'T GIVE UP YOU WILL GET BETTER!

Anthony S Oct 1, 2014

I am a 55 yr young married man and was infected at 22 yrs of age. I am lucky to be alive. I've studied to learn about Hep C and take every herb known to help the liver to FIGHT this nasty disease. My Genotype is 1A. It's been trying to kill me for many yrs. Anyway my health insurance company has made it a point not the cover my treatment, I've had over 5 appeals rejected. I've cried, prayed, and called everyone involved in the process of my Hep C treatment. Now FINALLY AFTER MONTHS! my Sovaldi and the other 2 meds will be sent by UPS to me tomorrow overnight. I am afraid that it won't work, So I have been a nervous wreck reading and looking for anything that I can do to up my chances for it to work. I stopped drinking yrs ago, and my liver is pretty good from what the tests show, not much scars. I am 5ft 9inches and about 195 lbs. I pray for anyone who wants help, don't give up, because I am going to fight for my life, and I HOPE that I can soon write on this forum about my new life without the virus. Oct 1, 2014 my meds should be here! Thanks for your time.

Alexander g Sep 29, 2014

My mom was told she would die. Many of the people wondered if she would die but I am telling you I prayed day and night to God. Now the virus is gone. Someone special told me she would live 38 years from now. Trust in God. I swear there is nothing that can't be cured. It will be cured. God really hears you just believe in him for He is the one that can't be away from you no matter where you are.

Emmanuel J Sep 28, 2014

I am 60 yrs old. I acquired Hep C during my drug use years when I was in my 20's. Been drug free for 25 years now. Good job. Live alone and loving it. I never did treatment. I feel great. I have geno type A. I was terrified at first when diagnosed. Thought I was dying. I have suffered from PTSD since childhood. The fear of having this disease kept me from experiencing any joy in life. Depression kicked in big time. Dr recommend treatment but I refused. I'm so glad I did. I am a very happy and active 60 yr old and I hardly ever think of Hep C anymore. I only came across this site because I was researching headaches with blurred vision. Migraine? Advanced Hep C? Not sure but I'm living a normal life and appreciate every day of it. We all have to die of something one day and whatever I die of, I will still be greatly for the long life I was granted.

Sep 20, 2014

The high cost of this treatment has caused my Insurance Company, Anthem Blue Cross to deny my treatment of Hepatitis C. While they paid for a Liver biopsy, they claim that I am healthy enough not to need treatment at this time. We (me and my doctor) went around 3 times and failed to meet the criteria. I am certain it is the high cost of Sovaldi. While 3rd world countries pay as little as $10.00 per pill, only in America do the drug companies feel they can take advantage of the Insurance Co. and patients. I had this disease for 45 yrs. and it has changed my immune system with so many complications that it is impossible to identify the exact cause. I believe that Hep C is responsible for my Diabetes type 1, and recently I have had infections that require antibiotics at least 4 x this year already. They say that this drug works best on livers that are healthiest. Unfortunately, I might never know. I have participated in many clinical trials and now I don't even get a chance to find out whether or not Sovaldi will work for me.

I know this sounds bitter, I had put the best face on this. I am 65, taking care of my mom (91) with dementia and active in dog rescues.

I remember the exact event 45 yrs ago when I caught this disease, the time I tried intravenous drugs. I got sick with Hep B. Nothing I am proud about, but I can't change it now. I lead a clean life and I am sure that has something to do with the condition of my liver. 4 liver biopsies over 20 yrs has shown little progression of the disease.

Good luck to all of you that had success with their treatment.

David C Sep 20, 2014

I was diagnosed with Hep C in 2001. I was in a recovery home at the time and began the interferon/ribo-pak treatment. I had to stop treatment after 5 mos (with no change to my viral load) due to the fact that the recovery program was a work based program and the fatigue/side effects were so intense that I was given the choice whether to stay clean and work and pay rent at the home or leave as I was in dire need to convalesce during the treatment. I could not hold down a job and do treatment. It was really to much for me. I stopped treatment then in 2001 and went back to work and got clean. I have been clean since then.

Which brings me to the present, after 14 years, my viral load counts were extremely high and I started treatment with the interferon, Ribo Pak and Sovaldi for 12 weeks. I showed "undetected" for the Hep C virus and for once in my life could not even fathom a life without thinking of Hep C virus in my body....it was amazing. I did not realize that ever so slowly I had been adjusting to my fatigue levels, migraines, rashes, and nausea and an assortment of other side effects that come and go with the Hep C virus. After completing treatment, the Dr. checked the viral load after 5 weeks as I began to have nausea and pains in the liver again. The Hep C had returned and my viral loads were already half of what they were when I had started! It can be an aggressive virus to be sure. My concern now is how can I undergo treatment again and convalesce? I have no income other than what I have brought in. Last treatment I was on emergency food stamps and food pantry food. My General relief ran out and the Dr. is pushing for more treatment. I have to pay rent where I live....trying for disability and SSI but to no avail.

I am running out of options as if I ignore the viral load I may run into complications later...

I am 55 years old and finding work as you get old is not easy....

Tina V Sep 18, 2014

I contracted Hep C due to a couple of drug fueled years in the 70's. I found out after giving blood in 1996 by way of a letter from the blood bank saying my donation was denied and that I needed to check in with my doctor.

The doctor told me I had Hep C and did not think treatment was necessary at that time. I was healthy and did not see a need or reason to pursue treatment either. Little did I know what was in store!

In 2008, I had a surgery that did not go well and it took 4 months to recover. I think that's when the Dragon decided to go in for the kill. I was so fatigued all the time. It was all I could do to get up, go to work, come home, and go back to bed. My new GI really wanted me to treat the Hep C then but I had no energy and knew I could not handle the interferon. I was also under a lot of financial stress and could not afford to be sick!

This year, I had a 5 year follow up check and the GI told me there were new drugs without interferon as part of the regiment. I knew it was time. I wanted to be free of this disease and all the reasons I had it in the first place.

Fortunately, I was a stage 1/2 fibrosis. I did a 12 week round of Sovaldi and Ribavirin. I did have side effects from the Riba, it was not pretty but it was doable. Had an incredible amount of itching, extra sensitive skin, and a big ugly depression that hit me on week 10. I am currently waiting on my 12 week post treatment blood work and hope to be SVR as I have been undetectable since week 4.

I encourage everyone who has Hep C not to wait for treatment. I lost about 5 years to fatigue. It's great to finally feel better and regain some quality of life!

God bless everyone and hang in there.

Mary M Sep 17, 2014

There is hope for a cure from this disease. I've had the virus since 1996 that I know of and have been through hell and back. Nobody was able to do anything for me until about 2 years ago. I finally met a doctor that was more interested in curing me than profiting from me with empty answers and useless appointments. He's a doctor with North Shore gastro, located in Gurnee, IL. I tried the treatment with Pegintron and Ribavirin for 6 months about two years ago now, but into the fifth month became very ill with symptoms of Pulmonary Fibrosis caused by medicine and was forced to stop treatment and wait for next available cure soon to be out, omitting the Pegatron all together. Finally Solvaldi became available and I was treated with that and Ribavirin without having to inject Pegatron. I had genotype 4 so it was harder to cure. Instead of taking the Solvaldi with Pegatron for the usual 12 weeks for results, I was elected to 24 weeks instead. Tonight is my last dose of Solvaldi along with Ribavirin and was found totally undetected and clear of Hep C virus about a month ago. It's funny but I could almost feel it leave me. This treatment was provided through Illinois Medicaid/ Medicare, and apparently I just made it under the wire as they have stopped paying for this outrageously expensive medicine. The Solvaldi was $1000.00 a pill and the Ribavirin was expensive too. A total of almost $250,000.00 was paid to treat me by taxpayer's money and I thank each and every one of you. There are new drugs even better and hopefully within people's price range and grasp. It's been a long road with so much loss of work, relationships (including marriage) and income. Today, right now as I write this post, I am officially clear of the virus and can salvage what's left of my life at 57 years old. Thank you God, thank you taxpayers, and especially, thank you to the people behind the scenes in Israel that developed this cure.

David L Sep 16, 2014

Hi everybody.

I was diagnosed with Hep C in 2000. I did do IV drugs in the early 80's and also went to a very "sketchy" tattoo shop; when I was young. I don't really know when I contracted it, but does it really matter? I'm so sick of people judging you for how you contracted it. Does it make me less of a person with feelings or people that care about me if I was an IV drug user??? I think not.

Anyway I had a very low viral load for many years but in 2010 it climbed into the millions. Time to treat. I went on the standard Interferon and Ribavirin for what I thought would be 48 weeks. NO LUCK. I never cleared the virus and after 4 months they told me to stop, it wasn't working. Then in 2013 Invicik was on the market and my insurance agreed to pay.

So in September of 2013 I began my journey. I cleared the virus after 15 weeks. I was on the Incivik for 12 weeks and the rest of the 48 weeks was interferon and Ribavirin. I have never been so sick in my life and I wouldn't wish this on my worst enemy. The pain, nausea and just general fatigue were more than I felt I could bear at times. My husband and children were my rocks. I couldn't bear to tell them that I wanted to stop, so I kept going. I finished treatment in August of this year and just found out I am clear of this hideous disease for now. I have hope again. I still don't completely feel like me but am hoping that I will. I am hoping the universe will grant me health. I'm not religious so I don't thank God, I thank my incredible doctor and myself for doing what I had to do.

I AM THE DRAGON SLAYER!!!!! .

Wishing everyone health and healing.

Marilyn W Sep 15, 2014

I must have got Hep-C 1a sometime in the early 80's. I never really had overwhelming symptoms except always being tired. Then a girl I used to party with found me on the internet ant told me she had it and also my ex-wife had it. I stayed in denial until my work had a blood drive so I donated blood this was 2006. About a month later the Red Cross sent me a letter telling me I had the antibody for Hep C. So long story short I ended up being sent to a very prominent liver doctor and he checked me out and said other than your Hep C you seem to be in good health. Would you be interested in being in a clinical trial? Lucky I did because I was laid off two months later so would have not been able to pay for the treatment but because I was part of the trials the pharmaceutical company was paying for everything. So I was taking the interferon shots once a week with another drug and the drug they were testing was the protease inhibitor. I had to go back every week for blood tests for the first 6 weeks. By my 3rd visit they had the results. From week 2 my viral levels were way down. At week 6 the virus was undetectable. After 3 months they took me off the protease inhibitor but kept me on the interferon for three more months. I would get a little sick after the shots and my hair turned all gray and a lot of it fell out but I did follow up tests for three years and I'm virus free. My hair came back. My friend, that first tipped me off, passed away the first month that I started my treatment and my ex still hasn't been treated. Lately I seem to be suffering from neuropathy in my legs.

Samuel S Sep 14, 2014

This post has been a hard one for me to write. Today, I just had to share my story with all of you. So I have wrote a brief thing about my life the past two and half years.

Over the past two and a half years or so I have gone through a lot. While I was pregnant with my beautiful daughter, I found out that I had a life threatening disease. I was so worried that I would not be able to watch my daughter grow up. A month after she was born was holding her, I closed my eyes and said my first prayer in a very long time. Later that morning while she was napping, I got online and Googled studies on websites for my disease. The first one to come up was only about 5 miles from my house, so I called. A few weeks later, my life changed in more ways than one. Not only was I being treated, God had placed an amazing woman in my life. After 6 months of giving my self shots, taking nasty pills, and getting my blood drawn. I am proud to say that I am cured. The doctor at the study told Josh and I that I am a marginal case. Within 3 months of starting the study I was at a 0 virus load. Over that year of treatment I felt God with me every day. While I was still in treatment Josh and I begun to go to church. I know everything happens for a reason, if I had not have said a prayer that morning while holding my daughter, I may not be where I am today. I owe my life to God. I also owe a huge thank you to Jea for be such an amazing wonderful person. Most of all my wonderful husband for being there while I was going through my treatment, I could not have done it without you. I love u baby.

I just got home today from a GI specialist and she told me that I have a healthy normal liver.

I have been hiding this from everyone except my family and close friends. Now I am not going to hide anymore. I am proud to say I had Hepatitis C and I kicked it in its ASS!!!!!

Shanna S Sep 11, 2014

Hello to all, I am a 59 year old female who has had HCV 1A that I also passed on to a daughter born in 1994. Up to that point I had worked in the same blood bank since I first started in 1976 as a Lab Tec. Back then we didn't wear gloves, and mouth pipetted blood. I had gotten numerous finger sticks and the disease was then called Non A non B. I handled many biohazard bloods that were contaminated with AIDS and HCV pos. So I don't know when I contacted it though I felt terrible in my 2nd pregnancy. After my daughter was born and when I drank I just felt awful which alcohol didn't bother me before. With fatigue and just feeling bad in general I had blood work done and found out I had HCV. I think I had it got it during pregnancy since I was so weak and had general pain in the liver area. The biggest change I noticed was terrible depression, heavy brain fog and a hopeless feeling. I remember looking back to the way I used to be and remembered what I was like- very frustrating. I went to a psychiatrist and being able to talk and take meds did help. He would use the analogy that I was able to maintain my life till the computer crashed which was partly true but the HCV was not asymptomatic. This went on for about 17 years till I tried the Riba and the Pegacys. A good responder. I had my hopes up but stopped the year a month early due to depression and relapsed. Once my daughter turned 18 a year ago we tried again together with the addition of Incivik to the mix. We were lucky to qualify for a grant which covered the drugs except for the Procrit we took for anemia. I tolerated it pretty well but poor Cindy dropped to 91lbs, was nauseous and weak to the point of being faint. We were fast responders and were on the meds 6 months and then waited 6 agonizing months to be tested. WE are both virus free. Now I read they are going to stop Incivic since there are better, newer drugs coming out. Good news for the next generation of users. Best of luck to all and my prayers.

Robin S Sep 10, 2014

Hi. I was diagnosed with Hep C in 2008. I was 18 yrs old. I'm now going to be 24 this year. I've gone 6 yrs without treatment of any kind. I need information on what lies ahead for me. I read I little about the biopsy but I do not want to do that. I will take the meds but where do I go from here. I'm lost in all this. If anyone can get back to me with answers please do so. Thanks, have a blessed day...

Elaine p Aug 30, 2014

I started my journey January 1, 2013. It is now Aug 30, 2014. I am undetected of the virus. It was a battle from Incivek to Vectrilis. Then finally to Sovaldi. I thought it would never end. But I had a higher power that was taking care of my needs. My wife and my grandson helped me through my whole treatment. But for me God had to be there. My attitude was my only side effect. That's just me. I never once said I give up and I'm in AA but I could not surrender to this virus. I had to fight it with being positive and I keep myself busy. They say you can't hit a moving target, so off I went every day. I took my grandson and wife to the park, to the movies, anywhere they wanted to go we went. I stayed positive. I would say 60% of the time when I felt myself falling short I would grab the Baby and go to K-mart and buy him a big box of Legos the more pieces the better. I stayed busy. Made my Dr's appt. Did not give up as long as I was breathing. I was going to fight. I'm not saying it was fun but life is fun. I did not want to miss out on all the fun I had left to enjoy. CAT scan, needles, pills, Dr appt. It was my second job. There is help for anyone still suffering from this virus. Get it. Have your support group find your geno type. Find out how far along you are. Just don't give up. I have a lot more to say but for today I'm good. I pray every night for those who suffer from this disease. Do something. Do not wait. The time is now.

greg k Aug 30, 2014

Hello I'm a 56 year old male, I contracted HVC in the late 80's or early 90's, from drug use. I wasn't diagnosed untill 2008 after a mining accident. I was in stage 3 ciros. treatment was not a option. My white platlet count was down to 700 so surgery was out too. I was lost, depression took over. I was told to get my affairs in order. I was a single father of a 1 year old. I found a great doctor that put me a program to raise my white platlet count. Infusion's and transfusions for 8 months, then I was approved a trial med called Nplate. My white platlet count went up right. When it got to 145000 I was put on a transplant list. I was very sick for the next 2 yrs. Fatigue, bad nose bleeds, lots of pain. Some very dark days. I made plan's for my young daughter's future. When all hope was lost I got a call 18 months later, at 3 am on 8/22/12 they found a liver. I'm 2yr post opt. on anti-reject meds. I just celbrated my daughter's fifth birthday. I'm still HVC pos. but starting a new treatment to put a end to this story. But just don't give up, keep the faith. Believe me it's long hard road but there is a light at the end of that tunnel. Find a good Dr and listen to him, mine saved life.

mike w Aug 29, 2014

I learned of my hepatitis circa 2014. I've got medical insurance and because my load levels aren't high enough I do not qualify for treatment.

I have a new love of my life. He found out and still stuck by my side but we both yearn to have a child and I fear I cannot. Now I have to wait for a state hearing and that's all I can do. The doctors found a cure alright. They stick an IUD in and tell you they cannot help you. I don't know if I would be a fool to think "screw it" and have a child. In the mean time they say the odds have passing it to baby are 18% that's not bad odds. Someone please help. I'm open to suggestions.

Sara e Aug 28, 2014

I am about to start treatment and I am terrified. I have four kids. My son is one year old. Not sure I can do this. Does anyone have anything helpful? Maybe give me some insight? Please?

danyel p Aug 20, 2014

Hi there, I can say I am a survivor of Hep C. I was diagnosed in autumn 2003 in Romania, I never took drugs or played with needles or never had multiple partners. I use to go weekly to manicure and dentists and in 1994 I had blood transfusion-from there the specialists said I might have contracted the virus.

For 12 months I was on the treatment with Interferon and Ribavirin, and Thanks God it worked.

As someone said here, was difficult as single mom with 3 children to fight the disease and look after the house but I got an huge amount of support from my father (RIP). What helped me perhaps was everyday looking at my kids and realising that if I don't fight against the disease my kids would be lost- they needed me and I had to be there for them always and forever.

The treatment, yes, it can be difficult, all the bad symptoms of flu, depression and nausea 24 /24 7 days a week for 12 months. All those months I eat almost raw vegetables, especially carrots and cabage, and I had tried to eat as little as possible any meat, no coffees, no cigarets, nothing that would give me any burden.

There might have been days when I ate only oranges because I could not eat anything else. And, I was active, I did all the chores in the house, the first six months I was out of work but then after I started. working 14 hours 5 days a week. Was much, but I done it and again I will mention it is important to have the right moral support from family and friends.

I am ok at the moment, the viral units are not traceable and I don't know what internal damage had created the treatment-not yet.

Fingers crossed.

I wish to all of you stay optimistic and think positive, you will be the winner!

Florina H Aug 19, 2014

Got Hep C in 84 from drug needles. Off drugs since 85. In 2005 began drinking. Quickly escalated into black outs, DT's ....serious stuff. Became bedridden from alcohol, couldn't walk. In June 2007 blacked out 21 days. Body going into shock. Went to Rehab and quit drinking in 2008, havent drank since. Diagnosed with severe Bipolar and psychotic episodes. Became mandatory to take psych meds. Have been on 3 or 4 since 2009. Psych meds quickly overtaxed my liver. Now it gets quickly toxic over even a vitamin. Have serious myoclonus, chills/sweating and stutter if toxic. Need constant bowel flush to prevent toxic build up. Utterly exhausted for days but wonder if its Hep C or BIpolar?? Have almost no medical coverage. Learn most info online. Mind faded. Dizzy, trip, confused. Wonder constantly if after 30 yrs with Hep C do I now have Cirrhosis. Biggest question, "do I have Cirrhosis?"' MAy not have all symptoms but know I am rapidly getting worse.

Doctor L Aug 13, 2014

I was born a jaundice baby in 1965 and had to get a blood transfusion. That is how I got hep c. I never felt well my whole life. Went from dr to dr and couldn't get any diagnosis. Fast forward to 2012, I was getting red blood spots all over my thighs and later on my stomach, then I had horrible charlie horses and severe pain. In Jan., 2014, the blood spots became bigger and bigger on my feet and ankles, soooo much pain! 19 Doctors later I was admitted to the hospital. I had cryglobemia vasculitis due to Hep C. I was immediately put on a 12 week sovaldi interferon/ribavarin treatment. My viral load was over 4,900,000 and after 3 weeks was already undetectable. I am now 5 weeks post treatment and still undetectable. The side affects were harsh for 2-4 days per week and I had very little energy. Now I have insomnia and gained 15 pounds so I'm guessing hormones are affected as well. I have also thinning hair from the treatment, lost taste and cannot stand certain things like touching cardboard, eating with a fork but I know it wil go away. God is so good!

Amber T Aug 13, 2014

Dear Fellow HCV Sufferers:

I want to share my story because I believe that I might be able to give others hope where they feel they are in a black cloud to despair.

I was diagnosed in 2003. I was shocked and floored. I could not believe something this horrible would happen to me. I felt my life was over for awhile. My imagination went wild. I felt like I had the plague. I felt like I was contagious and like I would never know close relationships again. I told nobody about my diagnosis. Not even my family. I was in a cocoon. I still have not shared my disease with anyone but my husband and others who have it. I am 58 years old. I was feeling tired. I also have diabetes so I was in for a double whammy in my eyes. I went to the Dr. and was placed on Interferon and Ribavirin. My viral load was at 13,000,000 and I had genotype 2b. Friends told me the trick was to drink as much water as possible to fight the nausea. I had rashes and hair fell out. I worked full time through the treatment. I took my shot on Friday night when I could rest. Whenever I felt nauseous I drank water very closely to fight the nausea. I got through the treatment and hardly suffered at all. I cleared the virus and have been undetectable for 8 years. If I had not cleared it I would have kept trying. They have better medicines today and better ways to clear the virus. I tell you this because I do not want to see any of you give up. I did not and I am living a normal life today. You can do it. I hope this helps some of you who are feeling isolated or alone or frightened. Godspeed to my fellow HCV sufferers.

Kitty L Aug 13, 2014

Hep C for 50 years. Last bio stage two. Dual tx, starting late week 3 through end of tx, severe fatigue. Viral counts all negative, now 5 weeks end of tx still not detected. Some fatigue continues. Hopefully it will resolve. Now slight exercising. Within two weeks all chems normal, including over.100 point drops in alt ast. All in all, was tough at times, but not like the old feron/RIBA

Go for it.

William w Aug 11, 2014

I actually cried when I read the first story. Didn't even get through all of it really. Even so, here's mine: I'm a 52 yr. old Native American who caught Hep-C by way of a tattoo back in 94. Diagnosed in 2000 while getting a physical, I didn't take the news seriously because, I was a drinker not ready to quit. I never felt sick, never had anything really go wrong with me for a few years until about 2005. It was then that my right side starting aching from time to time. It went on like that until about 2009 when I came to the conclusion that this thing wasn't going away ever now. It was always there, 24/7. I knew what it was, but still I continued to drink my Ice beer. Then, on the 4th of July weekend of 2010, my son who was 21 at the time gave me a call. He asked me if I was drinking. I told him "yes", and he said, "I can tell." Right then and there, for some weird strange reason, I told myself I didn't want to do this anymore. I don't know why I did it, but I did. As the days went by, I felt no different. No ill effects at all. Actually started feeling better about a week in. After two weeks I felt GREAT. Side still hurt, but I felt fabulous otherwise, and this is coming from a HEAVY drinker of 10 years, daily. Anyway, in March of that following year, I visited my son who had a cold. I caught it, and that's when it hit. Like train, I was blindsided and I've never recovered. That cold almost killed me. I laid in my bed for 3 straight days never getting up. Not even to go to the bathroom. Didn't have to. When I came out of the room, my wife looked at me wide-eyed, hugged me, and then pulled away in horror like I was something unclean. She immediately took me by the hand into the bathroom, and dropped my towel robe. Everything seemed to stop for me at that very second. My life was no more. I didn't even recognize myself. For an instant, I thought it was some kind of trick she was playing on me. I can remember asking myself, "who's that? How did she do that?" I don't remember the rest of that day, nor the days to follow. You heard that right. My memory has never been the same. I don't remember the day before today that well anymore. So, a few days later someone mentioned Social Security, so I called an advocate. I was schooled that it wasn't the Hep-C that would win me a claim. No, it was the mental (why is it so freaking hard to spell world backwards? LOL!). This advocate sent me to a community clinic and that's where the nightmare really began. They threw everything at me including Oxycodone, all I wanted. Shrink pills, and pain-killers, the latter being for the pain in my side. Didn't help. What they really pushed was Diazepam. Anyway, after about 4 months, I went in and ask why I was taking these pills if they didn't help me. I was a thrown out for that one. Because I was concerned about these medications, I was given the boot. I went to my new PCP the very next day and told him. He made a few phone calls, found out what I was saying was true, and then proceeded to wean me off the valium. He didn't have to do anything about the Oxy's. I refused to take those anymore (Don't ever do this. It almost killed me.). Well, the weaning was for about 3 months, and as I know now, it didn't work. I was more anxious than ever. This crap just getting worse. I never had anything like it until stopping those valium back in 2012. Boy I was struggling. I finally found another shrink. She saw beyond doubt that I was a basket case not even being able to talk without crying. It was like I was waiting for a car wreck to happen 24/7. Stress like I never thought possible. No sleep, no eat, no sit, no nothing. I was too scared. Let me also top this off with Doctors, no matter who I went to, were telling me -- "You're fine. Your liver is only borderline, almost normal."-- BULL, I don't care what they say their tests showed. Something was not right and it was the source for my condition. Sure is hard trying to get a point across to Denial though. Now, I was still seeing the same Shrink who eventually threw her hands in the air and gave me another med that I hadn't taken before. Heard of it, just hadn't taken it before. The drug? Klonopin. After about 50 days or so, I started asking questions about that drug as well. They didn't help either. My answers came not by way of a Doc, but by researching. When I learned that Klonopin was also a Benzo, and what it could do upon re-introduction, I was floored (Ashton Manual). These Docs didn't know what they were doing. Not only do you not do that, but I have Hep C and I have to watch everything that goes in me. Yes, my education came quick. The more I read, the more danger I was in. Needless to say, I quit them cold turkey just like the Oxy's, telling no one. That was back in Oct. of last year. Those side effects are still with me. I still get anxiety from nowhere and it hangs around for days. I honestly live a life of car wreaks than I don't. I'm a textbook case of what not to do. How not to treat. Eventually I found a Doc back in Jan. who I thought took pity on me. Come to find out, he was disingenuous. I was a lab rat, still am. On February 21 of this year, I started Sovaldi and Riba. I have one day left for 6 months total (Genotype 3a). This treatment has been HELL. The anger I suffer from is not likable. Not even for me. I HATE MYSELF!!! For being the way I am, I despise it. I mean really! How do I tell my wife that I'm sorry? REALLY? Nothing can take away what I've put that woman through. NOTHING!!! Whoever said this crap is easy never had to take it themselves. There are physical effects, but they don't hold a candle to the mental part of it. It's pure torture. Never goes away. Try living with a splitting headache for 6 straight months. Have your weight fluctuate 20 lb.. for that long when you're also a cardiac patient. The COLD. OHHHH, THE COLD!!! So intolerant, and it can be 106 like it was a few days ago. Numbness. My hands aren't right anymore, nor are my feet. My ears also have pressure problems like high elevation, and it feels like little crawling bugs are trying to get out of them. I also get electrical pains behind each ear on that hard bone. When that comes everything stops, I don't care what I'm doing. It's like exposed nerve pain from a bad tooth. The kind you just can't stand. Everything turns green and then, darkness. Can't see anything for several minutes. Total Agony. These drugs I take are the cause of that one. Doc says it's my body's way of responding to trauma. Still though, it's the mental I can't get over. I don't think I ever will to tell you the truth. For those who are tired of being put off. For those who've been told that "you're fine". . . YOU'RE NOT!!! Don't let these unethical Docs fool you. If your wallet isn't large enough, "you're fine", get it? Earlier, I mentioned the Doc who's started me on Sovaldi. Well, that's only because of the end results. Think about it. Not even the VA could get this drug when I started it. They want to try it out on the poor first, and that means mentally impaired SSI recipients. Don't let anyone try and tell you different. Also, I don't care if it's a direct response to my story, I will never accept the so-called fact that I'm fine when I have an infection that will kill me young. NOT ME!!! If it wasn't for Sovaldi being brand new, and my mouth, I'd probably be dead right now. God only knows how much more harm these Doctors put my liver through giving me drug, after drug, after drug throwing caution to the wind. MOF, not one Doctor I've seen knew that starting in 97, Hep C kills more people than AIDS. Not One!!! Heck, I actually had my gall bladder removed in 2006 because of it. No tests, no X-rays. Just slice n dice with the promise that that's what the problem was. Don't be like me. Don't ignore this infection. Don't wait to educate yourself. If you haven't yet, the next time a Doc tells you that you're "not sick enough yet". . . get a new Doc.. Don't wait. Do it that very second. Just walk out, and never go back. That place will allow you to die. I mean, the entire point of medicine and its administration is to treat the condition BEFORE it gets worse with the caveat, if you have BANK. That's what they don't tell you. All those fairy-tales you've been told about the U.S. having the greatest medical care in the world is horse-hockey. It's the $$$ part they're leaving out which constitutes that statement as being a flat-out lie. I know because, I lived it. At the same time, I thank my Jesus that I did live it. Without Him, no-way I survive. No-Way!!! To give you a for instance of just how bad this healthcare system is, the Doc who made it possible for me to start taking Sovaldi now doesn't even want to see me after I'm done. I'm supposed to call for my end results 6 months after tomorrow. Yep!!! Call us. I truly wish I could hold all of you and make it better. I don't know you, but, I ache because I can't. I know what it is you run from. I know your pain, your cares and desires at your lowliest moments. Please don't let what I've said scare you. Better yet, let it prepare you. Prepare you for an absolute nightmare. . . if you want to live. That's the challenge. One day left. I very much Love You All. May my God, Jesus Christ, be with your spirits.

Mark T Aug 9, 2014

I was told that I have Hep C in April 2014. I was shocked, scared, embarrassed, and then depressed!! I just took my first dose of Osvaldo and Olysio today. I have been so tired and sick the last four months that I am scared of the side effects. Please pray for me and wish me luck like I am doing for all of you !

Aug 7, 2014

I'm a black female, 55, and was diagnostic w/hep b in 8/2000 after donating blood to the Red Cross. In my 20's, I was an IV drug user in the early 80's to 90's, and a heavy drinker. When the Red Cross contacted me about the results I brushed it off because I didn't share needles. I was always the first to take the shot. (At less I can remember it that way). So I blocked it out of my mind.

Now here it is 7/2014, after going to the doctors for a physical because I wasn't feeling very well and after waiting 15 days for the results which I had to call about (here it comes up again). Wow!!! So I got to thinking what the hell.... Still pondering the situation the Holy Spirit told me remember donating blood to Red Cross. So I got online to look up the number to call. They reminded me of the donation in 8/2000 and explain a lot of info to me more then I can say about my doctor and her staff. No call and I had to ask them to mail me my test results. On my follow up my Dr. explained that I have type b and c. And for me to make an appt for the GI doctor, plus took more blood work this time heatmax genotype reflex.

15 days go by and again no call or mailing of my results. So I called to have my blood work sent to the GI doctor and the nurse explained that my doctor hadn't read the test as of that time. 15 minutes later the nurse called me back to say that the results were faxed to the GI doctor and good news no hep c but still have hep b. Hallelujah!!!!. As I arrive to my GI appt the doctor explains to me that I have hep c geno type 1-b. WTH!!! ;(....

Now I need to get a ultrasound and a biopsy and then we can move further.

Looking online and Sovaldi costs $84,000. That sickens me. HELP!!!!

Betty L Aug 1, 2014

I was diagnosed with chronic Hep C genotype 4 in the beginning of January, because of insurance purposes I haven't done my treatment. Hoping to start my treatment sometime before end of this month. Thank you all for all your stories, it helps to read and know that there is hope. I am 48 years young with a kind and loving family..I thank God for my wife she is my rock:) I have 5 children with the youngest being 5yrs old, and grandchildren whom I want to be around long enough to enjoy life with them .. will keep everyone posted as I start treatment and hopefully I too will have a success story! God bless :))

dominic m Aug 1, 2014

I decided to get treatment. I do not know how I got this Hep C. I am going to start treatment tomorrow. I read all web sites and stories, I was scared to death. I finally talked to Walgreen's central pharmacists. My advise is stay off the internet it will make you crazy as it did me. After talking to the Walgreen specialists I feel so much better. Don't be scared talk to someone that has knowledge that has dealt with this for years. I am going into my treatment with such confidence. Just do it don't be afraid. Please. Good luck.

Jul 31, 2014

I contracted HepC in 1972 when I had a blood transfusion to save my life. I was 7 months pregnant and started hemorrhaging. badly. They had to take my baby and in the mean time replace almost all my blood. Thank God that all though they told me my baby would die, she will be 42 in Sept. i found out I had HepC in Nov. of 1999.and I have type 1A, although I didn't know that until may of this year. Everything seemed to be going well after 13 months of treatment with Interferon and ribavirin the side effects were horrendous, for me, not everyone has the same side effects. It was worth it to be stabilized. Because of the type 1A I was what is called non-responsive. They had done all they could.

Now I have 2 cancerous tumors in my liver and the Hep C is worse and some cirrhosis. The problem I have now is being approved for treatment by my insurance. I feel like they want me to be at death's door before they will help with getting the new treatment Sovaldi or the procedure for the cancer called IRE. seems like a perfect name. The insurance is the only thing holding it up. At first the Doctors thought I would need a liver transplant, but if I can't get these much cheaper treatments how the heck am I going to get on the list for a transplant. Why have I been paying insurance all these years if i can't get the help when I need it. It seems like nobody really cares, it's all about the money. My money. I feel like I don't matter as well as thousands of others.Ii know this should be just about the treatment and how it is helping or not helping me, but if I can't get treated for cancer or HepC I may not be around when the insurance company (Anthem BC) decides they might as well go ahead and approve the Sovaldi,. They should realize no other treatment has helped and now i have cancer caused by the HepC, oh that's right it is only stage 1. i guess I have to wait until I am stage 4 and cannot be helped at all before they will approve. Sorry folks. I just needed to talk about this, because I just got the second denial letter.

i hope things go better for all y'all

Charlotte B Jul 29, 2014

I'm a 62 year old female. Got HCV from a blood transfusion when I was in my mid 20's, I think. Discovered it when I applied for life insurance and they tested me. After learning about the treatment I chose not to have it. My regular doctor has been asking me to rethink my decision for about 10 years. I finallly went to talk about options again. I have 1a and a lot of it. Dr. Wants to do a scope of my stomach and a scan of the liver before recommending treatment. The treatments you guys have talked about sound horrific and I have to work every day, don't know how I can do it and keep my job. I don't want to tell anybody!

Emma G Jul 28, 2014

I really want to share my story to give hope to you all. I'm a 29 year old white female. I was diagnosed with Hep C when I turned 18. I wanted to be tested for all diseases before my insurance was discontinued. They told me there is no cure. "Eat healthy, live a healthy life style, hopefully you won't die from this horrible disease" pretty much. I was a thin pretty girl that never did drugs and got good grades. I told my mom. She got tested and realized she had Hep C too. She got liver cancer and died 4 years later. I prayed every night that I would not die from this. Then when I was 29 I got referred to Dr. Singh in OC, CA. He told me to do the triple Hep C treatment. It took 12 weeks. IT WASN'T horrible. The worst was being tired a lot. Well now I'm cured. Not one trace of the disease. Thank you savaldi! SAVALDI it's a miracle drug. Stay strong! You can do it everyone.

lynn l Jul 27, 2014

I had been diagnosed with Hepatitis C genotype 2 a year ago. I was told I had minimal liver scarring. My GI doctor treated me with Ribavirin and Interferon. It was a horrible experience during which I ended at the ER many times. The virus did not clear up. I saw another doctor specializing in Hep C for a second opinion. He told me to take a break and that we would wait for the better treatment they are working on for genotype 2. I am very scared to start the 2nd round of treatment.

Amelie B Jul 24, 2014

Hep C changed my life. I believe that if I hadn't found out I had Hep C and did the treatment I wouldn't be here today. I have now been clear of the virus for 3 years and look forward to every day as a bonus. I was diagnosed with type 2 and after a biopsy they put my liver condition at stage 3- 3.5 4. The cirrhosis was a big wake up call and all my aches and pains suddenly had a cause. I used hard drugs in the 70s and was a heavy drinker so can only blame myself. I also lived in abusive relationships; I believe resentment manifests in the liver. I left my narcissistic husband of 21 years a week before my treatment finished, he was never supportive of me during treatment or even before.

I didn't realize how sick I was until I did treatment and had almost immediate response from my pains etc. it wasn't because I was getting old or trying to get attention or arthritic as as he always tried to tell me if I complained. I was so use to putting my health on hold because his was always worse... yeah right. I gave up drinking for 3 years, did the treatment, left my husband and have never looked back. I am sure letting go of the resentment and built-in anger and grief I felt for my life has helped in my recovery. I was becoming so angry, miserable and negative with my life, but now I wake each day happy to be alive, pain free, still single but no regrets or resentments just the pleasure of been a ive and living MY life for me.

Don't Give Up there is another side to life. If you can do the treatment do it.

I tried natural methods after my wild teen years and not having used hard drugs for over 30 odd years. I brought my family up on natural therapies, so it was hard for me to resign myself to do the interferon treatment, but so pleased I finally got my head around it. I'm now 56 and feel like I'm living my life over happy and painfree.

shirl m Jul 23, 2014

I know I have had Hep C for at least 15 years or more. I found out that I had it when I volunteered to donate blood through the Red Cross. I was devastated and ashamed. I wasn't sure when or how I became infected. I didn't tell anyone for fear they would shun me and not know how to deal with it. Some would assume that just with normal contact they would cause themselves to be exposed. Lack of knowledge can be a terrible thing. My husband never contracted it from me and I have yet to receive treatment for it. The VA says because my blood work is so good I am not in any danger. Having one partner is a plus along with staying away from the use of alcohol. If I were a drinker I would more than likely have major liver damage but thank God I do not. I am still waiting for them to treat me. The cured they have had in the past have no guarantee. In the meantime, I have educated myself about liver function and Hep C so I watch what I eat and drink. The liver processes sugars and the carbs so I do limit my intake. God is on my side of course and he takes care of me.

sherry f Jul 20, 2014

I was infected with type one geno Hep C 13 years ago. 12 months of tripple therapy recently failed to rid me of the virus. I was suicidal whilst on treatment so I gave up on my treatment. A year later I decided to try again I was shocked and happy to find I had rid the infection on my own and I am still negative to date.

Ronald p Jul 19, 2014

I am a 69-year-old woman who was diagnosed with Hepatitis C almost 10 years ago. A few months before that I was diagnosed with breast cancer (2nd round with this disease), lost my job to outsourcing and was told that I had to have a mastectomy. I had the mastectomy, got my Hep C diagnosis, and fortunately was put on disability. Almost lost my house but, in the end did not.

Three years ago my only child, a daughter, died suddenly and unexpectedly. I have been quite sick from the Hep C for about 10 years and I am unable to do most of what I want to do. I continue to get sicker.

How have I survived the total change in my life and way of living, and the most difficult and painful event in my life in the death of my daughter? My faith in God. There have been many times when I have felt exactly like dying, I couldn't stand the pain and also felt that I did not deserve to be here. Every single one of us is meant to be here, even if we don't know the reason. Don't give up! Start learning to have some faith in yourself. The best way to do this is to grow in your relationship with God. He loves all of us and is always with us. I know--I have been there. Severe depression (still have and on meds for that), severe illnesses, extremely bad childhood abuse, everything going wrong in my life, etc. Yet, today I have peace in my life and trust God completely. God and I have a great relationship and I have learned that no matter what happens, He will take care of me; He loves me; I am special to Him (as we all are); and I may not know what it is but He wants me here for a while longer for a reason. I am letting Him show me day-by-day what that reason is. My story is part of that reason (maybe most of it).

So, please, those of you who want to give up and think you are worthless, don't give up. No one is worthless. God does not make worthless people. Pray and ask God to help you and show you the way. I promise you, if you pray this way every day, God will reveal it to you. Pray for faith and trust as well. Pour out your fears and problems and insecurities to God and He will give you the grace to get through whatever is going on in your life. Continue to nurture your relationship with God by praying everyday. He is your best friend whether you know it or not; we let ourselves down and beat ourselves up, but God never does!

My life is very painful a lot of the time (physically and emotionally), but I have developed a very close and personal relationship with my God, and amidst the pain there is a peace that only comes from God.

Don't ever put yourself down. Love yourself--God does!!

Nancy R Jul 16, 2014

My husband has Genotype 1A and stage two he started his Sovaldi and Ribovirin treatment and just two weeks after starting, his blood results shows that the virus is undetectable. This truley is a miracle drug. Whoever has this virus I strongly recommend this treatment. Even if your insurance doesn't cover it, go through the makers of the drugs it takes a little while but it's so worth it. If anyone needs any info on how to do all that stuff feel free to email me thank you GOD BLESS.

Freddie Cox Jul 16, 2014

I want to share a story of interest with you because it represents a problem as well. I took the Hep b injection series back in 97 and ever after I have showed up on every blood screening as positive for c. Recently I had a intensive scan done for blood pressure issues and they confirmed that I do not have Hep C. I had doctors re take my blood a couple of times over the years cause they would say they saw no signs of infection. I think........the lab people are not very hip about identifying the strain accurately and they have had me on pins and needles for over ten years.

Michael J Jul 11, 2014

I was diagnosed in 1999 with Hep C. I went on the Interferon Tx for a year, and after nine months they took me off from it, it wasnt working. My levels didn't go up or down until last year, then they went up so I tried the treatment again. I did the one shot a week and pills everyday. After four months, I developed a horrid rash all over my body, it looked like I had millions of boils, and it felt as if I had millions of red ants crawling under my skin biting me. I thought I was going to go crazy. I laid in my bed for a month, naked, itching, taking every anti itch med you can think of. Finally after contemplating suicide I went back to the emergency room one more time. Now during this time my Hep C Doctor said to continue the treatment, I took myself off of it, I knew that is what was causing it. I then started using all non chemical soaps, I did liver cleanse smoothies daily, everything I ate was organic. The ER finally gave me a series of shots and my rash started slowly leaving, it took another six weeks, and the scars are just now going away. I got my levels checked about a month after this and my doctor said the virus is non existent now. I plan on having my levels checked again in a month and I hope it is still gone.

cindy j Jul 8, 2014

My husband was diagnosed with Hep C, geno type 1A 10 years ago. Unfortunately, treatment was not started in time and he decompensated. 7 years later he was transplanted. The virus was dormant in his system for 2 1/2 years after transplant then came back with a vengeance. 5 months ago he started Hep C treatment with Sovaldi and ribavirin and interferon. 2 weeks later his test results showed no trace of the Hep C but treatment was affecting his new liver and he was sicker than he had been pre-transplant. After 3 months of that treatment the docs changed course and started him on Solvaldi with Olysio. He's been doing great ever since. Viral load is still undetectable. I had been stressing out about the copays, $2,500 a month and since he is on Medicare, the drug companies would not give him copay assistance. I found two companies that cover his complete copay. The first is The Patient Access Foundation. Once I depleted that, he got accepted at The Patient Advocate Foundation. They also cover the copay at 100%. If you really are determined to get treatment, you cannot use the "I can't afford it" excuse. ObamaCare is out there for people with pre existing conditions with little to no premiums, depending on your circumstances. Then you have Medicare and Medicaid and the two foundations listed above. I know too many people who have died from this disease but I was determined not to have my husband be in that category. It was a long hard road and some days I wanted to just crawl under a rock an die. This disease was killing me as well. Nothing worse in the world than seeing a once very active, fun and full of life man just wither away. Our lives were on hold all these years. Nobody said it would be easy but anything worth having is worth fighting for and there is nothing worth having more than your life.

Judy E Jul 3, 2014

Hiya. I'm 24 years old by a week white female. I've been a heorin addict for... well can't really remember how long but is round about since I was 16. I've now had Hep C for 7 yrs and have my first app on 28th July. I've had app in the past but never went. Problem is I drink at least 4 strong cans of lager a day and my health is terrible. I just hope that I can turn it around and be a healthy young woman again.

Kirsty B Jul 3, 2014

Getting ready to start Sovaldi and Olysio next week. Previously Page Intron and Ribavirin regimen. Did not respond to standard therapy. Side effects for me were brutal at times. Very sick while on the regimen but stuck with it for 12 weeks. Viral loading was still present, but significantly lower. Side effects lingered for a couple of weeks after stopping treatment. Looking forward the the new combination therapy.

Keith C Jul 2, 2014

I was diagnosed with Hep C in 2002 after I entered rehab for my cocaine addiction. I began using intravenously in November 2001. I tried to commit suicide in December. As a result DSS became involved as I was the mother of three children. I tried to fight my addiction. I began college and tried to push forward. Took drugs classes ordered by court. I finally decided I needed to get help. So I entered rehab. The news I received later would forever change the way I saw life. I was in denial for years before I returned to get further tests in 2007. At the time my viral load wasn't enough for treatment. I returned in 2010 as I was beginning to feel sick and tired all the time. I took Ribavirin and Interferon for one year. I was undetectable at the end of treatment. It was rough at first but I managed to continue to work throughout the treatment. I thought I was fine until March 2013 when I had a Doctor appointment with a Rheumatologist. My blood work came back with my liver enzymes being high. I went back to my Gastroenterologists and my worst fears were confirmed. My Hep C had returned. In august 2013 I began the three prong treatment which now included incivek. I now know that incevex is the equivalent of chemo. I was so sick. I was supposed to eat 20 grams of fat for each dose of two incivek three times a day. Whatever. I couldn't eat. I lost 55 lbs. I literally tore the flesh from my arms and legs from the meds. It felt as though it was coming out through my skin. Extreme itching. I looked like a meth head. I was not informed of this even happening. The itching finally subsided. I found myself throughout my treatment feeling like I was getting more tolerant of the treatment to only lapse further into darkness. I can't tell you what all happened during that time. I still cannot remember the day's events to this day. I began to color and watch cartoons. It was like I was back in my childhood. It was pure hell. I have felt like I've been rehabilitating since December 2014. I don't think I'll ever be the same mentally. I have become an agoraphobic. I have irrational fears of claustrophobia thinking of the worst possible situations. I'm so glad to finally find out that others are still affected like myself. I'm glad I'm cured but I didn't want to feel like an invalid the rest of my life. I'm miserable. No one understands. Everyone thinks because the treatment is over I'm fine. Even the Doctors think the same. They have no idea. I used to be so smart but now it's hard to even remember and stay on topic in conversations. I lose hours everyday. I get told things I do the day before. I'm just lost in this world now.

michelle l Jul 1, 2014

I think I became infected in the 60s fooling around with needles and the stuff that goes with them. I wasn't made aware of it until '95 when my blood count came back high after a good drunk. After several tests it was confirmed I had the virus. But I wasn't sick and have never been since the intial test, my blood counts have been normal but on the high side of normal. Recently my Doc recomeneded the new treatment since I would be a good candidate for success. I am a little scared since I have never been sick. The cost is a factor too. Is there any down side? I can afford it since insurance will pick up all but 10%. What should I do right now? I think I am going to go for it. Thanks

Stu S Jun 27, 2014

Hi all, I was first diagnosed in 2002, and started my research. The only treatment available had severe side affects and a 20% cure rate. With many new drugs on the horizon, I decided to wait, and chose an alternative medicine route. It did help for a while, however my platelets and WBC dropped. I was diagnosed with genotype 2, the magic number. I recently started the Sovaldi/RibaPak treatment. There have been some side affects, however within three weeks, my levels are normal. I will be continuing for eight weeks, totaling 12 weeks. Hang in there all.

Pat P Jun 26, 2014

I am writing in response to Sandy I.

Girl stop this--- I am soooo there with you. I do not know what it's like to lose a husband, other than through DIVORCE. But depression comes in many colors. I wanted to die over and over for TOO many years. All the while I was caring a secret. I had Hep C and too afraid to do anything about it. So I kept the lie inside me. I drank as much as I could, hoping the alcohol would kill me or I would run off a bridge and die. I have been married 3 times but my last husband, the only one I loved, left me with "THE FRIEND".

I argued with my adult children which some of them still do not forgive me for the things I've done and said. I moved in with a man that I've lived with for 10 years that really could care less if I'm here or gone. BUT I AM GETTING TREATMENT starting today. After my divorce 12 years ago, everyone that I had loved either wanted me locked up in jail or in a psychiatric unit. I knew I needed help. So I went to school and took drug and alcohol classes. I received the help I needed to make it through that part of my life it may not have been the conventional manor but it got the job done. Sandi, life is worth living please girlfriend; reach out to this wonderful man who must love you very much. BE UP CLOSE AND PERSONAL WITH HIM. TRUST HIM AND YOURSELF. I've had so many friends to either die or kill themselves, those of us who are left behind it's not fun! I know its hard. I had an 18 month old grandson (extended) murdered a few years ago. I thought I'd lose my mind. I did nothing but cry every where all the time for months. You can do this Sandi, I promise you. With God and you, it can happen. I know this pain must be great for you to reach out like this, hang in there. Look for the good and I promise you can get through this BUT 1ST you have to find a reason to do that. I wish you happiness. Robin

Robin K Jun 25, 2014

Hi, I'm 27 years old, from Romania. I found about HCV at the end of last year, in Nov 2013, when I did my first semester pregnancy tests. This wasw our first baby, very expected, so were veeery happy... It was like a thunder... I cannot understand why, how I could have gotten it...never had surgeries, never taken drugs, no tattoos, don't get manicures, only 2 dentists visits ever (probably one of them grave me this), never donated blood...just don't understand. Fortunately, all other analyses are ok, my liver is not affected. Yet, now I expect our baby girl to come any time now. It's a bit sad I won't be allowed to breastfeed her. Most important it' s for her to be healthy, and I hope That one day I will receive the new treatment for this virus...or maybe I can join an experiment, or find an association that helps people with HCV...In Romania, the triple therapy is not even allowed yet. And unfortunately, the disease must be much more advanced for someone to receive the treatment... : (

Mandy G Jun 25, 2014

I was diagnosed at age 11. I found out I received it at birth by my mother. We did not know either of us had it until we were both tested. I did not receive treatment however, until I was 17 in the recent dreaded study with the triple treatment. I luckily, only had to take it for 6 months. I am 18 now 3 months done with treatment and cured. My hair is pretty much gone and destroyed, my energy is pretty much the same as before and my mood is still insane with rage and I can't control it. I've damaged my relationships as well as my grades in my senior year of highschool, and I'm still on other medication to keep me somewhat stable.

C W Jun 22, 2014

I was diagnosed with HCV in February 2014. I was shocked when the doctors told me I had it. Never had I done drugs that involved needles nor had I ever had a blood transfusion. I wondered and wondered where did I get this from.... why did I catch it? I cried for days and didnt eat when I first found out. Now that I have researched Hep C and its transmission I have more of an understanding of it.

I had previously been working in the healthcare field and had also gotten few tattoos a few months prior to learning I had this disease. Although I went to a professional tattoo artist each time, I see now that even in professional settings disease control is very important. I will never know where exactly I got this from as I took safety precautions as a medical staff and thought I was doing good by getting professional tattoos.

Im excited to start my treatment. Since I found out I have been very depressed and everyone around me is starting to see it. They keep saying Im not myself but nobody knows or understands why. I feel like I need to take this on all by myself because its so embaressing.

After my treatments are finished I hope to get my life back on track. Before I read about treatment options I had convinced myself I was meant for death and that I could never again fall in love or carry another child due to this.

Im hoping going through my treatment will provide me with stability I once had. Im not even 21 and this is really scary for me. I have my whole life ahead of me and now I feel secluded and alone. I miss not having to worry about spreading a serious disease to everyone I love. Id like to get back on my feet soon.

R L Jun 16, 2014

It's down to five days left of my 36 weeks triple therapy treatment for Hep C with Victrelis. It's rather hard to believe the end is so close. The old saying "bad days" is hardly applicable for this experience. There is just an seemly endless progression of days, with plenty of bad ones thrown in. Fortunately I now live in New Zealand. So there has been little finical burden in treatment, $30 for 9 months prescriptions and hospital visits free. Oddly my liver is normal after 20 years plus with this disease. I have drank plenty of alcohol, but as the good-ole-boys in Virginia use to tell me "don't let the drink lay on your liver sonny", meaning give yourself a break and don't drink daily. I like my own cooking and I've been told that's the key to this minimal damage of the liver, there is no other explanation frankly. And my eating habits have never been some crazy regiment of "healthy"; eating, surrendering to the whims of latest trends. Just a varied, sometimes greasy, sometimes fatty, diet cooked fresh.

I can honestly say that what's on offer in cures for Hep C are medieval. But at present its all we have and as awful as the side effects, it worth the effort.

If you have this disease do what you can to cure it and if your waiting and pondering; like your own cooking and give yourself a break sometimes from alcohol. Then worry about the #7 bus knocking you down in the crosswalk. . .

Bruce A Jun 16, 2014

Old methadrine and heroin addict, Ray N, gave me Hepatitis C. I was 19 and he wanted to hook me on heroin so I would stay with him, continue to work my good job, and support him. He stole from me, my family, my friends, and pulled an armed robbery at my good job, stealing, forging and cashing $3K of my startup company's payroll checks and buying himself a fancy suit, more heroin, and a plane ticket from California back to his home town in B, Ohio back in 1969, where he was later arrested for more armed robberies and finally incarcerated. I dumped him when I was 21 and moved to France at 22 to rid myself of him, after paying off all the debts he left me with. My job, friends and awesome new French boyfriend saved me and showed me what life really could offer. I never became an addict, but he sure did try to make me one. I did end up with Hepatitis C though, thanks to Rain, Rainmaker, Ray (real name Melvin). May he receive the karma he deserves for all the innocent people he harmed (17 year old girlfriend he dumped in Ohio with his child (and lied to me about), little old lady whose purse he snatched when she answered her door, crippled boy and kids on welfare whose welfare food he stole and whose father he helped get heroin, and the countless innocents he robbed) in California in the late 60s. He wrote a book about it and people actually pat him on the back because now he is a christian and right-wing conservative against liberals whom he said "loved him to death" trying to help him in all the mental institutions and drug detox hospitals I helped get him into which were funded by the tax payers of CA. I regret ever having tried to help such a creep. I saved his life numerous times, like when he slit his wrists in my car because he said I did not love him, or when he faked suicide in my bathtub when I came home from work saying I needed to see if I REALLY loved him (or was ready to leave him... which I was). I worked so hard and got him into methadone clinics and programs for the mentally ill. He always came back out and stabbed me in the back. I got Hep C the first time he shot me up with one of his dirty needles. He repaid my saving his life by giving me this disease. I will never understand why horrible people like Ray N are allowed to live while good people die. The world is not fair. It favors the manipulators over the honest, hard-workers.

Jun 16, 2014

I got Hepatitis C in June of 1999 while working at a credit union from money covered in blood. I paper cut myself from the money trying to be extra careful. Even though I washed my hands immediately right afterwards. A few months down the road I started feeling fatigued and figured it was from working so much. Then after feeling nauseated for three weeks straight I made an appointment with my primary care doctor. He did a bunch of tests and it came back I had been exposed to Hep C but said my body would likely fight it off but we would test again in six months. Genotype 1B. In the next blood test I had gone from being exposed to to full blown. He sent me to a specialist since he really didn't know that much about it. The specialist put me on Pegylated Interferon and Ribavirin but after six months he stopped the treatment because he said I was not responding. He then told me to get all my affairs in order and I needed to be put on a transplant list and if I was lucky I might make it 5 years. Lucky for me my work changed insurance companies and he was not covered by the new insurance. I then started going to the Mayo. They said I should never have stopped the treatments, put me back on them and told me I was responding, that I was a slow responder. I continued to work while doing the treatments. My insurance did not cover much of the meds. I stayed negative for 3 months and then relapsed. So I tried the next treatment that was available and the next and the next and so on. Still I continued to work the whole time I was doing the treatments. I was afraid of losing my job and insurance. Most of the people I worked with did not know I had Hep C, only a few close friends and my boss only found out when she eaves dropped on my close friend and I while we were talking. Then, boy did they want me out of there. I told them they had nothing to worry about and the only way anyone could get this from me was through contact with my blood. As I continued to do treatments and work they would get on me because I was not chipper and smiling all the time. I told them I was not feeling well but that didn't matter. I was suffering from extreme fatigue, crying, unable to sleep, fever, flu like symptoms, joint pain, brain fog {I would literally forget how to do things I did on a daily basis}. Just plain not feeling good, feeling like I was burning up, hot flashes, even got lost a few times while driving on treatments, anxiety, depression, which I had never had before I got the Hep C. and anemia {had to have a couple of blood transfusions because of this} from the interferons and all the rest of the stuff that goes along with Hep C. You think about dying a lot, it's a reality check, you realize death is really just around the corner. They let me work 4 ten hour days and then let me have Wednesdays off for my blood work and Doctors appointments. Mind you, after every treatment I would relapse, but my liver did responded to them. I was getting ready to start a new treatment when we got a new manager who decided to take away my Wednesdays off and make me work six days a week and shorten my hours. She made it very clear I was not needed there. Fortunately for me when she told me this it was the day before my day off. So when I went to my Doctor appointment I told her what was happening and she put me on Family Medical Leave effective immediately. While on medical leave my work terminated me. Which I have to say was more of a relief than anything since I just couldn't do it anymore. The stress was just to much. I was very shocked and upset by some of the treatment I got from some people. Not wanting me to get near them, touch their children or even let me in their homes. It was a real eye opener. The treatments have been hell and I almost died during one treatment, got a bladder infection and I couldn't fight it, went down hill real fast and ended up in the hospital, I didn't care if I lived or died at that point. Spent a couple of weeks there and had to use a walker when I got out cause I was so weak and I still have the Hep C. I still feel like hell too. But I do still plan on trying the next treatment that is coming out that doesn't use the interferons. I have lost a lot of my fight though. They say you need to have a good support system in place but nobody wants to hear what you have to say about how you feel or whats going on. They just don't get it. They also say that one can have this for years and not have any symptoms, I don't buy that, they have symptoms, they just don't know what is going on but they know something isn't right. I want my life and health back. I was very healthily until I got this. I'm tired of feeling like this, just plain not feeling good. Nobody ever says if once they get rid of this stuff, do you actually feel better, does the fatigue go away, the fevers, aches and pains, are you able to get a good nights sleep and all the rest of the stuff that goes with Hep C?

cat t Jun 13, 2014

I am a 62 year old female who contracted Hep C in 1972. I went through drug therapies 5 times over the years and was a non-responder. I had a hard time with the therapy and was quite sick but finally the virus has been cleared. I have had the symptoms from the disease and symptoms from the drugs, but my advice is to not give in to depression. On paper my story looks sad. I had to work and I was a single mom for a long time but my advice is to keep fighting for your life. Treat yourself kindly and learn to exercise gently (I do yoga), eat good healthy foods, keep moving and stay interested in life, your hobbies, friends and family. Don't smoke, don't take recreational drugs or drugs in general if you can avoid them, don't drink, and train yourself to be hopeful and helpful to others. I am so grateful for the life I have and what I have learned in the struggles. Someday they may be able to treat this disease without such damaging chemicals, but I am so thankful that I was able to make it through to the other side. I wish the same for you.

Tina O Jun 13, 2014

I have probably had the disease for 40 yrs My misspent youth. Didn't find out until almost 20 yrs ago after a blood test that showed elevated blood counts. Never had treatment never had symptoms Don't drink much a few beers a week maybe. I do like the 420. I am now considering treatment but I am not sure why I am 67 and not sick. I am fairly active and in decent shape I guess treatment will depend on cost. I can afford it but do a I want too? Thanks

Stu S Jun 12, 2014

I've had Hep C since Vietnam. I have cirrhosis as well. I've been on treatments since they first have been available, beginning with a single drug,'interferon'. I was on that for a year. And did well until I came off it, then the virus came back. I did it again for 6 months, and same thing. Since then, I have been on every known FDA approved treatment, including one you don't hear about often, Infergen. Long story short, I'm on Sovalid now with my old buddies, Riboviron and Interferon. I'm doing ok with them as far as toleration goes. I'm a bit tired but I just keep moving along and that makes a difference. For those of you lost in depression, you should seek help for that because it's very important to have a good mindset while you're on this stuff. Hang in there no matter what and thank the drug companies who have worked so hard to come up with this stuff. Everyone bashes them until they are dying of cancer or something and there's a drug that can save their lives. Then you don't hear complaining. And no, I do not work for a drug company.

Victor D Jun 11, 2014

58 year old male been diagnosed with hcv 1a 04/14. yeah did a lot of research on the subject. to all of you who had gone through the peg/rbv standard... God Bless You. You are my Heroes. my type contains 2 snps c/t, c/g. it was noted on the review that this was not responsive to peg/rbv treatment. "unfavorable outcome or decreased likelihood of svr." in all, my test results and abdomen ultrasnd look good. i am at 6,000,000 iu. thanks to my wife we eat and live well. i am considering some of the new treatments. perhaps be the guinea pig as trials are still going on. will try to keep you informed on any outcomes.

Lee H Jun 10, 2014

Hi, am suffering from hepatitis c type 4. is there any hope that i may get cured? what foods should i not eat or should i eat? I am from a poor background and a developing country, are there any good people/organizations who can support me to treatment? any advise is highly appreciated. thanks

Charles M May 12, 2014

I'm a 53 yr old male. I was diagnosed with hep b in 1984. I was intravenously using drugs. I had jaundice quite bad. 20yrs later I was checked to see if I still had it. In grown males hep b usually clears itself. The virus was almost clear but it was found that I had also contacted hep c as well.. my viral count was only 10.000 so it was thought that I hadn't had it for long. I was also genotype 1a the worst type of hep c to get rid of. I had been told all the horror stories and believed most of them. July last year (2013) I began interferon treatment with the new treatment protein inhibitors. I was on the new treatment for 12 weeks but continued with interferon and ribaviron for a further 48 weeks. The side effects weren't anywhere near as bad as people made out. Depression wasn't nice and small breathing problems and skin problems. Other people have worse problems than I had but others have less problems... But I am happy that I've completed the treatment and now waiting for the 6 month all clear. My hep nurse told me that if its still clear after 3 months its 96% that it wont come back.

There are other new treatments available now and others waiting to be licensed and one of the new drugs is just a 6 weeks course of tablets. Treatment has come a long way for hepatitis. My advice is to listen to your hep nurse and to do the treatment.

Carl lancaster.

My email is [email protected] If you would like to ask me any questions please do. Just email me and I will get back to you.

carl l May 12, 2014

I am a 51 year old woman. I was in a car accident when I was 17 and 8 months pregnant. My husband was decapitated. A year and a few months later I got hepatitis c. Currently I am very depressed, also I am bipolar and a liver specialist would not treat me however he had a biopsy done my first 1 and told me I was genotype 1A he said the a is for awful thats how I remember my genotype....also that I was in stage 2-3....Today I am very depressed I am always fatiqued and do not sleep well, My ankles swell and they hurt so do my hands. I have a very bad back and I take 30mgs of oxycodone 4 times a day....along with my bipolar meds zoloft and tegratol. My primary care physician is too busy to check my viral load.

I feel like ending it all right now, I cry all the time.

I am also in menopause, was recently married to a wonderful man and I don't know why he married me.....I have dupytrens sydrome my hands hurt ,spinal stenosis....My gland is swollen in my neck, I am smoking more cigerettes then ever and I keep getting turned down for my ssi...I am sorry folks but I just don't see the sense in being alive anymore all I am doing is taking up space.......

sandy l May 8, 2014

Hi All!

I wanted to share my story in hopes it may help out others with questions. I am a 35 year old, white male and In June of 2013 I began feeling very ill and confused all the time, while also noticing I had very dark, almost brown urine was nauseous and itchy. This was about 4 weeks after obtaining a "home" done tattoo. I went to see a Gastroenterologist and in August of 2013 I was dx with Genotype 1A Hep C and after scheduling a liver biopsy it was confirmed that I had Grade 2 liver inflammation and a HCV Viral load of 130,000. My Gastroenterologist recommended starting HCV treatment.

I waited until March of 2014 to start because Sovaldi hit the market and since my count was so low as a recently infected individual, my Dr thought this would be best.

I had so many questions and with all the literature out on the internet I didn’t know what to make of it all. I was still very tired and had the "brain fog" and had daily pain to where it felt like someone was squeezing my liver tightly. So I started my treatment on 03/07/2014.

I noticed within a couple weeks that the pain was slowly fading away and I felt like I had more energy and actually caught myself smiling and laughing for the first time in months. My first viral load test 4 weeks post treatment with Sovaldi, Interferon (CoPegus) and Ribavirin, came back with no detectable viral infection. I was ecstatic. I am now into the 9th week of treatment and after I finish the next 3 weeks I was told I could come off the meds. My side effects have been tolerable and with the exception of nightly insomnia, occasional headaches, and aches...it has not been too bad.

I am fortunate that my infection correlated with these new breakthrough meds and haven’t suffered for as long as others. I wanted to say to everyone that I know what you are going through and if you have the option to go through this new Sovaldi triple therapy, do it! There are tons of assistance programs out there and your hepatologist or gastroenterologist can get you in touch with the right people and support groups.

I am what they are calling a quick responder and I am hoping to obtain SVR since this was caught early. I will be getting my last set of Labs done in three weeks before the 12 week "post treatment" Labs. Whether or not I am ultimately "Cured" is only something time will tell but to others who have failed treatment or who is starting treatment for the first time, talk to your Dr. about Sovaldi triple therapy. So far, it has been good for me with tolerable side effects and my prognosis is good.

All my love to you all and take care. God Bless.